NSUN Bulletin Monday 13 May 2019

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Welcome to the Tuesday 13 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk

Mental Health Awareness Week 

Hosted by the Mental Health Foundation, Mental Health Awareness Week takes place from 13-19 May 2019. The theme this year is Body Image – how we think and feel about our bodies.  Included in this week's bulletin are articles and art projects exploring this theme.

"The healthiest form of projection is art"  

~ Fritz Perls 

As expected, there's a lot of focus on the role media has to play on idealising body representation. 

Today's Guardian article reports on the Mental Health Foundation's survey, which found one in eight people aged 18 and above have been so distressed about their body image they have thought about killing themselves.

Read more about Mental Health Awareness week on the Mental Health Foundation's website and follow the hashtag #BeBodyKind

NSUN News 

Some of our recent work

#HardlyHardToReach peer learning programme

Dominic Maukuvachuma and Sarah Yiannoullou presented at the HEAR Equality and Human Rights Network and Race on the Agenda (ROTA) three-day peer learning programme on campaigning and lobbying for mental health equality 2 May. Dominic and Sarah presented on 'Effective leadership and building a political platform'. This included the Reigniting the Space project and the 4Pi National Involvement Framework.

Find out more about HEAR events.

King's Fund report on Mental Health Outcomes

NSUN attended the Kings Fund round table event that presented their report ‘Outcomes for mental health services: what really matters?’. The report includes a case study provided by NAViGO on page 24 which is the one of the only mental health care providers that does not use control and restraint.

NSUN Members' Manifesto

NSUN's Members' Manifesto is one of the documents referenced as one of the guiding principles for the National Independent Living Strategy, Independent Living for the Future – Our vision for a national independent living support system published by the Reclaiming Our Futures Alliance (ROFA). The Members' Manifesto is currently being reviewed and will be published later in the summer.

NICE Guidelines: Management of Depression in Adults

In November 2017 NSUN joined a number of other organisations concerned with the methodology for the revision of the Recognition and Management of Depression in Adults guidleine. There is an upcoming meeting with NICE 24 May to discuss the campaign. You can read more about the campaign here.

The Value of User Led Groups

NSUN’s main campaign in 2019 is the value of user-led groups - that is demonstrating the huge value of user-led groups in our society and fighting the cause for their survival. Later this month we are meeting together with other groups and stakeholders to share and raise the issues and look at what we can do collectively to address them. You can read the summary findings of the survey we conducted with members here. 

FSI has published it's latest perceptions on the small charity sector here. The Small Charity Index is the FSI’s quarterly ‘Pulse of the Sector’ report

Jobs and involvement opportunities - already shared

If there is still time to apply or get involved, you can find previously shared opportunities on this page.

Visit our Youtube channel. 

Featured blogs and articles 

Body Dismorphic Disorder (BDD) stories

Here you can read a selection of personal stories about the struggles and affects of BDD from people and their families.

Body Dismorphic Disorder Foundation

The Need to 'Do Something'

Akiko Hart writes about social media and self-harm. 'If we ban pictures of self-harm on social media, what we risk is silencing and isolating those in most pain and those in most need of connection.'

The Sociological Review

A Day with Body Dismorphia

Michelle Threadgould's personal essay published as part of the Orange Dot  mental health series.

Click here to view the full NSUN bulletin

Carewaves Newsletter - Issue 1 of 2019

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Read all about it! The latest edition of Carewaves has arrived and is available for download now on our website via this link – Carewaves issue 1 of 2019.

Carewaves is full of articles about what we and other organisations have been doing to support unpaid carers. You can also find out about funding we have secured from the National Lottery Community Fund to continue and develop our Carer Support Hubs and volunteer run Mentoring Service.

As always there are details about our free courses, workshops and forums. There is also information about our plans for Carers Week 2019 (10th – 16th June).

You can also read about:

Our Home Care and Advocacy Services – what they involve and how we support unpaid carers;

  • Changes to dementia services in Hertfordshire; and

  • Our work with young carers including a review of our 2019 Young Carers’ Conference. You can also find out about a contract Hertfordshire County Council has awarded us that will enable us to build on the support we provide to young carers and their families.


Given the ongoing pressure on public money, our Trustees have decided to refresh our Fundraising Strategy with the aim of raising £150,000 per annum. This extra money will make the charity more resilient and allow us to continue developing innovative services. We already have some very committed volunteers who help us with fundraising and we recognise the hard work they put in. However, we know that we need to do more and plan for the future. The Trustees want to make sure that the refreshed Strategy and accompanying Action Plan are co-produced by carers, staff and volunteers. They also want to develop guidance to make sure that all our fundraising activities support and complement our values. We would really like to hear from any carers who are willing to be involved – if you are interested then please email contact@carersinherts.org.uk with the subject title Fundraising.

 If you need advice or support about your caring role, please contact our Carer Support Advisors on 01992 58 69 69 or email contact@carersinherts.org.uk and someone will help you.


Regards

Steve Delaney, Interim Chief Executive

NSUN Bulletin Tuesday 7 May 2019

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Welcome to the Tuesday 7 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Supporting NSUN 

Despite yet another uncertain period NSUN tentatively celebrates its 12th year (and 10,000 Twitter followers!). Not quite a teenager and no longer a child, we find ourselves at the awkward age of finding our place in the world. 

Our members have had a lead role in defining the network by telling the stories of the past, sharing current issues, and prioritising for the future. Because of your generosity NSUN is finding its position and more confidently challenging unacceptable practice and poor policy decisions.

Together we are fighting to be heard and to be treated with dignity and respect, but in the last few years the collective voice of people through groups and networks has been severely depleted and neglected.

Do encourage others to join us and contribute to our growing network and campaign to protect the independent voice and autonomous action.

Please click here to see the entire bulletin

'Getting Carers Connected’ Events in Hertfordshire

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Hertfordshire Partnership University NHS Foundation Trust are planning to deliver 3 separate events ahead of the Carers Week 10 -16 June.

  • 4 June at Waverley Road St Albans AL3 5TK (6.30 pm to 9.30 pm) for Community Mental Health Service (Adults)

  • 7 June at The Colonnades Beaconsfield Road Hatfield AL10 8YE. The 10 am to 1 pm session for CATT/RAID Services

  • 7 June at The Colonnades Beaconsfield Road Hatfield AL10 8YE. The 2 pm to 5 pm session for CAMHS Services

Click here for the flyer to find out more

Shaping the Future: Keeping Connected

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2019 is going to be a very busy year for us at Herts County Council and we would like your thoughts on how we can continue to improve services in a number of areas,

1. Breaks for carers

2. Carers support

3. Community meals (formerly meals on wheels)

4. Older people’s lunch club

In order to include the views of people who use these services (or may be affected by them in the future) we would like to invite members of the public, carers and representative groups to attend an event to hear about the current services and to consider in round table discussions how they think they can best be delivered in future. The events will be held on 2 separate dates so please select only one event.

On both occasions the event will commence with coffee and registration from 10am, with the sessions from 10.30 to 1pm followed by a light sandwich lunch. We will have forms available at the events so that members of the public and carers will be able to apply for reimbursement of travel costs and replacement care.

To reserve a place at one of the events please book here:

16th May, The View, Panshanger Golf Course, Old Herns Lane, Welwyn Garden City AL7 2ED

20th May, Stanborough Centre, 609 St Albans Rd, Watford WD25 9JL

Alternatively if you are not confident using an electronic booking system please contact our support team on 01438 845016 who will take your booking over the phone.

Please let us know if you have particular needs or dietary requirements:

Self-harm and suicide questionnaire Herts Safeguarding Board

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Hertfordshire Safeguarding Children Partnership (HSCP) and Hertfordshire Safeguarding Adults Board (HSAB), they are very keen to ensure that the voice of service users is included in the Learning Hub and have asked Viewpoint to help facilitate meaningful service user involvement.

To access the questionnaire please click here

The closing date for responses is Monday 13th May 2019; please send your responses to info@hertsviewpoint.co.uk or Freepost RTUT-BUKL-JBZB, Viewpoint, Unit 28, Weltech Business Centre, Ridgeway, Welwyn Garden City. AL7 2AA.

Also, Ruth Fennemore (Development and Commissioning Manager) Family Services Commissioning Children's Services would like service user (SU) representative(s) to attend one or more of the local forums to join in the group table discussions at the end which will focus on the attached questions. To enable meaningful SU rep(s) involvement / engagement I have asked Ruth to complete a Viewpoint Involvement Summary form. If you are interested in this involvement opportunity, please get back to Leslie on leslie@hertsviewpoint.co.uk

NSUN Bulletin Tuesday 23 April 2019

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Welcome to the Tuesday 23 April 2019 edition of our weekly ebulletin.

This week's edition features some important involvement and influencing opportunities.

Four years ago NSUN and partners published the 4Pi National Involvement Standards. It is now widely referred to and used by organisations and groups across the country, and internationally.

More recently the Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities. You can read and download the Co-production guidance and tips papers here.

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.

Remember to  email us any news or information that you would like to share.

Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give

Click here to read more

NSUN Bulletin Monday 15 April 2019

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NSUN Bulletin Monday 15 April 2019

Table of Contents

  • NSUN News

  • Selected blogs and articles

  • Do you want to be employed as a co-researcher on a project that aims to tackle ethnic inequalities in severe mental illness?

  • Book: Illness as a Metaphor

  • Dear GP zine - call for submissions by 21st April!

  • Passionate about PeerFest?

  • Gig Buddies for Good Mental Health - Brighton & Hove

  • SUN Network - Cambridgeshire

  • Lifecraft in Newmarket

  • Positive Mental Health Group - Birmingham

  • The Bridge Collective - Exeter

  • Exploring Mindfulness and Voices

  • User-led Women's Mental Health Network - turn up the volume!

  • Let's Talk exhibition

  • In the news

  • Dates for your calendar

  • GOV.UK news

 

This week's edition features some of the 'user-led' networks and groups from around the country that are running local activities and events. You can find out what groups are in your area on our website by searching the directory.

April is National Stress Awareness Month. Running since 1992, it aims to increase public awareness about both the causes and cures for our modern stress epidemic. The Stress Management Society says that 'despite this running for 20 years we have got a long way to go. According to the Mental health Foundation 74% of UK adults have felt so stressed at some point over the last year they felt overwhelmed or unable to cope.'

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here

Remember to  email us any news or information that you would like to share.

Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give

NSUN News  

Groups that applied to the National Lottery Community Fund Leaders with Lived Experience pilot programme heard the outcome of their applications 4 April.

Only 15-20 grants of between £20,000 and £50,000 were available but over 660 applications were received. As this is a pilot programme, it's hoped that the demand and the success of those who are awarded a grant leads to a full programme of grants in the future.

Obviously there are a lot of disappointed applicants and we know that quite a few of them are members of NSUN. We're hoping there'll be some mental health user-led groups and initiatives that have been successful but until the list of grants awarded are published we're not sure what the range of groups and work are.

When a funding opportunity arises that seems to speak directly to your cause it feels even more disappointing than usual when you're unsuccessful. We do know that grants like these are needed more now than ever.

Groups and organisations in our membership who aren't providers of services are finding it almost impossible to attract funding and are being told that they're too political, too radical, not professional enough and in some cases too professional. How we describe ourselves is becoming more complicated due to varied expectations and the use and adoption of particular language and terms by other organisations, thus making it harder to communicate the distinction and uniqueness of 'user-led' groups.

Co-producution, peer support and participation is everyone's business and in many respects that's what we've been lobbying for over the years. It's difficult when we can't reconcile the practice we experience with the language though.

NSUN recognises that the language of rights, self-advocacy, leadership and community activism cuts through this but we also need to look at clearly defining user and peer led initiatives.

We need to make sure that we can continue to pressure for change, the right change, the change that benefits our communities, not disadvantage them further. For this to happen we need powerful communities and the infrastructure and initiatives that help us come together. We need to continue to highlight the challenges and inequalities that individuals and groups are facing within our communities, but we also need to celebrate and promote those that continue to do what they do against all the odds. We also need to reclaim and reframe some of the language being used and adopted.

Let's hope there are more and not fewer opportunities such as the Leaders with Lived Experience fund. You can find out how to apply to the National Lottery Community Fund here.

The Value of User Led Groups - 2019 campaign UPDATE

 We are looking for more groups to complete the survey 

 If you're a user-led group we want to hear:

  • What does your group do?

  • What are your successes?

  • What are your challenges?

  • Are you self-funded or do you get support - if so, from where?

  • How hard is it to get funding in the current climate?

  • Do you have any views about government funding for mental health?

We want to gather as much information as possible before we meet with other groups and organisations 21 May. Visit our website for further updates on the campaign. Complete the survey or email info@nsun.org.uk.

Co-production guidance and tips

The Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) have produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities. You can read and download the Co-production guidance and tips papers here.

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A short video and the Soap Boxes from our Members' Event in October 2018 is now available. You can also browse our Annual Report 2017-2018 here.

You can view the Principles of Peer Support Charter here.

Selected blogs and articles 

The impact of racism on mental health

Alison Faulkner's briefing paper summarising the evidence on the impact of racism on mental health, produced by the Synergi Collaborative Centre

They have produced four briefings to date – this one  The impact of racism on mental health (PDF)  and three others:

  • Ethnic inequalities in UK mental health systems

  • The importance of participatory methods to research and system change

  • Ethnicity, severe mental illness and categories

Synergi Briefing Papers provide summaries of the evidence and formulate a foundation for their work by reflecting the approach they are taking to their work and underlying values. 

Do you want to be employed as a co-researcher on a project that aims to tackle ethnic inequalities in severe mental illness? 

 DO YOU:

  • have lived experience of severe mental distress?

  • identify as African, Caribbean, South Asian or mixed heritage?

  • have interest in advancing our understanding of

  • ethnic inequalities and severe mental distress?

  • want the potential to make a difference in mental health services for ethnic minority people?

Do you want to be employed as a co-researcher on a project that aims to tackle ethnic inequalities in severe mental illness?

Synergi Collaborative Centre is recruiting 4 co-researchers on a casual basis to work with academic researchers based at the University of Manchester on a qualitative research project exploring the life stories of ethnic minority people - those with severe mental distress and those who work with them.

What does the post involve?

  • undertaking intensive training in research and qualitative lifestory interviewing & analysis leading to accreditation with the Open College Network

  • conducting in-depth one-to-one life story interviews

  • helping facilitate focus groups with different groups of stakeholders

  • co-analysing and disseminating the findings

  • regular support and supervision throughout the research process

Salary: £19.40/hour [Travel related to the post will be paid]

Closing date: Monday 6 May 2019
For more information please contact: maria.haarmans@manchester.ac.uk
0161 306 6943

Book: Illness as a Metaphor 

'A masterful focus on those who wander the margins'.

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Diary of a Malayali Madman is a collection of novellas written by one of India’s premiere writers, N Prabhakaran, and translated from the Malayalam language by Jayasree Kalathil.

The book explores the inner worlds of ordinary people in small town northern Kerala, and is reviewed here by the feminist historian, J Devika.

Read the full review and order the book here.

Dear GP zine - call for submissions by 21st April!  

Dear GP zine will be a collection of satirical clinic letters written 
evaluating sessions and assessing mental health professionals.

  • How accurate are your letters from mental health professionals?

  • Ever been copied into one that made you turn "emotionally labile" with rage?

  • Do you want to call out your professional's behaviour and analyse insignificant details about them too?

Then Dear GP zine wants to hear from you by 21st April

#dear_gp want submissions from users of mental health services and carers in the form of satirical clinic letters, usually sent to GPs,  reviewing your mental health professional.

Perhaps you have noticed that your mental health professional has "overvalued beliefs" they're unwilling to let go of. Perhaps your professional needs a full risk assessment and exploration of protective factors. Now's the time to let your GP know!

Also welcomed - Art made from clinic letters, notes, patient information leaflets, meds packet inserts - and whatever you can find!

Send submissions to DearGPLetters@gmail.com
Or DM on Twitter @dear_gp
Hashtag is #DearGP 

Passionate about PeerFest? 

Passionate about peer support and want to get involved in Peerfest19? 

Pre-Fest and Pitch-Fest.

You’ll have the opportunity to:

  • Shape this national event with your ideas, energy and passion.

  • Get help and support from us to develop your pitch for Peerfest19.

Event 1 - Pre-Fest on 2nd May

To bring together 40+ groups from across the country to generate ideas and shape the vision for Peerfest19.

What will I get from the day?

  • The opportunity to energise and inspire on what a peer support celebration should be about

  • A safe space for you to bounce ideas around the room and collaborate with others

  • Support and guidance from the National Planning team if you choose to prepare a pitch for our Pitch-Fest Event 2 on 15th May

  • Details on how to prepare a pitch application for Pitch-Fest

Apply for a place at Pre-Fest here.

Event 2 - Pitch-Fest on 15th May

A day for you to pitch your ideas for Peerfest19. You can pitch to run the whole event or just a slice. We want the day to feel like a community, not a competition.

What will happen on the day?

  • You will set up your pitch in the event hall

  • You will have the chance to create partnerships throughout the pitch time

  • At the end of the day, a judging panel from the National Planning Team will announce which pitch or pitches will go forward to deliver Peerfest19

  • Applications to to pitch at Pitch-Fest will open on 3rd May, after Pre-Fest

Apply for a pitch at Pitch-Fest here.

Peerfest19 will be celebrated sometime between July and December 2019. The date and how to book a place will be announced here - so keep a look out for updates.

Any questions about Peerfest19? Contact the peer support team at peerfest@mind.org.uk. To get a flavour of our Peerfest celebrations click on the links below, to see what we get up to each year.

Peerfest 2018  Peerfest 2017 | Peerfest 2016 | Previous Peerfests

 Gig Buddies for Good Mental Health - Brighton & Hove 

Gig Buddies for Good Mental Health (or GBMH) covers Brighton & Hove and the immediate surrounding area was launched 10 April. It matches adults experiencing mental health challenges with a volunteer who has similar interests, to go to events together that they both love.

The project is run by Synergy Creative Community CIC, and is in partnership with local charity Stay Up Late, who created the original Gig Buddies model for adults with Learning Disabilities. Stay Up Late's Gig Buddies project has been so successful we would now like to bring Gig Buddies to a wider audience of people who would benefit from the activities on offer.

You can find out more about the Gig Buddies model, and the work of our partner organisation Stay Up Late here.

If you would like to become a gig buddy volunteer or participant, or refer someone you think would benefit, please get in touch using the details below.

info@gigbuddiesmentalhealth.org.uk

GBMH, Synergy Creative Community

c/o Community Base, 113 Queens Road, Brighton, BN1 3XG

Phone: 07877 574212

SUN Network - Cambridgeshire 

The SUN Network exists to make sure that everyone in Cambridgeshire has equitable access to high quality Mental health and/or Drug & Alcohol interventions and services at the time when it is needed.

They want to be the strongest voice around how mental health services should look across Cambridgeshire and that is the COLLECTIVE voice of their members. Join as a member and help improve mental health services and 'get the latest mental health, drug and alcohol news, involvement opportunities, training opportunities and chances to share your story!'

Visit the SUN Network website.

Lifecraft in Newmarket 

Matt Hancock, MP for West Suffolk and Secretary of State for Health and Social Care, and Rachel Hood, Mayor of Newmarket attended the launch of Lifecraft's Newmarket Hub 5 April.

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Lifecraft has received funding to open an outreach hub in Newmarket:

  • Wednesdays: 12pm-4pm

  • Thursdays: 11.15am – 3.30pm

The next session will be 17th April, followed by 1st, 15th and 29th May 2019.

Find out about all of Lifecrafts groups and activities here.

Positive Mental Health Group - Birmingham 

Positive Mental Health Group - monthly networking meeting dates for 2018.

The group is open to anyone with an interest in promoting a greater awareness of mental health issues across the communities of Birmingham and Solihull.

Share information, news & views with statutory agencies, voluntary sector organisations, user groups - and individual users/carers/staff. Join one of the biggest mental health networking meetings in the Midlands, every month! Just turn up - no need to book.

Meetings include guest speakers, information table, light refreshments & a chance to chat and catch up.

Upcoming dates:

Tuesday 30th April – from 2.30pm to 4.30pm
Tuesday 28th May – from 2.30pm to 4.30pm
Tuesday 25th June – from 2.30pm to 4.30pm
Tuesday 30th July – from 2.30pm to 4.30pm
Tuesday 27th August – from 2.30pm to 4.30pm
Tuesday 24th September – from 2.30pm to 4.30pm
Tuesday 29th October – from 2.30pm to 4.30pm
Tuesday 26th November – from 2.30pm to 4.30pm
Tuesday 17th December – from 2.30pm to 4.30pm

ALL MEETINGS ARE HELD AT - Cafe, 38 - 40 Holloway Circus, Birmingham city centre B1 1EQ

Just a short walk from all city centre rail stations and bus stops. The cafe is located next to Birmingham LGBT Health & Wellbeing Centre, opposite the Chinese pagoda traffic island and the Radisson hotel.

Buses X61 and 63 stop at HF1 outside the cafe. The journey is just two stops from the Rotunda/Bullring centre, board buses outside the Boots store.

PALS (Patient Advice and Liaison Service) at BSMHFT can offer information on this group and other voluntary or user groups within Birmingham and Solihull - Phone 0800 953 0045

More information here.

The Bridge Collective - Exeter 

The Bridge Collective describe themselves as 'building a democratic community of mutual support run by people who have experiences, beliefs, and feelings that have sometimes been labelled as mental illness.'

They celebrated their 12 year anniversary 4 April.

You can find out what’s on here (pdf – poster download)

They have a range of groups and activities that include:

  • Music sessions

  • Art groups

  • Expert by Experience monthly meetings

  • Newsletter working space

  • Walks

Exploring Mindfulness and Voices 

Date: Friday 3rd May

Time: 10am - 4.30pm

Venue: Brockway Room, Conway Hall, 25 Red Lion Square , WC1R 4RL London

Costs: £12 for unwaged, self-funded £50-£100, private and statutory £125

Trainer: Andy Phee

ABOUT THE WORKSHOP

Using mindfulness practice to support others and ourselves

A day of practice, exploration and reflection, suitable for hearing voices group facilitators, mental health workers and people living with voices or distressing beliefs.

WORKSHOP CONTENT: The workshop includes mindfulness practices throughout the day and interactive exercises in pairs and small groups. We aim to explore:

  • Grounding and promoting safety

  • Mindfulness practices in everyday life

  • The breath and the body in mindfulness practice

  • Mindfulness meditation practices and adaptions

  • Mindful Movement

  • Mindful listening and being with others mindfully

  • Additionally, there will be space to discuss

  • Why mindfulness can be helpful

  • When mindfulness may and may not be helpful

  • Trauma sensitive mindfulness

  • The current evidence base for mindfulness and voice hearing and paranoia

  • Materials to support mindfulness practice such as guided recordings

  • Mindfulness and other approaches and therapies.

  • Starting a mindfulness practice and practising together in groups

ABOUT THE TRAINER

Andy Phee. Andy's background was in community mental health nursing. He facilitated a Hearing Voices Group in Camden for many years. More recently since training to teach mindfulness, he has been facilitating mindfulness groups for people experiencing distressing voices and paranoia. He has been practising meditation and mindfulness for 20 years.

Fees:

  • £12 Unwaged

  • £50 Self-funding part-time earners, and students

  • £100 Self-funding full-time earners, and voluntary sector organisations

  • £125 Private and statutory organisations (including NHS)

Small Print: The full fee will be chargeable if you cancel less than 7 days before the event. 

Book your place here.

For more information on booking, please contact: Akiko Hart

Mind in Camden, Barnes House, 9-15 Camden Rd, London, NW1 9LQ

020 7241 8978 | ahart@mindincamden.org.uk

User-led Women's Mental Health Network - turn up the volume! 

The Women’s Mental Health Network (WMHN) is the latest project from Wish, a women’s user-led mental health charity.

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A partnership of voluntary organisations working across sectors, the WMHN aims to provide a user-led, campaigning platform to give women with mental health needs a voice, and drive forward change.

The network’s focus is to improve women’s experience of using statutory services in a range of settings, such as hospitals, prisons, drugs and alcohol, housing, social services, by influencing them to become more gender-specific.

We are currently consulting with women who have experience of the mental health and/or criminal justice system, to find out what changes in service provision they would like to see.

Please complete the survey to help shape the network.

If you would like this questionnaire to be sent to you in a different format or language please email womensmhnetwork@gmail.com. 

Let's Talk exhibition 

A photo series created by photographer Charlie Clift and artist Kate Forrester aims to make mental health issues visible.

Let’s Talk is a project dedicated to visualising what’s going on inside someone’s mind, featuring people who have struggled with their mental health with their inner thoughts painted across their face.

The pictures will be shown to the public in Guildhall Yard, London, from 12 May to 22 May

Read more here and visit the Let's Talk campaign page here.

In the news 

The Guardian

Can going to therapy become as straightforward as going to the gym? At Self Space, Jodie Cariss offers flexibility, online bookings and the chance to change therapist mid-treatment. But does it work? Stuart Jeffries tries it out.

Feature: My working week -'A woman wants to die. As a social worker, I help her see that life matters'. My job as a mental health social worker involves supporting people in crisis and advocating for others

BBC News

UWE Bristol students 'sought help' before deaths. A report into the death of 14 students who had taken their own lives found eight had already sought help for mental health issues. The University of the West of England (UWE) report stated the deaths were mostly among white male students whose average age was 21. Read the full story here.

Independent

Judges given new sentencing guidance for criminals with mental illnesses and learning difficulties. Criminals with mental illnesses and learning difficulties are to be sentenced according to new guidelines aiming to determine their level of responsibility for offences. Campaigners hailed a “big step” towards consistency in courts across England and Wales, but magistrates warned of a “lack of appropriate options” outside of imprisonment. Read more here.

Rights Info

Postcode lottery on children's mental health services: A study by the Children’s Commissioner has found that spending on child mental health services has fallen in more than a third of areas in England.The report revealed that while spending on services, such as school counsellors and drop-in centres, had risen  by 17 per cent overall, the rise only occurred in certain local areas. Read the full story here.

Disability News Service

Autistic authors’ guide maps out route to quality care. A new guide – written solely by autistic people – aims to show care providers, commissioners and inspectors how to provide “quality care” for other autistic people. An Independent Guide to Quality Care for Autistic People has been written by members of the National Autistic Taskforce (NAT) and has a “heavy emphasis” on developing choice and control for service-users.

Read the full article here.

The mother of Jodie Whitling, the disabled woman who took her own life after repeated safeguarding failings by the Department for Work and Pensions (DWP), has branded DWP’s responsepublished last week, to the parliamentary petition set up in her daughter’s name “a joke”. Read the full article here 

Dates for your calendar 

29 April in London: one day course on the impact of welfare reforms - For more information and to book a place please call 020 7354 6433 or email training@centralcare.co.uk

03 May in York: 'A Disorder for Everyone!' - book your place please click here

12 May internationally: Emerging Proud Day - Click here for more information

 13-19 May Mental Health Awareness Week Download the resources pack and add your own event to the activity map, please click here.

 03 June in London Creative Strategies for Peer support Engagement interactive workshop. Click here for more information.

08 June in Manchester: Extreme experiences - mental illnesses or danger gifts? 

Please email catonneil1009@gmail.com with any questions.

This is an ISPS UK event in association with Asylum Magazine and CCrAMHP

17 June in London: I is for insult, questionning ''borderline personality disorder'' - for more information please click here

01 to 05 July in England: National Co-production Week - For more information please click here

14 to 16 July in Norfolk: Sacred Space Weekend Retreat for mental health professionals with lived experience - Limited spaces; Shared Room: £249, Single Room £299, Fully inclusive of all meals - Email Katie at: mendthegap@hotmail.com - Find out more about the outstanding retreat venue in the beautiful Norfolk Broads here.

3-5 September in Nottingham: Refocus on Recovery recovery research conference. Alison Faulkner and David Crepaz-Keay will be keynote speakers. You can see the full list of speakers hereRegister here.

GOV.UK news 

Implementing the NHS Long Term Plan - events

NHS England and NHS Improvement are running two national events aimed at people who work in and use NHS services. Participants will hear directly from NHS leaders about the proposals and how they aim to improve the planning and delivery of care. There will also be group discussions so that people can explore the plans in more detail.

 

London: 3 April 2019

Leeds: 16 April 2019.

 

If you are interested in attending please email england.legislation@nhs.net to find out how to book a place.

 

The NHS Long Term Plan included suggested legislative changes to help implement the Plan faster and more effectively. These are set out in further details and now NHS staff, partner organisations and interested members of the public have the opportunity to give their views on our proposals.

 

You can read more information about the proposals on the NHS Long Term Plan website and then complete an online survey to share your views. The deadline for responses is 25th April 2019.

 

New Youth Charter to support young people across the country

The Youth Charter will reaffirm Government’s commitment to helping young people succeed and the Minister for Sport and Civil Society will work with sector to develop this work. 

'The charter will reaffirm Government’s commitment to give young people a strong voice on the issues they care about such as combating serious violence and knife crime, addressing mental and physical health challenges and concerns about the environment and climate change.'

Read more here.

New projects to strengthen families and keep children out of care

£84m for projects that support families, marking 30th anniversary of the Children Act

 Mental health and wellbeing support for NHS staff: government pledges overhaul

Plans to give staff immediate access to dedicated mental health support will be considered as part of the upcoming workforce implementation plan.

 

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Hertfordshire Community Pharmacy Opening Times- Easter

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In preparation for Easter weekend East and North and Herts Valley Clinical Commissioning Groups have shared the opening hours for Community Pharmacy.

Please click the links for both sides of the county:

East and North Herts

Herts Valley

Scroll through to see timetable for the Good Friday 19th April, Sunday 21st April and Easter Monday 22nd April.

 Any questions please let us know and we will put you in touch with the appropriate professional.

 This message has been sent from HCPA to support care providers in being aware what is happening across the health and social care system)

Thanks,

HCPA

www.hcpa.info

CPS Thames and Chiltern Recruiting Volunteers

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Crown Prosecution Service (CPS) Thames and Chiltern Recruiting Volunteers to Join Local Scrutiny Involvement Panel

Are you situated in any of the following counties?

Bedfordshire, Berkshire, Buckinghamshire, Hertfordshire or Oxfordshire? Are you interested in making a difference to your community? Do you have a passion for fairness and justice?

Do you represent any of these communities: Black, Asian, Minority, Ethnic (BAME), Disabled, Faith, Lesbian, Gay, Bisexual or Transgender (LGBT), Older People, Women, Young People? Would you like to help us improve the way that we deliver our prosecution services? Do you have some time, experience and knowledge that would support our business in dealing with crime and disorder? Then apply to join the CPS Thames and Chiltern Local Scrutiny Involvement Panel

For more details please click this link

Spectrum (CGL) Now on Care Opinion

Care Opinion.JPG

Tell us and others about your experience of our services on CareOpinion.org.uk!

Care Opinion is a place where you can share your experience of health or care services, and help make them better for everyone.

They will read your story and show it on their website. It’s totally anonymous and no confidential information will be shared.

Your story might be about you, or someone close to you. You can say what happened, what was good, and what could have been better.

Care Opinion tells us when you post a story so a staff member at Spectrum CGL can let you know what changes we will make in response to your feedback.

Click here to view the poster

NSUN Bulletin Monday 08 April 2019

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Table of Contents

NSUN News

Selected blogs and articles

The Dragon Cafe: Lore of the Land with Horniman Studio Collective

Red Earth Collective presents Revealed and StereoHype

Rain Dance: Break The Silence

Digital Mental Health Conference 2019. “The Value of Unity”

User-led Women's Mental Health Network - turn up the volume!

More than 4,000 women with mental health problems to benefit from peer support

UK Maternal Mental Health Matters Awareness Week

Research: Are you interested in physical health in mental health?

Healthwatch survey on the NHS Long Term Plan: What would you do?

Co-produced community general advocacy course

Refocus On Recovery 2019: international conference

In the news

Dates for your calendar

GOV.UK news

Welcome to the Monday 08 April 2019 edition of our weekly ebulletin.

This week's edition features lots of creative news from events, theatre productions, concerts, art projects and some great collaborations.

There's also a focus on women's mental health initiatives with the development of the user-led Women's Mental Health Network, announcements from Mind, Agenda, NHS England and UK Maternal Mental Health Matters Awareness Week coming up at the end of the month. 

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.

Remember to  email us any news or information that you would like to share.  Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give


NSUN News  

Reigniting the Space

The Reigniting the Space project is led by a group of BME user/survivors, including some of the original steering group members of Catch-a-Fiya, in collaboration with NSUN. The aim is to recreate a national platform for a collective political voice. 

Since the project started in early 2018, a steering group has been set up and regional researchers for the East Midlands and London have been recruited. The researchers will start mapping the current work mental health service users and survivors from racialised groups are involved in around the country.

While welfare cuts and the changes to the benefits system have affected mental health service users across the board, people from racialised groups have been doubly hit by its effects. We hope that this project will reignite the space for collective action, advocacy and influence.

 

NSUN reflects on the Mental Health Act Review at "After the MHA Review" event

This “After the MHA Review” event was organised by the NIHR Mental Health Policy Research Unit to discuss the research programme which accompanied the Mental Health Act Review.

Researchers from the Policy Research Unit and a number of external speakers, including Dorothy Gould, NSUN's MHA policy lead, reflected on the Mental Health Act review and future research needs. Speakers and delegates also discussed the programme of research conducted by the Policy Research Unit to support the MHA Review.

You can listen to the podcasts, watch the presentations on the live video streaming link and download the slide presentations here.

 

Co-production guidance and tips

The Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) have produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities. You can read and download the Co-production guidance and tips papers here.

 

The Value of User Led Groups - 2019 campaign UPDATE

Thank you to all of you who have completed our survey We are now in the process of collating responses and will publish our findings at the end of this month.

 Following yet more announcements of impending closures we were encouraged to learn of a new major project that aims to rebalance the relationship between large and small voluntary organisations in public services. 

‘ Collaborative work between NCVOACEVO and Lloyds Bank Foundation for England and Wales, will explore how voluntary organisations of different sizes can work better together in bidding for and delivering public services. 

The move follows concern that smaller organisations are being squeezed out of public service delivery, in part by the practices of larger organisations as well as by commissioning and procurement processes. 

There are also concerns that, as a result, smaller organisations are struggling to survive with many facing closure. The project will explore the extent to which this is the case and any drivers behind it by listening to large and small voluntary organisations. 

 The project, known as ‘Rebalancing the Relationship’, will ‘look under the bonnet’ of current bidding and commissioning practices. A call for evidence to be launched in coming weeks will seek views from the sector. This evidence, combined with further desk-based and qualitative research, will form the basis of a research report expected in the autumn.'

 Visit our website for further updates on the campaign.

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A short video and the Soap Boxes from our Members' Event in October 2018 is now available. You can also browse our Annual Report 2017-2018 here.

You can view the Principles of Peer Support Charter here.


Selected blogs and articles 

 Hypomanic in Prague, September 1991

 ''As time passes, the events in Prague become distant memories. But, during the cold winter months, my right shoulder seizes up and the dull aching pain reminds me of the imprint left by a wooden truncheon wielded by a Czech policeman.''

 A blog about the importance of being able to challenge what others 'officially' write about you.

 Public Participation in Health and Social Care: Exploring the Co-production of Knowledge

 "My background has particularly encouraged me to adopt an historical perspective and highlighted its benefits in trying to understand participation. There seem to be few such discussions of public participation."

 Peter Beresford identifies four key 'historical' stages in the development of public participation in health and social care.


The Dragon Cafe: Lore of the Land with Horniman Studio Collective 

 Date: Monday 08 April 

Time: 12pm - 8pm

Venue: The Crypt of St George the Martyr Church,  Borough High Street, SE1 1JA

This Monday we have a very special day connecting with the Horniman Museum and Gardens' new exhibition space and engagement programme - The Studio.  The Horniman is working in collaboration with artists and local community partners, in response to its anthropology collections, to create thought-provoking artworks, exhibitions and event programmes.

The Collective is a group of community members involved in local creative support programmes (including our very own Lu Firth and Phil Baird), a commissioned artist and Horniman staff. 
The Collective have collaboratively curated the first Studio exhibition: The Lore of the Land as well as an accompanying events programme . 

Read the full programme of Studio Samples alongside a day of wellbeing activities and ta Folk Music Finale. 


Red Earth Collective presents Revealed and StereoHype 

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Revealed - Acclaimed play challenging the ‘strong black man’ stereotype is back by popular demand for its second run after securing Arts Council funding to showcase two performances . 

Date:  Friday 19th April

Time: 2pm - 4.30pm & 7pm - 9.30pm

Venue: Midlands Art Centre, Cannon Hill Park, Birmingham, B12 9QH

Revealed, which debuted with a sell-out show in February 2018, is the first production from the new Menologues platform, founded by The Red Earth Collective, to highlight diverse stories of  the mental well being of  racialised and marginalised men  through the arts. The play is inspired by the worrying fact that black men are 17 times more likely to be diagnosed with a serious mental health illness than white men.

 Written by Rites of Passage Productions co-founder Daniel Anderson, the production explores three black men from the same family: Malcolm, a restaurant owner, his son Luther and Malcolm’s father Sidney, who are in the family restaurant  while a violent protest at yet another death in custody rages on the streets. What follows is a passionate unravelling of emotions, where three generations of anger are revealed.

Revealed plans to tour in theatres and community settings across the country to create a social movement where black men are encouraged to talk more openly when in emotional distress.

Media and Tour Contact

If you would like to interview Sandra Griffiths, Daniel Anderson, Jay Crutchley or any of the cast and contributors, contact Sandra Griffiths. 

E: redearth52@gmail.com  Mb: 07745 392 318 Follow #RevealedthePlay 

 

StereoHype - A one-day festival celebrating mental health and well-being of African and Caribbean Communities. Challenging stigma, inspiring change!

Date:  Saturday 27th April

Time: 12pm - 9pm

Venue: Midlands Art Centre, Cannon Hill Park, Birmingham, B12 9QH

SteroeHype free day time event includes live performances, well-being workshops, African and Caribbean craft market and food and information stalls.

 The evening event from 5.30pm includes:

  • Black Men on the Couch - with Vanley Burke, Godfather of Black British Photography and Award-winning Rapper, Trade Mark Blud in conversation with therapist Rotimi Akinsete explore the dynamic and creative relationship that exist between mental health and the arts.

  • NHS and Me Performance- Renaissance One presents a brand new-show written by internationally renowned Jamaican poet Jean BintaBreeze, featuring music, and spoken-word performances to celebrate 70 years of the NHS and the everyday and hidden stories of its Caribbean staff.

Tickets £10 Concessions £7 here.

Download the flyer here.


Rain Dance: Break The Silence 

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The Sapphire Community Group seeks to help young people (13-30 year olds) find out what they are meant to do in life. They aim to do this through mentoring, coaching, publishing literature, film and media, through multiple events technological development and hosting workshops.

Sapphire is holding its first mental health concert at Chelsea Academy. The event is free. There will be free food, drinks, music, poetry, film, fashion and drama. The showcase is all about breaking mental health stigma and bringing community together. 

 

Date: Saturday 13 April

Time: 6pm - 10pm

Venue: Chelsea Academy, Lots Road , London , SW10 0AB 

A night of poetry, music, fashion, film, drama, speakers and dance. A night not to be missed.

 CEO Jasmine Cannon--Ikurusi says:

'This is a night like no other. A night where we use the beauty of art to heal wounds. A night where we go deeper and remove every mask that has held us bound from being free. They say that showing emotion is a state of weakness, but I know that there is power in being vulnerable. For years, we have lost our young! Today in the 20th century, we are losing many to the hands of mental health issues. We can no longer sit back and do nothing. It is time we speak up. It is time we heal from our pains. It is time we let go of all the pain. It is time we put to bed every shackle that has held us bound.

This event, is aimed at pushing through the obstacles and dancing in the rain. This event is aimed at not giving a care if anyone is looking at you or calling you weird. The time to be who you are is now. Even in the midst of the storms, we will rise. We will keep fighting. We will keep living. We will keep pushing. We will not be silent. We will speak. We will breakthrough! No more losing the war the mental health issues. This is rain dance.'

 Book tickets here.


Digital Mental Health Conference 2019. “The Value of Unity”  

Call for art work

Becky Inkster and Vanessa from Soul Relics Museum are jointly curating the art exhibition for the digital mental health conference, Value of Unity, in the summer, which will feature the work of Dolly Sen.

They are currently seeking proposals for art work to be added to the digital collection for the Digital Mental Health Conference 2019. “Unity” is the theme of this summer’s conference, as observed from different stakeholders’ perspectives.

 The theme of the art work will address any of the questions:

  • Digital Psychiatry

  • Ethics, Policy and the Public Sphere

  • Methodologies & Statistics

  • Social Media

  • Global Digital Mental Health, Society and Culture

  • Neuroscience & Biotechnology

  • Financial Health & Technology

Other topics welcomed are themed around isolation, connectedness, intergenerational initiatives etc

Their aims are to acknowledge, understand, and celebrate different perspectives in the field of digital culture of mental health, and to provide a platform for people to showcase their work to an audience from different disciplines. They are keen to embrace any art form that can be exhibited including but not limited to, written word, fine art, digital, music, medical humanities, narrative medicine, installations

Contributors will be invited to the conference social event in the evening. 

Contributions will be featured on the digital mental health conference website and up to 20 artists work will be selected to be exhibited on the actual conference in London in August, 2019.

 Proposals 

A proposal or expression of interest of up to 250 words (with photos) of your work, as well as a brief biography and why you think the work fits with the theme of the conference should be sent to art@beckyinkster.com by 11:55pm on 30 April, 2019.

The conference is taking place 13 - 14 August in London.


User-led Women's Mental Health Network - turn up the volume! 

The Women’s Mental Health Network (WMHN) is the latest project from Wish, a women’s user-led mental health charity.

A partnership of voluntary organisations working across sectors, the WMHN aims to provide a user-led, campaigning platform to give women with mental health needs a voice, and drive forward change.

The network’s focus is to improve women’s experience of using statutory services in a range of settings, such as hospitals, prisons, drugs and alcohol, housing, social services, by influencing them to become more gender-specific.

We are currently consulting with women who have experience of the mental health and/or criminal justice system, to find out what changes in service provision they would like to see.

Please complete the survey to help shape the network.

If you would like this questionnaire to be sent to you in a different format or language please email womensmhnetwork@gmail.com.

 

Mind Logo.gif

More than 4,000 women with mental health problems to benefit from peer support

'Women across England and Wales will get vital mental health support as part of a major new programme launched by mental health charity Mind and Agenda, the alliance for women and girls at risk.'

Led by Mind and Agenda, the £1.8m initiative, which is called Women Side by Side, has set up five new hubs (four in England and one in Wales). The hubs, run by women’s organisations, are using their specialist expertise and links to community organisations to make sure all services understand and respond to women’s specific needs, including their experiences of trauma and abuse. It is hoped that women will be able to find community-based peer support set up through around 70 projects.

Read the press release here.


UK Maternal Mental Health Matters Awareness Week 

UK Maternal Mental Health Matters Awareness Week 29th April until 5th May 2019.

What is it? A week long campaign dedicated to talking about mental illness while pregnant or after having a baby. The Perinatal Mental Health Partnership (PMHP) are dedicated to signposting to support for all mums and advocating for mums affected by Maternal Mental Health, to access the information and help they require to enable recovery.

 Who is it organised by? In 2014, a small group of 10 individuals including women with lived experience , from charities and health care professionals , came together with the dream of creating an awareness campaign for maternal mental health. They formed and created the Perinatal Mental Health Partnership (PMHP) and in 2017, falling within the week that World Maternal Mental Health Day ran, they launched the first ever UK Maternal Mental Health Matters Awareness Week . The second week ran last year, with the theme ‘Support For All’.

This year's theme for the third annual UK Maternal Mental Health Matters Awareness Week , 29th April until 5th May 2019 , is Mums Matter.

Throughout the week, they will be using  the hashtag #maternalmhmatters on social media.

 You can find out more on the PMHP Facebook page.


Research: Are you interested in physical health in mental health?  

CARDIOPHITNESS: Cardiometabolic health and Pharmacists in Severe Mental Illness study 

 An opportunity has arisen to share experiences of physical healthcare (and pharmacy) through Aston University and Leicestershire Partnership NHS Trust.

  • Do you have a severe mental illness (schizophrenia, schizoaffective disorder, bipolar affective disorder or any other form of non-organic psychosis) or are you a carer or care professional providing care for someone with a severe mental illness?

  • Would you like to share your views and opinions on physical activity, smoking, nutrition, heart disease, diabetes, obesity/overweight and what pharmacy  and pharmacists can do to help?

If so, please contact Dolly Sud at sudd@aston.ac.uk for more information.


Healthwatch survey on the NHS Long Term Plan: What would you do? 

Healthwatch wants to know what you think the NHS can do to help you and your community stay well. 

Healthwatch is running a national survey to ask people’s views on how local NHS services could be improved through the NHS Long Term Plan.

The Government is investing £billions a year in the NHS as part of the Long Term Plan. Local services have been asked to work together to develop their own plans, which will set out how the national plan will work across local areas.

You can access the surveys here. Alternative formats available here.


Co-produced community general advocacy course 

This course will only go ahead if enough learners book to attend.

The organisers are hoping to get enough expressions of interest to run this course again, following the success of a first installment, which was co-produced with the help of NSUN and others.

Potential date: June 2019

Location: Richmond, London

The course aims to support learners to understand, what independent advocacy is, how to use the principles which underpin good practice in advocacy and the different models of advocacy.

To express interest, please email: info@advocacytraining.org.ukwmicklewright@yahoo.co.uk

Or call 0330 440 9000 ext 210


Refocus On Recovery 2019: international conference 

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Date: 3-5 September 2019

Venue: Nottingham Conference Centre, Burton Street, Nottingham NG1 4BU

This is the fifth Recovery Research conference. This year's event will be addressing:

  • Mental health and human rights

  • Supporting recovery through services

  • Supporting recovery through communities

  • Recovery and power

Alison Faulkner and David Crepaz-Keay will be keynote speakers. You can see the full list of speakers here.

ImROC Dinner (evening of 2 September 2019) - Meet colleagues and global thought leaders over an enjoyable dinner. (Venue: to be confirmed)

Expert Workshops (0900-1200 on 3 September 2019) - Spend the morning before the international conference learning skills from international leaders. (Venue: Nottingham Conference Centre). Click here to register for an expert workshop.

Refocus on Recovery 2019 (1300 on 3 September until 1300 on 5 September 2019) - Join our 5th international recovery research conference. (Venue: Nottingham Conference Centre). Click here to register for the conference or to apply for a bursary place please complete the registration form which can be found here and email to refocusonrecovery2019@nottingham.ac.uk.

Register here.

Follow on Twitter #RonR19 @institutemh


In the news 

 

The Guardian

Six in 10 Britons say Brexit uncertainty bad for mental healthPoll finds large majority bored with hearing about Brexit and unimpressed by politicians

Social media firms to be penalised for not removing child abuse

Senior executives could be held liable for not taking down harmful content from platform

 BBC News

 A charity in charge of a mental health home in London where a teenager was found hanged is being investigated. Read more here.

Family of suicide father felt 'abandoned' by NHS before tragedy. A woman has told the Scottish Parliament she felt "turned away and abandoned" after being refused help eight times in the week before her partner took his own life.

Disability News Service

User-led advice centre set to close its doors after NHS funding blow. Possability People has been running the advice centre for 30 years, but it was told by Brighton and Hove Clinical Commissioning Group (CCG) that it was going to stop all its annual funding from this month. Read the full article here.

Campaigner pledges to devote his last months to saving independent living. John Evans, one of the country’s best-known and most-respected disabled campaigners has pledged to devote the last months of his life to trying to save the independent living movement.


Dates for your calendar 

29 April in London: one day course on the impact of welfare reforms - For more information and to book a place please call 020 7354 6433 or email training@centralcare.co.uk

03 May in York: 'A Disorder for Everyone!' - book your place please click here

12 May internationally: Emerging Proud Day - Click here for more information

13-19 May Mental Health Awareness Week Download the resources pack and add your own event to the activity map, please click here.

03 June in London Creative Strategies for Peer support Engagement interactive workshop. Click here for more information.

08 June in Manchester: Extreme experiences - mental illnesses or danger gifts? 

Please email catonneil1009@gmail.com with any questions.

This is an ISPS UK event in association with Asylum Magazine and CCrAMHP

17 June in London: I is for insult, questionning ''borderline personality disorder'' - for more information please click here

01 to 05 July in England: National Co-production Week - For more information please click here

14 to 16 July in Norfolk: Sacred Space Weekend Retreat for mental health professionals with lived experience - Limited spaces; Shared Room: £249, Single Room £299, Fully inclusive of all meals - Email Katie at: mendthegap@hotmail.com - Find out more about the outstanding retreat venue in the beautiful Norfolk Broads here.


GOV.UK news 

NHS England press release 04.04.19

SPECIALIST MENTAL HEALTH SUPPORT FOR NEW MUMS AVAILABLE IN EVERY PART OF ENGLAND

New and expectant mothers across the country can now access specialist mental health care in the area where they live, NHS England announced today.

The landmark rollout of specialist perinatal community services across the whole of England, means that mums and mums-to-be who are experiencing anxiety, depression or other forms of mental ill health should be able to access high quality care much closer to home.

Five years ago two in five parts of the country had no access to specialist community perinatal mental health treatment, but there is now full geographical coverage for the first time, with services in every one of the 44 local NHS areas, and plans to develop them further.

The expansion comes alongside the opening of four new mother and baby units, which mean that the most seriously ill women can receive residential care without being separated from their babies in every region.

Claire Murdoch, NHS national mental health director said: “Mental ill health during pregnancy or that affects bonding with a new baby can be devastating, which is why the NHS has invested in better care for expectant and new mums, with at least 9,000 extra women getting treatment last year.

“As well as expanding access to world-leading talking therapy for anyone who needs it – the NHS Long Term Plan is further ramping up specialist perinatal care for every part of the country, offering tailored support to dads and partners and extending care to cover the first two years of a child’s life.”

Specialist community perinatal mental health teams can offer psychiatric and psychological assessments and care for women with complex or severe mental health problems during the perinatal period. They can also provide pre-conception advice for women with a current or past severe mental illness who are planning a pregnancy.

Teams can be made up of doctors, nurses, social workers, psychologists, psychiatrists, occupational therapists, nursery nurses and administrative staff, who all work together to provide a comprehensive service to mums, depending on what their individual needs are. They also work closely with partners across the health and care system, including in maternity, health visiting, and other mental health services.

The expansion to the community teams is a key plank of wider plans to transform perinatal services. By 2023/4 an additional 54,000 women each year with moderate and complex, to severe mental health difficulties should get the right care, at the right time and as close to home as possible.

The NHS Long Term Plan also sets out a raft of new measures to improve care for new and expectant mums and their families, including:

  • Making specialist community-based care available from pre-conception to two years after birth rather than one. Evidence suggests this is the most critical time in a child’s development and the period when infant separation anxiety can peak and may trigger a relapse of mental health difficulties, along with other changes in women and children’s lives.

  • If a new mum is suffering from mental ill health, the NHS will automatically offer comprehensive assessment to her partner if they are suffering from mental ill health too and sign-post them to professional support if needed.

  • Expanding access to evidence-based psychological therapies within specialist perinatal mental health services so that they also include parent-infant, couple, co-parenting and family interventions.

  • Increasing access to evidence-based psychological support and therapy, including digital options.

  • Maternity outreach clinics will join up maternity, reproductive health and psychological therapy for women experiencing mental health difficulties directly arising from, or related to, the maternity experience.

Mumsnet founder Justine Roberts“We know from conversations on Mumsnet that the effects of mental ill-health in the perinatal period can ricochet; illness that goes untreated has impacts on mothers' self-confidence in their own parenting, sometimes for years afterwards, with a knock-on effect for children and the wider family. Our users have talked movingly about the difficulty of accessing support, so it's fantastic to see these specialist services being rolled out nationwide.”

Dr Trudi Seneviratne, chair of the perinatal faculty at the Royal College of Psychiatrists said: "This is fantastic news for all new and expectant mums, and for their families. 1 in 5 new mothers will experience some form of mental health difficulty and if left untreated, perinatal mental health problems can be devastating.

“A previous lack of specialist services has not only meant that some women couldn’t access the treatment they needed, but it also lead to mothers and babies often being separated at a key time in their child’s development. Providing everyone with access to the right care in the right place has always been our hope, and it’s now finally being realised in England. Hopefully this will cause a tipping point for other nations too.

“We now need to focus on building the perinatal mental health workforce whose job it will be to deliver these vital services.”

Emily Slater, Campaign Director at the Maternal Mental Health Alliance
said: “The Maternal Mental Health Alliance’s (MMHA) Everyone’s Business campaign welcomes the opening of specialist perinatal mental health services in the remaining areas of England, meaning women should now be able to access life-saving care in their local area. We look forward to working closely with NHS England to ensure these services are of the highest quality and sustainable across the whole country to meet the needs of women and families.”

As many as one in four women will experience mental ill health during pregnancy or in the two years after birth, covering a wide range of conditions and different degrees of severity. It is estimated that as many as one in five hundred women may experience postpartum psychosis, one of the most severe forms of mental ill health affecting women in the perinatal period.

NHS England has already funded four new Mother and Baby Units (MBUs) in areas of the country which historically struggled to access specialist inpatient services close to home.

Mother and Baby Units (MBUs) support women who are experiencing the most severe forms of mental ill health to stay with their babies, helping them to bond at a critical time, while receiving around the clock care, treatment and support.

All four new MBUs are now offering care – three eight bedded units have opened in Kent, Lancashire and in East Anglia, with a further unit in Devon open.

NHS England plans to increase the national capacity further to more than 160 beds - providing specialist inpatient care and treatment to mums, without separation from their babies.

HealthWatch Headlines - 5th April 2019

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Hello there,

 I know there’s been a bit of a break, but here are your headlines. We’ll also be sending out another headlines update next Friday, so look out for that one!

 Just a reminder about the purpose of these emails. This is to outline the broad facts and themes around certain issues, and to provide the organisation’s position on those issues. As ever, if you want any more information about these areas please get in touch and, just as importantly, if we’re not covering concerns or issues you’re hearing about, please let me know.

MSK Services
Co-Production Board
WHHT
Long Term Plan: #WhatWouldYouDo

Musculoskeletal Services

 Introduction

  • Following on from our last update, Priya will now be meeting with the provider Connect on 15th April.

KEY POINTS: This meeting with Connect is another opportunity for us to ensure the patient voice is heard in the delivery of new services. It also highlights how vital proper engagement and communication with services users is to avoid misunderstanding of the way services are being delivered.

 Co-Production

 Introduction

  • At the end of January HCC held a engagement workshop looking at how co-production is carried out across the county council

    • We were involved in the facilitation of the day

    • The workshop was attended by service users, VCS, and professionals

  • On 28th March a general summary of the event was discussed with the most pertinent point being the complexity of the current process for service users and carers to engage with councillors, commissioners, and service providers

    • This has led to the recommendation of a restructuring of groups and boards with a reduction of meetings in some areas felt to be over provisioned (EG: Learning Disabilities) and the creation of new meeting in others (EG: Older People)

Further Information

  • The co-production board will be putting out a draft proposal based on these recommendations shortly

  • This is being seen as an opportunity to integrate our service watch groups into a more formalised structure within HCC

    • Were this to happen, these groups would still be independent, with us playing a facilitative role

Key Messages: This is an opportunity to ensure that the people who use these services have a real chance to have a say in their own support, commissioning, and delivery. We will continue to support the ideal of co-production, whilst ensuring that any decisions made are representative of the views of the people of Hertfordshire.

 

West Herts Hospital Trust: Options Evaluation for Redevelopment

Introduction

  • Following on from previous updates, Meg has been a member of the Options Panel to explore the different possibilities for the future of acute care in the west of the county

  • Meg and also attended an event with a broader range of attendees, including members of the general public and clinicians to further discuss the shortlisted options

    • Although it was good to have an opportunity to be involved, we have raised a concern that the event was dominated by clinicians and there was insufficient time to evaluate all the options

  • We have attached a copy of the full presentation to this email

  • It is important to note that NHS England has said that the whole budget for this work should it be awarded is £350mil

Further Information

  • There will now be another Options Panel held in May

KEY POINTS: The engagement process must take account of the views and needs of service users and communities across West Hertfordshire. Engagement events are an opportunity to explain plans to communities, but also to hear concerns and ideas.

 

Long Term Plan: #WhatWouldYouDo

 Introduction

Further Information

  • The results will be used by us locally to support work being done by the STP and other commissioners

  • They will also feed into a national project

KEY POINTS: This is a chance for the people of Hertfordshire to have their voice heard within a national piece of work. We need as many people as possible to fill in the surveys, especially if they are part of a hard to reach group or might face different issues accessing NHS services. EG: BME, Homeless, Frail etc.

Read about the future of hospital services in west Hertfordshire here

Research Involvement

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Two of the NIHR national coordinating centres, Central Commissioning Facility (CCF) and NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC) are currently looking for members of the public to join a number of national and regional committees. We are looking for patients, carers, service users and members of the public who have never had a professional role in health and social care services or research.

 We would very much appreciate your help in circulating the following link to anyone who might be interested in the role:

 https://www.nihr.ac.uk/patients-and-public/opportunities/new-public-member-recruitment-2019.htm

 A PDF copy of our advert is also available as a download. The deadline for applications is 1pm on Friday 26 April 2019

Shortlisted candidates will be invited to attend an interview. The Information Pack and Application Form will have full details of the application process, including interview dates and locations.

Giving people a voice on the future of the NHS in Hertfordshire today

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The NHS in Hertfordshire is changing, and it needs your help.

The Government is investing an extra £20bn a year in the NHS as part of the NHS Long Term Plan. Now you can help your local NHS invest in the right support by sharing your ideas with us.

Healthwatch Hertfordshire has launched ‘What Would You Do?’ to gather feedback from the public on ways to improve local NHS services.

 Your views matter.

 Survey

 Take part in a short survey here and share your views about what would make health services in Hertfordshire better.

 (If the link doesn’t work, open http://www.healthwatch.co.uk/what-would-you-do in your browser)

 Focus Group

We are also running a focus group. The aim of this group is to find out about your experiences of personalised care across different services.

 Details for this focus group are:

Time: 10:00-13:30

Date: April 30th

Address: Healthwatch Hertfordshire, 1 Silver Court, Watchmead, WGC, AL7 1LT

 

If you would like to attend please email Priya, our Head of Research and Engagement to express your interest, or call us and ask for her on 01707 275 978.

Reasonable travel costs will be reimbursed, and lunch will also be provided.

Thank you

 Paul Regan

Communication & Engagement Officer

Tel: 01707 275978, Mob: 07964 560 304

Healthwatch Hertfordshire
1 Silver Court
Watchmead
Welwyn Garden City
Herts
AL7 1LT

 www.healthwatchhertfordshire.co.uk

 Company Limited by Guarantee, Registered in England, Charity number 1158089.

Registered Office 1 Silver Court, Watchmead, Welwyn Garden City, AL7 1LT

NSUN Bulletin Monday 01 April 2019

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 NSUN Bulletin Monday 01 April 2019

Table of Contents

  • NSUN News

  • Selected blogs

  • NSUN member looking for legal support

  • Electro Convulsive Therapy (ECT) protest

  • Coming up: Mental Health Awareness Week in May

  • Help improve mental health crisis services

  • WHO mental health and rights consultation

  • After the Mental Health Act Review: Research priorities

  • Shaping Our Lives - A Reguge for All project report launched

  • Stop the DWP sending misleading letters to GPs

  • Ask for an inquiry into DWP deaths

  • New frontiers: the social sector in post brexit Britain

  • Peer Support Specialist (Barnet)

  • Creative strategies for peer support engagement

  • Help Mind improve their info on personality disorders and mental wellbeing

  • Opportunities with a new mental health charity in London

  • Co-produced community general advocacy course

  • The Big Draw Festival 2019

  • In the news

  • Dates for your calendar

  • King's Fund report: Outcomes for mental health services: what really matters?

  • GOV.UK news

Welcome to the Monday 01 April 2019 edition of our weekly ebulletin. As usual it contains lots of news, views and updates. 

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.

Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

 We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give

NSUN News  

 Ebulletin editor moves on to consultancy role

 After seven years as part of NSUN's core team, Stephanie Taylor King, whose duties involved producing the e-bulletin and editing the website, is moving on to a consultancy role. Whilst NSUN's core team has to shrink due to funding difficulties, Stephanie remains on board as a consultant, leading the APPG for Prescribed Drug Dependence project.

 NSUN  joins the panel for the NHS long-term plan and mental health event

 NSUN Chair Mark Wood joined the expert panel for the King's Fund online event, 'The NHS long-term plan and mental health - a positive way forward' on 28 March. Over 1000 people registered for the event. You can catch up and watch the event if you register here.

Co-production guidance and tips

 The Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) have produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities.

 The use of the term 'co-production' is now in common (too common some would say) use. Some regard it as completely separate to good involvement practice, but good and meaningful involvement practice is essential if co-production is to be truly realised. There are also some fundamental power issues that need to be addresses and often our experience of co-production is no different from frustrating and poor involvement practice of the past.

 You can read and download the Co-production guidance and tips papers here.

 The Value of User Led Groups - 2019 campaign UPDATE

 Thank you to all of you who have completed our survey We will now collate responses and publish our findings at the end of this month.

 Along with Shaping Our Lives and Lankelly Chase we will be bringing together user-led groups at the end of May to look at what is happening to user-led groups, what is their role and value and what can be done to protect the future of user-led groups. The meeting is being held 21 May  in London.  If any of our user-led groups are interested in attending please contact us info@nsun.org.uk.

 The first stage of the campaign was to raise awareness of the current situation. Since launching our campaign we have heard that more user-led groups around the country are closing or under threat of closure. Possability People,in Brighton and Hove, Liverpool Mental Health Consortium and Voices for All in Rochdale. 

 You can read the article published in February where NSUN and Shaping Our Lives warned that user-led organisations are continuing to close, putting the sector at real risk of extinction. Read the full article by John Pring (Disability News Service) here.

A short video and the Soap Boxes from our Members' Event in October 2018 is now available. You can also browse our Annual Report 2017-2018 here.

You can view the Principles of Peer Support Charter here.

Jobs and involvement opportunities - already shared

If there is still time to apply or get involved, you can find previously shared opportunities on this page.

Selected blogs 

 People with personal mental health experiences are more qualified to work with patients, not less

 ''Employers can either see lived experiences as liabilities, or as an employee’s greatest asset. And if they adopt the latter approach, the employee, as well as the whole organisation, will feel the benefits''

 A blog about valuing lived experience

 Are sexual abuse victims being diagnosed with a mental disorder they don't have?

 ''Suppose, for the sake of a thought experiment, that a new psychological disorder was discovered. It is supported by dozens of studies and recognized by some of the world’s leading psychiatrists and psychologists, but not by the North American psychiatric establishment. And let’s say the refusal to accept this new disorder had devastating consequences for #MeToo survivors.'' 

 A blog about how traumatised women often get mis-diagnosed. 

Click here to read the rest of the bulletin

Is Addiction Causing you Pain?

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Contact us directly to find out how we can support you to live free from addiction 0300 365 0304

Has your addiction taken over your life? Do you use drugs or alcohol to escape from emotional pain? Is someone else’s addiction affecting your quality of life?

Our facilitated group therapy treatment is a free, daytime abstinence-based programme for adults affected by alcohol, substance or behavioural addictions. We will give you time to examine your feelings, tools to help you stay away from your addiction and the opportunity to regain control of your life.

Our open access service is available to adults living in Hertfordshire who are determined to achieve sustained recovery. Clients can self-refer or do so with professional support. Family and carers may also self-refer to access support for themselves.

For more information, click here to view the poster

NHS England Health and Social Care Information - Short Survey

Using Health and Social Care Information – Short Survey

The Department of Health and Social Care would like to find out more about people’s experiences of using health and social care information.  They would be very grateful if people could complete a short survey – consisting of just five questions; and the option to be included in a future webinar.  The survey should take no more than approximately 5-10 minutes, and can be accessed here:

 https://docs.google.com/forms/d/e/1FAIpQLSfsxCepsYtmttI8VnoanrFUXnB-JTwc5JfPnkrDUmqesgyrKw/viewform?usp=pp_url

 

Please note that the survey will be open until midnight, Monday 15 April 2019.

Spectrum All Ages Drug and Alcohol Service Launch - April 1st 2019

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We are pleased to share with you the details of our new All Ages Drug and Alcohol Service, launching April 1st 2019.

 We will now be delivering support for both adults and under-18s and we have created a dedicated microsite detailing some of the changes and improvements we are making as part of our relaunch: https://www.changegrowlive.org/spectrum-drug-alcohol-recovery-service-hertfordshire

 Here you can find sections aimed at specific teams and stakeholders, which we will be updating monthly, and bulletins you can read and share with your colleagues and service users.

 You can contact the implementation team by email via: Hertsstaff.info@cgl.org.uk

 Alternatively, you can still reach us via the countywide email Herts@cgl.org.uk

 Any questions we receive will be added to the next batch of updates so please don’t hesitate to contact us at any stage during this process.

Soroptimist Charity Quiz Night

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Soroptimist Charity Quiz Night Sat 23 March 2019

Come and join in the fun at this popular and successful charity quiz night at Homewood Road URC Church Hall, St Albans, AL1 4BH, (Junction of Homewood Road and Sandpit Lane)

Doors open at 7.15pm for 7.45pm start

Fish and chip supper with chicken or veggie option

Cash bar with beer, wine and soft drinks (proceeds to the charities)

Tickets adults £12.50, kids under 16 £10.00 (up to 8 in a team)

In aid of the St Albans & Hertsmere and Welwyn Hatfield Women’s Refuges  plus charities providing learning opportunities for women & girls

For more information please see www.sigbi.org/st-albans/quiz

 View the flyer and booking slip here