Opportunity: women with lived experience needed

Mind Logo.gif

Would you like to be involved in evaluating a major new mental health programme?

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Opportunity for four women in Evaluation Advisory Group

The McPin Foundation are looking for four women to join an Evaluation Advisory Group, to support the evaluation of the Women’s Mental Health Peer Support Programme run by Mind and Agenda (the Alliance for Women and Girls at Risk).

Group members will need to:

Have personal experience of mental health problems and/or multiple disadvantage
• Be able to attend four meetings a year at McPin offices in London (between November 2018 and early spring 2020)
• Respond to occasional correspondence via email

Payment of £50 per meeting will be offered and all reasonable travel expenses will be reimbursed. Applications close on Friday 19 October 2018. Best of luck!

Click here for more information

Need guidance with your peer support programme? 

 The Peer Support in Practice report from Inclusion Barnet can help if:

  • Your organisation already employs or is looking to employ peer support workers

  • You're interested in current debate around the introduction of peer support workers in mental health organisations

Grounded in a qualitative study of peer support workers in mental health, the repor explores some of the issues of using lived experience in peer support and includes recommendations when introducing peer support into the workplace. Peer Support in the Community is also an essential toolkit for those looking to plan, create and develop peer support work. 

Click here to read the report

World Mental Health Day

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Wednesday 10th October was World Mental Health Day and we're helping the World Health Organisation to raise awareness of mental health issues and mobilize efforts in support of better mental health. This year's theme is young people and mental health in a changing world.

Young people undertake huge changes in their lives from the daily pressures of school life, navigating the cruel online world to the impact of family/home issues. These stresses are some of the reasons why young people can be more vulnerable to mental distress and illness.

Over the last few years, there has been growing recognition of the importance of helping young people build mental resilience, but more still needs to be done. World Mental Health Day serves as an opportunity for mental health stakeholders to discuss their work, and have deeper conversations about how we can make youth mental health care a priority around the world. 

It starts with recognising the signs, and knowing how to respond. To help professionals, parents and peers to support their clients, friends and children with their mental health we've put together a free downloadable guide from one of our publications, Youth Self-harm and Suicide Awareness. Click the button below to download your free guide.

Download my free guide: Youth Self-Harm and Suicide Awareness

Mental Health Today: Why we're focusing on anorexia this World Mental Health Day

A dedicated anorexia section has been launched on the Mental Health Today website today to showcase the destructive effects that traditional media and body image can have on young people.

 It features insights about what it's like to live with anorexia and how best to respond to it, and includes video interviews from a professional and someone who is managing the condition herself.

Take a look through the hub now to find out more about the condition and its devastating impact.

NSUN Bulletin 8th October 2018

NSUN Bulletin Monday 08 October 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 08 October 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 08 October edition of our weekly ebulletin that contains lots of updates, news and views. As well as World Mental Health Day, this week we highlight Black History Month.
 
If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News  
 
NSUN trustee recruitment
 
Are you interested in helping to secure and shape the future of our national user led network? Find out more and how to apply here.
Closing date: Monday 8 October - midnight
 
 
NSUN Members Event and Annual General Meeting: 25 October 2018
'The Future of Peer Support'
 
Book your place on the AGM event page. Remember, you can also book a slot for a 'Soap Box' to share your views on the future of peer support.
 
You can view Soap Box contributions from our members at our previous events on our YouTube channel.
 
 
Mental Health Act Review Stakeholder events
 
Two more stakeholder events have been set for:
  • Tuesday 16 October, London, 1-4pm Book here.
  • Wednesday 17 October, Exeter, 2-5pm Book here.
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Events - already advertised
If you haven't booked your place on already advertised events, we have collected some here.
 
Jobs and involvement opportunities - already shared
If there is still time to apply or get involved, you can find previously shared opportunities on this page.
 
Selected blog 
 
Windrush nationality scandalBlack History Month takes us back to the Windrush scandal, which saw people being brutally deported or threatened with deportation after spending a lifetime in the UK.
 
As many of them are still dealing with the trauma caused by this violation of their human rights, this blog by Amnesty International tells us that sadly, the Windrush scandal is only the tip of the iceberg.
 
#Healthwatch 2018 event 
 
Article ImageLast week Dr Alison Faulkner spoke at the national Healthwatch sixth Annual Conference in Stratford-Upon-Avon #Healthwatch2018.
 
Alison's main points were:
  • Inpatient care at times can be abusive, contravening human rights
  • Health inequalities: structural racism
  • Powerlessness to make complaints
  • Patient safety
Mental health has been the number one health and social care issue for the Healthwatch network over the past three years. Liz Sayce, Healthwatch Committee member, provided an overview of Healthwatch mental health work and Paul Framer, Mind CEO, spoke about the Five Year Forward View for Mental Health and 'parity of esteem' for mental health.
 
You can read the Healthwatch report that shares what people have been telling themHealthwatch about mental health services here.
 
Human Rights breaches in the Mental Capacity (amendment) Bill 
 
human rightsAn urgent appeal for support from People First
 
People First, an organisation led by people with learning difficulties, is appealing for support against changes which the government is planning to make to the Mental Capacity Act via its Mental Capacity (Amendment) Bill.
 
The situation is now urgent, because the Bill is already progressing within Parliament.
 
The Mental Capacity Act itself falls short of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). If the Bill becomes law in its current form, there will be further breaches of human rights. Read more about the changes explained by Policy and Insights here.
 
For more information and how to support this campaign, please click here.
 
Black History Month events 
 
baptists who abolished slaveryOctober is Black History Month and the website Blacknet features events which cover history, literature and the arts.
 
Many events take place in London, but there are some in Manchester, Oxford, Dagenham and Birmingham too.
 
Please take a look at this website for a full listing
 
Black History Month Magazine online 
 
Nelson Mandela'What counts is not the mere fact that we have lived. It is what difference we have made to the lives of others that will determine the significance of the life we lead' ~ Nelson Mandela
 
Black History Month Magazine, is the central point of focus and lead the nationwide celebration of Black History, Arts and Culture throughout the UK in 2018. It is available to read online for free.
 
Features include:
  • The legacy of Nelson Mandela
  • Caribbean women and the NHS
  • The Windrush Generation
  • In the shadow of Enoch Powell
  • and much more
To read the magazine, please click here
 
Book: The Colour of Madness - exploring BAME mental health in the UK 
 
the colour of madnessInspired by a range of experiences, this anthology of art, poetry, short fiction, memoirs, and essays seeks to disrupt the whitewashed narrative of mental health in the United Kingdom.

Through a journey along the visible colour spectrum, Dr Samara Linton and Rianna Walcott centre the experiences of over fifty people from Black, Asian, and Minority Ethnic (BAME) backgrounds, expanding our understanding of mental health to one which encompasses the full rainbow.
 
About the authors: Samara Linton qualified from University College London and is a University of Cambridge graduate. She has published research on mental health stigma and frequently writes about gender, race and health for various online publications.
 
Rianna Walcott is a PhD candidate at Kings College London, where she is researching how women of colour form communities in digital spaces, following an English literature undergraduate and masters degree at Edinburgh University. She is passionate about decolonising curricula and promoting diversity in academia, and co-founded projectmyopia.com in pursuit of that goal
 
To get a copy of the book, in kindle format or paperback, please click here
 
The Dragon Cafe celebrates reggae music 
 
reggaeThis Monday, for Black History Month, the Dragon Cafe will have Reggae on the mind, on the dance floor, on the screen and through the speakers. 
 
At 4 pm for the Dance session, Sound Maestro Martin will be playing a selection and inviting you to the dance floor. 
 
If you have any music requests throughout the day Martin will be happy to play them when/if possible. 
 
From 6 pm enjoy a Musical Movie Night with a fantastic documentary about a legend, giving great insight to the life and politics that inspired some wonderful music and lyrics.
 
The Dragon cafe is at the Crypt of St George the Martyr Church,  Borough High Street, SE1 1JA
 
Cornwall community of practice: mental health II 
 
cornwall event
Communities of practice seek to build on local skills, knowledge and partnership working among frontline staff. This will be a great opportunity to increase partnership links between the homelessness sector and mental health, as well as to learn more about the assessment process for mental health services.
 
Date: 24 October
Time: 12noon - 03:30pm
Venue: St Erme Community Centre Truro TR4 9BD
 
This event is free to attend, and open to all people working on the frontline in homelessness and related-fields across Cornwall.
 
For more information and to book a place, please click here.
 
LGBTQI+ Diversity – Building Solidarity Symposium 
 
dice rainbow
An event to highlight the many sides of London’s diverse LGBTQI+ community. The symposium will look for shared goals, build solidarity and raise the voices of the most excluded in our rainbow family.
 
Co-produced with Intersex UK, Rainbow Pilgrims, Regard DDPO, Twilight People, Gendered Intelligence, AIDS Memorial campaign and other user-led projects.
 
Open to intersectional LGBTQI+ people and their allies, charities, campaigners, policy makers, funders and service providers.
 
Date: Friday 12 October 2018 
Time: 11.00-16.00, arrivals from 10am, tactical tea and cakes until 5pm
Venue: Lift, 45 White Lion Street, N1 9PW
 
To register your interest email mhairi@reap.org.uk or 07756 939 187 with any access or dietary needs.
 
World Mental Health Day in North Tyneside, Newcastle and Gateshead 
 
togethernessNorth Tyneside:
Date: 12 October
Time: 11;30am - 05pm
Venue: Cullercoat Crescent Club NE30 4PN
0191 223 0382 / launchpadnt@gmail.com
 
#NTWMHT18
 
Newcastle:
Date: 06 October
Time: 11am - 03pm
Venue: Central Library, Newcastle Upon Tyne
 
@NCLMHDAY
 
Gateshead:
Date: 10 October
Time: 11am - 03pm
Venue: Shipley Art Gallery
Mish Lorraine: 0191 477 7381 / MLoraine@mhm.org.uk
 
Young People and Mental Health - What's Society got to do with it? 
 
WMHD event in London
The theme of World Mental Health Day on 10 October is Young People and Mental Health in a Changing World. 
 
The number of young people reporting a mental health problem has multiplied by six in 2 decades.
 
75% of mental heath problems set in by age 24 and 50% by age 14. We’d better do something about it.
 
We hear calls for more treatment. But if, as the World Health Organisation says, mental illness is socially produced, is medicine the answer, and is it what young people want?
 
Join Talk for Health FREE for short talks and conversation with expert young speakers and those with pioneering new approaches.
Date:10 October
Time: 06pm - 08pm
Venue: Islington Town Hall, Upper Street, London N1 2UD
 
To book your place, please click here
 
World Mental Health Day at Blackfriars Settlement 
WMHD
 
Date: Wednesday 10 October 2018
Time: 1-2pm
Venue: The Foyer open space, Blackfriars Settlement: 1 Rushworth St, SE1 0RB
 
Fruits, Tea & Toast, Coffee & Cakes
Bring your own lunch & refreshments
Come together to chit-chat, share art works, stories, meet friends
 
Followed by a group visit to the Tate Gallery from 2pm
 
Seminar: Surviving student life as a voice hearer 
 
SymposiumThis free event is organised by the Collaborating Centre of Values-Based Practice, St Catherine's College, Oxford.
 
Speakers include:
  • Dr Roz Austin (Network Lead of the Educational Voice-hearing Network)
  • Dr David Crepaz-Keay (The Mental Health Foundation)
  • Dr Louise Johns (Oxford University)
  • Olivier Bazin (Oxford Mindfulness Centre)
Date: 28 November
Time: 10am - 04pm
Venue: St Catherine's College, Manor Road, Oxford OX1 3UJ
To book your place, please visit this page.
 
Mad In America: How Modern Psychiatry Came to Be 
 
Article Image
This week on Mad In America Robert Whitaker goes over the history of “How Modern Psychiatry Came to Be”.
 
 
John Read and Sue Cunliffe's podcast on the 57th Maudsley Debate in London, focuses on whether ECT has a place in modern medicine. And on the Science and Pseudoscience podcast, Sharna Olfman speaks with physician Zach Bush about current research on epigenetics and the microbiome.
 
UCL mental health researchers to benefit from multi-million pound investment 
 
Article ImageTwo UCL researchers were successful in securing funding from UK Research and Innovation (UKRI), following their recent announcement to invest £8 million in new mental health research networks. Professor Sonia Johnson and Dr Daisy Fancourt will join six other networks designed to broaden mental health research, and will each receive £1.25 million over four years from across the research councils.
 
They aim to bring together experts, key community organisations and people with lived experience to investigate loneliness and social isolation in mental health
 
Read more here.
 
In the news 
 
London School of Economics
 
The Windrush Generation have been treated appallingly. EU migrants may expect an even worse deal
 
The Independent
 
Antidepressants cause withdrawal symptoms in over half of patients who try to quit them, review shows
 
Disability News Service (DNS)
 
A charity has refused to criticise the Department for Work and Pensions (DWP) over four deaths linked to universal credit, hours after a minister announced it would receive tens of millions of pounds to support claimants on the new benefit system.
 
Both Bipolar UK and the Epilepsy Society are facing questions over their close links to the Conservative party.
 
The Guardian
 
Very few patients in high secure hospitals have convictions for anything as horrible as Ian Brady’s crimes, and some have no criminal conviction at all, writes Mat Kinton
 
PTSD rates increase in UK military personnel, research suggests
 
BBC News
 
The number of referrals to child and adolescent mental health services in England has increased by 26% over the past five years, Education Policy Institute (EPI) research suggests
 
Huffington Post
 
One in three people have experienced a decline in mental health while waiting for a doctor’s appointment, according to a survey of 8,000 people.
 
Young women's mentl health needs to become a priority.
 
Mental health in the Long-Term Plan for the NHS | SUC Feedback: survey and workshop 
 
Article ImageThe government has announced a 3.4% funding settlement for NHS England over the next 5 years and the NHS England Mental Health team will be putting forward a plan that spells out the priorities for mental health. NHS England has drafted a list of questions which are being sent to stakeholders.
Survey
Researchers at the National Collaborating centre for Mental Health would like to hear from you if:
  • You have or have had a mental health problem
  • You care or have cared for someone with a mental health problem
  • You have or have had a long-term physical health problem and have or have had mental health problems associated with this.
To map the needs of the long-term funding settlement, it is important to get the best understanding of your experience and what, in your opinion, good mental health care should look like.
 
Please let the researchers know and help us to identify those challenges by completing this survey by Friday 26 October 2018
The survey is anonymous. What you submit will be sent to NHS England for consideration.
 
Please contact Emanuela Russo emanuela.russo@rcpsych.ac.uk / 020 3701 2600 if you would like to receive a Word version of the questionnaire to complete offline, or if you would like a hard copy to be sent with a stamped addressed envelope. If you need more time to complete the survey, please let Emanuela know.
 
Workshop
A workshop will take place on Tuesday 30 October 2018, 11am-4pm, at the Royal College of Psychiatrists. The aim of the workshop is to discuss the key themes from the survey responses and consider what elements to prioritise and submit to NHS England.

Please let Emanuela know by Tuesday 16 October 2018 if you would like to attend. Travel to and from the meeting will be organised and paid for: emanuela.russo@rcpsych.ac.uk / 020 3701 2600
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GOV.UK news 
 
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London 10/11October. The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health.
Find out more here tweet #TheWorldNeeds.
 
Matt Hancock warns of dangers of social media on children’s mental health
The Chief Medical Officer is reviewing the impact that too much social media use can have on children’s mental health and will draw up guidance to help parents.

£240 million social care investment to ease NHS winter pressures
The investment in adult social care this winter will help local authorities reduce pressures on the NHS by getting patients home quicker and freeing up hospital beds across England.
 
Mental Health Act Review EVENTS
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups have been finalised. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for October.
 
Two more stakeholder events have been set for:
  • Tuesday 16th October, London, 1-4pm Book here.
  • Wednesday 17th October, Exeter, 2-5pm Book here.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

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Inquiry into Safeguarding Vulnerable Missing Adults

MMVA.jpg

Ann Coffey MP, as Chair of the All Party Parliamentary Group (APPG) for Runaway and Missing Children and Adults led the 'Inquiry into safeguarding missing adults who have mental health issues'.

The inquiry was launched with the aims of:

  • Developing a better understanding of the current response when an adult goes missing, and the support provided upon their return.

  • Developing a better understanding of which agencies are or should be involved when an adult returns from missing.

  • Understanding what additional support and interventions could help these vulnerable adults, including what could prevent future missing episodes.

As co-secretariat to the APPG, Missing People carried out consultation with people who have previously been missing, their families and professionals who work with them; analysed responses to a call for evidence sent to police forces and other relevant agencies; and supported parliamentary roundtable meetings attended by experts from a variety of fields.

NSUN Bulletin 17th Sept

NSUN Bulletin Monday 17 September 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 17 September 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 17 September edition of our weekly ebulletin that contains lots of updates, news and views.
 
If you don't receive this bulletin directly from us but would like to, you can sign up for it here.
 
On 6 September, Mad In the UK launched. The website welcomes contributions. See our feature below.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News  
 
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
 
To read the related article by John Pring, Disability News Service, please click here
 
 
NSUN Members Event and Annual General Meeting - The Future of Peer Support
 
Please bookmark the AGM event page on our website - you can refer to it whenever you feel ready to book your place.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Selected blogs 
 
Suicide Is One The World's Great Public Health Challenges
 
Paula Sherriff, Labour MP for Dewsbury and shadow minister for mental health, on why we need a different approach
 
 
What Does it Mean to be Anti-Psychiatry?

Thoughts of a Cartoon Anteater by Auntie Psychiatry
 
 
The uncomfortable truth is that many psychiatric wards have a culture of sexual assault

Jay Watts finds that the idea that people, predominantly girls and women, are too mad, too bad and too sad to be believed has been used to silence people since time immemorial
 
 
Support the making of a collection of survivors' works  
 
riding the storms artworkRiding the Storms is a book of stories, poems, photography and artwork created by people who are reflecting on, and even embracing, the pain of their mental suffering.
 
The contributions in Riding the Storms have arisen out of a project backed by Recovery Devon, working with people experiencing mental distress, of all backgrounds and ages.
 
Recovery Devon has funded project work to date but is not able to pay for the publication of the book. The money raised will pay for the editing, design, printing, promotion and distribution. 
 
For more information about this project and how to support it, please visit this page
 
Dolly Sen has been guest editing Disability Arts Online 
 
Dolly SenCreative survivor Dolly Sen has been guest editing Disability Arts Online (DAO) since early August and is due to continue her tenure until at least mid-September.
 
Her own recent posts have ranged from a short film inviting you to play Mad Bingo, poems to stand against the world with, a blog that doesn’t exist, and a series of Unreasonable Adjustments cartoons.
 
To read more about Dolly's guest editing work at DAO, please visit this page
 
Dolly is also crowdfunding for the second part of her mental health film trilogy. 
 
Sexual safety is major issue in menal health wards, says CQC 
 
report by the CQC has found that people who use mental health services do not always feel that they are kept safe from unwanted sexual behaviour.
 
The report calls for co-produced guidance that enables everyone delivering mental health services to do the right thing about sexual safety.
 
New funding to help patients have their say on health services 
 
NHS EnglandThe Building Health Partnerships programme has been awarded £450k from NHS England and the National Lottery to support co-production in 10 areas, so patients and carers can be more easily involved in designing services.
 
To read more about this, please click here
 
Grants for womens peer support - apply until 15 October 
 
women peer support grants (Mind & Agenda)Mind and Agenda are working together in partnership to deliver £1.3m women’s mental health peer support grants.
 
This new programme will fund and enable community-based peer support that reaches around 4,500 women.  
 
Who can apply?
Organisations / partnerships, based in England and Wales, that can demonstrate a track record of delivering services and programmes developed specifically for women facing complex social issues.
  • Mind and Agenda expect to make 80 to 90 awards.
  • Projects will be funded for a maximum of one year.
  • Applications must be made before 15 October.
For more information and how to apply, please visit this page
 
NSUN member recommends mental health phone apps 
 
mood meterOne of our members contacted us with recommendations concerning mental health phone apps.
 
'I've recently started using this app [Mindcare] to measure how I feel throughout the day.', says NSUN member.
 
'It's good because you can be mindful of how you are feeling and make any adjustments. I find it useful as I have Borderline Personality. It will analyse your results too. It's not the answer to mental health problems, but it may be a help.' 
 
'The Mindcare is for android phones and 'Mood Meter' is for iphones.'
 
Links to download the apps:
MindCare recommended for Android, even though there is an iPhone version.
Mood Meter recommended for iPhone, even though there is a version for Android.
 
Service user involvement role with the Advocacy Project (London) 
 
The Advocacy Project
The Advocacy Project is currently looking for people who have experienced mental health issues either as an individual or carer.
 
This is to feed into a London-wide mental health programme called Adult Mental Health Transformation Programme that is delivered by NHS England in collaboration with the Healthy London Partnership.
 
The programme is made up of six workstreams:
  • increasing access to psychological therapies (IAPT)
  • digital IAPT
  • early intervention in psychosis
  • MH in Integrated Care Systems
  • London Mental Health Transformation Board
  • perinatal mental health
This is an exciting opportunity for London-based service users and carers to shape the work of the mental health programme.
 
The Advocacy Project is recruiting two people per workstream and a wider network of people to comment on workstream papers and plans.
 
This is a voluntary post however the Advocacy Project expects that the role could lead to employment or further opportunities for individuals.
 
Volunteers will receive training and support to complete their role.
 
To find out how to apply, please contact Bonnie Studd bonnie@advocacyproject.org.uk/ 020 3960 7910 by Monday 17 September.
 
Please note that this is the initial deadline and people will have an opportunity to take part beyond this date
 
Hertfordshire Partnership - Recovery Week 
 
Hertfodshire Partnership Foundation Trust (HPFT) would like to welcome people using local services, carers, professionals and members of the public to join us for 
a day of learning and networking
 
HPFT will be holding a local recovery conference, from 10am to 4pm, at the following venues :
In addition HPFT will be holding an evening event, from 6.00 to 8.30pm, at:
HPFT would like to encourage you to attend the event at your closest location. Please book via the Eventbrite links above or by calling Divya Nair on 
01438 730802.
 
HPFT are planning to offer free transport for people using local services, and carers, depending on the level of demand. 
 
World Mental Health Day event in Bolton 
 
WMD event in bolton
Young people & mental health in a changing world
 
There’ll be information, stalls and activities including:
yoga, videos, dance, a choir, photo booth, presentations and more

Date: Wednesday 10 October
Time: 1pm to 6pm
Venue: University of Bolton, Chancellor’s Mall,University Way, Bolton, BL3 5AB
 
For more information please contact Nireexa Solanki
TEL 01204 380643 - Mobile 07549 923 201
Nireexa.Solanki@family-action.org.uk
band.org.uk / facebook.com/bandbolton / twitter.com/bandbolton
 
World Mental Health Day in London 
 
speakers corner
DETAIN ● RESTRAIN ● INJECTIONS 
18:00 PM - NO tickets exist - ticket NOT required
 
Put on your thermals (or body warmer) and come and enjoy the FREE soapbox about MENTAL HEALTH experiences on WORLD MENTAL HEALTH DAY at a (TEMPORARY) SPEAKERS CORNER in London.
 
Everyone is welcome to enjoy listening or speaking, as an individual, whether mentally ill or not - look forward to seeing you!
 
Date: 10 October
Time: 06pm - 08pm
Venue: Speakers' Corner, Cumberland Gate (corner of Park Lane), W1H 7EL Hyde Park (by Marble Arch), United Kingdom
 
For more information, please visit this page
 
One-day event celebrating the power of thought-provoking storytelling 
 
being the story
Being the Story is a an immersive storytelling day which gives a platform to extraordinary individuals with lived experiences who are creating change through their work.
 
Date: 19 October
Time: 10am-4pm
Venue: Conway Hall in London

Who is it for?
The Being the Story experience is for people working in or for the charity sector or socially-minded individuals who are interested in the power of storytelling and the impact it can have to challenge prejudice, reframe narratives, raise awareness, engage supporters and generate funds.
 
People attending will include: CEOs and senior management; communications, digital, campaign and marketing staff; funders, fundraisers, service users and expert citizens; frontline/outreach staff; staff working in CSR for corporate organisations, change-makers who want to develop the confidence to share their own personal story; and journalists.
 
How will it help you?
The organisers say you will leave the event with:
» an understanding of the power of storytelling
» ideas for how to tell your organisation's story differently, with more authenticity, to build trust and to encourage supporters to take action
» inspiration about how to gather stories and find new creative ways to share them
» confidence to share your own experiences, or support others to do so
» connections and potential future partnerships
» inspiration – you may be challenged by what you hear, perhaps feeling angry or moved, but you will be engaged and motivated.
 
For more information and to book a place, please visit the website
 
The care programme approach - time to move on? 
 
Article Image
The Care Programme Approach (CPA) model is nearly 30 years old. Ideas about rehabilitation, service user involvement and recovery have undergone seismic changes during this time.
 
This event will explore whether the life of the CPA come to a natural end.
 
With evidence showing strongly that service users thrive using the Recovery model, is it time to discard the old ways and embrace a new recovery framework for care planning in mental health?
 
Date: 01 November
Time: 09:30am - 04:00pm
VenueCity, University of London, Northampton Square, London EC1V 0HB
 
For more information and to book a place, please click here
 
Coming soon - Peerfest 
 
PeerfestThis year, the annual celebration of peer support will be hosted by Thurrock Mind who came through as the chosen user-led peer support project to host Peerfest18
 
Date: 20 October
Bookings open: 05 September
 
Programme: worshops, activities, the Marsh Awards and muvh more.
 
To attend, get involved, or run your own activity, please take a look here.
 
In the news 
 
DWP
Disability News Service (DNS)
 
This week, DNS has found that new government research shows that hundreds of thousands more claimants of personal independence payment (PIP) would have taken further steps to challenge the results of their claims if the system had been less stressful and more accessible.
 
DNS also reports that the government has been accused of publishing a “deeply unsatisfying” response to a devastating report by a UN committee that concluded last year that the UK had been “going backwards” on independent living.
 
 
The Guardian
 
Reports that, desput a funding pledge, the NHS mental health crisis worsens as 2,000 staff quit per month.
 
The Guardian also finds that mental health issues in young people are up sixfold in England since 1995.
 
Gay Star News
 
Years and Years frontman Olly Alexander has appeared in a powerful new video speaking about mental health awareness among LGBTQ people.
The video has been released to coincide with World Suicide Prevention Day [10 September].
 
Huffington Post
 
Reports that suicide in young women and girls is rising sharply.
 
The Independent
 
Duke of Cambridge has launched an initiative to support mental health at work.
 
New Kindred Minds Manifesto appeal 
 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
 
Please help if you can
 
Reminder 
 
don't forgetEvents - already advertised
 
If you haven't booked your place on already advertised events, we have collected some here
 
Jobs and involvement opportunities - already shared
 
If there is still time to apply or get involved, you can find previously shared opportunities on this page
Banner
GOV.UK news 
 
Help GOV.UK improve Department of Health and Social Care online content
Web contents producers at GOV.UK are seeking users who actively use the platform for health related content.
 
A six month project on the content transformation of the Department of Health and Social Care on GOV.UK  will ensure that visitors using GOV.UK can search for information easily, understand content better and access the information they need more efficiently.
 
As part of the content transformation process a team of contents designers be conducting user research at various stages and are seeking participation from the general public, medical practitioners, experts who work in the healthcare field and those who work in health related organisations. 
 
The following activities have been planned:
 
Individual research session
The contents designers would like to invite individuals to attend a telephone session or come to their DHSC offices.
 
The session will involve general questions about the participant, perhaps their work, how they use GOV.UK and they may get to use a computer to describe how they search for information.
 
The whole session will take about 30 to 45 minutes.  
 
Available slot dates will be from 10 September to 21 September.
 
Group research session
Content designers would also like to hold a user research group session at our premises in London on 20 September.
 
This will be a great opportunity to meet some of the team and other participants.
 
The aim will be a series of activities in a 2 hour session to help contents designers improve their taxonomy.
 
How to get involved
If you regularly use or search for health related contents on GOV.UK and are interested in taking part in this project, please contact:
 
Samantha Watson, Content Designer
Content Transformation, Department of Health and Social Care, 39 Victoria Street, SW1H 0EU
E: samantha.watson@dh.gsi.gov.uk 
T: 020 7972 5988
 
 
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London this October.
The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health. Find out more here.
 
Mental Health Act Review UPDATE 
 
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups are being finalised by 14 September. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for early October. The final report is due mid-December.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

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Continuing Concerns about the Mental Health Act Review

I'm now enclosing a draft follow-up letter (please click links below) for the Mental Health Act Review Chair and Vice Chairs. I've drawn on suggestions which a number of you made for this next letter after I mentioned the problem meeting which NSUN had with the Review Chair and Vice Chairs on 13th July.  Thank you so much for your continuing support, which is hugely valuable.

 

I'm enclosing a large print copy of the letter as well and will also be including an easy read copy in my email to people with learning difficulties/disabilities.

 

The overwhelming number of people who replied expressed a preference for option (ii) at the end of the notes about the meeting with the Chair and Vice Chairs on 13th July (re-enclosed), so I've tried to word the letter accordingly. 

 

You'll notice a reference in the letter to important legal changes in Peru which are just happening. These are very exciting in human rights terms, so I've mentioned them in the recommendations as an example to follow. 

 

In the end, I haven't put together a separate letter for leaders of the main political parties and All Party Parliamentary Groups (APPGs). I think it's going to make more sense just to include the following points in emails to them:

· What NSUN is (i.e. a user-led organisation) and reference to the fact that the majority of co-signatories are user-led organisations, people with lived experience and allies

· Mention of the fact that we've been very concerned about the approach being taken to the MHA Review (with a copy of NSUN's original letter attached to explain why)

· The fact that we've tried to discuss our concerns with the Mental Health Act Review Chair and Vice Chairs, but have not received satisfactory responses 

· A copy of the current letter to explain why we found the responses unsatisfactory and so remain concerned

· The fact that it now seems important to approach politicians too with our concerns (with wording here adapted to fit the particular recipient) and our hope that we will now receive their support. 

Any suggestions about the letter for the Review Chair and Vice Chair, or the email points for politicians would be very welcome.

 

Also, Simon Wessely, the Review Chair,  is currently putting pressure on everyone to support the limited legal changes due to be recommended by the Review. (These fall well short of the full human rights set out in the Convention on the Rights of Persons with Disabilities, of course.) He is arguing that otherwise Parliament is unlikely to support Review recommendations which are intended at least to make things better for service users, particularly linking this with the fact that there is no one party in overall power.  If anyone has ideas about wording in the letter which would address this point, it would be helpful to know.

 

Closing date for suggestions to me about the draft letter and/or about points to include in the email to politicians and APPGs: 12 noon next Monday, 17th September.

 

Thanking you so much again for your support

Draft follow up letter

Draft follow up letter Large Print

Notes from meeting with MHS Review Chair and Vice Chair

Notes from meeting with MHS Review Chair and Vice Chair Large Print


 

NSUN Bulletin 10th September 2018

NSUN Bulletin Monday 10 September 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 10 September 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 10 September edition of our weekly ebulletin that contains lots of updates, news and views.
 
If you don't receive this bulletin directly from us but would like to, you can sign up for it here.
 
On 6 September, Mad In the UK launched. The website welcomes contributions. See our feature below.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
NSUN's views on 'Mental Health in the Long Term Plan for the NHS'
 
NHSThe Prime Minister has said the government will reveal a new “sustainable long term plan” for the NHS over the next year, which will be backed by ”a multiyear funding settlement”. A five year funding settlement will be mapped to this ten year plan.
 
GPs, patients and Healthcare professionals were asked to feed into the plan with a deadline of 31.8.18. Clare Murdoch is leading the mental health workstream and asked a range of stakeholders to share their priorities and contribute views on the challenges of transforming mental health services in the long term. On this page, we share NHS England's letter and our response.
 
NSUN runs work shop for HEAR Network event
 
HEAR is a pan-equality network of London equality and human rights voluntary and community sector organisations.The event 7 September, focused on celebrating and promoting the public sector (policy and frontline) working with equality and human rights Voluntary and Community Sector (VCS) in London. This was a follow up to the event October 2017
 
 
NSUN ran a workshop on the 4Pi National Involvement Standards and Kindred Minds Manifesto which HEAR and ROTA have heavily used with their partners in West London (8 Clinical Commissioning Groups). 
 
The event also support's HEAR and ROTA's Mental Health Equality campaign. In the open letter ROTA calls on all local Councillors, as well as the VCS and individual campaigners, to commit to the six action points that have been co-authored by Experts by Experience, user-led Voluntary and Community Sector (VCS) and BAMER organisations.See the open letter here.
 
 
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
 
To read the related article by John Pring, Disability News Service, please click here
 
 
NSUN Members Event and Annual General Meeting - The Future of Peer Support
 
Please bookmark the AGM event page on our website - you can refer to it whenever you feel ready to book your place.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
New mental health networks announced 
 
kings college
New Mental Health Networks funded by the UK Councils and Research Innovation (UKRI) have been announced.
 
The Networks received a combined funding of £8 million and will bring together researchers, charity workers, health practitioners and people with lived experience of mental health issues.
 
The Mental Health Networks are designed to be interdisciplinary, spanning across a wide range of disciplines including health, medicine, biology, social sciences, humanities and environmental sciences.
 
 
The Networks stretch across the nation and as they develop will cover further regions.
 
If you would like further information about the funded Mental Health Networks, you can search #MentalHealthNetworks on Twitter or visit these web links: https://tinyurl.com/y8ujbdz8 https://tinyurl.com/y77dvbbr
 
The list of Mental Health Networks are:
  • Improving Health and Reducing Health Inequalities for People with Severe Mental Illness: the 'Closing the Gap' Network+: Led by Professor Simon Gilbody, University of York
  • Social, Cultural and Community Assets for Mental Health: Led by Dr Daisy Fancourt, UCL
  • Transdisciplinary Research for the Improvement of Youth Mental Public Health (TRIUMPH) Network: Led by Professor Lisa McDaid, University of Glasgow
  • Loneliness and Social Isolation in Mental Health: Led by Professor Sonia Johnson, UCL
  • Violence Abuse and Mental Health: Opportunities for Change: Led by Professor Louise Howard, King’s College London
  • Emerging Minds: Action for Child Mental Health: Led by Professor Cathy Creswell, University of Reading
  • SMARtEN: Student Mental Health Research Network: Led by Dr Nicola Byrom, King’s College London
  • The Nurture Network: Promoting Young People's Mental Health in a Digital World: Led by Professor Gordon Harold, University of Sussex
More about this announcement here
 
Challenge Sheffield report launch 
 
 
Challenge Sheffield and SODIT
Challenge Sheffield and SODIT work with people with lived experience of mental health distress and used a recent grant from Healthwatch Sheffield to hold the Sheffield Mental Health Challenge Day.
 
They wanted to create a supportive and inclusive space to start to build a network and voice for people living with mental health distress to better influence and improve services over the longer term.
 
Find out more and a link to their report here.
 
Survivor poetry: Words Out from Cafe Church 
 
Joe KellyJoe Kelly, who is a Trustee of NSUN, has collected some of his poems on a website called' Words Out from Cafe Church'.
 
Joe's latest poem, 'Jesus wept' is doing very well at the moment:
 
He must be crying now—
for all the people experiencing coldness  hardship and corruption—
the refugees and war victims fleeing their home country—
the homeless man who sleeps out on a frozen night—
the needy people who can't get relief and find their way around the benefit system designed to confuse—
experiencing the benefit sanction pathway to visiting the food bank—
Grenfell Tower Inferno—
so many unanswered questions—
many people experiencing coldness misery and corruption—
time for feelings, time for emotion—
Jesus wept—
I think he's crying now
 
For more poetry, please visit Words Out from Cafe Church
 
Selected blogs 
 
Van GoghPriests, peasants and prolific creativity: Van Gogh's year as a mental health patient
 
The renowned artist Vincent Van Gogh’s died by suicide in 1890, two months after leaving a mental asylum. Martin Bailey researched his year in the institution.
 
Troubling mental health nurse education
 
Alec Grant has been teaching mental health nurses in England for two decades and has developed 'several inter-connected gripes about mental health nurse education'
 
Mad in the UK has launched 
 
Mad in the UK
Thursday, September 6, saw the culmination of many months of ‘behind the scenes’ effort with the launch of Mad in the UK. MITUK is one of a growing number of Mad In America (MIA) affiliated sites, including Mad in America Hispano-HablanteMad in AsiaMad in Brasil and Mad in Finland.
 
Acting in concert with MIA, Mad in the UK will carry UK-specific content and provide a voice for UK professionals, service users/survivors, peer activists, carers, researchers, teachers, trainers, lawyers, journalists, volunteers and others who are working for change in the field of what is usually referred to as ‘mental health’.
 
Mad In the UK welcomes contributions to fill its recently launched website: bloggers, commentators, and people wishing to submit events or couses are invited to get in touch. 
 
Please visit Mad in the UK's website.
 
Influence the production of guidance for therapists 
 
APPG
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
 
For more information about the project and how to get involved, please click here.
 
Survivor's Creative Works 
 
Article Image
The Echo Society are pleased to announce the launch of their next campaign project as part of the narcissistic abuse matters campaign UK #NAMUK: Survivors Creative Works.
 
They would like to feature any of your works that you created as a way to cope with narcissistic abuse. They are looking for drawings, paintings, poems, short prose, sketches, doodles, graphic design art, songs etc. and this will be featured on social media (Facebook and Twitter). By doing this they aim to highlight the impact narcissistic abuse has on lives of those impacted and encourage public debate.
 
Work will be posted anonymously or first initial and county only (i.e. E, Kent) with a brief description of under which circumstances the work was produced. No one will be identified.
 
Fid out how to Get Involved or contact Lydia at: campaigns@theechosociety.org.uk
 
Blackfriars Settlement activities 
 
blackfriars settlementBlackfriars Settlement offer a wide range of services and activities, supporting people to achieve their goals and improve their well-being.
 
Their latest flyer is available online here
 
Blackfriars Settlement is located at 1 Rushworth Street, London SE1 ORB
Telephone: 020 7928 9521 Fax: 020 7960 4628
For general enquiries please email: info@blackfriars-settlement.org.uk
 
World Mental Health Day event in Bolton 
 
WMD event in bolton
Young people & mental health in a changing world
 
There’ll be information, stalls and activities including:
yoga, videos, dance, a choir, photo booth, presentations and more

Date: Wednesday 10 October
Time: 1pm to 6pm
Venue: University of Bolton, Chancellor’s Mall,University Way, Bolton, BL3 5AB
 
For more information please contact Nireexa Solanki
TEL 01204 380643 - Mobile 07549 923 201
Nireexa.Solanki@family-action.org.uk
band.org.uk / facebook.com/bandbolton / twitter.com/bandbolton
 
Spread the Word event in London 
 
spread the word
Join Words That Carry On, a fund dedicated to commissioning vital research on personality disorders, autism and complex mental health needs, for an end of summer poetry and music night at the beautiful Skip Garden in Granary Square. 
 
Date: 14 September 2018
Time: 18:00 – 22:00 BST
Venue: Skip Garden, 1 Tapper Walk, London N1C 4AQ
 
The evening will include live performances, poetry workshops and pizza as well as the opportunity to have your say on the fund's research priorities.
 
To book your place, please click here.
.
 
Community Equalities Coordinator (North East, Yorkshire & Humber) 
time to change
  • Home-based
  • £31,818 per annum (plus £1,421 per annum)
  • Contract until 31 March 2021
Time to Change are looking for an organised ‘people person’ who has personal experience of mental ill health and associated stigma and discrimination and is now ready and able to use that to embed Time to Change as a sustainable campaign in the North East, Yorkshire & Humber.
 
You will join seven peers already working in other regions of England, and eight other team-mates, including your manager, who are based at Mind’s HQ in London.
 
The role is based at home with most management and support delivered by email, phone and Skype and occasional face-to-face meetings.
 
To structure your days, deal with setbacks and manage competing priorities, you will need to be motivated, able to work on your own initiative and adaptable to change.
 
For more information and to apply please visit this page
 
Women in crisis report published 
 
women in crisisAgenda is an organisation which ensures that women and girls at risk of abuse, poverty, poor mental health, addiction and homelessness get the support and protection they need.
 
Agenda's new report #WomeninCrisis is out - it looks at how the #MentalHealthAct can be detrimental to women, and the devastating impact that has, including alarming numbers of self-inflicted deaths.
 
You can read the report here
 
Recruitment for Chair 
 
Article ImageIndependent Chair of Think Ahead’s
Service User and Carer Reference Group

Think Ahead are seeking a new independent Chair for the SUCRG, to work with SUCRG members and Think Ahead in ensuring that the group is fully and effectively involved in our work.
 
Details:

Payment for involvement: £175 for preparing for and chairing each meeting, plus reimbursement for travel and out-of-pocket expenses. (There are three to four meetings per year.) With your agreement, we may ask you to undertake additional activities for which you would be paid separately.
 
Time commitment: Typically up to eight days per year, though this may vary. Appointment term: Three years, subject to review.
 
Start date: We anticipate the first meeting with the new Chair taking place in October 2018.
 
Location: Meetings are held in central London.
 
Appointment term: Three years, subject to review.
 
Application deadline: Applications must be received by 5pm on Monday 17 September 2018.
 
Interview date: Tuesday 25 September 2018.
 
For the role description and how to apply click here.
 
Coming soon - Peerfest 
 
PeerfestThis year, the annual celebration of peer support will be hosted by Thurrock Mind who came through as the chosen user-led peer support project to host Peerfest18
 
Date: 20 October
Bookings open: 05 September
 
Programme: worshops, activities, the Marsh Awards and muvh more.
 
To attend, get involved, or run your own activity, please take a look here.
 
In the news 
 
Atos victims protest
Disability News Service (DNS)
 
DNS has found out that the Department for Work and Pensions (DWP) is refusing to release evidence that would show how many secret reports it has compiled into the deaths of claimants of its new universal credit, in a fresh breach of freedom of information laws. This week, DNS paid tribute to Juliet Marlow, passionate activist of Not Dead Yet UK.
 
DNS also approached activists for their views on the planned mental capacity and liberty deprivation. The bill ‘will take disability rights backwards’ and it must be delayed.
 
Mental Health Today (MHT)
 
 
Last month, MHT interviewed Simon Wessely, who chairs the Mental Health Act Review, who said ECT is in his 'own advance directive'
 
MHT also found that 'mental health austerity has ended'
 
The Guardian
 
The Guardian have revealed that author Ian Rankin, London mayor Sadiq Khan, broadcaster Stephen Fry and DJ Lauren Laverne are among 130 signatories to a letter calling on the nation’s media to lead the way in transforming how suicide is covered.
 
The Guardian also report on guidance from Universities UK and charity Papyrus seeks to halt rise in student suicides.
 
Huffington Post
 
Why The Media Should Drop Head-clutching Photos As Their Go-to Representation Of Mental Health: People with mental health problems look as diverse as the society we live in - not like some hybrid of Eeyore and Edvard Munch’s The Scream.
 
The Independent
 
The Independent finds that there has been a significant drop in male suicides – but we still need to talk about men’s mental health.
 
Mental Health Cop
 
 
New Kindred Minds Manifesto appeal 
 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
 
Please help if you can
 
Reminder 
 
don't forgetEvents - already advertised
 
If you haven't booked your place on already advertised events, we have collected some here
 
Banner
GOV.UK news 
 
Lords debate on the Mental Health Units Use of Force Bill
Members of the Lords, idiscussed the key principles and purpose of the Mental Health Units (Use of Force) Bill during second reading, on Friday 7 September. The amendments are now under consideration and a date will be announced for the committee.
 
Hospitals to receive £145 million to prepare for winter demand
The funding from the Department of Health and Social Care’s existing budget will be spent on 81 new schemes.
 
Matt Hancock's vision for a tech driven NHS
The Secretary of State fo Health and Social care gave a technology focused speech at NHS Expo 2018.
This is the full trancript
 
New guidance to help NHS patients benefit from digital technology
Speaking at the NHS Health and Care Innovation Expo conference, health minister Lord O’Shaughnessy announced the initial technology partnerships Code of Conduct for Data-driven Health and Care Technology.
 
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London this October.
The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health. Find out more here.
 
Mental Health Act Review UPDATE 
 
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups are being finalised by 14 September. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for early October. The final report is due mid-December.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
 
Mental health therapists in GP practices could be the norm
Health chiefs have drawn up new guidance to encourage doctors to place mental health therapists in practice surgeries – bringing more mental and physical health services under one roof. Read more here.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD

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NSUN Bulletin 3rd September 2018

NSUN Bulletin Monday 03 September 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 03 September2018
Table of Contents
Dear Viewpoint
 
Welcome to the 3 September edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Call for submissions - evidence of poverty and distress
 
UN Special RapporteurBetween 6 and 18 November, Professor Philip Alston, the United Nations Special Rapporteur for extreme poverty and human rights, will be visiting the UK to assess the current situation here.
 
Because  many people with lived experience have been hard hit by austerity measures, NSUN is just about to send the Special Rapporteur a written submission about poverty issues facing us.
 
If you are n individual, a member group or a member organisation and have evidence which NSUN can use for its submission, please can you send it to us before 7 September.
 
This page will provide you with a recipient email as well as context and guidance to help with your submission.
 
NSUN's views on 'Mental Health in the Long Term Plan for the NHS'
 
NHSThe Prime Minister has said the government will reveal a new “sustainable long term plan” for the NHS over the next year, which will be backed by ”a multiyear funding settlement”. A five year funding settlement will be mapped to this ten year plan.
 
GPs, patients and Healthcare professionals were asked to feed into the plan with a deadline of 31.8.18. Clare Murdoch is leading the mental health workstream and asked a range of stakeholders to share their priorities and contribute views on the challenges of transforming mental health services in the long term. On this page, we share NHS England's letter and our response.
 
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
 
To read the related article by John Pring, Disability News Service, please click here
 
 
NSUN Members Event and Annual General Meeting - The Future of Peer Support
 
Please bookmark the AGM event page on our website - you can refer to it whenever you feel ready to book your place.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
For your bookshelf: Social policy first hand 
 
social policy first hand
'Social policy first hand, An international introduction to participatory social welfare', edited by Peter Beresford and Sarah Carr, contains a chapter by Sarah Yiannoullou and Alison Faulkner on 4Pi involvement framework.
 
Alison has also written the chapter 'Service user-controlled research for evidence-based policymaking'.
 
NSUN Chair Sarah Carr has also written one of seven introductory chapters totled 'Who owns co-production'.
 
To get a copy of the book, please visit this page.
 
Selected blogs 
 
 
Mark Brown speaks with people who tell him what it feels like when your mental health means you can't leave the house for months, when your home has become your prison and your safe haven. 
 
 
A recent coment by the Pope reminded Ryan Butcher of how social discrimination can lead to mental distress. 
 
Influence the production of guidance for therapists 
 
APPG
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
 
For more information about the project and how to get involved, please click here.
 
LAST CALL - NSUN London Leaders Digital Lab: summer 2018 
 
Article Image
 
NSUN invites representatives from user-led member groups across London to a FREE networking, sharing and design programme.
 
 
NSUN invites representatives from user-led member groups across London to a free networking, sharing and design programme on:
  • Tuesday 04 Sept 
  • Wednesday 05 Sept 
  • Thursday 06 Sept 
Each day will run from 10:30am – 3pm.
 
The programme responds to feedback from the membership who have expressed the need for more opportunities to strengthen the user voice pan-London and will involve experience-based co-design.
 
N.B. No previous experience of design or digital technology is needed.
 
The programme will include six participatory workshops with the following themes:
  • Finding and amplifying your voice: the personal is political, collective power, leadership styles.
  • Creative influencing and campaigning: exploring local vs London-wide challenges, barriers and opportunities for change.
  • Creative mapping and storytelling with digital tools
  • Co-production and design for collective action: 4PI National Involvement Standards
To register your interest please complete the form here.
 
Asylum focuses on welfare reforms, impact and resistance 
 
Asylum Autumn 2018This Autumn the magazine for democratic psychiatry focuses on welfare refporms, their impact and the resistance to them.
 
Contents include:
  • Introduction to Welfare Rights Special Feature by Danny Taggart
  • Dead and Dying by Miriam Bender
  • The Terror of the Brown Envelope by Maria Pike, Disabled People Against the Cuts
  • The Life and Times of a Modern Day Mental by Ria Dylan
  • Case Studies No Longer by Ellen Clifford, Inclusion London
  • Will the Power Threat Meaning Framework Help Survivors on Welfare? by A Service User
  • Supporting Claimants: a practical guide by Jay Watts
  • Pursuing Choice, Not Truth: debates around diagnosis in mental health by Akiko Hart
  • Is the NHS a Cash Cow? by Liam Kirk
  • Letters - Liam Kirk and Andrew Baxter
  • Creative Writing by Joanna Marsh, Roy Hayde, Oliver Swingler and Irene Flack
  • Working Together for Change by Patrick Wood
  • Campaign To End Mechanical Restraint in Spain 
  • News and Reports
The excellent practical guide to supporting claimants by Jay Watts is available as sample article here.
 
Recruitment for Chair 
 
Article ImageIndependent Chair of Think Ahead’s
Service User and Carer Reference Group

Think Ahead are seeking a new independent Chair for the SUCRG, to work with SUCRG members and Think Ahead in ensuring that the group is fully and effectively involved in our work.
 
Details:

Payment for involvement: £175 for preparing for and chairing each meeting, plus reimbursement for travel and out-of-pocket expenses. (There are three to four meetings per year.) With your agreement, we may ask you to undertake additional activities for which you would be paid separately.
 
Time commitment: Typically up to eight days per year, though this may vary. Appointment term: Three years, subject to review.
 
Start date: We anticipate the first meeting with the new Chair taking place in October 2018.
 
Location: Meetings are held in central London.
 
Appointment term: Three years, subject to review.
 
Application deadline: Applications must be received by 5pm on Monday 17 September 2018.
 
Interview date: Tuesday 25 September 2018.
 
For the role description and how to apply click here.
 
Social Spider launch new community newspaper 
 
Article Image
 
 
 
 
Social Spider CIC are launching a new community newspaper in the London Borough of Enfield. 
 
Enfield Dispatch will be a free, monthly publication with 10,000 copies distributed primarily via community venues across the borough.
 
It is a difficult time for local newspapers within the UK, with local print advertising revenue dropping from £1,273 Billion in 2012 to £675 million in 2017 
 
This has not deterred Social Spider from launching 3 newspapers in 4 years - using a social enterprise community newspaper model developed and adapted in response to these challenging market conditions. 
 
Their two existing community newspapers Waltham Forest Echo (launched in 2014) and Tottenham Community Press (launched in 2016) combine professional journalism with voluntary contributions from people who live and work in the local area. They work in partnership with local businesses, charities, social enterprises and other community organisations to generate advertising income and distribute the newspapers. 
 
This model of publication is relatively low cost compared to corporate local media but also creates publications which are more responsive to and reflective of the communities they serve. 
 
Social Spider are planning to work with people in local communities to launch other community newspapers across the UK over the next two years. If you would like to support this work  or have ideas about areas where a community newspaper is needed please contact David Floyd
 
Coming soon - Peerfest 
 
PeerfestThis year, the annual celebration of peer support will be hosted by Thurrock Mind who came through as the chosen user-led peer support project to host Peerfest18
 
Date: 20 October
Bookings open: 05 September
 
Programme: worshops, activities, the Marsh Awards and muvh more.
 
To attend, get involved, or run your own activity, please take a look here.
 
Talk for Health programme 
 
Talk for Health
Talk for Health provides a free programme in talking for wellbeing which enables you to:
  • Talk more openly and truthfully
  • Listen more empathically
  • Set up or participate in clearly structure ongoing groups to improve and maintain wellbeing
After the training, you gain access to a community of ongoing groups and events to build your wellbeing.
 
The programme is for anyone who wants to take care of their wellbeing, is free, has been shown to substantially improve participants’ wellbeing, and is described as ‘enjoyable, inspiring, safe, supportive, and liberating’.
 
Click below to find information, dates, and to sign up for the next programmes:
For more information contact info@talkforhealth.co.uk
 
The Switch Trial - London   
 
Article Image Would you like to help develop a funding application for a study looking at changing medications to help people with psychosis and diabetes?   
 
A proposed new study, The SWITCH trial, led by a group of researchers from Keele University, will aim to test if switching from one of the commonly used antipsychotics to either of two newer ones helps people with type 2 diabetes. The researchers first need to obtain funding for this study and would like to gather feedback from people with lived experience of psychosis to help shape the study and funding application, in the form of a meeting to be held in Central London. 
 
We are looking for five people based in London to attend this meeting. We are particularly looking for people who have lived experience of either Psychosis or Schizophrenia and have also switched antipsychotic medication or have a diagnosis of Type 2 Diabetes.   
 
Date and time of the meeting 
The meeting will be held on Tuesday 23rd October 2018, with the meeting timed for 12 noon – 3:00pm.
 
The meeting will be held in Central London.     
 
What can you expect? 
You will be offered payment of £50.00 for attending this meeting and all reasonable travel expenses will be reimbursed. Lunch and refreshments will be also be provided.    
 
If more than 5 people express their interest in attending, they will draw names out of a hat, and let you know whether you have been selected to attend the meeting, by Friday 5th October.   
 
For more information or to express your interest in attending this meeting, please contact Tillie Cryer by email: tilliecryer@mcpin.org, or phone: 020 7922 7874. 
 
The Everyday Psych Victims Project 
 
Article Image
 The Everyday Psych Victims Project (EPVP) catalogues victimization by the "mental health" field experienced daily by millions of people.
 
It is a platform for people to share their story, create a lobby, and to highlight the rights violations, discrimination, and harm that "mental health" is founded upon. They give Psych Victims a voice. Their mission is to represent Psych Victims who are cast out and voiceless and say 'We're creating a new, unheard narrative'.
 
History of EPVP
'Founded in August 2016, EPVP has grown in readership, teamwork, and membership.
 
We started on Social Media with our largest readership being on Facebook. As of July 2018, we had over 3,500 followers on Facebook, over 3,300 on Twitter, and over 270 subscribers on YouTube.
 
We’ve interviewed via Skype over a dozen people since we started with most victims taking psuedonyms or being anonymous.
 
We focus on awareness, reporting, activism, video-creation, narratives, and showing the perspective of psych victims.
 
We hope that you can empower yourself and others with our collaborative website platform from 2018 onward. We give psych victims a voice.'
 
Find out more about EVPV here.
 
Identifying research priorities for digital technology in mental health care 
 
James Lind Alliance
Results of the James Lind Alliance Priority Setting Partnership.
 
The top ten research priorities, which were identified by consensus at a stakeholder workshop, should inform research policy and funding in this field.
 
Identified priorities primarily relate to the safety and efficacy of digital technology interventions in comparison with face-to-face interventions, evidence of population reach, mechanisms of therapeutic change, and the ways in which the effectiveness of digital interventions in combination with human support might be optimised.
 
To read the full research paper, please click here
 
PhD studentship - University of Southampton 
 
University of Southampton
Exploring the impact of public involvement and engagement: methods, outcomes and learning for best practice
 
Human Development and Health
Location: Southampton General Hospital
Closing Date: Sunday 09 September 2018
Reference: 1047618AF
Lead Institute / Faculty: Faculty of Medicine
Main Supervisor: Mary Barker
Other members of the supervisory team: Caroline Barker, Steve Dorney, Claire Ballinger
Duration of the award: 36 months, full time
 
Despite growing Patient and Public Involvement and Engagement (PPI/E) activity within health research programmes and organisations, little is known about the impact of PPI/E on health research. The overarching aim of this project is to better understand the impact of PPI/E activities on health research.
 
The project will be carried out in partnership with all those impacted by PPI/E, ensuring that the priorities of each group are welcomed and considered. This will include staff working in the field, researchers and, importantly, the public.
Candidates should have a passion for and interest in working in partnership with the public.
 
Experience of involving or engaging the public in service delivery, education and/or research is desirable. Candidates will need to be confident working in a multidisciplinary team, communicating across all levels of the organisation
 
For more information and to apply, please visit this page.
 
Edinburgh Mental Health Comedy show comes to London 
 
Article Image
Dave Chawner is an award-winning comic, published author and mental health campaigner.
 
Featured in The Guardian, The Independent, The Evening Standard, The Observer, The Metro, Cosmopolitan & The Mail Online - Arts Award Voice  -Bunbury Magazine.
 
Show Name: Dave Chawner; Mental
Date: Thursday 20th October
Time: 18:00 (doors) 18:30 (show)
Show Duration: 1 hour
Venue: Top Secret Comedy Club, 170 Drury Lane, London WC2B 5PD
Price: Free (pay on donation)
 
More information and booking details here.
 
Here are some of Dave's appearances:
  • Link to his TED Talk
  • Link to a recent appearance on ITV's Lorraine
  • Link to a documentary he presented on BBC's Tomorrow's World
 
Crowd Funding campaign for motherhood and mental health 
 
Article ImageAll My Worldly Joy - a memoir of motherhood and mental health 
 
Laura Wood is writing a book that she says she needed to read when I was so low and so stuck, and the book that she wishes those trying to help her had read.
 
Laura says that she hopes it will help others to know that they aren't alone and help health professionals to better support new parents affected by these issues.
 
The book is being crowdfunded with Unbound, so the initial print run will be funded by pre-orders. Laura will be donating 50 per cent of her profits from this book to the Maternal Mental Health Alliance.
 
Free debate on ECT 
 
ECT debateThe 57th Maudsley debate focuses on ECT.
 
‘This house believes that electroconvulsive therapy (ECT) has no place in modern medicine.”
 
For: Professor John Read and Dr Susan Cunliffe
Against: Professor Declan McLaughlin and dr sameer Jauhar
 
Date: 19 September
Time: 06:30pm - 07:30pm
Venue: Wolfson Lecture Theatre, Institute of Psychiatry, Psychology & Neuroscience, King's College, 16 De Crespigny Park, London SE5 8AF
Cost: free
 
for more information and to book a place, please visit this page
 
Placing psychosocial approaches to psychosis at the heart of the NHS 
 
ISPS event BelfastA core aim of ISPS UK is to promote social and psychological approaches to psychosis - yet in a culture of increasing cuts and short term fixes, this is no easy task.
 
Join in for an evening of discussion, debate and exploration to consider some of the challenges to embedding psychosocial approaches within the NHS and some practical steps we can all take to address these.
 
Date: 27 November
Time: 06pm - 09pm
VenueOlympic 3 Room, Clayton Hotel Belfast, 22-26 Ormeau Avenue, Belfast BT2 8HS
 
For more information and to book a place please click here
 
In the news 
 
Disabled activist
The Evening Standard
 
 
The 9m-high sculpture, called Head Above Water, is being erected on the South Bank as part of the London Design Festival in September.
 
 
Designed by Brit Steuart Padwick, the installation on Gabriel’s pier will be deliberately neutral in terms of gender, ethnicity and age. It is intended to be a symbol of hope and compassion for those who have experienced or are dealing with mental health issues, and the people who support them.
 
The Guardian
 
Denying unmarried mother widow's allowance ruled illegal
Government refusal to pay widowed parent’s benefit breached human rights, supreme court says
 
Disabled activists launch legal fund to take transport companies to court
#TransportJustice campaign to challenge air and rail travel discrimination
 
The Conversation
 
How indigenous and faith healers approach mental health in Ghana
 
Pulse
 
Professor Clare Gerada has called on the Government to improve support available to doctors, amid data showing over 400 doctors died by suicide in just four years
 
Huffingdon Post
 
Rachel Moss speaks with helpline workers, NHS staff and charity workers
 
Employers' Network: Positive about Pathways to Work 
 
Article ImageThe Health and Work Unit is run by a cross-government team, and is jointly sponsored by the Department for Work and Pensions and the Department of Health and Social Care. The unit is working towards inclusive workplaces for everyone.
 
In line with this work, we are inviting employers across the voluntary, community, social enterprise and the public sectors through the Health and Wellbeing Alliance to join an initiative that will bring together a group of employers who will commit to being part of a pilot programme aimed at embedding positive attitudes towards employing and supporting people with long term conditions and disabled people.
 
This pilot will result in a network of employers that are “Positive about Pathways to Work”. Our aim is that the network will grow and have a life beyond this project.
We are encouraging members of the pilot to try and commit to employing at least one person with a long term health condition and/or disability.
 
If you are interested in this initiative, or if you would like more information, please contact Philipa Bragman, CEO of CHANGE at philipa@changepeople.org or by calling 01132426619
 
New Kindred Minds Manifesto appeal 
 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
 
Please help if you can
 
Reminder 
 
don't forgetEvents - already advertised
 
If you haven't booked your place on already advertised events, we have collected some here
 
Banner
GOV.UK news 
 
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London this October.
The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health. Find out more here.
 
cannabis medicines - courtesy of BBC siteThe Mental Capacity (Amendment) Bill Easy Read
 
The Mental Capacity (Amendment) Bill is a proposed new law that is being discussed in Parliament. If Parliament agrees, it will become the law and the Mental Capacity Act will change. 
 
At the moment, thousands of people are deprived of liberty, but without an independent check. The new bill has liberty protection safeguards. These are measures to make sure these checks take place.
 
Under the proposed new law nobody will independently assess whether the arrangements are in the person’s best interests unless the person complains.
 
Download the easy read version here designed by CHANGE.
 
No Deal Brexit contingency plans published
 
The Government has published guidance concerning the possible interruption of supply of medical devices and medicines in the event of a no deal brexit. 
 
Personal budgets consultation: government to respond this Autumn
 
The government is currently analysing feedback from a consultation which was seeking views on giving more people the right to have personal health budgets and integrated personal budgets.
The government's response to the consultation will be published in the Autumn on this page.
 
Mental Health Act Review UPDATE 
 
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups are being finalised by 14 September. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for early October. The final report is due mid-December.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
 
Mental health therapists in GP practices could be the norm
Health chiefs have drawn up new guidance to encourage doctors to place mental health therapists in practice surgeries – bringing more mental and physical health services under one roof. Read more here.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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NSUN Bulletin 28th August 2018

NSUN Bulletin Tuesday 28 August 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Tuesday 28 August 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 28 August edition of our weekly ebulletin that contains lots of updates, news and views.
 
This week we continue our coverage of the Mental Health Act Review, this time with a series of blogs by Dr Gary Sidley. 
 
We have also heard about NHS England's drive to place therapists in each GP practice, and about the Home Office legalising prescription of cannabis based medicines....and of the Government's eagerness for us to not confuse this idea with a first step towards legalising the drug.
 
If you have thoughts on these topics, please do not hesitate to contact us:
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
 
To read the related article by John Pring, Disability News Service, please click here
 
 
NSUN Members Event and Annual General Meeting - The Future of Peer Support
 
Please bookmark the AGM event page on our website - you can refer to it whenever you feel ready to book your place.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Selected blogs 
 
InjusticeGary Sidley's thoughts on the Mental Health Act Review
 
Gary’s 33 years of experience working as a mental health professional – psychiatric nurse, clinical psychologist and manager – has enabled him to write a distinctive insider account of the shameful failings of the Western psychiatric system.
 
Disenchanted with psychiatry, Dr Sidley believes that current psychiatric practices are based on pseudo-scientific assumptions.

He has been blogging about the Mental Health Act Review since the end of 2017. So far, he's published 4 pieces on the subject:
 
Coming up - NSUN London Leaders Digital Lab: summer 2018 
 
Article Image
 
NSUN invites representatives from user-led member groups across London to a FREE networking, sharing and design programme.
 
 
NSUN invites representatives from user-led member groups across London to a free networking, sharing and design programme on:
  • Tuesday 04 Sept 
  • Wednesday 05 Sept 
  • Thursday 06 Sept 
Each day will run from 10:30am – 3pm.
 
The programme responds to feedback from the membership who have expressed the need for more opportunities to strengthen the user voice pan-London and will involve experience-based co-design.
 
N.B. No previous experience of design or digital technology is needed.
 
The programme will include six participatory workshops with the following themes:
  • Finding and amplifying your voice: the personal is political, collective power, leadership styles.
  • Creative influencing and campaigning: exploring local vs London-wide challenges, barriers and opportunities for change.
  • Creative mapping and storytelling with digital tools
  • Co-production and design for collective action: 4PI National Involvement Standards
A networking and workshop taster day will be held on Thursday 30 August 2-4pm where you will be invited to shape the programme according to your interest’s and preferences.
 
To register your interest please complete the form here.
 
Survivors' Poetry presents live at the Poetry Café 
 
Article ImageMC George Tahta (Laidback n uptight)
Featured guest Colin Hambrook
With music from Dave Russell
 
Date:  Thursday 13th September
Time: 8pm - 10.30pm
Venue: The Poetry Café, 22 Betterton Street, Covent Garden, London WC2H 9BX
Price: £1.50 floorspots, £2.50 concessions, £3.50 full ticket
 
Come and share your voice! Arrive at 7.30pm tp sign up for floorspots
 
Survey for the user/survivor/neurodiversity/mental health activist community 
 
USF
Do you have lived experience of emotional distress, neurodivergence, and/or behavioral health treatment? Are you a Mad Pride, neurodiversity, or psychiatric survivor activist?
 
WHO: The researchers are seeking participants who have lived experience of “mental difference,” i.e. characteristics, traits, states, and phenomena that have been categorized as symptoms of mental disorders or developmental disorders, and/or lived experience of behavioral health treatment, and who have engaged in any form of advocacy.
 
WHY: To help researchers better understand how experiences of mental difference and behavioral health treatment impact activist involvement.
 
WHAT:A voluntary research study. This is an online survey lasting approximately 20-25 minutes.
 
Participants will be asked questions about their mental health related experiences, involvement with activism, and viewpoints on sociopolitical issues within the mental health arena.
 
Every 30th participant will receive a $50 gift card up to five cards.
 
HOW: Contact Emily Cutler at ecutler@mail.usf.edu, or click on this link . The study’s protocol number is #00035052.
 
Black Tie - Trans awareness event 
 
Black tie eventHosted by Amanda De Courcy - founder of Synestra’s CIC – Herts County Council, the NHS, and various charities who support the transgender community, this unique dinner aims to raise much needed funds to support members of the transgender community.
 
There will also be the opportunity to showcase the amazing work of Gender Intelligence, Stonewall, and Mermaids.
 
Date: 27 September
Time: 07:00pm - 11:30pm
VenueHitchin Priory, Tilehouse Street, Hitchin, SG5 2DL
 
For more information and to book a place, please visit this page
 
Influence the production of guidance for therapists 
 
APPG PDD
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
 
For more information about the project and how to get involved, please click here
 
NHS England calls for mental health therapists in GP practices 
 
NHS England - 70 yearsHealth chiefs have drawn up new guidance to encourage doctors to place mental health therapists in practice surgeries – bringing more mental and physical health services under one roof.
 
NHS England hopes this could become the norm.
 
The Royal college of General Practitioners believes hat the move could radically change care.
 
Pulse, the GP newswire, has reacted to the news, reporting that NHS England asks GPs to house mental health therapists within their practices
 
 
ITV News said that GPs are encouraged to place mental health experts in their surgeries to bring more mental and physical health services under one roof.
 
Frequently moving house as a child could be bad for mental health 
 
moving housePeople who move house frequently in childhood – particularly over long distances – have a much higher risk of developing schizophrenia or other psychotic disorder later in life, a new study finds.
 
The effect is most pronounced among people in their highly-formative late teens  – with four moves between the ages of 16 and 19 almost quadrupling the risk of developing a serious psychiatric illness, compared to those who stay put during that time.
 
You can download the study from JAMA Psychiatry
 
Assess graduates who want to become social workers 
 
think aheadAurora Justice works in the recruitment team at Think Ahead.

Think Ahead values the input from people with experience of mental health problems.

Aurora wishes to out to people with lived experience of mental health problems, specifically those that have received support from a Social Worker.

If you are interested in being involved helping Think Ahead assess graduates wanting to become social workers, then Aurora is more than happy to have a telephone call with you. 
 
It would be a paid role and Think Ahead provide paid training in London for all assessors.
 
Aurora did not specify whether all roles would have to be London based or not.
 
For more information, please call Aurora on 020 3146 7191, and ask her to call you back if you need to save on your phone bill.
 
Aurora can also be contacted by email - a.justice@thinkahead.org
 
Welfare reform conference 
 
westminster insight
The UK has undergone the most radical reform of welfare benefits since the beginning of the welfare state.
 
Westminster Insight’s Welfare Reform conference this September aims at examining issues arising with the implementation of a Universal Credit full service, as well as wider benefit reform concerns including supporting the most vulnerable claimants and how to assist people into work.
 
Hear a combination of strategic content concerning the revisions to welfare reform as well as practical case studies from local authorities, housing associations and the third sector implementing services on the ground.
 
Date: 26 September
Time: 09:20am - 03:30pm
Venue: Westminster

Booking
The cost is rather high, making this conference impossible to access for anyone who isn't employed by a relatively large organisation.
 
There is an offer of 20% off the standard delegate rate, however if you book two places or more on any event, they can increase that discount to 30%.
 
In the “promotional code” section of the booking form, use the code JOBSZO-2863055 to receive 20%, and the code JOBSEO-2863055 for 30%.
Pay with a Credit or Debit Card and receive a further 10% off*
 
 
Several opportunities with the Advocacy Project (London) 
 
Advocacy project - workThe Advocacy Project currently have the following opportunities:
 
Searching for an exceptional User Involvement Coordinator to join a dynamic User Involvement team that currently provides services to a range of care groups across 5 London boroughs – Westminster, Kensington and Chelsea, Hackney, City of London and Brent
 
The project is searching for an exceptional person to join a dynamic and innovative Advocacy team, that currently provides services to a range of care groups across 7 London boroughs
 
The Advocacy Project is looking for Mental Health Peer Mentors living within City of London and Hackney, peer mentors will have lived experience of mental illness which they will use to provide emotional and practical support for Mentees.
 
Mentees
The project is also looking for people who would like emotional and practical support from a mentor
Please contact Sophie Hudson for more details:
 
Citizens Advice mental health insights: people’s experience of community mental health support 
 
Article ImageThis brief presents a review of case notes submitted by Citizen Advise advisors on what  challenges people with mental health needs face in their everyday life and when accessing healthcare in the community. It also forms a part of policy  series on mental health.
 
Practical problems, such as losing one’s home or facing redundancy at work, can  worsen people’s mental health and quality of life. Primary care and mental health  services are seeing an increase in clients with practical problems that take up significant clinical time.    
 
This brief identifies five key challenges:
  1. People with mental health problems are more likely to face practical  challenges, such as struggling with debt, having problems to access benefits, or  being unable to work due to an illness or a disability. 
  2. Additional costs associated with poor mental health often can make it more  difficult to manage financially. This includes unexpected costs such as having to pay  for medical evidence to support an application for welfare benefits, a prescription  penalty charge, or travel expenses to attend mental health appointments.
  3. Community support before and after mental health treatment is often  limited or not available to assist people with their practical problems, which could  worsen their mental health  
  4. Ethnic minority groups tend to face more barriers to access mental health  support. Having a pending immigration status or more complex practical issues  can make it more difficult for this group to access mental health support.   
  5. Carers tend to have poor experience of community mental health support.  Not being informed about what community support is available for carers, or not  being kept informed about decisions related to their caring role can make  managing caring responsibilities more challenging.
 
Share your story, poems or artwork with #KindaProud Pocket Books 
 
kinda proud
The #KindaProud project aims to create a series of ‘Pocket Books of Hope and Kindness’ for people experiencing different themes of mental distress, under the umbrella of the anti- stigma social movement ‘#Emerging Proud’. 
 
Each Pocket Book has its own KindaProud Rep; a Peer who has personal experience of the theme of that specific book; these are the first 4 books currently being created:
 
#Emerging Proud through Suicide
#Emerging Proud through NOTES (Non- Ordinary Transcendent Experiences)
#Emerging Proud through disordered eating, body image and low-self-esteem
#EmergingProud through trauma and abuse
 
See more info on Reps here:  https://emergingproud.com/kindaproud
 
If you'd like to share your story, p,lease visit this page
 
Learn and travel with a Churchill Fellowship 
 
Churchill memorial trust
There is just over one month left to apply for a Churchill Fellowship.
 
A Churchill Fellowship funds people to travel for 4-8 weeks abroad, researching a topic of their own choice in any field, that can make a difference to their profession or community when they come home.
 
No qualifications are required.
All UK citizens resident in the UK aged 18 and over are eligible to apply.
You can find details and case studies of past Fellows here.
 
Applications are currently open for Fellowships in the following award categories:
If you have any questions please get in touch with 
Ben Anstis
Communications Officer
The Winston Churchill Memorial Trust (Registered Charity 313952)
29 Great Smith Street, Church House - South Door, London, SW1P 3BL
T: 020 7799 1660
 
Help shape perinatal peer support in Newcastle 
 
perinatal peer support eventPeople with personal or / and professional experience are invited to attend this co-production event in Newcastle.
 
Date: 21 September
Time: 10:30am - 04:30pm
Venue: Assembly Rooms, Fenkle Street, NE1 5XU Newcastle upon Tyne
Cost: free
 
By taking part in this event you will:
  • Help develop values that represent women’s experience
  • Influence the perception of peer support for maternal mental health
  • Test and feedback on the draft principles
People with lived experience of perinatal mental health problems and organisations facilitating perinatal peer support or who are interested in facilitating perinatal peer support should attend in order to share their ideas, experiences and vision.
 
More event details
Tickets are free and will be allocated on a first come first served basis. 
 
One ticket per organisation, additional tickets may be made available two weeks before the event dependent on demand.
 
A travel expense budget is available for small organisations and people with lived experience who would find the cost of travel a barrier to attending.
 
Please register for the event here
 
for more information please contact Engagement@mind.org.uk
 
Talk for Health programme 
 
Talk for Health
Talk for Health provides a free programme in talking for wellbeing which enables you to:
  • Talk more openly and truthfully
  • Listen more empathically
  • Set up or participate in clearly structure ongoing groups to improve and maintain wellbeing
After the training, you gain access to a community of ongoing groups and events to build your wellbeing.
 
The programme is for anyone who wants to take care of their wellbeing, is free, has been shown to substantially improve participants’ wellbeing, and is described as ‘enjoyable, inspiring, safe, supportive, and liberating’.
 
Click below to find information, dates, and to sign up for the next programmes:
For more information contact info@talkforhealth.co.uk
 
The Mental Capacity (Amendment) Bill easy read 
 
Article ImageThe Mental Capacity (Amendment) Bill is a proposed new law that is being discussed in Parliament. If Parliament agrees, it will become the law and the Mental Capacity Act will change. 
 
At the moment, thousands of people are deprived of liberty, but without an independent check. The new bill has liberty protection safeguards. These are measures to make sure these checks take place.
 
Under the proposed new law nobody will independently assess whether the arrangements are in the person’s best interests unless the person complains.
 
Download the easy read version here designed by CHANGE.
 
In the news 
 
Rohingya Refugee from Guardian video
The Guardian
'I try to bury that pain': Rohingya refugees on the trauma they carry
Award-winning photographer Robin Hammond says survivors of ethnic cleansing in Myanmar carry deep psychological scars
 
Children’s commissioner says GPs should offer ‘play on prescription’ to combat obesity and poor mental health. 'I never feel safe': meet the people at the very sharpest end of the housing crisis - disabled millennials
 
The Independent - Voices
More women than men are dying by suicide in psychiatric hospitals, and after she was sectioned, Joy Hibbins knows some of the reasons why
 
The Independent - News
Mental Health is a hot topic at the Edinburgh Fringe
 
Yorkshire Evening Post
The NHS needs to lead the way in mental health good practice
 
Stratford upon Avon Herald
A campaign group claims NHS mental health premises in Leamington and Warwick are to be sold off and services relocated to Stratford, in a move that would harm the most vulnerable.
 
Spirit FM
Sussex mental health patients sent hundreds of miles for treatment
 
 
New Kindred Minds Manifesto appeal 
 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
 
Please help if you can
Banner
GOV.UK news 
 
cannabis medicines - courtesy of BBC siteCannabis-derived medicinal products to be made available on prescription
 
Specialist clinicians will be able to legally prescribe cannabis-derived medicinal products by the autumn, Home Secretary Sajid Javid has announced.
 
Javid was quick to say that the decision 'is in no way a first step towards the legalisation of cannabis use'.
 
You can read the Home Office news statement on on Gov UK, as well as coverage by BBC News, the Independent, and Pulse, the GP news wire which says the cannabis debate leaves GPs facing a prescribing conundrum.
 
Meanwhile, the Royal College of Paediatrics and Child Health Registrar, Dr Mike Linney, says the decision will 'come as a relief for some'.
 
New Mental Capacity Act (Amendment) Bill introduced
 
The Government has introduced the new Mental Capacity Act (Amendment) Bill, intended to replace DoLS following the Law Commission’s recent report. The text of the 2nd reading debate can be read and the Bill’s progress tracked here.
 
The British Institute of Human Rights wrote about the Bill on a blog here.
 
The Committee stage will begin on 5 September
 
 
Mental Health Act Review - August workshops
 
The review workshops during August set out to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

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Address postal inquiries to:
National Survivor User Network
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E11 9GD

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NSUN 20th August 2018

NSUN Bulletin Monday 20 August 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 20 August 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 20 August edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
NSUN AGM by Stephanie Taylor KingUser-led alliance set to raise concerns for second time with Mental Health Act Review
 
An alliance of user-led organisations, mental health service-users and survivors, and their allies, are to write for a second time to the Mental Health Act Review (MHAR).
 
More than 120 organisations and individuals – led by the National Survivor User Network (NSUN) – wrote to the review in May raising alarm about its reluctance to recommend full rights that comply with the UN Convention on the Rights of Persons with Disabilities (UNCRPD).
 
To read the full article by John Pring, Disability News Service, please click here
 

Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
 
 
NSUN Members Event and Annual General Meeting - Save the date!
 
This year we will be holding our annual members' event in Derby with the theme 'The Future of Peer Support'.
 
Date: Thursday 25 October 2018
Time: 10am-10.15am - 4.30pm
Venue: The Roundhouse,  Roundhouse Road, Pride Park, Derby DE24 8JE
 
This year we will be focusing on the Future of Peer (mutual) Support. What do we want to see happen in five years’ time and what are our national priorities for getting there?
 
More information will be sent out in the coming weeks but if you would like to secure your place please book here.
 
Watch the videos of the member Soap Boxes from our 2017 event on our YouTube channel.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Selected blogs 
 
 
Gary Sidley wonders whether he is the only one who feels uncomfortable when reading articles that assert that a focus on nutrition – the vitamins and minerals we ingest – could be a solution to the world’s mental health crisis?
 
 
The Mental Health Act is currently under independent review, with recommendations for change due to be revealed in December. MHT writers of colour have contributed their proposals as to how the new law should be shaped. Jacqui Dyer MBE, co-chair of the Independent Review of the Mental Health Act’s African and Caribbean Group, reports on how these proposals have been received.
 
 
'When I was 16 I left school with no qualifications and felt as if I had let my family down. I wouldn’t leave the house and got really paranoid and it was really scary'
 
Paul is active in a number of service user involvement meetings in Leeds as well as giving talks and being part of panels both locally and nationally.
 
 
Influence the production of guidance for therapists 
 
APPG PDD
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
 
For more information about the project and how to get involved, please click here
 
NSUN London Leaders Digital Lab: summer 2018 
 
Article Image
 
NSUN invites representatives from user-led member groups across London to a FREE networking, sharing and design programme.
 
 
NSUN invites representatives from user-led member groups across London to a free networking, sharing and design programme on:
  • Tuesday 04 Sept 
  • Wednesday 05 Sept 
  • Thursday 06 Sept 
Each day will run from 10:30am – 3pm.
 
The programme responds to feedback from the membership who have expressed the need for more opportunities to strengthen the user voice pan-London and will involve experience-based co-design.
 
N.B. No previous experience of design or digital technology is needed.
 
The programme will include six participatory workshops with the following themes:
  • Finding and amplifying your voice: the personal is political, collective power, leadership styles.
  • Creative influencing and campaigning: exploring local vs London-wide challenges, barriers and opportunities for change.
  • Creative mapping and storytelling with digital tools
  • Co-production and design for collective action: 4PI National Involvement Standards
A networking and workshop taster day will be held on Thursday 30 August 2-4pm where you will be invited to shape the programme according to your interest’s and preferences.
 
To register your interest please complete the form here.
 
Mersey Care Annual Mental Health Social Care Conference 
 
Merseycare conference
Review of the Mental Health Act & Black, Asian and Minority Ethnic Communities - What Is The Reality? The Social Perspective

You are invited to Mersey Care’s annual mental health social care conference.
 
This year’s is arguably one of the most important as it will highlight the imminent changes to Mental Health Legislation including future development in mental health services.
 
Date:02 November
Time: 9am - 4pm
Venue: Lace Conference Centre, Croxteth Drive, Sefton Park, Liverpool L17 1AA
Follow the conference on twitter #mcftsocial18
 
The conference will have eminent speakers in the field such as:

• Sir Mark Hedley, High Court Judge
• Dr Dissanayaka Nuwan, Consultant Psychiatrist & Associate Medical Director for Mental Health Legislation
• Dr Suman Fernando, Honorary Professor Social Sciences and Humanities, Former Consultant Psychiatrist
• Steven Gilbert, Vice Chair Mental Health Act Review
• Dr Ruth Allen, Chief Executive, British Association of Social Work
• Peter Edwards, Director Peter Edwards Law
• Mark Trewin, Dept of Health and Social Care & Mental Health Act Review
• Hari Sewell, Honorary Senior Research Fellow at University of Central Lancashire
• Dr Joe Rafferty, Chief Executive of Mersey Care
 
The event is free and brings together professionals and service users and carers together
 
To get a conference booklet and book a place, please email christy.white@merseycare.nhs.uk
 
The power of music in health and social care 
 
power of music in health and social care
The University of Nottingham is delighted to host its first “The power of music in health and social care” conference.
 
This one day conference brings together care partners interested in the role music has in quality of living and care.
 
The conference is for anyone who wants to learn more about the role music plays in care, including care providers, family and volunteer caregivers, care receivers, care workers, musicians, faith-based and community agencies, students, researchers, policymakers and the community.
 
Date: 12 October
Time: 8:30am - 4:30pm
Venue: East Midlands Conference Centre, Beeston Lane, Nottingham, NG7 2RJ
 
For more information and to register, please visit this page
 
Learn and travel with a Churchill Fellowship 
 
Churchill memorial trust
There is just over one month left to apply for a Churchill Fellowship.
 
A Churchill Fellowship funds people to travel for 4-8 weeks abroad, researching a topic of their own choice in any field, that can make a difference to their profession or community when they come home.
 
No qualifications are required.
 
All UK citizens resident in the UK aged 18 and over are eligible to apply.
 
You can find details and case studies of past Fellows here.
 
Applications are currently open for Fellowships in the following award categories:
If you have any questions please get in touch with 
Ben Anstis
Communications Officer
The Winston Churchill Memorial Trust (Registered Charity 313952)
29 Great Smith Street, Church House - South Door, London, SW1P 3BL
T: 020 7799 1660
 
Co-production: power, problems and possibilities 
international journal of mental health nursing
 
A paper by Sarah Gordon and Anthony John O'Brien.
Published by the International Journal of Mental Health Nursing.
 
Co-production is transformative – generating different questions, approaches, ethical frameworks, insights, and outcomes; and ultimately creating new and unique knowledge that has the potential to contribute significantly to the creation of quality services, programmes, and policies. Co-production, especially when it adheres to the emancipatory ideals outlined by Carr et al. in this issue, is a disruptive influence aimed at transformative social change.
 
You can read this publication here
 
 
New network for employers who are and /or employ disabled people 
 
network for employers The Health and Work Unit is run by a cross-government team, and is jointly sponsored by the Department for Work and Pensions and the Department of Health and Social Care. The unit is working towards inclusive workplaces for everyone.

In line with this work, employers across the
voluntary, community, social enterprise and the public sectors through the Health and Wellbeing Alliance are invited to join a pilot initiative that will bring together a group which will commit to being part of a pilot programme aimed at embedding positive attitudes towards employing and supporting people with long term conditions and disabled people.

This pilot will result in a network of employers that are “Positive about Pathways to Work”.
 
The aim is that the network will grow and have a life beyond this project.
The network is encouraging members of the pilot to try and commit to employing at least one person with a long term health condition and/or disability.
 
For more information and to join in, please contact 
Philipa Bragman
T:0113 242 6619
 
 
Towards a search engine for mental health 
 
hub of hopeHub of Hope helps you locate mental health services.
 
The website is at beta stage and the developers are still calling for service providers to register.
 
You can search by poscode and there are filters such as 'anxiety', 'bipolar', 'youth', 'addiction', etc.
 
To visit Hub of Hope, please click here
 
Talk for Health programme 
 
Talk for Health
Talk for Health provides a free programme in talking for wellbeing which enables you to:
  • Talk more openly and truthfully
  • Listen more empathically
  • Set up or participate in clearly structure ongoing groups to improve and maintain wellbeing
After the training, you gain access to a community of ongoing groups and events to build your wellbeing.
 
The programme is for anyone who wants to take care of their wellbeing, is free, has been shown to substantially improve participants’ wellbeing, and is described as ‘enjoyable, inspiring, safe, supportive, and liberating’.
 
Click below to find information, dates, and to sign up for the next programmes:
For more information contact info@talkforhealth.co.uk
 
Share your (good or bad) experiences of CBT in an online group chat - this Tuesday 
 
Change in CBT pojectAmanda Mount is a trainee clinical psychologist studying at the University of East London.
 
Interested in how clients understand change in therapy, Amanda would like you to advise as to what quetions would be good to ask in research interviews.
 
This is an opportunity to share your thoughts and contribute to professionals's understanding of the factors that are important in making change.
 
What is required?
  • 1 hour (maximum 1:30 hour) of your time.
  • Access to Skype - to take part in an online small group discussion (Amanda can help you set up Skype if needed)
  • No personal details about your therapy...unless you want to say.
When?
  • Tuesday 21 August 8pm
Criteria
  • Age 18+
  • English speaking
  • Had a course of CBT...whether you found it useful or not
Interested? Please contact Amanda by email: u1622889@uel.ac.uk
 
Join Lambeth Black Thrive 
 
Black Thrive
Programme Delivery Director,
Lambeth Black Thrive
Location: Brixton, Lambeth with some local travel
Salary: £55,000 
Hours: 37.5 per week
Deadline for applications: Monday 03 September 12 noon
 
For more information and how to apply , please visit this page
 
Opportunity: Brexit Civil Society Alliance Co-ordinator 
 
Unlock Democracy
Employer: Unlock Democracy
Salary: £32,349-£35,132 (£19,409 to £21,079 pro rata)
Hours: 21 hrs per week
Contract: 2 years fixed term
Closing date 16 September, 23:59 .
Interviews will be held on 27 September
 
The postholder will offer support, information and intelligence to those who feel most removed from the Westminster bubble. It will also make sure that policy makers hear the concerns and experiences of civil society organisations from around the country. This means you will need to be comfortable with regular travel to meetings around the country.
 
For more information and how to apply, please visit this page
 
In the news 
 
 
cooltan
 Third Sector News
 
 
The Guardian
 
 
Pink News
 
 
The Independent
 
 
Nursing Times
 
 
ITV
 
 
New Kindred Minds Manifesto appeal 
 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
 
Please help if you can
Banner
GOV.UK news 
 
New Mental Capacity Act (Amendment) Bill introduced
 
The Government has introduced the new Mental Capacity Act (Amendment) Bill, intended to replace DoLS following the Law Commission’s recent report. The text of the 2nd reading debate can be read and the Bill’s progress tracked here.
 
The British Institute of Human Rights wrote about the Bill on a blog here.
 
The Committee stage will begin on 5 September
 
 
Mental Health Act Review - August workshops
 
The review workshops during August set out to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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Centre for Mental Health - Equally Well UK

2018-08-19 (2).png

Equally Well

A new collaborative to support the physical health of people with a mental illness

Equally Well in the UK

Centre for Mental Health, Kaleidoscope and Rethink Mental Illness are working together with support from the Royal College of GPs and the Royal College of Psychiatrists to create an Equally Well collaborative here in the UK.

We want to bring together health and care providers, commissioners, professional bodies, service user and carer organisations, charities and many more, working nationally or locally, to form a collaborative in the UK to bring about equal physical health for people with a mental illness.

We plan in our first year to:

  • Co-produce a Charter for Equal Health, setting out the shared principles, aims and objectives of Equally Well in the UK
  • Develop a web resource to provide up-to-date information, briefings and case studies
  • Bring together organisations that become part of Equally Well for a national event to share good practice and agree priorities for the future

Join us: pledge your organisation’s support and be part of this ground-breaking initiative. To find out more and pledge your support, email andy.bell@centreformentalhealth.org.uk or emma.bailey@centreformentalhealth.org.uk.

NSUN 13th August 2018

NSUN Bulletin Monday 13 August 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 13 August 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 13 August edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
NSUN Members Event and Annual General Meeting - Save the date!
 
This year we will be holding our annual members' event in Derby with the theme 'The Future of Peer Support'.
 
Date: Thursday 25 October 2018
Time: 10am-10.15am arrival 4.30pm finish
Venue: The Roundhouse,  Roundhouse Road, Pride Park, Derby DE24 8JE
 
This year we will be focusing on the future of Peer (mutual) Support. What do we want to see happen in five years’ time and what are our national priorities for getting there?
 
More information will be sent out in the coming weeks but if you would like to secure your place please email info@nsun.org.uk with the subject title Members Event 25.10.18 booking.
 
Watch the videos of the member Soap Boxes from our 2017 event on our YouTube channel.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Influence the production of guidance for therapists
 
APPG PDD
 
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
 
For more information about the project and how to get involved, please click here
 
 
mental health act review
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups.
 
Can you help with suggestions? To get involved, please click here 
 
 
NSUN London Leaders Digital Lab: summer 2018 
 
Article Image
 
NSUN invites representatives from user-led member groups across London to a FREE networking, sharing and design programme.
 
 
NSUN invites representatives from user-led member groups across London to a free networking, sharing and design programme on:
  • Tuesday 4th Sept 10-3
  • Wednesday 5th Sept 10-3
  • Thursday 6th Sept 10-3
Each day will run from 10:30am – 3pm.
 
The programme responds to feedback from the membership who have expressed the need for more opportunities to strengthen the user voice pan-London and will involve experience-based co-design. N.B. No previous experience of design or digital technology is needed. The programme will include six participatory workshops with the following themes:
  • Finding and amplifying your voice: the personal is political, collective power, leadership styles.
  • Creative influencing and campaigning: exploring local vs London-wide challenges, barriers and opportunities for change.
  • Creative mapping and storytelling with digital tools
  • Co-production and design for collective action: 4PI National Involvement Standards
A networking and workshop taster day will be held on Thursday 30th August 2-4 where you will be invited to shape the programme according to your interest’s and preferences.
 
To register your interest please complete the form here.
 
Selected blog 
 
 
'Mad culture is the music of Daniel Mackler, the cartoons of Auntie Psychiatry, the graphics of Mad Mad Memez, and the artwork of Phoebe Sparrow Wagner. It is Oryx Cohen's Healing Voices and Allie Light's Dialogues With Madwomen.'
 
The Radical Abolitionist celebrates mad culture, with links to papers and blogs.
 
Health and social care and LGBT communities inquiry 
 
LGBT communities health inquiry
Existing evidence shows that health outcomes are generally worse for LGBT people than for the rest of the population.
 
The Government’s recent survey of 108,000 LGBT people found that many had difficulties accessing healthcare services, some had experienced inappropriate questioning and curiosity from healthcare staff, and that many feel their specific needs are not taken into account in their care.  
 
This inquiry will consider whether provision is adequate, whether discrimination is still occurring, and what more needs to be done to improve access to health and social care.
 
More information can be found here
 
Inappropriate medication and human rights: Simone Aspis discusses the use of the European Convention on Human Rights  
 
North East together
Simone Aspis is a disabled activist with learning disabilities who is currently acting as an advocate for a person with a learning disability and autism. who is a patient on a psychiatric hospital.
 
Simone had her article about using the ECHR and other legal provisions in challenging the inappropriate use of psychotic medication for patients with a learning disability, autism or both published in the STOMP magazine.
 
STOMP stands for stopping over medication of people with a learning disability, autism or both with psychotropic medicines.
 
It is a national project involving many different organisations which are helping to stop the over use of these medicines. 
 
STOMP is about helping people to stay.
 
There is an easy read leaflet about the project and supporting people who take psychotropic medicine. NHS England wrote it with MiXit, a theatre company for people with and without a learning disability, and with help from other people and families.
 
NHS England commissioned MiXit to do a new play about STOMP which is a great success everywhere it goes.
 
They also made a short video about it. Read more about STOMP project here.
 
Coming up, this October: World Mental Health Day 2018 (WMHDAY) 
 
North Tyneside
The World Federation for Mental Health will be focusing the 2018 WMHDAY campaign on Young People and Mental Health in a Changing World.
 
The Federation wants to bring attention to the issues our youth and young adults are facing in our world today and begin the conversation around what they need in order to grow up healthy, happy and resilient.
 
World Mental Health Day was observed for the first time on 10 October 1992.
 
It was started as an annual activity of the World Federation for Mental Health by the then Deputy Secretary General Richard Hunter.
 
The day is now officially commemorated every year on 10 October.
 
Mental health services - have your say 
 
RethinkDo you want to see mental health services improved?
 
If so, Rethink would like to hear from you.
 
If you, or someone you have cared for has used NHS mental health services, please take a few moments to complete this survey.
 
The survey will take up to 15 minutes to complete.
 
Please be as frank as possible - you will have the option to remain anonymous. 
 
Sharing your experience means that Rethink can feed your responses into future NHS England plans. 
 
It will help them to identify key concerns and prioritise services that best ensure people with mental illness receive the highest quality care and treatment possible.
 
Share your (good or bad) experiences of CBT in an online group chat 
 
Change in CBT pojectAmanda Mount is a trainee clinical psychologist studying at the University of East London.
 
Interested in how clients understand change in therapy, Amanda would like you to advise as to what quetions would be good to ask in research interviews.
 
This is an opportunity to share your thoughts and contribute to professionals's understanding of the factors that are important in making change.
 
What is required?
  • 1 hour (maximum 1:30 hour) of your time.
  • Access to Skype - to take part in an online small group discussion (Amanda can help you set up Skype if needed)
  • No personal details about your therapy...unless you want to say.
When?
  • Tuesday 21 August 8pm
Criteria
  • Age 18+
  • English speaking
  • Had a course of CBT...whether you found it useful or not
Interested? Please contact Amanda by email: u1622889@uel.ac.uk
 
Join Lambeth Black Thrive 
 
Black Thrive
Programme Delivery Director,
Lambeth Black Thrive
Location: Brixton, Lambeth with some local travel
Salary: £55,000 
Hours: 37.5 per week
Deadline for applications: Monday 03 September 12 noon
 
For more information and how to apply , please visit this page
 
Opportunity: Brexit Civil Society Alliance Co-ordinator 
 
Unlock Democracy
Employer: Unlock Democracy
Salary: £32,349-£35,132 (£19,409 to £21,079 pro rata)
Hours: 21 hrs per week
Contract: 2 years fixed term
Closing date 16 September, 23:59 .
Interviews will be held on 27 September
 
The postholder will offer support, information and intelligence to those who feel most removed from the Westminster bubble. It will also make sure that policy makers hear the concerns and experiences of civil society organisations from around the country. This means you will need to be comfortable with regular travel to meetings around the country.
 
For more information and how to apply, please visit this page
 
Article Image
Care Quality Commission (CQC) news 
 
Experts by Experience - invitation to tender now live
 
New contract to deliver Expert by Experience services, starting in 2019. 
 
Experts by Experience are people who have personal experience of using or caring for someone who uses services we regulate.
 
During inspections, they speak to people using services and their family or organisations that support them.
 
They may also observe how the service is delivered and speak to staff. Their findings are used to support the inspectors’ judgments on services and may be included in inspection reports.
 
CQC are seeking a contractor to continue the delivery of the Experts by Experience programme, so as to have members of the public from diverse backgrounds to take part in inspections and other aspects of CQC's work.
 
The invitation to tender is now live and more details can be found on the website
If your organisation is interested in applying read more here.
 
Get plugged in to resources direct from the Care Quality Commission
 
Did you know that the CQC sends out a monthly bulletin to all  regional stakeholders? 
 
Information includes latest publications, resources and consultations. 
 
If you’d like to be added to the distribution list for the monthly bulletin you can fill in your details here.
 
Mental Health book launch in Oxford 
 
Emilys Voices
Blackwell's Bookshop in Oxford is hosting a Book Launch for the book 'Emily's Voices' (which Roz V Austin wrote under the pen name Emily Knoll) that will take place from 7 pm to 8.30 pm on Wednesday 19 September 2018.
 
Roz will be reading passages from the book alongside a talk by Dr Jonathan Gadsby (Research Fellow, School of Nursing, Birmingham City University) on the subject 'Emily's Voices: Conversations'.
 
Writer Dennis Hamley will be introducing the event.
 
'Emily's Voices' tells Emily's story of her struggle with hearing voices and her journey through the mental health system.
 
Emily must find a way of accepting that she hears voices, or she can't be in the world - but it's a confrontation that takes all of her strength and resolve as well as the support of friends and therapists.
 
Refreshments will be provided, and Roz will be signing copies of her book.
 
Free places can be booked here
 
In the news 
 
NHS in Tory Britain
BBC
£100m has been promised "to help people turn their lives around", including support for mental health and addictions, and funding for housing. About £30 million will be spent on mental health help and treatment for substance misuse.
 
BBC's Holby City to have a mental health special
The BBC has announced plans for a special episode of ‘Holby City’, that will focus on male mental health. several media outlets have commented:
The Guardian
 
The Independent
 
Nye Bevan News
 
News-Medical.Net
Personnel Today
 
Doncaster Free Press
 
Games Radar
 
Banner
GOV.UK news 
 
New Mental Capacity Act (Amendment) Bill introduced
 
The Government has introduced the new Mental Capacity Act (Amendment) Bill, intended to replace DoLS following the Law Commission’s recent report. The text of the 2nd reading debate can be read and the Bill’s progress tracked here.
 
The British Institute of Human Rights wrote about the Bill on a blog here.
 
The Committee stage will begin on 5 September
 
 
Mental Health Act Review - August workshops
 
The review will be running three workshops during August to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The workshops will run from 9.30am-1pm
Reasonable expenses and adjustments can be provided for those attending in a service user or carer capacity.
Places are limited to 100 per event.
 
For more information and to register, please visit:
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

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National Survivor User Network
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E11 9GD
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NSUN Bulletin 6th August 2018

NSUN Bulletin Monday 06 August 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 06 August 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 06 August edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
 
mental health act reviewHelp us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups.
 
Can you help with suggestions?
To get involved, please click here 
 
 
Alternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act. Please click here for more information
 
 
Reigniting the SpaceReigniting the Space project steering group: on-going recruitment 
 
The steering group has nine positions, six of which have been filled. 
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East. 
 
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Please see Role Description for further details. To apply, please fill in the Application Form.
 
Closing date for applications: 12 noon, Friday 10 August 2018
Interviews: mid-August
 
Contact NSUN (info@nsun.org.uk) or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
Joy Hibbins writes about taking calls from distressed people who cannot reach inundated NHS crisis teams.
 
Why Mandating Mental Health Education in Schools is a Band-Aid on a Gaping Wound
Leah Harris reflects on how mental health education is being (mis) handled, as a person with a history of suicidality, a concerned parent and a suicide prevention advocate.
 
 
Regional network's involvement project is a success 
 
North East together
North East together (NEt), a regional network for people with lived experience of mental health conditions, has been running ‘A Weight off Your Mind’, a project to support people in secondary services manage their weight.
 
NEt Secreatry, Mish Lorraine reports on how focus groups led to drafting a plan which results from true service user involvement.
 
Read more here.
 
Mental Health Support in North Tyneside 
 
North Tyneside
 
This leaflet offers a list of groups and services that you contact to self refer for support with your mental health needs.

Most of the services provide free support.
 
However, some may incur charges. Please contact the service directly.
 
To download the leaflet please visit here
Plans for a free volunteer advocacy training course 
 
Mental health Advocacy training plannedNSUN member Wendy Micklewright is thinking of setting up a free volunteer advocacy training course, similar to one she attended years ago, which really helped her.
 
Wendy is considering the Richmond Library Space as location.
 
Before she embarks on working on the course, Wendy would like to know if you'd be interested in attending.
 
To let her know, please email Wendy
 
 
Universal Credit - how is it for you? evidence needed 
 
Inclusion London
Inclusion London is sending written evidence to the Social Security Advisory Committee’s consultation on proposals to move all people claiming working age income-related benefits to Universal Credit (UC).
 
Please send your experience to inform our evidence.  For instance:
  • How you found applying for Universal Credit, including whether you found the process accessible or not.
  • How long you had to wait for the first payment of UC and whether you could manage financially while you waited.
  • Are you receiving the same amount of money or not?
  • Any problems that occurred and also if UC has any advantages for you over the old system.
Please send your information to  Henrietta.Doyle@inclusionlondon.org.uk by 15 August at the latest.
 
You may wish to respond to the consultation directly to the inquiry. The deadline is 10am on Monday 20 August.
 
More information about the inquiry is available here
 
Involvement Lead (part-time) needed in Worthing 
 
Worthing Churches
 
 
 
 
Worthing Churches Homeless Projects (WHCP) is a multifunctional, complex needs homelessness organisation that works in Worthing, Adur, Littlehampton, Horsham and Mid Sussex. It has over 100 staff and 300 volunteers.
Its mission is to end the need to sleep rough.
 
WHCP are looking for a motivated individual with lived experience of using support services, and a passion for the value that this can bring to an organisation. The role will work in partnership with people who use WCHP services and our staff to integrate a co-produced way of working.
 
Salary £23,230 (pro rota £13,938.00 per annum)
Hours 22.5 hours per week
Closing date for vacancies: Midday on Wednesday 08 August
Interview date: Wednesday 22 August
 
For more information and how to apply, please click here
 
Join Black Thrive in Lambeth 
 
Black Thrive
Programme Delivery Director, Lambeth Black Thrive
Lambeth’s Black Thrive is seeking a Programme Director with strategic leadership, facilitation and programme management skills, who is committed to promoting race equality in mental health and wellbeing at both population and service level.
 
The successful candidate will be responsible for delivery of Lambeth’s Black Thrive vision and its core strategic objectives including ensuring that its activities are co-designed and directed at achieving the agreed programme goals.

Location: Brixton, Lambeth with some local travel
Salary: £55,000
Hours: 37.5 per week
Benefits: 26 days annual leave plus bank holidays, pension contribution
Deadline for applications: Monday 03 September 12 noon
 
For more information and how to apply , please visit this page
 
Thrive LDN campaign 
 
Thrive LDN
Thrive LDN is the summer campaign which gets Londoners talking about mental health and wellbeing.
 
Since the start of July, Thrive LDN has been:
  • asking Are We OK London? with how inequality and discrimination can negatively affect mental health and wellbeing.
  • sharing details of Right to Thrive, a ground-breaking research project (more info below)
  • using social media to share stories from Londoners who have experienced adversity and are standing up to say #WeAreLDN
  • taking to the streets to ask Londoners whether they're thriving and what the challenges are (you'll find the short videos on thriveldn Instagram)
You can learn more and take action at Thrive LDN's website and, if you haven't already, follow them on TwitterInstagram and Facebook for all the latest updates.

Why not put your own spin on the campaign graphics and messages?


Or share your own #WeAreLDN
 story?
 
National Voices are looking for trustees 
 
National VoicesAs two members of the Board are stepping down, National Voices are looking for trustees.
 
All full members of National Voices are eligible and are encouraged to nominate a representative to become a trustee. 
 
National Voices are particularly encouraging candidates who can evidence experience of one or more of the following:
  • CEO or senior manager at a small charity
  • Expertise in inequalities
  • Specialist skills such as IT, digital, communications and organisational development
For more information, please click here
 
SOLIDARITEA at the Field  
 
Article Image
Mental Health Resistance Network 
Date: Thurdday 3rd August
Time: 7pm
Join the film screening: "Hands2Mouth: Caring for claimants on Universal Credits", followed by a discussion.
 
DPAC news 
 
DPACDPAC report that international development secretary, Penny Mordaunt, has been forced to retreat from her government’s repeated claims that the UK is a “global leader in disability rights”.
 
DPAC have been protesting the Global Disability Summit 'to show the true nature of what the UK government are doing to disabled people with their austerity agenda.'
 
Article Image
Care Quality Commission (CQC) news 
 
Experts by Experience - invitation to tender now live. New contract to deliver Expert by Experience services, starting in 2019. 
 
Experts by Experience are people who have personal experience of using or caring for someone who uses services we regulate. During inspections, they speak to people using services and their family or organisations that support them. They may also observe how the service is delivered and speak to staff. Their findings are used to support the inspectors’ judgments on services and may be included in inspection reports.
 
CQC are seeking a contractor to continue the delivery of the Experts by Experience programme  enabling us to have members of the public from diverse backgrounds to take part in inspections and other aspects of our work.
 
The invitation to tender is now live and more details can be found on the website
If your organisation is interested in applying read more here.
 
Inpatient Survey results for 2017 published
 
CQC's 2017 inpatient survey reveals what over 70,000 adults are saying about their stay in hospital. They surveyed people who stayed in hospital for at least one night during July last year. Amongst other things, people were asked to give their opinions on:
  • the care they received
  • how well staff communicated with them
  • whether their privacy was respected
  • if they were supported enough to eat and drink
  • and how well their discharge from hospital was handled
CQC will use what people have told them to keep an eye on the quality of hospital services, and find out what is important to people using these services. The results will also help to spot changes in quality so future inspections can be targeted as well as help providers know where they need to improve.
 
Find out what people had to say by clicking here.
You can also view the A-Z list of inpatient survey results by NHS trust.
Keep up to date on Twitter too  #InpatientExperience
 
Get plugged in to resources direct from the Care Quality Commission
 
Did you know that the CQC sends out a monthly bulletin to all  regional stakeholders? Information includes latest publications, resources and consultations. If you’d like to be added to the distribution list for the monthly bulletin you can fill in your details here.
 
Reminder - previously shared and still relevant 
 
previously sharedYou can still help shape a new national programme on ethnic inequalities and severe mental illness in the UK (the survey closes Oct 2018) and help to improve the service and environment at Places of Safety in North West London
 
For previously shared opportunities, please visit this page
 
You can also still sign / share the petition calling for people who feel sucidal to have somewhere to go 
To sign this petition please click here
The deadline is 24 November - please share this as it has to garner 10,000 signatures to get any response at all from the government.
Banner
GOV.UK news 
 
New Mental Capacity Act (Amendment) Bill introduced
 
The Government has introduced the new Mental Capacity Act (Amendment) Bill, intended to replace DoLS following the Law Commission’s recent report. The text of the 2nd reading debate can be read and the Bill’s progress tracked here.
 
The British Institute of Human Rights wrote about the Bill on a blog here.
 
The Committee stage will begin on 5 September
 
 
Mental Health Act Review - August workshops
 
The review will be running three workshops during August to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The workshops will run from 9.30am-1pm
Reasonable expenses and adjustments can be provided for those attending in a service user or carer capacity.
Places are limited to 100 per event.
 
For more information and to register, please visit:
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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NSUN Bulletin 30th July 2018

NSUN Bulletin Monday 30 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 30 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 30 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
#NSUNthrive10 campaign a success!
 
We would like to take the opportunity to thank all of the people who have donated to the #NSUNthrive campaign that we launched two years ago. There has been an overwhelming response to our letter to members in February that warned of possible closure if funds were not secured. 
 
Our target was to raise £10,000 to celebrate 10 years since the 'Doing It For Ourselves' conference that launched the idea of NSUN. We exceeded our target and have raised over £16,000 via our Total Giving site
 
The donations will contribute to the continuation of the weekly ebulletin,  facilitation of and support for user and survivor led initiatives and the Survivor Researcher Network.
 
Other fundraising efforts have secured core fundig for this year and we are currently working on funding applications for 2019 and beyond.
 
Thank you again for all of your support! 
 
 
recovery space
The Money and Mental Health Policy Institute Recovery Space Campaign.
'campaigning for people experiencing a mental health crisis to be able to benefit from the proposed new ‘breathing space’ debt respite scheme’
 
NSUN was one of 23 national charities that supported the campaign.
 
You can find out about their recent research and call for action on the need for essential services like, banks, energy companies or internet providers to cater for those who have mental health problems here.
 
NSUN contributes to submission into CCG development
NSUN, along with other organisations and groups, has contributed to Submission into the development of North West London (NWL) Clinical Commissioning Groups (CCGs) 2018 Equality Objectives (EO).
You can download the submission in PDF here
 
Alternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act.
 
Please click here for more information
 
Reigniting the SpaceReigniting the Space project steering group- recruitment 
 
The steering group has nine positions, six of which have been filled. 
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East. 
 
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Please see Role Description for further details. To apply, please fill in the Application Form.
 
Closing date for applications: 12 noon, Friday 10 August 2018
Interviews: mid-August
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
jasna russoHow should we redirect research on psychiatric drugs? #PsychDrugDebate
Alison Faulkner analyses a paper by Jasna Russo, an independent survivor researcher based in Germany.

“Where I End And You Begin” #PsychDrugDebate
A personal commentary by Sarah Carr on Russo’s ‘Through the eyes of the observed’
 
Some of you may already know some of Jasna Russo's work. She co-edited 'Searching for a Rose Garden'
 
Jasna's Through the eyes of the observed: re-directing research on psychiatric drugs was launched last week and can be downloaded here, alongside other McPin Talking Point Papers.
 
Mental Health Policy Commission launches report 
 
Birmingham Uni
NSUN's Emma Ormerod submitted evidence to the Mental Health Policy Commission’s Call for Evidence, her input helped to shape the report.

The Commission launched “Investing in a Resilient Generation: Keys to a Mentally Prosperous Nation” in Westminster earlier this month.

You will find a copy of the report here 
For more information on the Commission and to watch a short animation about our recommendations, please visit this page
 
Plans for a free volunteer advocacy training course 
 
Mental health Advocacy training plannedNSUN member Wendy Micklewright is thinking of setting up a free volunteer advocacy training course, similar to one she attended years ago, which really helped her.
 
Wendy is considering the Richmond Library Space as location.
 
Before she embarks on working on the course, Wendy would like to know if you'd be interested in attending.
 
To let her know, please email Wendy
 
User Led Organisations (ULO) project in Hampshire 
 
ULO project HampshireDo you want to set up new groups? 
Are you...
  • A User Led Organisation
  • A Community group
  • An individual
This project works across Hampshire and provides:
  • Advice and guidance
  • Supporting and mentoring
  • Support and training
  • Helping groups to network and exchange ideas, experience and expertise
  • Signposting
  • Help with organising events
For more information please click here
 
The Dragon Cafe: Last Monday before summer break 
 
Article Image
Monday 30th July will be the last session before the Annual Break.
 
The programme Movement and Singing Together will include movement of body and voice, a local stroll with Jane in Walking-Works at 2 pm and then later try some Pilates at 5 pm.  Vivien will be leading Singing-Works at 1 pm and then in the evening will be Open Mic into the back room and leading into a Karaoke Party to end the month, and Dragon Season before our Annual Break in August. 
 
Find out more about the programme here.

The Dragon Café Annual Break: the Café will be closed until Monday 3rd September 2018. 
 
Closing date tomorrow for Service User Support/Carer Project Worker Post 
 
Article Image
North London Social Work Teaching Partnership (NLSWTP) is funding a Service User Support/Carer Project Worker Post.
£31,210 a year
 
This role will be responsible for assisting Middlesex University’s long-standing service user representation group, involve@mdx, in increasing their membership of service users/carers and in coordinating service user involvement across the North London Social Work Teaching Partnership (NLSWTP) and the Department of Mental Health and Social Work at Middlesex University. 
 
Find out more here.
The closing date for applications: Tuesday 31 July 2018.
 
Job opportunity at Rethink (Vauxhall London) 
 
RethinkSenior Children & Young People's Officer
 
Closing date: 01/08/2018
Salary (pro rata): £28,088 to £30,265 (Plus Inner London Weighting £3,285)
Hours: 37.5
Location: Vauxhall, London (you will be employed by Rethink Mental Illness)
Contract : Fixed term until March 2020
 
If you have experience of
  • project management
  • training young people
  • online commnunications design / delivery
  • understanding of the child and adolescent mental health system 
Then take a look here for a role description and how to apply.
 
PAID Peer Mentor and Peer Support roles 
 
Advocacy project
The Advocacy Project in Hackney is looking for Mental Health Peer Mentors:
  • Are you over 18 and live in either Hackney or City of London?
  • Have you experienced mental illness?
  • Would you like to provide practical and emotional support for someone who has also experienced mental distress?
  • Do you want to empower people and support them to have a voice?
The Advocacy Project is also looking for people who would like emotional and practical support from a mentor.

For more details please contact Sophie Hudson by email sophie@advocacyproject.org.uk or telephone 07934298719
 
Second Step is a mental health charity in the South West offering housing, support and hope to thousands of people with mental health and other problems..
Peer Support Worker
Hours: 37 hours per week
Salary: £20,572 to £22,488
Location: The Greenway Centre, Southmead, Bristol
The candidate will work collaboratively with the service user and mental health professionals to navigate and coordinate services, both social and clinical interventions, into community resources building resilience and improving wellbeing.
Closing date: Open ended
Email admin@second-step.co.uk or telephone 0117 909 6630
 
Berkshire Healthcare Foundation Trust has successfully been awarded the contract to deliver Liaison & Diversion Services across the Thames Valley. As part of this contract we are required to create a co-produced peer support service made up in part of those who have the lived experience of criminaljustice
Salary: £33,222 to £43,041 per annum
Closing Date: 02/08/2018
For further information contact Joseph Franks, telephone 01189551243, email Joseph.Franks@berkshire.nhs.uk
 
Peer Support Workers Salary: £17,787 - £20,448 per annum pro rata for part time Fixed Term Contract to December 2019
Part time: There is flexibility in relation to number of hours per week.
Salary: £17,787 - £20,448 per annum pro rata for part time
Closing date: 09/08/2018
For further information about the role or if you are unable to apply online / require support to apply for these posts, please contact Neville Drysdale on 07866 791004 or Raza Ahmed on 07794 193654
 
Early Intervention in Psychosis Network (EIPN): Peer Review team recruitment 
 
Article Image
 
 
 
 
The Early Intervention in Psychosis Network (EIPN) is currently looking for service users and carer representatives for their peer-review teams.
 
Payment: £100 per full day and £50 per half day. The project will cover reasonable travel/accomodation expenses within the RCPsych policy.
 
EIPN is a quality improvement and accreditation project that works with early intervention in psychosis (EIP) services all around the UK. The views, ideas, skills and experience of people who have used EIP services are vital for our quality improvement work.
 
EIPN takes EIP teams through a supportive process of self- and peer-review to assess how the service is performing against an agreed set of quality standards. The self-review involves completion of a team checklist and gathering of feedback from service users, family, friends and carers, partner agencies and EIP staff. The peer-review visit takes place over a whole day and involves verifying the self-review data, considering the service in its unique context and exchanging information about best practice. EIP teams taking part in the EIPN are encouraged to use the results of their self- and peer-reviews to improve the care and support they provide to patients and carers. 
 
Visit the website information about the Early Intervention in Psychosis Network. 
 
For informal enquiries and to obtain an application pack, please contact the EIPN project team on EIPN@rcpsych.ac.uk.
 
Help shape a new national research programme on ethnic inequalities and severe mental illness in the UK 
 
synergi
The first national online survey of its kind to give members of the public the opportunity to set the research priorities in the field of ethnic inequalities and severe mental illness has just been launched. 
 
Led by the Synergi Collaborative Centre, the national public survey will shape the centre’s future work programme, facilitate the creation of research strategies to tackle mental health inequalities and help launch a national campaign to transform health systems.
 
Reflective of Synergi’s co-production of knowledge approach, the 15-minute survey aims to secure the opinions of a wide cross section of the publicincluding patients, carers, health and social care practitioners, commissioners, NGOs, volunteers and students.
 
The survey is being launched against a backdrop of longstanding ethnic inequalities, including the fact that compared to the majority population, a diagnosis of schizophrenia is five to six times more likely in Black African people and Black Caribbean people, and nearly three times more likely in South Asian people. As for detention rates among the civil population, Black Caribbean people and Black African people are three times more likely to be detained.
 
Open to the public until 10 October 2018, the survey covers a wide range of topics that accommodate intersectionality, the criminal justice system, housing, education, homelessness, health services, racism and commissioning.
 
The main findings will be shared with policymakers, research institutions and commissioners, and will be made available to the public from November 2018. 
 
Click here for the official link to the National Public Survey on Ethnic Inequalities and Severe Mental Illness.
 
Places of Safety Lived Experience Research 
 
Article Image
 
Please help to improve the service and environment at Places of Safety in North West London
 
 
The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).
 
The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care. At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.
 
We need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.
 
What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org
Here is the link to take the survey online:
 
Petition: fund facilities for people who feel suicidal 
 
portcullisFund facilities for people who feel suicidal so they always have somewhere to go

Often people who feel suicidal are discharged from mental health services, against their will. This can gravely increase the risk to their lives and causes needless deaths. No one who feels suicidal and asks for help should be turned away.
 
To sign this petition please click here
 
The deadline is 24 November - please share this as it has to garner 10,000 signatures to get any response at all from the government.
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
Banner
GOV.UK news
 
Mental Health Act Review - August workshops
 
The review will be running three workshops during August to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The workshops will run from 9.30am-1pm
Reasonable expenses and adjustments can be provided for those attending in a service user or carer capacity.
Places are limited to 100 per event.
 
For more information and to register, please visit:
People with hidden disabilities to benefit from Blue Badges 
People with hidden disabilities, including autism and mental health conditions will soon have access to Blue Badges, removing the barriers many face to travel. The changes follow an 8-week consultation and are part of the government’s drive for greater parity between physical and mental health conditions. Read more here.
 
 
Health Secretary news
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

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Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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NSUN Bulletin 23rd July 2018

NSUN Bulletin Monday 23 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 23 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 23 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Mental Health ActAlternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act.
 
Please click here for more information
 
Reigniting the SpaceReigniting the Space project steering group- recruitement 
 
The steering group has nine positions, six of which have been filled. 
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East. 
 
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Please see Role Description for further details. To apply, please fill in the Application Form.
 
Closing date for applications: 12 noon, Friday 10th August 2018
Interviews: mid-August
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
 
Australian psychiatrist Niall McLaren lays into his profession.
 
 
Lynn Tang reflects on a friend's (un)recovery journey - 'a series of disempowerment: She was disempowered by the interaction with medical service, the side effects of the medications, the labour market and the detrimental working conditions in Hong Kong'
 
Podcast: Against your will - compulsary powers in the mental health system 
 
podcastJohn McGowan, Anne Cooke, Angela Gilchrist,  Rachel Terry and Emma Rye discuss the compulsory powers available in the mental health system in the UK These include the Mental Capacity Act and the Mental Health Act (MHA).
 
As the Prime Minister said she would like to ‘rip up’ the Mental Act, the panel also offers Theresa May advice on what to replace it with.
 
For the full podcast, please click here
 
Take part in DPAC's festival of resistance 
 
festival of resitanceDisabled People Against Cuts (DPAC) are holding a festival of resitance 'highlighting the hypocricy of the UK and Kenyan governments hosting a Global Disability Summit'.
 
For more information, please click here
 
Mental health peer mentors needed in Hackney 
 
Advocacy project
The Advocacy Project is looking for Mental Health Peer Mentors:

Are you over 18 and live in either Hackney or City of London?
Have you experienced mental illness?

Would you like to provide practical and emotional support for someone who has also experienced mental illness?

Do you want to empower people and support them to have a voice?

The Advocacy Project is also looking for people who would like emotional and practical support from a mentor.

Please contact Sophie Hudson for more details:
sophie@advocacyproject.org.uk
07934298719
 
Mental health in schools conference 
 
Westminster insights
The Government Green Paper on children and young people’s mental health provision proposed changes to the way children and young people’s mental health is managed in schools.
 
Led by Dean Johnstone, CEO at Minds Ahead, the conference will examine how schools can collaborate with the NHS, voluntary sector and local authorities to improve the provision, commission and delivery of services.
 
Date: 16 October
Time: 09:20am - 03:30pm
Venue: Central London
Booking: please click here
Agenda: please click here
 
You will receive practical advice about implementing different models of mental health provision in schools including mental health and school link services, peer-to-peer support, in-school counselling and ‘whole-school’ approaches. Learn how to overcome stigma by teaching pupils, staff and parents about mental health awarenes.
 
The organisers can offer 20% off the standard delegate rate, however if you book two places or more on any event, they can increase that discount to 30%. In the “promotional code” section of the booking form, use the code MHSCZO-2863055 to receive 20%, and the code MHSCEO-2863055 for 30%.
 
Service User Support/Carer Project Worker  
 
Middlesex university
 
 
 
 
 
 
 
This role will be responsible for assisting Middlesex University’s long-standing service user representation group, involve@mdx. The role will help increase the membership of service users/carers and coordinate service user involvement across the North London Social Work Teaching Partnership (NLSWTP) and the Department of Mental Health and Social Work at Middlesex University.
 
Location: Hendon
Starting Salary: £31,210 per annum pro rata
Grade: Grade 6
Contract Type: Fixed Term - 12 months
Hours per Week: 21.3
Closing Date: Tuesday 31 July 2018
 
The role will be based at Middlesex University and the post holder will be employed by Middlesex University.
 
The post will require travel across the NLSWTP organisations for meetings.
For more information and how to apply please click here
 
Dissemination event for Exploring the Service User Experience of Mental Health Act Assessments study 
 
Event in Hampshire
Mental Health Act assessments are a little spoken about experience within mental health.
 
This is the first study to ask service users about their experiences and they told us so many different insights and improvements to this process.
 
This event aims to share their good and bad experience and then to explore how these experience could be improved

Date: Monday 10th September
Time: 1-5pm
Venue:Wells Place Centre, Wells Place Eastleigh, SO50 5J
Cost: free

For more information and booking please click here
 
Selby District mental health forum launches 
 
Selby forumFollowing the successful programme of conferences hosted by Selby District Council in 2016/17, Brighter Futures are really pleased to announce the launch of the Selby District Mental Health Forum.

During the conferences, the idea of a mental health forum emerged as a key aim for the future. Therefore, Brighter Futures are excited to be able to invite you to the official launch of the forum in July. This service user led forum, jointly funded by Selby District Council and Selby Big Local and delivered by Brighter Futures will provide the following:

  • a service user led forum for supporting and developing the delivery of mental health services across Selby District
  • a consultation service for statutory providers such as the NHS for developing the strategic direction of mental health services in the district
  • a core hub for promotion, discussion and sharing of information regarding mental health service provision within Selby District

Date: 24 July
Time: 4:30 - 6pm
Venue: The Studio, Selby Town Hall, York Street, Selby.

For more information you can email sdmhf@brighterfutures.org.uk
 
Places of safety lived experience research 
 
NWL
Please help to improve the service and environment at Places of Safety in North West London

The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).

The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care.
 
At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.

Researchers need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.

What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org

You can take the survey online here
 
Petition: fund facilities for people who feel suicidal 
 
portcullisFund facilities for people who feel suicidal so they always have somewhere to go

Often people who feel suicidal are discharged from mental health services, against their will. This can gravely increase the risk to their lives and causes needless deaths. No one who feels suicidal and asks for help should be turned away.
 
To sign this petition please click here
 
The deadline is 24 November - please share this as it has to garner 10 000 signatures to get any response at all from the government.
 
Call for participants for BBC Radio 4 documentary series on delusions 
 
Article Image
Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
 
This will be for a documentary series for BBC Radio 4. 
 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 2-4 weeks.
 
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
 
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
 
 
Banner
GOV.UK news 
 
Mental health education to be made compulsory in UK schools
 
Under government proposals, health education (including mental health), will be a mandatory part of the curriculum for all primary and secondary schools. Read more here
 
 
LGBT survey results and action plan
 
In July 2017, the Government launched a survey to gather more information about the experiences of LGBT people in the UK. Over 108,000 people participated, making it the largest national survey of LGBT people in the world to date.
 
This report looks at the headline findings, which focus on the experiences of LGBT people in the areas of safety, health, education and the workplace.
 
The Government has published an Action Plan that sets out what steps it will take in response to the findings of the survey.
 
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

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Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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Number of NHS beds for mental health patients slumps by 30%

Bed shortages in parts of England are so severe that patients are sometimes sent hundreds of miles from home.

The number of hospital beds for people with acute mental health conditions, where a consultant psychiatrist is on hand to oversee treatment, has fallen by almost 30% since 2009 despite repeated claims by ministers that improving care for the mentally ill is now a top priority.

New official figures show that the number of beds for those with some of the most serious conditions – including psychosis, serious depression leading to suicidal feelings and eating disorders – has fallen from 26,448 in 2009 to 18,082 in the first quarter of this year.

Read the full article here:

https://www.theguardian.com/society/2018/jul/21/nhs-beds-number-mental-health-patients-falls

NSUN Bulletin 16th July 2018

NSUN Bulletin Tuesday 17 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Tuesday 17 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 17 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Mental Health ActAlternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act.
 
Please click here for more information
 
Reigniting the SpaceReigniting the Space steering group- recruitement is going on for Yorkshire & Humber, East Midlands and the North East.
 
We are thrilled to announce the steering group who will advise and support The Reigniting the Space project to rebuild a national platform for the collective voice of mental health service users and survivors from black and minority ethnic communities.
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
Mad In AsiaMad in Asia: Towards Multiple Narratives for Inclusion
Jayasree Kalathil and Jhilmil Breckenridge introduce Mad In Asia, a platform which launched online this week.
 
The not so secret life of the manic depressive, ten years on - and how it might have been
Nicky Hayward is a regular contributor, mental health activist and independent commentator.
This is Nicky's take on Stephen Fry's programme 'The not so secret life of the manic depressive, ten years on', which aired on BBC One in February 2016.
blog re-published as part of our journey re-discovering older contributions.
 
Disability News Service needs your help 
 
Disability News Service needs help
Run by disabled journalist John Prings, DNS was the first to report, in 2014, that the UK had become the first country to face a high-level inquiry by the UN’s committee on the rights of persons with disabilities into allegations of “grave or systemic violations” of the rights of disabled people.
 
DNS needs financial support to continue its excellent work.
 
John Prings says: 'Please note that this is not aimed at those who are struggling financially. Please do not contribute if you cannot easily afford to do so. But if you can, your support might allow DNS to continue well into its second decade'

To read more about DNS's 9 years of reporting and to donate, please click here
 
Race equality groups seek big changes to the Mental Health Act 
 
Race equalityA submission from Race on the Agenda and the Race Equality Foundation to the review by Sir Simon Wesseley, set up by Theresa May to look into why so many black Afro Caribbean people were being detained in mental hospitals and the need for changes to the Act.
 
It also comes against a disturbing background of deaths of black people in police custody.
 
To read the submission to the enquiry and main proposals, please click here
 
Documentary on post SSRI sexual dysfunction 
 
PSSDPSSD - Secrets of Mental Health is a student documentary which was made to raise awareness about post SSRI sexual dysfunction.
 
You can watch the documentary on YouTube here
 
Digest of research into the mental health of prisoners 
 
prisoners mental healthAround the world, more people than ever are locked up in prisons – estimated to be in excess of 11 million people, up by almost 20 per cent since the turn of the millennium.
 
According to a recent House of Commons Briefing Paper the rate of increase is even higher than this in the UK where prison populations are at a record high.
 
Many of these incarcerated individuals have intensifying mental health needs.
 
Ahead of next week’s meeting of the All Party Parliamentary Group for Psychology on the topic of Mental Health in the Criminal Justice System, here the British Psychological Society provides a digest of research into the mental health of prisoners.
 
Read more here
 
Devon charities get men involved in sport and mental health 
 
Real Men Talk
"Real Men Talk" is an initiative by a number of charities getting men more involved in sports as a way of working on their mental health too.
 
Some take part in football on Tuesdays, with help from the Exeter City Community Trust.
 
You can find more information here
 
Online survey projects needs Mad Pride, neurodiversity, or psychiatric survivor activists 
 
USF
Do you have lived experience of emotional distress, neurodivergence, and/or behavioral health treatment? Are you a Mad Pride, neurodiversity, or psychiatric survivor activist?
 
WHO: the project is seeking participants who have lived experience of “mental difference,” i.e. characteristics, traits, states, and phenomena that have been categorized as symptoms of mental disorders or developmental disorders, and/or lived experience of behavioral health treatment, and who have engaged in any form of advocacy.
 
WHY: To help researchers better understand how experiences of mental difference and behavioral health treatment impact activist involvement.
 
WHAT: A voluntary research study. This is an online survey lasting approximately 20-25 minutes.
Participants will be asked questions about their mental health related experiences, involvement with activism, and viewpoints on sociopolitical issues within the mental health arena.
Every 30th participant will receive a $50 gift card up to five cards.
 
HOW: Contact Emily Cutler at ecutler@mail.usf.edu, or click on this link:. The study’s protocol number is #00035052.
 
Places of safety lived experience research 
 
NWL
Please help to improve the service and environment at Places of Safety in North West London

The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).

The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care.
 
At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.

Researchers need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.

What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org

You can take the survey online here
 
Call for participants for BBC Radio 4 documentary series on delusions 
 
Article Image
Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
 
This will be for a documentary series for BBC Radio 4. 
 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 4-6 weeks.
 
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
 
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
 
Event: Exploring the Service User Experience of Mental Health Act Assessments study  
 
Article Image
Date: Monday 10th September
Time: 1-5pm
Place: Wells Place Centre, Wells Place Eastleigh, SO50 5JL
 
As part of a collaborative study, Southern Health have been interviewing people who have experienced a mental health act assessment and are in the process of writing up the study and disseminating the findings.  
 
We would like to invite anyone that is interested in this area of mental health.   
 
The event will look at what further research is needed and how to implement changes to improve people’s experience.   
 
Find out more and book here.
 
For further information contact Louise Blakley on louise.blakley@nhs.net or contact Research & Development team Tom Rudd Unit, Moorgreen Hospital, West End Southampton, SO30 3JB TEL 023 8047 5373
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
 
 
Banner
GOV.UK news 
 
Consultation: Safety and security arrangements in high security psychiatric hospitals

Seeks views on proposed changes to directions and guidance setting out minimum required standards of safety and security in high security psychiatric hospitals in England.

The consultation closes on 23 August at 11:59pm

For more information please visit this page
 
New NHS app will make it quicker and easier to access health services

The free app will be available to everyone in England in December 2018.
Read more here
 
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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