NSUN Bulletin Monday 19 August

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Welcome to the Monday 19th August 2019 edition of our weekly ebulletin - full of news, views, events, jobs and involvement opportunities. 

Previous bulletins can be viewed here.

Bulletin items

If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at info@nsun.org.uk.

You should write out a short ad (see examples below) with all the info needed, contact details, deadlines, and relevant web links etc. and attach an image we can use (e.g. your logo or other relevant image). We do not have the resource to edit your information so please submit ready in this way.

Please note we cannot attach flyers, job descriptions or any other item to the bulletin.

Thank you!

Reminder: NSUN is England-wide! 

If you have an event you want us to publicise then please let us know by emailing us at info@nsun.org.uk. Don't forget this is YOUR network so please get involved!

Our funding and articles only cover us to work in England although we still welcome members from all over the UK and indeed the world!

You can view our previous NSUN weekly bulletins and subscribe to get them in your mailbox if you don't receive them directly here.

As well as browsing the news from the wider membership you can also find out more about some of our work:

NSUN News 

NSUN is recruiting! NSUN Chief Executive Officer

The National Survivor User Network (NSUN) is a membership network led by people with lived experience of mental distress. We bring together over 600 local groups and 3,900 individual members to communicate, support each other, share experiences, give voice to their views and experiences in spaces of power and change things.

We are at an exciting stage of change and development, having finished a period of deep reflection and review. After 10 years in post Sarah Yiannoullou is standing down as Managing Director. During her tenure, NSUN has grown and is now recognised as an independent, authentic collective for the voices of lived experience. Founded on the principles of solidarity, equality, integrity and diversity, we aim to reflect the ‘convention challenging ambitions’ of our members.

We are looking for someone with exceptional leadership qualities, ambition, inspiration and visionary drive to take the organisation forward. This needs to be someone who can translate our strategic vision into both high-quality practical and fundable programmes and effective advocacy work. They will need to demonstrate an ability to inspire and motivate a team of staff and associates and a 4500-strong membership.

For the right candidate, this post will be both challenging and enormously rewarding, with the potential to develop and shape an already well-respected organisation into an even stronger force.

A supported handover period will be negotiated to suit the incoming CEO.

Job Description

Application Form

Please return the completed application form accompanied with your up-to-date CV by Friday 20th September – 6pm

By email: info@nsun.org.uk

NSUN is recruiting new trustees

Are you someone who has had experience of mental distress and/or a personal or professional interest in mental health and are interested in becoming an NSUN trustee?

We are looking for new trustees to join the NSUN Board. This is a high-profile appointment to which you will bring your expertise and experience and an absolute commitment to promoting the rights of people with experience of distress, disadvantage and discrimination.

Please click on this link for full details of the role and how to apply.

The closing date for applications is Monday 16th September 2019 – 9am
Interviews will take place on Thursday 19th September and/or Friday 20th September 2019.

Both opportunities are posted on the NSUN website.

Save the date!

NSUN AGM 2019 is in York, Thursday 24th October 2019

This year our AGM will be in the glorious city of York - a historic northern city conjuring images of the stunning York Minster and the old cobbled Shambles.

As well as being a beautiful backdrop for this year's AGM, York has great travel connections to the rest of the country - always one of our prerequisites!

So, save the date - Thursday 24th October. We will send out more information and a link to eventbritewhere you can register to attend the FREE event.

We look forward to seeing you there!

Featured blogs and articles 

Music groups on acute mental health inpatient wards

An article on the Mental Elf talks about the real need to alleviate boredom on inpatient mental health wards.

What about the patient?: David Gilbert

In the new HSJ serices, Jeremy Taylor, former CEO of patient group National Voices, talks to people doing leading work with patients, families and carers. This week: David Gilbert, patient director, Sussex MSK Partnership (Central)

Published 12 August (HSJ)


Refocus on Recovery 2019 - debate International conference 3 - 5 September 2019

At each Refocus on Recovery international conference, there is a debate held on a globally topical issue. In 2019 the debate motion is: “This house believes that there is no place for compulsion in a rights-oriented mental health system”

The debate will be chaired by Samson Tse. Alison Faulkner and Peter Bartlett will speak for the motion, and John Copping and Vicky Stergiopoulos will speak against the motion.

To find out more please go to the debate info page here.

New opportunity to join in with the debate

For the very first time, the debate session will be live streamed via YouTube with The Mental Elf. Conference attenders and anyone around the world will be able to submit and vote for questions. You can watch the debate live here.

Booking for the event here.


Crisis Care Consultation in the North East 

North East Together (NEt), service user and carer network, want to hear from local service users and carers about their experiences of crisis services.

They're running a number of workshops to hear views about what matters most to people regarding crisis care. Discussions will help influence future crisis services.

Lunch and refreshments are provided as are reasonable travel expenses. 

Wednesday 28th August 1pm at Waddington Street, Durham

Thursday 5th September 1pm at St Mary's Centre, Middlesbrough.

Please contact Mish - mish.loraine@netogether.co.uk to book your place and find out more.


Helplines Partnership Annual Conference 

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The 2019 Helplines Partnership AGM, Annual Conference and Awards will take place on Wednesday 6 November at Crowne Plaza, Central Square, Holliday Street, Birmingham B1 1HH.

The theme this year is Strength in Numbers. Keynote Speaker Ryan Hart

Book your place here.

The Helpline Awards, now in their sixth year, are an opportunity to acknowledge and reflect on excellence at an individual and organisational level.
Nominations for this year's awards are now open and close at 17:00 on Friday 13 September 2019.

Find out more about the 2019 Helpline Awards and submit your nominations here.


New online advocacy tool from British Institute of Human Rights 

The British Institute of Human Rights has a new online advocacy tool which supports people with mental health and/or mental capacity issues, and those who advocate for them, to know when their human rights may be at risk and how to use the law to resolve these issues.

Check out the Tool here.


Launch of new group: Bristol Reclaiming Independent Living (BRIL) 

We want to hear from other Disabled people, social workers, families and other organisations about the barriers Disabled people face in living independently in Bristol.

Bristol Reclaiming Independent Living (BRIL) works with local and national organisations to fight for the right of all people to decide how and where they live, with the support they need. Independent Living does not mean being on your own or doing everything without support!

If you are interested, please come to our launch meeting:

On: Monday 16th September 2019
From: 11am-1pm
At:  8 Priory Road, Clifton BS8 1UQ

Facebook: Bristol Reclaiming Independent Living (BRIL)
Twitter: @BrilLiving
Email: bristol.ilag@gmail.com


The Mental Elf is hiring! Project Coordinators

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The National Elf Service needs 3 part-time Project Coordinators to join their team and support the writing, editing and disseminating of Mental Elf blogs.

This opportunity will suit a PhD student working in a mental health setting.

Salary: £240 per day, 1 day per week (flexible)

Start date: ASAP

Location: Remote-working

Application deadline: 5pm on 13th September 2019

Find out more here.

Click here to continue reading the bulletin

NSUN Bulletin Tuesday 6 August 2019

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Welcome to the Tuesday 6th August 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. 

Previous bulletins can be viewed here.

*Please note we endeavour to send out the bulletin every Monday but occasionally it has to be sent later.

Bulletin items

If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at info@nsun.org.uk.

You should write out a short ad (see examples below) with all the info needed, contact details, deadlines, and relevant web links etc. and attach an image we can use (e.g. your logo or other relevant image). We do not have the resource to edit your information so please submit ready in this way. Please note we cannot attach flyers, job descriptions or any other item to the bulletin. Thank you!

Reminder: NSUN is England-wide! 

We sometimes get criticism that we post too many London-centric events. The fact is that as London is so highly populated it is somewhat inevitable that we will post many events that are in London. HOWEVER, if we receive news of events in the wider England network* - we welcome them and we include them!

So, if you have an event you want us to publicise then please let us know by emailing us at info@nsun.org.uk. Don't forget this is YOUR network so please get involved!

* (Our funding and articles only cover us to work in England although we still welcome members from all over the UK and indeed the world!)

You can view our previous NSUN weekly bulletins and subscribe to get them in your mailbox if you don't receive them directly here.

NSUN News 

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Save the date! NSUN AGM 2019 is in York Thursday 24th October

This year our AGM will be in the glorious city of York - a historic northern city conjuring images of the stunning York Minster and the old cobbled Shambles.

As well as being a beautiful backdrop for this year's AGM, York has great travel connections to the rest of the country - always one of our prerequisites!

So, save the date - Thursday 24th October. We will send out more information and a link to eventbrite in due course where you can register to attend the FREE event.

We look forward to seeing you there!

Click here to read the rest of the bulletin

NSUN Bulletin Tuesday 16 July 2019

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We apologise for the late delivery of this, last week's edition of the bulletin but we have had technical difficulties which are hopefully now resolved.

Welcome to the Tuesday 16th July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Reminder: NSUN is England-wide! 

We sometimes get criticism that we post too many London-centric events. The fact is that as London is so highly populated it is somewhat inevitable that we will post many events that are in London. HOWEVER, if we receive news of events in the wider England network* - we welcome them and we include them!

So, if you have an event you want us to publicise then please let us know by emailing us at info@nsun.org.uk. Don't forget this is YOUR network so please get involved!

* (Our funding and articles only cover us to work in England)

Request for bulletin feedback

We have been sending the NSUN weekly bulletin to our members since March 2009. We would appreciate you telling us what (if any) difference the information we've shared has made to you, personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk

NSUN News 

Launch of 'Know Your Human Rights' online tool.

NSUN trustee, Rachel Rowan Olive, attended the launch of the British Institute of Human Rights online tool earlier this month. The 'Know Your Human Rights' tool is aimed at helping mental health service users raise issues around human rights in their care. BIHR are looking at how they can make sure the tool is widely used and get feedback on how to develop it further.

Read more here.

The Value of User-led Groups

NSUN's main campaign for 2019 is the 'Value of User-led Groups'. With the continued increase in the number of groups’ closures, many collectives of oppressed and marginalised people are under threat of disappearing, which can have devastating effects on group members.

In partnership with Shaping Our Lives we produced a briefing about our joint understanding of the current situation. We then asked ALL NSUN member groups and organisations (not just user-led groups) to help us in completing our survey. You can read the summary of our initial findings here.

On 21 May over 40 individuals and organisations are gathered to discuss the current crisis facing User-led Organisations. challenges and solutions to some of the problems we're facing.The event was supported by Lankelly Chase. A summary of the meeting and next steps will be available soon.

Click here to continue reading the bulletin

NSUN Bulletin Monday 08 July 2019

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Welcome to the Monday 8th July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for bulletin and 4Pi feedback 

We have been sending the NSUN weekly bulletin to our members since March 2009. We would appreciate you telling us what (if any) difference the information we've shared has made to you, personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. We want to know if they have influenced practice and policy and what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

Call for ideas about a better welfare benefits system

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As many of us know to our cost, there are huge problems with the current welfare benefits system and with trauma and destitution which have resulted from changes made under austerity. Because of this, a user-led Commission on Social Security has been set up to put forward improvements that are needed.

This Commission is separate both from the Government and from the Department of Work and Pensions. Do you have experience of the welfare benefits system and can you help with ideas about the changes needed? If so, please send in your suggestions. You can:

Complete the survey for the Call for Solutions here.

Email Michael Orton at Orton@warwick.ac.uk for a different, accessible way of replying.

Please make contact if you can. Your help is vitally needed.

Westminster Forum event: London

Next steps for mental health services in England - prevention, specialised services and service user engagement

Alison Faulkner will be presenting at this event on behalf of NSUN.

Date: Tuesday, 23rd July 2019

Time: 9.30am - 1pm
Venue: Central London

Speakers include:

  • Claire Murdoch, National Mental Health Director, NHS England and Chief Executive, Central and North West London NHS Foundation Trust

  • Amy Wattingham, Lead Lived Experience Practitioner, Oxleas NHS Foundation Trust

  • Lily Makurah, National Lead, Public Mental Health, Public Health England

  • Maria Bavetta, Champion Network Manager, Maternal Mental Health Alliance and Co-Founder, Maternal OCD

  • Alison Faulkner: National Survivor User Network (NSUN)

Book here. Consessions and complimantary places are available.

@WHFEvents | This event is CPD certified B

Recommendation from the Parliamentary Assembly of the Council of Europe (PACE) to end coercive practices in mental health

The Parliamentary Assembly consists of representatives from the organisation’s 47 member states in Europe.mParliamentarians meet four times yearly to discuss issues of their choice.

Governments of European countries are then obliged to respond to issues raised. On 26th June, the Assembly passed Resolution 2291 (2019) which calls on European governments  to bring coercion in mental health provision to an end and to replace it with effective support for people in crisis, in line with the United Nations Convention on the Rights of Persons with Disabilities. This Resolution stems from a report by Reina de Bruijin-Wezeman (Netherlands ALDE). Key reasons for the Resolution were the fact that:

  • Coercion is used to ‘control’ and ‘treat’ patients who are considered potentially dangerous to themselves, or others, even though sociological research points to overwhelmingly negative experiences of coercion and there is a lack of empirical evidence that mental trauma and violence are associated and that coercion prevents self-harm or harm to others

  • Reliance on coercive measures leads to arbitrary deprivations of liberty and is discriminatory

  • There are highly successful alternatives to coercion.

For more information, email Dorothy Gould.

NSUN Bulletin Monday 01 July 2019

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Welcome to the Monday 1st July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin & 4Pi 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk.

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. If they are being used we want to know what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

Live streaming of presentations about poverty in the UK

The UN Special Rapporteur on Extreme Poverty and Human Rights

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As many of you will know, the UN Special Rapporteur on extreme poverty and human rights, Professor Philip Alston, visited the UK last year. A number of you also contributed to the submission which Dorothy Gould collated on NSUN’s behalf to help with Professor Alston’s enquiry. 

At 9:30am last Thursday, the Special Rapporteur joined civil society representatives for an event in Geneva entitled Poverty in the UK: Human Rights under Threat. You can also watch a live streaming of the event at: https://www.facebook.com/AlstonUNSR.

If the planned schedule has been maintained, Professor Alston will too have presented his report to the UN Human Rights Council on Friday of last week. At the meeting, there will have been opportunities for the UK government to respond to his report and for other states and civil societies also to make comments. A live streaming of the meeting should now be available at http://webtv.un.org/meetings-events/human-rights-council/

Mental Health Act Review

Mental Health Act Review Advisory Group held its first meeting following the publication of the review recommendations, 7th May. The second meeting is being held 8th July. As a member of the group we will continue to share our reflections about the recommendations. You can read the main points we'll be raising here.

Click here to continue reading the bulletin

NSUN Bulletin Monday 24 June 2019

Welcome to the Monday 24 June 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin & 4Pi 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk.

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. If they are being used we want to know what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

URGENT request from the Equality and Human Rights Commission (EHRC) - TWO NSUN MEMBERS WITH LIVED EXPERIENCE REQUIRED

The EHRC has just launched an inquiry into the experiences of disabled people within the criminal justice system. The inquiry will particularly focus on the pre-trial stage. That is because evidence for disabled people’s experiences at this point is particularly lacking. The inquiry will address whether disabled defendants’ needs are identified; what reasonable adjustments, if any, are made; whether there are particular barriers or helpful factors; and what recommendations should be put forward. The EHRC is interested in perspectives of NSUN members and so in interviewing two NSUN members with lived experience. 

If you are interested in being interviewed, please contact Dorothy Gould URGENTLY at gould.dorothy@gmail.com or on 07565 399 422.  Dorothy can then give you further information and put you in touch with EHRC if that seems helpful.

 Find out more here.

Click here to continue reading the bulletin

NSUN Bulletin Monday 10 June 2019

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Welcome to the Monday 10 June 2019 edition of our weekly ebulletin. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here

Request for feedback on the bulletin 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email.

NSUN News 

Urgent request from the Equality and Human Rights Commission (EHRC)

The EHRC has just launched an inquiry into the experiences of disabled people within the criminal justice system. The inquiry will particularly focus on the pre-trial stage. That is because evidence for disabled people’s experiences at this point is particularly lacking. The inquiry will address whether disabled defendants’ needs are identified; what reasonable adjustments, if any, are made; whether there are particular barriers or helpful factors; and what recommendations should be put forward. The EHRC is interested in perspectives of NSUN members and so in interviewing two NSUN members with lived experience. 

Find out more here

Joint working and co-operation between organisations led by disabled people (DPOs) at an international level

Dorothy Gould provides a summary account of the event 1st June, co-hosted by the Department for International Development (DFID) and the Reclaiming Our Futures Alliance (ROFA). DFID is a government department responsible for providing international aid. Reclaiming Our Futures Alliance (ROFA) is an alliance of Disabled People and their organisations (DPOs) in England who have joined together to defend disabled people’s rights and campaign for an inclusive society. Read more here.

Health and Wellbeing Alliance Webinar – Peer Support, User-Led Organisations, and Mental Health and Prevention

Date: Tuesday 18th June 2019

Time: 10.30am - 11.30am

This webinar, with Alison Faulkner and Emma Ormerod from NSUN, will provide a short overview of the role of local user-led organisations and peer support initiatives in the prevention of mental distress and social exclusion.

There is a significant role for prevention amongst people already in touch with mental health services who are at risk of further marginalisation and social exclusion. It is widely recognised that working alongside communities to understand their needs and build on existing strengths, assets and resilience is key. Book your place here.

Disabled People's Organisations meet with Minister for Disabled People

Read our account of a meeting between Sarah Newton MP and six Disabled People's Organisations (DPOs): Inclusion London/the Reclaiming Our Futures Alliance, NSUN, the Equalities National Council, Disability Wales, Independent Living in Scotland and Disability Action Northern Ireland. Read the report here.

Click here to read the full bulletin

NSUN Bulletin Monday 03 June 2019

Welcome to the Monday 03 June 2019 edition of our weekly ebulletin. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued with members telling us:

“The NSUN bulletins point to up-to-date projects, work and research happening in the UK – and we, can learn from each other and benefit from learning from each others’ experience”

“I feel as if I am not alone! I love the signposting, shared information and the feeling that we are fighting together!”

“Up to date information about MH events etc... most IMPORTANTLY it has a ‘user’ feel to it. I get so fed up with a lot of the professional ‘spin’ stuff that goes on. NSUN talks my language!”

Of course it's not all so positive and we've taken valuable criticism and tried to make sure that information shared is current, relevant and accessible.

Feedback: We would really appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally. Have you got involved in research, workshops or projects? Have you joined a group or applied for funding for your group? Have you got involved in any national initiatives? Have you had good responses to items you've advertised?

We'd love to hear what you've got involved in or done as a result of the information we've shared, so just send us any feedback directly by email

NSUN News 

Shocking abuse at Whorlton Hall, County Durham

Undercover filming by a reporter for the BBC Panorama Programme revealed highly offensive attitudes and language about patients amongst Whorlton Hall staff, intimidation and mockery of patients and an unacceptable use of restraint.  Read our report and a statement issued by People First Advocacy here.

You can also read CQC's full response here.

Final report from Philip Alston, the UN’s Special Rapporteur for Extreme Poverty and Human Rights

Many thanks again to all those of you who contributed to NSUN’s submission to the Special Rapporteur. Philip Alston’s final report about his 2018 visit to the UK has now been published and can be found here

NSUN Bulletin Tuesday 28 May 2019

Welcome to the Tuesday 28 May 2019 edition of our weekly ebulletin. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

The Value of User-Led Groups

Last week user-led groups and funding organisations met in London to talk about the current crisis facing user-led organisations and their future role in ensuring an independent voice and local support. A briefing paper, produced in partnership with Shaping Our Lives, 'The Future of User Led Organisations'. Those who attended shared what they thought about why we're seeing a decline of user-led groups and the social impact. This included:

  • Funders not recognising the difference and value of use-led groups

  • The diminishing sources of support and accessible funding

  • A loss of opportunity to be part of an accepting and supportive community

  • Larger organisations working competitively not collaboratively

  • Less support and resources to connect and network

Funders present recognised the power relations and conflicts and also spoke about the challenges of making descisions with declining funds.They also acknowledged that some funders needed to better understand and value user-led groups. The meeting finished with everyone thinking about how to collectively address the problems. A full report will be made available. You can also read the summary of findings from the initial survey we conducted with members here. Visit our website for further updates on NSUN's campaign.

Click here to continue reading the latest bulletin

NSUN Bulletin Monday 20 May 2019

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Welcome to the Monday 20 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here

Mental Health Awareness Week 

The theme for this year was 'Body Image'. You can follow some of the stories shared over the last week on Twitter via #BeBodyKind and #MentalHealthAwarenessWeek and read what was debated in Parliament.

During the week Prince William announced that Heads Together is launching a new campaign 'Heads Up' in partnership with the Football Association next season. The Royals also launched the mental health text support service Shout, a legacy of the Royal Foundation's Heads Together.

Awareness days and weeks and high profile supporters and campaigns have done much to promote the importance of our mental health as well as our physical health. We also need to make sure that the 'hidden world' of mental health is given the exposure necessary to stop inhumane treatment and protect people from harm. Such as the case of Steven Boyd, a Mental Health Nurse 'who showed callous disregard for the safety of patients in his care.' Read a summary of the case on the BBC Website.

An open letter to the Nursing and Midwifery Council (NMC) has been written detailing concerns about the NMC ruling. You can read the letter and find out how to add your support on the Fostering Change website and @WeCareAboutMH

Click here to view the entire bulletin

NSUN Bulletin Monday 13 May 2019

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Welcome to the Tuesday 13 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk

Mental Health Awareness Week 

Hosted by the Mental Health Foundation, Mental Health Awareness Week takes place from 13-19 May 2019. The theme this year is Body Image – how we think and feel about our bodies.  Included in this week's bulletin are articles and art projects exploring this theme.

"The healthiest form of projection is art"  

~ Fritz Perls 

As expected, there's a lot of focus on the role media has to play on idealising body representation. 

Today's Guardian article reports on the Mental Health Foundation's survey, which found one in eight people aged 18 and above have been so distressed about their body image they have thought about killing themselves.

Read more about Mental Health Awareness week on the Mental Health Foundation's website and follow the hashtag #BeBodyKind

NSUN News 

Some of our recent work

#HardlyHardToReach peer learning programme

Dominic Maukuvachuma and Sarah Yiannoullou presented at the HEAR Equality and Human Rights Network and Race on the Agenda (ROTA) three-day peer learning programme on campaigning and lobbying for mental health equality 2 May. Dominic and Sarah presented on 'Effective leadership and building a political platform'. This included the Reigniting the Space project and the 4Pi National Involvement Framework.

Find out more about HEAR events.

King's Fund report on Mental Health Outcomes

NSUN attended the Kings Fund round table event that presented their report ‘Outcomes for mental health services: what really matters?’. The report includes a case study provided by NAViGO on page 24 which is the one of the only mental health care providers that does not use control and restraint.

NSUN Members' Manifesto

NSUN's Members' Manifesto is one of the documents referenced as one of the guiding principles for the National Independent Living Strategy, Independent Living for the Future – Our vision for a national independent living support system published by the Reclaiming Our Futures Alliance (ROFA). The Members' Manifesto is currently being reviewed and will be published later in the summer.

NICE Guidelines: Management of Depression in Adults

In November 2017 NSUN joined a number of other organisations concerned with the methodology for the revision of the Recognition and Management of Depression in Adults guidleine. There is an upcoming meeting with NICE 24 May to discuss the campaign. You can read more about the campaign here.

The Value of User Led Groups

NSUN’s main campaign in 2019 is the value of user-led groups - that is demonstrating the huge value of user-led groups in our society and fighting the cause for their survival. Later this month we are meeting together with other groups and stakeholders to share and raise the issues and look at what we can do collectively to address them. You can read the summary findings of the survey we conducted with members here. 

FSI has published it's latest perceptions on the small charity sector here. The Small Charity Index is the FSI’s quarterly ‘Pulse of the Sector’ report

Jobs and involvement opportunities - already shared

If there is still time to apply or get involved, you can find previously shared opportunities on this page.

Visit our Youtube channel. 

Featured blogs and articles 

Body Dismorphic Disorder (BDD) stories

Here you can read a selection of personal stories about the struggles and affects of BDD from people and their families.

Body Dismorphic Disorder Foundation

The Need to 'Do Something'

Akiko Hart writes about social media and self-harm. 'If we ban pictures of self-harm on social media, what we risk is silencing and isolating those in most pain and those in most need of connection.'

The Sociological Review

A Day with Body Dismorphia

Michelle Threadgould's personal essay published as part of the Orange Dot  mental health series.

Click here to view the full NSUN bulletin

NSUN Bulletin Tuesday 7 May 2019

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Welcome to the Tuesday 7 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Supporting NSUN 

Despite yet another uncertain period NSUN tentatively celebrates its 12th year (and 10,000 Twitter followers!). Not quite a teenager and no longer a child, we find ourselves at the awkward age of finding our place in the world. 

Our members have had a lead role in defining the network by telling the stories of the past, sharing current issues, and prioritising for the future. Because of your generosity NSUN is finding its position and more confidently challenging unacceptable practice and poor policy decisions.

Together we are fighting to be heard and to be treated with dignity and respect, but in the last few years the collective voice of people through groups and networks has been severely depleted and neglected.

Do encourage others to join us and contribute to our growing network and campaign to protect the independent voice and autonomous action.

Please click here to see the entire bulletin

NSUN Bulletin Tuesday 23 April 2019

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Welcome to the Tuesday 23 April 2019 edition of our weekly ebulletin.

This week's edition features some important involvement and influencing opportunities.

Four years ago NSUN and partners published the 4Pi National Involvement Standards. It is now widely referred to and used by organisations and groups across the country, and internationally.

More recently the Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities. You can read and download the Co-production guidance and tips papers here.

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.

Remember to  email us any news or information that you would like to share.

Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give

Click here to read more

NSUN Bulletin Monday 15 April 2019

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NSUN Bulletin Monday 15 April 2019

Table of Contents

  • NSUN News

  • Selected blogs and articles

  • Do you want to be employed as a co-researcher on a project that aims to tackle ethnic inequalities in severe mental illness?

  • Book: Illness as a Metaphor

  • Dear GP zine - call for submissions by 21st April!

  • Passionate about PeerFest?

  • Gig Buddies for Good Mental Health - Brighton & Hove

  • SUN Network - Cambridgeshire

  • Lifecraft in Newmarket

  • Positive Mental Health Group - Birmingham

  • The Bridge Collective - Exeter

  • Exploring Mindfulness and Voices

  • User-led Women's Mental Health Network - turn up the volume!

  • Let's Talk exhibition

  • In the news

  • Dates for your calendar

  • GOV.UK news

 

This week's edition features some of the 'user-led' networks and groups from around the country that are running local activities and events. You can find out what groups are in your area on our website by searching the directory.

April is National Stress Awareness Month. Running since 1992, it aims to increase public awareness about both the causes and cures for our modern stress epidemic. The Stress Management Society says that 'despite this running for 20 years we have got a long way to go. According to the Mental health Foundation 74% of UK adults have felt so stressed at some point over the last year they felt overwhelmed or unable to cope.'

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here

Remember to  email us any news or information that you would like to share.

Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give

NSUN News  

Groups that applied to the National Lottery Community Fund Leaders with Lived Experience pilot programme heard the outcome of their applications 4 April.

Only 15-20 grants of between £20,000 and £50,000 were available but over 660 applications were received. As this is a pilot programme, it's hoped that the demand and the success of those who are awarded a grant leads to a full programme of grants in the future.

Obviously there are a lot of disappointed applicants and we know that quite a few of them are members of NSUN. We're hoping there'll be some mental health user-led groups and initiatives that have been successful but until the list of grants awarded are published we're not sure what the range of groups and work are.

When a funding opportunity arises that seems to speak directly to your cause it feels even more disappointing than usual when you're unsuccessful. We do know that grants like these are needed more now than ever.

Groups and organisations in our membership who aren't providers of services are finding it almost impossible to attract funding and are being told that they're too political, too radical, not professional enough and in some cases too professional. How we describe ourselves is becoming more complicated due to varied expectations and the use and adoption of particular language and terms by other organisations, thus making it harder to communicate the distinction and uniqueness of 'user-led' groups.

Co-producution, peer support and participation is everyone's business and in many respects that's what we've been lobbying for over the years. It's difficult when we can't reconcile the practice we experience with the language though.

NSUN recognises that the language of rights, self-advocacy, leadership and community activism cuts through this but we also need to look at clearly defining user and peer led initiatives.

We need to make sure that we can continue to pressure for change, the right change, the change that benefits our communities, not disadvantage them further. For this to happen we need powerful communities and the infrastructure and initiatives that help us come together. We need to continue to highlight the challenges and inequalities that individuals and groups are facing within our communities, but we also need to celebrate and promote those that continue to do what they do against all the odds. We also need to reclaim and reframe some of the language being used and adopted.

Let's hope there are more and not fewer opportunities such as the Leaders with Lived Experience fund. You can find out how to apply to the National Lottery Community Fund here.

The Value of User Led Groups - 2019 campaign UPDATE

 We are looking for more groups to complete the survey 

 If you're a user-led group we want to hear:

  • What does your group do?

  • What are your successes?

  • What are your challenges?

  • Are you self-funded or do you get support - if so, from where?

  • How hard is it to get funding in the current climate?

  • Do you have any views about government funding for mental health?

We want to gather as much information as possible before we meet with other groups and organisations 21 May. Visit our website for further updates on the campaign. Complete the survey or email info@nsun.org.uk.

Co-production guidance and tips

The Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) have produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities. You can read and download the Co-production guidance and tips papers here.

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A short video and the Soap Boxes from our Members' Event in October 2018 is now available. You can also browse our Annual Report 2017-2018 here.

You can view the Principles of Peer Support Charter here.

Selected blogs and articles 

The impact of racism on mental health

Alison Faulkner's briefing paper summarising the evidence on the impact of racism on mental health, produced by the Synergi Collaborative Centre

They have produced four briefings to date – this one  The impact of racism on mental health (PDF)  and three others:

  • Ethnic inequalities in UK mental health systems

  • The importance of participatory methods to research and system change

  • Ethnicity, severe mental illness and categories

Synergi Briefing Papers provide summaries of the evidence and formulate a foundation for their work by reflecting the approach they are taking to their work and underlying values. 

Do you want to be employed as a co-researcher on a project that aims to tackle ethnic inequalities in severe mental illness? 

 DO YOU:

  • have lived experience of severe mental distress?

  • identify as African, Caribbean, South Asian or mixed heritage?

  • have interest in advancing our understanding of

  • ethnic inequalities and severe mental distress?

  • want the potential to make a difference in mental health services for ethnic minority people?

Do you want to be employed as a co-researcher on a project that aims to tackle ethnic inequalities in severe mental illness?

Synergi Collaborative Centre is recruiting 4 co-researchers on a casual basis to work with academic researchers based at the University of Manchester on a qualitative research project exploring the life stories of ethnic minority people - those with severe mental distress and those who work with them.

What does the post involve?

  • undertaking intensive training in research and qualitative lifestory interviewing & analysis leading to accreditation with the Open College Network

  • conducting in-depth one-to-one life story interviews

  • helping facilitate focus groups with different groups of stakeholders

  • co-analysing and disseminating the findings

  • regular support and supervision throughout the research process

Salary: £19.40/hour [Travel related to the post will be paid]

Closing date: Monday 6 May 2019
For more information please contact: maria.haarmans@manchester.ac.uk
0161 306 6943

Book: Illness as a Metaphor 

'A masterful focus on those who wander the margins'.

Man Thinking.jpg

Diary of a Malayali Madman is a collection of novellas written by one of India’s premiere writers, N Prabhakaran, and translated from the Malayalam language by Jayasree Kalathil.

The book explores the inner worlds of ordinary people in small town northern Kerala, and is reviewed here by the feminist historian, J Devika.

Read the full review and order the book here.

Dear GP zine - call for submissions by 21st April!  

Dear GP zine will be a collection of satirical clinic letters written 
evaluating sessions and assessing mental health professionals.

  • How accurate are your letters from mental health professionals?

  • Ever been copied into one that made you turn "emotionally labile" with rage?

  • Do you want to call out your professional's behaviour and analyse insignificant details about them too?

Then Dear GP zine wants to hear from you by 21st April

#dear_gp want submissions from users of mental health services and carers in the form of satirical clinic letters, usually sent to GPs,  reviewing your mental health professional.

Perhaps you have noticed that your mental health professional has "overvalued beliefs" they're unwilling to let go of. Perhaps your professional needs a full risk assessment and exploration of protective factors. Now's the time to let your GP know!

Also welcomed - Art made from clinic letters, notes, patient information leaflets, meds packet inserts - and whatever you can find!

Send submissions to DearGPLetters@gmail.com
Or DM on Twitter @dear_gp
Hashtag is #DearGP 

Passionate about PeerFest? 

Passionate about peer support and want to get involved in Peerfest19? 

Pre-Fest and Pitch-Fest.

You’ll have the opportunity to:

  • Shape this national event with your ideas, energy and passion.

  • Get help and support from us to develop your pitch for Peerfest19.

Event 1 - Pre-Fest on 2nd May

To bring together 40+ groups from across the country to generate ideas and shape the vision for Peerfest19.

What will I get from the day?

  • The opportunity to energise and inspire on what a peer support celebration should be about

  • A safe space for you to bounce ideas around the room and collaborate with others

  • Support and guidance from the National Planning team if you choose to prepare a pitch for our Pitch-Fest Event 2 on 15th May

  • Details on how to prepare a pitch application for Pitch-Fest

Apply for a place at Pre-Fest here.

Event 2 - Pitch-Fest on 15th May

A day for you to pitch your ideas for Peerfest19. You can pitch to run the whole event or just a slice. We want the day to feel like a community, not a competition.

What will happen on the day?

  • You will set up your pitch in the event hall

  • You will have the chance to create partnerships throughout the pitch time

  • At the end of the day, a judging panel from the National Planning Team will announce which pitch or pitches will go forward to deliver Peerfest19

  • Applications to to pitch at Pitch-Fest will open on 3rd May, after Pre-Fest

Apply for a pitch at Pitch-Fest here.

Peerfest19 will be celebrated sometime between July and December 2019. The date and how to book a place will be announced here - so keep a look out for updates.

Any questions about Peerfest19? Contact the peer support team at peerfest@mind.org.uk. To get a flavour of our Peerfest celebrations click on the links below, to see what we get up to each year.

Peerfest 2018  Peerfest 2017 | Peerfest 2016 | Previous Peerfests

 Gig Buddies for Good Mental Health - Brighton & Hove 

Gig Buddies for Good Mental Health (or GBMH) covers Brighton & Hove and the immediate surrounding area was launched 10 April. It matches adults experiencing mental health challenges with a volunteer who has similar interests, to go to events together that they both love.

The project is run by Synergy Creative Community CIC, and is in partnership with local charity Stay Up Late, who created the original Gig Buddies model for adults with Learning Disabilities. Stay Up Late's Gig Buddies project has been so successful we would now like to bring Gig Buddies to a wider audience of people who would benefit from the activities on offer.

You can find out more about the Gig Buddies model, and the work of our partner organisation Stay Up Late here.

If you would like to become a gig buddy volunteer or participant, or refer someone you think would benefit, please get in touch using the details below.

info@gigbuddiesmentalhealth.org.uk

GBMH, Synergy Creative Community

c/o Community Base, 113 Queens Road, Brighton, BN1 3XG

Phone: 07877 574212

SUN Network - Cambridgeshire 

The SUN Network exists to make sure that everyone in Cambridgeshire has equitable access to high quality Mental health and/or Drug & Alcohol interventions and services at the time when it is needed.

They want to be the strongest voice around how mental health services should look across Cambridgeshire and that is the COLLECTIVE voice of their members. Join as a member and help improve mental health services and 'get the latest mental health, drug and alcohol news, involvement opportunities, training opportunities and chances to share your story!'

Visit the SUN Network website.

Lifecraft in Newmarket 

Matt Hancock, MP for West Suffolk and Secretary of State for Health and Social Care, and Rachel Hood, Mayor of Newmarket attended the launch of Lifecraft's Newmarket Hub 5 April.

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Lifecraft has received funding to open an outreach hub in Newmarket:

  • Wednesdays: 12pm-4pm

  • Thursdays: 11.15am – 3.30pm

The next session will be 17th April, followed by 1st, 15th and 29th May 2019.

Find out about all of Lifecrafts groups and activities here.

Positive Mental Health Group - Birmingham 

Positive Mental Health Group - monthly networking meeting dates for 2018.

The group is open to anyone with an interest in promoting a greater awareness of mental health issues across the communities of Birmingham and Solihull.

Share information, news & views with statutory agencies, voluntary sector organisations, user groups - and individual users/carers/staff. Join one of the biggest mental health networking meetings in the Midlands, every month! Just turn up - no need to book.

Meetings include guest speakers, information table, light refreshments & a chance to chat and catch up.

Upcoming dates:

Tuesday 30th April – from 2.30pm to 4.30pm
Tuesday 28th May – from 2.30pm to 4.30pm
Tuesday 25th June – from 2.30pm to 4.30pm
Tuesday 30th July – from 2.30pm to 4.30pm
Tuesday 27th August – from 2.30pm to 4.30pm
Tuesday 24th September – from 2.30pm to 4.30pm
Tuesday 29th October – from 2.30pm to 4.30pm
Tuesday 26th November – from 2.30pm to 4.30pm
Tuesday 17th December – from 2.30pm to 4.30pm

ALL MEETINGS ARE HELD AT - Cafe, 38 - 40 Holloway Circus, Birmingham city centre B1 1EQ

Just a short walk from all city centre rail stations and bus stops. The cafe is located next to Birmingham LGBT Health & Wellbeing Centre, opposite the Chinese pagoda traffic island and the Radisson hotel.

Buses X61 and 63 stop at HF1 outside the cafe. The journey is just two stops from the Rotunda/Bullring centre, board buses outside the Boots store.

PALS (Patient Advice and Liaison Service) at BSMHFT can offer information on this group and other voluntary or user groups within Birmingham and Solihull - Phone 0800 953 0045

More information here.

The Bridge Collective - Exeter 

The Bridge Collective describe themselves as 'building a democratic community of mutual support run by people who have experiences, beliefs, and feelings that have sometimes been labelled as mental illness.'

They celebrated their 12 year anniversary 4 April.

You can find out what’s on here (pdf – poster download)

They have a range of groups and activities that include:

  • Music sessions

  • Art groups

  • Expert by Experience monthly meetings

  • Newsletter working space

  • Walks

Exploring Mindfulness and Voices 

Date: Friday 3rd May

Time: 10am - 4.30pm

Venue: Brockway Room, Conway Hall, 25 Red Lion Square , WC1R 4RL London

Costs: £12 for unwaged, self-funded £50-£100, private and statutory £125

Trainer: Andy Phee

ABOUT THE WORKSHOP

Using mindfulness practice to support others and ourselves

A day of practice, exploration and reflection, suitable for hearing voices group facilitators, mental health workers and people living with voices or distressing beliefs.

WORKSHOP CONTENT: The workshop includes mindfulness practices throughout the day and interactive exercises in pairs and small groups. We aim to explore:

  • Grounding and promoting safety

  • Mindfulness practices in everyday life

  • The breath and the body in mindfulness practice

  • Mindfulness meditation practices and adaptions

  • Mindful Movement

  • Mindful listening and being with others mindfully

  • Additionally, there will be space to discuss

  • Why mindfulness can be helpful

  • When mindfulness may and may not be helpful

  • Trauma sensitive mindfulness

  • The current evidence base for mindfulness and voice hearing and paranoia

  • Materials to support mindfulness practice such as guided recordings

  • Mindfulness and other approaches and therapies.

  • Starting a mindfulness practice and practising together in groups

ABOUT THE TRAINER

Andy Phee. Andy's background was in community mental health nursing. He facilitated a Hearing Voices Group in Camden for many years. More recently since training to teach mindfulness, he has been facilitating mindfulness groups for people experiencing distressing voices and paranoia. He has been practising meditation and mindfulness for 20 years.

Fees:

  • £12 Unwaged

  • £50 Self-funding part-time earners, and students

  • £100 Self-funding full-time earners, and voluntary sector organisations

  • £125 Private and statutory organisations (including NHS)

Small Print: The full fee will be chargeable if you cancel less than 7 days before the event. 

Book your place here.

For more information on booking, please contact: Akiko Hart

Mind in Camden, Barnes House, 9-15 Camden Rd, London, NW1 9LQ

020 7241 8978 | ahart@mindincamden.org.uk

User-led Women's Mental Health Network - turn up the volume! 

The Women’s Mental Health Network (WMHN) is the latest project from Wish, a women’s user-led mental health charity.

Mental Health Network Logo.png

A partnership of voluntary organisations working across sectors, the WMHN aims to provide a user-led, campaigning platform to give women with mental health needs a voice, and drive forward change.

The network’s focus is to improve women’s experience of using statutory services in a range of settings, such as hospitals, prisons, drugs and alcohol, housing, social services, by influencing them to become more gender-specific.

We are currently consulting with women who have experience of the mental health and/or criminal justice system, to find out what changes in service provision they would like to see.

Please complete the survey to help shape the network.

If you would like this questionnaire to be sent to you in a different format or language please email womensmhnetwork@gmail.com. 

Let's Talk exhibition 

A photo series created by photographer Charlie Clift and artist Kate Forrester aims to make mental health issues visible.

Let’s Talk is a project dedicated to visualising what’s going on inside someone’s mind, featuring people who have struggled with their mental health with their inner thoughts painted across their face.

The pictures will be shown to the public in Guildhall Yard, London, from 12 May to 22 May

Read more here and visit the Let's Talk campaign page here.

In the news 

The Guardian

Can going to therapy become as straightforward as going to the gym? At Self Space, Jodie Cariss offers flexibility, online bookings and the chance to change therapist mid-treatment. But does it work? Stuart Jeffries tries it out.

Feature: My working week -'A woman wants to die. As a social worker, I help her see that life matters'. My job as a mental health social worker involves supporting people in crisis and advocating for others

BBC News

UWE Bristol students 'sought help' before deaths. A report into the death of 14 students who had taken their own lives found eight had already sought help for mental health issues. The University of the West of England (UWE) report stated the deaths were mostly among white male students whose average age was 21. Read the full story here.

Independent

Judges given new sentencing guidance for criminals with mental illnesses and learning difficulties. Criminals with mental illnesses and learning difficulties are to be sentenced according to new guidelines aiming to determine their level of responsibility for offences. Campaigners hailed a “big step” towards consistency in courts across England and Wales, but magistrates warned of a “lack of appropriate options” outside of imprisonment. Read more here.

Rights Info

Postcode lottery on children's mental health services: A study by the Children’s Commissioner has found that spending on child mental health services has fallen in more than a third of areas in England.The report revealed that while spending on services, such as school counsellors and drop-in centres, had risen  by 17 per cent overall, the rise only occurred in certain local areas. Read the full story here.

Disability News Service

Autistic authors’ guide maps out route to quality care. A new guide – written solely by autistic people – aims to show care providers, commissioners and inspectors how to provide “quality care” for other autistic people. An Independent Guide to Quality Care for Autistic People has been written by members of the National Autistic Taskforce (NAT) and has a “heavy emphasis” on developing choice and control for service-users.

Read the full article here.

The mother of Jodie Whitling, the disabled woman who took her own life after repeated safeguarding failings by the Department for Work and Pensions (DWP), has branded DWP’s responsepublished last week, to the parliamentary petition set up in her daughter’s name “a joke”. Read the full article here 

Dates for your calendar 

29 April in London: one day course on the impact of welfare reforms - For more information and to book a place please call 020 7354 6433 or email training@centralcare.co.uk

03 May in York: 'A Disorder for Everyone!' - book your place please click here

12 May internationally: Emerging Proud Day - Click here for more information

 13-19 May Mental Health Awareness Week Download the resources pack and add your own event to the activity map, please click here.

 03 June in London Creative Strategies for Peer support Engagement interactive workshop. Click here for more information.

08 June in Manchester: Extreme experiences - mental illnesses or danger gifts? 

Please email catonneil1009@gmail.com with any questions.

This is an ISPS UK event in association with Asylum Magazine and CCrAMHP

17 June in London: I is for insult, questionning ''borderline personality disorder'' - for more information please click here

01 to 05 July in England: National Co-production Week - For more information please click here

14 to 16 July in Norfolk: Sacred Space Weekend Retreat for mental health professionals with lived experience - Limited spaces; Shared Room: £249, Single Room £299, Fully inclusive of all meals - Email Katie at: mendthegap@hotmail.com - Find out more about the outstanding retreat venue in the beautiful Norfolk Broads here.

3-5 September in Nottingham: Refocus on Recovery recovery research conference. Alison Faulkner and David Crepaz-Keay will be keynote speakers. You can see the full list of speakers hereRegister here.

GOV.UK news 

Implementing the NHS Long Term Plan - events

NHS England and NHS Improvement are running two national events aimed at people who work in and use NHS services. Participants will hear directly from NHS leaders about the proposals and how they aim to improve the planning and delivery of care. There will also be group discussions so that people can explore the plans in more detail.

 

London: 3 April 2019

Leeds: 16 April 2019.

 

If you are interested in attending please email england.legislation@nhs.net to find out how to book a place.

 

The NHS Long Term Plan included suggested legislative changes to help implement the Plan faster and more effectively. These are set out in further details and now NHS staff, partner organisations and interested members of the public have the opportunity to give their views on our proposals.

 

You can read more information about the proposals on the NHS Long Term Plan website and then complete an online survey to share your views. The deadline for responses is 25th April 2019.

 

New Youth Charter to support young people across the country

The Youth Charter will reaffirm Government’s commitment to helping young people succeed and the Minister for Sport and Civil Society will work with sector to develop this work. 

'The charter will reaffirm Government’s commitment to give young people a strong voice on the issues they care about such as combating serious violence and knife crime, addressing mental and physical health challenges and concerns about the environment and climate change.'

Read more here.

New projects to strengthen families and keep children out of care

£84m for projects that support families, marking 30th anniversary of the Children Act

 Mental health and wellbeing support for NHS staff: government pledges overhaul

Plans to give staff immediate access to dedicated mental health support will be considered as part of the upcoming workforce implementation plan.

 

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NSUN Bulletin Monday 08 April 2019

nsun logo.png

Table of Contents

NSUN News

Selected blogs and articles

The Dragon Cafe: Lore of the Land with Horniman Studio Collective

Red Earth Collective presents Revealed and StereoHype

Rain Dance: Break The Silence

Digital Mental Health Conference 2019. “The Value of Unity”

User-led Women's Mental Health Network - turn up the volume!

More than 4,000 women with mental health problems to benefit from peer support

UK Maternal Mental Health Matters Awareness Week

Research: Are you interested in physical health in mental health?

Healthwatch survey on the NHS Long Term Plan: What would you do?

Co-produced community general advocacy course

Refocus On Recovery 2019: international conference

In the news

Dates for your calendar

GOV.UK news

Welcome to the Monday 08 April 2019 edition of our weekly ebulletin.

This week's edition features lots of creative news from events, theatre productions, concerts, art projects and some great collaborations.

There's also a focus on women's mental health initiatives with the development of the user-led Women's Mental Health Network, announcements from Mind, Agenda, NHS England and UK Maternal Mental Health Matters Awareness Week coming up at the end of the month. 

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.

Remember to  email us any news or information that you would like to share.  Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give


NSUN News  

Reigniting the Space

The Reigniting the Space project is led by a group of BME user/survivors, including some of the original steering group members of Catch-a-Fiya, in collaboration with NSUN. The aim is to recreate a national platform for a collective political voice. 

Since the project started in early 2018, a steering group has been set up and regional researchers for the East Midlands and London have been recruited. The researchers will start mapping the current work mental health service users and survivors from racialised groups are involved in around the country.

While welfare cuts and the changes to the benefits system have affected mental health service users across the board, people from racialised groups have been doubly hit by its effects. We hope that this project will reignite the space for collective action, advocacy and influence.

 

NSUN reflects on the Mental Health Act Review at "After the MHA Review" event

This “After the MHA Review” event was organised by the NIHR Mental Health Policy Research Unit to discuss the research programme which accompanied the Mental Health Act Review.

Researchers from the Policy Research Unit and a number of external speakers, including Dorothy Gould, NSUN's MHA policy lead, reflected on the Mental Health Act review and future research needs. Speakers and delegates also discussed the programme of research conducted by the Policy Research Unit to support the MHA Review.

You can listen to the podcasts, watch the presentations on the live video streaming link and download the slide presentations here.

 

Co-production guidance and tips

The Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) have produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities. You can read and download the Co-production guidance and tips papers here.

 

The Value of User Led Groups - 2019 campaign UPDATE

Thank you to all of you who have completed our survey We are now in the process of collating responses and will publish our findings at the end of this month.

 Following yet more announcements of impending closures we were encouraged to learn of a new major project that aims to rebalance the relationship between large and small voluntary organisations in public services. 

‘ Collaborative work between NCVOACEVO and Lloyds Bank Foundation for England and Wales, will explore how voluntary organisations of different sizes can work better together in bidding for and delivering public services. 

The move follows concern that smaller organisations are being squeezed out of public service delivery, in part by the practices of larger organisations as well as by commissioning and procurement processes. 

There are also concerns that, as a result, smaller organisations are struggling to survive with many facing closure. The project will explore the extent to which this is the case and any drivers behind it by listening to large and small voluntary organisations. 

 The project, known as ‘Rebalancing the Relationship’, will ‘look under the bonnet’ of current bidding and commissioning practices. A call for evidence to be launched in coming weeks will seek views from the sector. This evidence, combined with further desk-based and qualitative research, will form the basis of a research report expected in the autumn.'

 Visit our website for further updates on the campaign.

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A short video and the Soap Boxes from our Members' Event in October 2018 is now available. You can also browse our Annual Report 2017-2018 here.

You can view the Principles of Peer Support Charter here.


Selected blogs and articles 

 Hypomanic in Prague, September 1991

 ''As time passes, the events in Prague become distant memories. But, during the cold winter months, my right shoulder seizes up and the dull aching pain reminds me of the imprint left by a wooden truncheon wielded by a Czech policeman.''

 A blog about the importance of being able to challenge what others 'officially' write about you.

 Public Participation in Health and Social Care: Exploring the Co-production of Knowledge

 "My background has particularly encouraged me to adopt an historical perspective and highlighted its benefits in trying to understand participation. There seem to be few such discussions of public participation."

 Peter Beresford identifies four key 'historical' stages in the development of public participation in health and social care.


The Dragon Cafe: Lore of the Land with Horniman Studio Collective 

 Date: Monday 08 April 

Time: 12pm - 8pm

Venue: The Crypt of St George the Martyr Church,  Borough High Street, SE1 1JA

This Monday we have a very special day connecting with the Horniman Museum and Gardens' new exhibition space and engagement programme - The Studio.  The Horniman is working in collaboration with artists and local community partners, in response to its anthropology collections, to create thought-provoking artworks, exhibitions and event programmes.

The Collective is a group of community members involved in local creative support programmes (including our very own Lu Firth and Phil Baird), a commissioned artist and Horniman staff. 
The Collective have collaboratively curated the first Studio exhibition: The Lore of the Land as well as an accompanying events programme . 

Read the full programme of Studio Samples alongside a day of wellbeing activities and ta Folk Music Finale. 


Red Earth Collective presents Revealed and StereoHype 

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Revealed - Acclaimed play challenging the ‘strong black man’ stereotype is back by popular demand for its second run after securing Arts Council funding to showcase two performances . 

Date:  Friday 19th April

Time: 2pm - 4.30pm & 7pm - 9.30pm

Venue: Midlands Art Centre, Cannon Hill Park, Birmingham, B12 9QH

Revealed, which debuted with a sell-out show in February 2018, is the first production from the new Menologues platform, founded by The Red Earth Collective, to highlight diverse stories of  the mental well being of  racialised and marginalised men  through the arts. The play is inspired by the worrying fact that black men are 17 times more likely to be diagnosed with a serious mental health illness than white men.

 Written by Rites of Passage Productions co-founder Daniel Anderson, the production explores three black men from the same family: Malcolm, a restaurant owner, his son Luther and Malcolm’s father Sidney, who are in the family restaurant  while a violent protest at yet another death in custody rages on the streets. What follows is a passionate unravelling of emotions, where three generations of anger are revealed.

Revealed plans to tour in theatres and community settings across the country to create a social movement where black men are encouraged to talk more openly when in emotional distress.

Media and Tour Contact

If you would like to interview Sandra Griffiths, Daniel Anderson, Jay Crutchley or any of the cast and contributors, contact Sandra Griffiths. 

E: redearth52@gmail.com  Mb: 07745 392 318 Follow #RevealedthePlay 

 

StereoHype - A one-day festival celebrating mental health and well-being of African and Caribbean Communities. Challenging stigma, inspiring change!

Date:  Saturday 27th April

Time: 12pm - 9pm

Venue: Midlands Art Centre, Cannon Hill Park, Birmingham, B12 9QH

SteroeHype free day time event includes live performances, well-being workshops, African and Caribbean craft market and food and information stalls.

 The evening event from 5.30pm includes:

  • Black Men on the Couch - with Vanley Burke, Godfather of Black British Photography and Award-winning Rapper, Trade Mark Blud in conversation with therapist Rotimi Akinsete explore the dynamic and creative relationship that exist between mental health and the arts.

  • NHS and Me Performance- Renaissance One presents a brand new-show written by internationally renowned Jamaican poet Jean BintaBreeze, featuring music, and spoken-word performances to celebrate 70 years of the NHS and the everyday and hidden stories of its Caribbean staff.

Tickets £10 Concessions £7 here.

Download the flyer here.


Rain Dance: Break The Silence 

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The Sapphire Community Group seeks to help young people (13-30 year olds) find out what they are meant to do in life. They aim to do this through mentoring, coaching, publishing literature, film and media, through multiple events technological development and hosting workshops.

Sapphire is holding its first mental health concert at Chelsea Academy. The event is free. There will be free food, drinks, music, poetry, film, fashion and drama. The showcase is all about breaking mental health stigma and bringing community together. 

 

Date: Saturday 13 April

Time: 6pm - 10pm

Venue: Chelsea Academy, Lots Road , London , SW10 0AB 

A night of poetry, music, fashion, film, drama, speakers and dance. A night not to be missed.

 CEO Jasmine Cannon--Ikurusi says:

'This is a night like no other. A night where we use the beauty of art to heal wounds. A night where we go deeper and remove every mask that has held us bound from being free. They say that showing emotion is a state of weakness, but I know that there is power in being vulnerable. For years, we have lost our young! Today in the 20th century, we are losing many to the hands of mental health issues. We can no longer sit back and do nothing. It is time we speak up. It is time we heal from our pains. It is time we let go of all the pain. It is time we put to bed every shackle that has held us bound.

This event, is aimed at pushing through the obstacles and dancing in the rain. This event is aimed at not giving a care if anyone is looking at you or calling you weird. The time to be who you are is now. Even in the midst of the storms, we will rise. We will keep fighting. We will keep living. We will keep pushing. We will not be silent. We will speak. We will breakthrough! No more losing the war the mental health issues. This is rain dance.'

 Book tickets here.


Digital Mental Health Conference 2019. “The Value of Unity”  

Call for art work

Becky Inkster and Vanessa from Soul Relics Museum are jointly curating the art exhibition for the digital mental health conference, Value of Unity, in the summer, which will feature the work of Dolly Sen.

They are currently seeking proposals for art work to be added to the digital collection for the Digital Mental Health Conference 2019. “Unity” is the theme of this summer’s conference, as observed from different stakeholders’ perspectives.

 The theme of the art work will address any of the questions:

  • Digital Psychiatry

  • Ethics, Policy and the Public Sphere

  • Methodologies & Statistics

  • Social Media

  • Global Digital Mental Health, Society and Culture

  • Neuroscience & Biotechnology

  • Financial Health & Technology

Other topics welcomed are themed around isolation, connectedness, intergenerational initiatives etc

Their aims are to acknowledge, understand, and celebrate different perspectives in the field of digital culture of mental health, and to provide a platform for people to showcase their work to an audience from different disciplines. They are keen to embrace any art form that can be exhibited including but not limited to, written word, fine art, digital, music, medical humanities, narrative medicine, installations

Contributors will be invited to the conference social event in the evening. 

Contributions will be featured on the digital mental health conference website and up to 20 artists work will be selected to be exhibited on the actual conference in London in August, 2019.

 Proposals 

A proposal or expression of interest of up to 250 words (with photos) of your work, as well as a brief biography and why you think the work fits with the theme of the conference should be sent to art@beckyinkster.com by 11:55pm on 30 April, 2019.

The conference is taking place 13 - 14 August in London.


User-led Women's Mental Health Network - turn up the volume! 

The Women’s Mental Health Network (WMHN) is the latest project from Wish, a women’s user-led mental health charity.

A partnership of voluntary organisations working across sectors, the WMHN aims to provide a user-led, campaigning platform to give women with mental health needs a voice, and drive forward change.

The network’s focus is to improve women’s experience of using statutory services in a range of settings, such as hospitals, prisons, drugs and alcohol, housing, social services, by influencing them to become more gender-specific.

We are currently consulting with women who have experience of the mental health and/or criminal justice system, to find out what changes in service provision they would like to see.

Please complete the survey to help shape the network.

If you would like this questionnaire to be sent to you in a different format or language please email womensmhnetwork@gmail.com.

 

Mind Logo.gif

More than 4,000 women with mental health problems to benefit from peer support

'Women across England and Wales will get vital mental health support as part of a major new programme launched by mental health charity Mind and Agenda, the alliance for women and girls at risk.'

Led by Mind and Agenda, the £1.8m initiative, which is called Women Side by Side, has set up five new hubs (four in England and one in Wales). The hubs, run by women’s organisations, are using their specialist expertise and links to community organisations to make sure all services understand and respond to women’s specific needs, including their experiences of trauma and abuse. It is hoped that women will be able to find community-based peer support set up through around 70 projects.

Read the press release here.


UK Maternal Mental Health Matters Awareness Week 

UK Maternal Mental Health Matters Awareness Week 29th April until 5th May 2019.

What is it? A week long campaign dedicated to talking about mental illness while pregnant or after having a baby. The Perinatal Mental Health Partnership (PMHP) are dedicated to signposting to support for all mums and advocating for mums affected by Maternal Mental Health, to access the information and help they require to enable recovery.

 Who is it organised by? In 2014, a small group of 10 individuals including women with lived experience , from charities and health care professionals , came together with the dream of creating an awareness campaign for maternal mental health. They formed and created the Perinatal Mental Health Partnership (PMHP) and in 2017, falling within the week that World Maternal Mental Health Day ran, they launched the first ever UK Maternal Mental Health Matters Awareness Week . The second week ran last year, with the theme ‘Support For All’.

This year's theme for the third annual UK Maternal Mental Health Matters Awareness Week , 29th April until 5th May 2019 , is Mums Matter.

Throughout the week, they will be using  the hashtag #maternalmhmatters on social media.

 You can find out more on the PMHP Facebook page.


Research: Are you interested in physical health in mental health?  

CARDIOPHITNESS: Cardiometabolic health and Pharmacists in Severe Mental Illness study 

 An opportunity has arisen to share experiences of physical healthcare (and pharmacy) through Aston University and Leicestershire Partnership NHS Trust.

  • Do you have a severe mental illness (schizophrenia, schizoaffective disorder, bipolar affective disorder or any other form of non-organic psychosis) or are you a carer or care professional providing care for someone with a severe mental illness?

  • Would you like to share your views and opinions on physical activity, smoking, nutrition, heart disease, diabetes, obesity/overweight and what pharmacy  and pharmacists can do to help?

If so, please contact Dolly Sud at sudd@aston.ac.uk for more information.


Healthwatch survey on the NHS Long Term Plan: What would you do? 

Healthwatch wants to know what you think the NHS can do to help you and your community stay well. 

Healthwatch is running a national survey to ask people’s views on how local NHS services could be improved through the NHS Long Term Plan.

The Government is investing £billions a year in the NHS as part of the Long Term Plan. Local services have been asked to work together to develop their own plans, which will set out how the national plan will work across local areas.

You can access the surveys here. Alternative formats available here.


Co-produced community general advocacy course 

This course will only go ahead if enough learners book to attend.

The organisers are hoping to get enough expressions of interest to run this course again, following the success of a first installment, which was co-produced with the help of NSUN and others.

Potential date: June 2019

Location: Richmond, London

The course aims to support learners to understand, what independent advocacy is, how to use the principles which underpin good practice in advocacy and the different models of advocacy.

To express interest, please email: info@advocacytraining.org.ukwmicklewright@yahoo.co.uk

Or call 0330 440 9000 ext 210


Refocus On Recovery 2019: international conference 

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Date: 3-5 September 2019

Venue: Nottingham Conference Centre, Burton Street, Nottingham NG1 4BU

This is the fifth Recovery Research conference. This year's event will be addressing:

  • Mental health and human rights

  • Supporting recovery through services

  • Supporting recovery through communities

  • Recovery and power

Alison Faulkner and David Crepaz-Keay will be keynote speakers. You can see the full list of speakers here.

ImROC Dinner (evening of 2 September 2019) - Meet colleagues and global thought leaders over an enjoyable dinner. (Venue: to be confirmed)

Expert Workshops (0900-1200 on 3 September 2019) - Spend the morning before the international conference learning skills from international leaders. (Venue: Nottingham Conference Centre). Click here to register for an expert workshop.

Refocus on Recovery 2019 (1300 on 3 September until 1300 on 5 September 2019) - Join our 5th international recovery research conference. (Venue: Nottingham Conference Centre). Click here to register for the conference or to apply for a bursary place please complete the registration form which can be found here and email to refocusonrecovery2019@nottingham.ac.uk.

Register here.

Follow on Twitter #RonR19 @institutemh


In the news 

 

The Guardian

Six in 10 Britons say Brexit uncertainty bad for mental healthPoll finds large majority bored with hearing about Brexit and unimpressed by politicians

Social media firms to be penalised for not removing child abuse

Senior executives could be held liable for not taking down harmful content from platform

 BBC News

 A charity in charge of a mental health home in London where a teenager was found hanged is being investigated. Read more here.

Family of suicide father felt 'abandoned' by NHS before tragedy. A woman has told the Scottish Parliament she felt "turned away and abandoned" after being refused help eight times in the week before her partner took his own life.

Disability News Service

User-led advice centre set to close its doors after NHS funding blow. Possability People has been running the advice centre for 30 years, but it was told by Brighton and Hove Clinical Commissioning Group (CCG) that it was going to stop all its annual funding from this month. Read the full article here.

Campaigner pledges to devote his last months to saving independent living. John Evans, one of the country’s best-known and most-respected disabled campaigners has pledged to devote the last months of his life to trying to save the independent living movement.


Dates for your calendar 

29 April in London: one day course on the impact of welfare reforms - For more information and to book a place please call 020 7354 6433 or email training@centralcare.co.uk

03 May in York: 'A Disorder for Everyone!' - book your place please click here

12 May internationally: Emerging Proud Day - Click here for more information

13-19 May Mental Health Awareness Week Download the resources pack and add your own event to the activity map, please click here.

03 June in London Creative Strategies for Peer support Engagement interactive workshop. Click here for more information.

08 June in Manchester: Extreme experiences - mental illnesses or danger gifts? 

Please email catonneil1009@gmail.com with any questions.

This is an ISPS UK event in association with Asylum Magazine and CCrAMHP

17 June in London: I is for insult, questionning ''borderline personality disorder'' - for more information please click here

01 to 05 July in England: National Co-production Week - For more information please click here

14 to 16 July in Norfolk: Sacred Space Weekend Retreat for mental health professionals with lived experience - Limited spaces; Shared Room: £249, Single Room £299, Fully inclusive of all meals - Email Katie at: mendthegap@hotmail.com - Find out more about the outstanding retreat venue in the beautiful Norfolk Broads here.


GOV.UK news 

NHS England press release 04.04.19

SPECIALIST MENTAL HEALTH SUPPORT FOR NEW MUMS AVAILABLE IN EVERY PART OF ENGLAND

New and expectant mothers across the country can now access specialist mental health care in the area where they live, NHS England announced today.

The landmark rollout of specialist perinatal community services across the whole of England, means that mums and mums-to-be who are experiencing anxiety, depression or other forms of mental ill health should be able to access high quality care much closer to home.

Five years ago two in five parts of the country had no access to specialist community perinatal mental health treatment, but there is now full geographical coverage for the first time, with services in every one of the 44 local NHS areas, and plans to develop them further.

The expansion comes alongside the opening of four new mother and baby units, which mean that the most seriously ill women can receive residential care without being separated from their babies in every region.

Claire Murdoch, NHS national mental health director said: “Mental ill health during pregnancy or that affects bonding with a new baby can be devastating, which is why the NHS has invested in better care for expectant and new mums, with at least 9,000 extra women getting treatment last year.

“As well as expanding access to world-leading talking therapy for anyone who needs it – the NHS Long Term Plan is further ramping up specialist perinatal care for every part of the country, offering tailored support to dads and partners and extending care to cover the first two years of a child’s life.”

Specialist community perinatal mental health teams can offer psychiatric and psychological assessments and care for women with complex or severe mental health problems during the perinatal period. They can also provide pre-conception advice for women with a current or past severe mental illness who are planning a pregnancy.

Teams can be made up of doctors, nurses, social workers, psychologists, psychiatrists, occupational therapists, nursery nurses and administrative staff, who all work together to provide a comprehensive service to mums, depending on what their individual needs are. They also work closely with partners across the health and care system, including in maternity, health visiting, and other mental health services.

The expansion to the community teams is a key plank of wider plans to transform perinatal services. By 2023/4 an additional 54,000 women each year with moderate and complex, to severe mental health difficulties should get the right care, at the right time and as close to home as possible.

The NHS Long Term Plan also sets out a raft of new measures to improve care for new and expectant mums and their families, including:

  • Making specialist community-based care available from pre-conception to two years after birth rather than one. Evidence suggests this is the most critical time in a child’s development and the period when infant separation anxiety can peak and may trigger a relapse of mental health difficulties, along with other changes in women and children’s lives.

  • If a new mum is suffering from mental ill health, the NHS will automatically offer comprehensive assessment to her partner if they are suffering from mental ill health too and sign-post them to professional support if needed.

  • Expanding access to evidence-based psychological therapies within specialist perinatal mental health services so that they also include parent-infant, couple, co-parenting and family interventions.

  • Increasing access to evidence-based psychological support and therapy, including digital options.

  • Maternity outreach clinics will join up maternity, reproductive health and psychological therapy for women experiencing mental health difficulties directly arising from, or related to, the maternity experience.

Mumsnet founder Justine Roberts“We know from conversations on Mumsnet that the effects of mental ill-health in the perinatal period can ricochet; illness that goes untreated has impacts on mothers' self-confidence in their own parenting, sometimes for years afterwards, with a knock-on effect for children and the wider family. Our users have talked movingly about the difficulty of accessing support, so it's fantastic to see these specialist services being rolled out nationwide.”

Dr Trudi Seneviratne, chair of the perinatal faculty at the Royal College of Psychiatrists said: "This is fantastic news for all new and expectant mums, and for their families. 1 in 5 new mothers will experience some form of mental health difficulty and if left untreated, perinatal mental health problems can be devastating.

“A previous lack of specialist services has not only meant that some women couldn’t access the treatment they needed, but it also lead to mothers and babies often being separated at a key time in their child’s development. Providing everyone with access to the right care in the right place has always been our hope, and it’s now finally being realised in England. Hopefully this will cause a tipping point for other nations too.

“We now need to focus on building the perinatal mental health workforce whose job it will be to deliver these vital services.”

Emily Slater, Campaign Director at the Maternal Mental Health Alliance
said: “The Maternal Mental Health Alliance’s (MMHA) Everyone’s Business campaign welcomes the opening of specialist perinatal mental health services in the remaining areas of England, meaning women should now be able to access life-saving care in their local area. We look forward to working closely with NHS England to ensure these services are of the highest quality and sustainable across the whole country to meet the needs of women and families.”

As many as one in four women will experience mental ill health during pregnancy or in the two years after birth, covering a wide range of conditions and different degrees of severity. It is estimated that as many as one in five hundred women may experience postpartum psychosis, one of the most severe forms of mental ill health affecting women in the perinatal period.

NHS England has already funded four new Mother and Baby Units (MBUs) in areas of the country which historically struggled to access specialist inpatient services close to home.

Mother and Baby Units (MBUs) support women who are experiencing the most severe forms of mental ill health to stay with their babies, helping them to bond at a critical time, while receiving around the clock care, treatment and support.

All four new MBUs are now offering care – three eight bedded units have opened in Kent, Lancashire and in East Anglia, with a further unit in Devon open.

NHS England plans to increase the national capacity further to more than 160 beds - providing specialist inpatient care and treatment to mums, without separation from their babies.

NSUN Bulletin Monday 01 April 2019

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 NSUN Bulletin Monday 01 April 2019

Table of Contents

  • NSUN News

  • Selected blogs

  • NSUN member looking for legal support

  • Electro Convulsive Therapy (ECT) protest

  • Coming up: Mental Health Awareness Week in May

  • Help improve mental health crisis services

  • WHO mental health and rights consultation

  • After the Mental Health Act Review: Research priorities

  • Shaping Our Lives - A Reguge for All project report launched

  • Stop the DWP sending misleading letters to GPs

  • Ask for an inquiry into DWP deaths

  • New frontiers: the social sector in post brexit Britain

  • Peer Support Specialist (Barnet)

  • Creative strategies for peer support engagement

  • Help Mind improve their info on personality disorders and mental wellbeing

  • Opportunities with a new mental health charity in London

  • Co-produced community general advocacy course

  • The Big Draw Festival 2019

  • In the news

  • Dates for your calendar

  • King's Fund report: Outcomes for mental health services: what really matters?

  • GOV.UK news

Welcome to the Monday 01 April 2019 edition of our weekly ebulletin. As usual it contains lots of news, views and updates. 

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.

Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

 We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give

NSUN News  

 Ebulletin editor moves on to consultancy role

 After seven years as part of NSUN's core team, Stephanie Taylor King, whose duties involved producing the e-bulletin and editing the website, is moving on to a consultancy role. Whilst NSUN's core team has to shrink due to funding difficulties, Stephanie remains on board as a consultant, leading the APPG for Prescribed Drug Dependence project.

 NSUN  joins the panel for the NHS long-term plan and mental health event

 NSUN Chair Mark Wood joined the expert panel for the King's Fund online event, 'The NHS long-term plan and mental health - a positive way forward' on 28 March. Over 1000 people registered for the event. You can catch up and watch the event if you register here.

Co-production guidance and tips

 The Win-Win Alliance (Shaping Our Lives, Disability Rights UK, Change and NSUN) have produced some guidance outlining the simple, practical things you can do to provide inclusive and accessible involvement activities.

 The use of the term 'co-production' is now in common (too common some would say) use. Some regard it as completely separate to good involvement practice, but good and meaningful involvement practice is essential if co-production is to be truly realised. There are also some fundamental power issues that need to be addresses and often our experience of co-production is no different from frustrating and poor involvement practice of the past.

 You can read and download the Co-production guidance and tips papers here.

 The Value of User Led Groups - 2019 campaign UPDATE

 Thank you to all of you who have completed our survey We will now collate responses and publish our findings at the end of this month.

 Along with Shaping Our Lives and Lankelly Chase we will be bringing together user-led groups at the end of May to look at what is happening to user-led groups, what is their role and value and what can be done to protect the future of user-led groups. The meeting is being held 21 May  in London.  If any of our user-led groups are interested in attending please contact us info@nsun.org.uk.

 The first stage of the campaign was to raise awareness of the current situation. Since launching our campaign we have heard that more user-led groups around the country are closing or under threat of closure. Possability People,in Brighton and Hove, Liverpool Mental Health Consortium and Voices for All in Rochdale. 

 You can read the article published in February where NSUN and Shaping Our Lives warned that user-led organisations are continuing to close, putting the sector at real risk of extinction. Read the full article by John Pring (Disability News Service) here.

A short video and the Soap Boxes from our Members' Event in October 2018 is now available. You can also browse our Annual Report 2017-2018 here.

You can view the Principles of Peer Support Charter here.

Jobs and involvement opportunities - already shared

If there is still time to apply or get involved, you can find previously shared opportunities on this page.

Selected blogs 

 People with personal mental health experiences are more qualified to work with patients, not less

 ''Employers can either see lived experiences as liabilities, or as an employee’s greatest asset. And if they adopt the latter approach, the employee, as well as the whole organisation, will feel the benefits''

 A blog about valuing lived experience

 Are sexual abuse victims being diagnosed with a mental disorder they don't have?

 ''Suppose, for the sake of a thought experiment, that a new psychological disorder was discovered. It is supported by dozens of studies and recognized by some of the world’s leading psychiatrists and psychologists, but not by the North American psychiatric establishment. And let’s say the refusal to accept this new disorder had devastating consequences for #MeToo survivors.'' 

 A blog about how traumatised women often get mis-diagnosed. 

Click here to read the rest of the bulletin

NSUN Bulletin 14th January

 
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Table of Contents

  • NSUN News - Peer Support

  • Article by Peter Beresford: Austerity is denying patients and care service users a voice

  • Selected blogs

  • Human Rights and Equality evidence wanted

  • Mental Health Act Review update

  • The NHS long term plan for mental health put to the test

  • Service user / carer opportunity (London)

  • #HardlyHardToReach at REAP conference - London

  • Online panel experts wanted

  • 'Crystal's Vardo' - the origins & history of Romani Gypsies

  • Petition: Increase funding to Children's Mental Health services

  • Discount offer on UC-UK mental health conferences

  • Transformation, Illness and Identity - Derby

  • Service users and clinicians co-produce resources in East Suffolk

  • Bid writing workshops

  • Mental Capacity Action Day 2019

  • Free mental health first aid training (Wandsworth / Richmond)

  • Get set for Emerging Proud Day international party

  • GOV.UK news

Welcome to the Monday 14 January 2019 edition of our weekly ebulletin, our first of the year. As usual it contains lots of news, views and updates. 

If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.

Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.

Donations to NSUN are gratefully received for this free service.

You can donate directly here.

We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:

Shopping with the Giving Machine

Shopping with Smile Amazon 

The Big Give

NSUN News - Peer Support 

 A short video and the Soap Boxes from our Members' Event in October 2018 is now available. You can also browse our Annual Report 2017-2018 here.

 You can view the Principles of Peer Support Charter here.

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The value of peer support and user-led organisations and the role they play in prevention

 We are producing a briefing paper to create a better understanding of the current mental health prevention and the important role that user-led groups and mutual (peer) support plays. As we've previously highlighted user-led groups and initiatives are finding it hard to survive in an increasingly competitive tendering environment. We need to promote just how important the work of user/peer led groups are in helping people stay connected to their community, feel better and stay better.

 We are collecting case studies from individuals and groups and any evidence that demonstrates value.

 Please email info@nsun.org.uk for more information or with anything you would like to share.

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 Peer Support: New Roles for Mental Health Task and Finish Groups

 The New Roles Task and Finish Groups have been established as subgroups of the New Roles in Mental Health Board to support delivery of Chapter 7 of Stepping Forward: New skills, roles and ways of working, the Mental health Workforce Plan for England. NSUN is a member of the Peer Support Worker Task & Finish group.

 There are eight New Roles for Mental Health Task and Finish Groups

  1. Chair of the Pharmacy Professions and Teams Task & Finish group – Trevor Beswick & Peter Pratt

  2. Chair of the Psychological Professions Task & Finish group – Kevin Mullins & Adrian Whittington

  3. Chair of the Social Work Task & Finish group - Mark Trewin

  4. Chair of the Nursing Associate Task & Finish Group – Avril Devaney

  5. Chair of the PAs Task & Finish Group – Wendy Burn & Julian Ryder (co-Chair)

  6. Chair the Peer Support Worker Task & Finish group– Sarah Hughes & Simon Hough (co-Chair)

  7. Chair of the Nursing Task & Finish Group – Paul Reeves

  8. Chair of the AHP Task & Finish Group – Thomas Kearney

Health Education England continues to work with system partners to invest and implement a range of initiatives to support workforce transformation and expansion in the Mental Health workforce. The New Roles Task and Finish Groups aim to advance and build on the commitments set out in the Five Year Forward View for Mental Health (2017).

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UPDATED 'Get to know NSUN in 3 minutes'

You can view the video here, updated with our new logo and website. Please do share!

Events - already advertised

If you haven't booked your place on already advertised events, we have collected some here.

Jobs and involvement opportunities - already shared

If there is still time to apply or get involved, you can find previously shared opportunities on this page.


Article by Peter Beresford: Austerity is denying patients and care service users a voice  

Peter Beresford highlights how decades of progress on public participation are being lost as grassroots organisations face financial problems and closures.

Early in 2017, NSUN reported that over 150 of our membership groups had closed. This number continued to rise over the last year.

Read the full article here.


Selected blogs 

Woman with Cat.jpg

Speak up, lived experience need to be valued

 Dani Chadderton, Peer Recovery Worker in Sheffield, encourages peer workers to stand up for the voice of experience.

Read Dani's blog here

 Why I had a year out of school for my mental health

 When Luke got diagnosed with PTSD, going to school became a task that filled him with anxiety. In this blog, Luke shares how he found alternative ways to finish his education, whilst also looking after his mental health.

 Are you a radical now? Reflecting on the Situation of Social Research(ers) in the Context of Service-User Activism in Mental Health

 Cristian R. Montenegro reflects on the relationship between activism and social research - the tensions, boundaries, expectations, context and conflict. Published in the Journal of social and Polictical Psychology (2018).

Read the full paper here.


Human Rights and Equality evidence wanted 

Human Rights and Equality evidence wanted - Mental Health Act Code of Practice 2015

The Care Quality Commission (CQC), which has responsibility for monitoring implementation of the Mental Health Act (MHA), is reviewing the 2015 Code of Practice for the Act. This follows the Mental Health Act Review.

 NSUN members are invited to supply evidence relevant to chapter three of the Code (pages 29-33); chapter three provides guidance about the use of a human rights and equality approach under the MHA.

Evidence is particularly wanted about issues for people made subject to the Act who face additional disadvantage(s), related, for instance, to:

  • Ethnicity

  • Age (as a young person, or older person)

  • Gender/gender identity

  • Sexual orientation

  • Physical disabilities

  • Learning difficulties/disabilities and/or autism

  • A visual impairment

  • Being a D/deaf person

  • Living with dementia.

CQC will take this evidence into account as it:

  • Analyses the current fit between (i) the human rights and equality approach set out in the Code of Practice and (ii) approaches being taken to people made subject to the MHA

  • Considers improvements that are needed.

We have been given assurances that:

  1. CQC will also put an emphasis on people facing more than one type of disadvantage under the MHA, whether such disadvantages have had a focus in the final MHA Review report or not. (As you will know, NSUN has raised concerns about the report’s shortfalls in addressing additional discrimination)

  2. Attention will be paid to any human rights and equality shortfalls within the Code itself if one considers it against the UN Convention on the Rights of Persons with Disabilities, not just against the European Convention of Human Rights (EHRC) and the Human Rights Act which stems from the EHRC.

How you can help

 If you’re able to help, please can you send:

  1. Personal accounts of human rights and equality breaches which you have faced under the MHA, related to your experience of more than one type of disadvantage. (I would, of course remove your name before sending this on to CQC)

  2. Literature/reports about human rights and equality breaches for people made subject to the MHA who face more than one form of disadvantage. (Please forward electronic copies of these, or the web links for them.)

Please send your evidence by Sunday 27 January, by email to: 

Dorothy Gould: NSUN’s policy lead for issues related to the Mental Health Act. gould.dorothy@gmail.com


Mental Health Act Review update 

 Contacts made with politicians and TUC members about human rights issues and the Mental Health Act Review

Many thanks to all those of you who have contacted your MP in support of NSUN’s campaign about the Mental Health Act Review. You can now read about the variety of opportunities we have had to input both to political leaders and to the TUC on NSUN’s behalf. 

Please read the full update here.

The Independent Review of the Mental Health Act: What next?

 You can also read charted breakdown we produced of:

  • Key recommendations from the report

  • What they will mean for people with lived experience if they are implemented

  • Whether they resolve the human rights concerns raised by NSUN and co-signatories to NSUN’s two letters.

You can download as a pdf here or visit the website

These have been re-formatted to make them really easy and clear to read. 


The NHS long term plan for mental health put to the test 

National Voices have devised 5 tests to put the NHS long term plan through.

Don Redding.jpg

Don Redding, Director of Policy and Partnerships at National Voices, wrote an article for the HSJ (£) highlighting that whilst the Plan has some warm words for the voluntary and community sector, there is no clarity about how to direct commissioning pounds this way.

You can’t have community engagement in governance, codesign of new models, support to tackle health inequalities, delivery of self management support, and provision of social prescribing, all for free.

For all the good stuff in the Plan to succeed – for it to make a real difference to patients, carers and service users – the NHS must make genuine, equal, respectful and coproductive partnerships with other sectors, including the voluntary sector.

In his latest blog, Don puts the Plan through the five tests National voices has set for it to PROVE the NHS is moving in the right direction.


Service user / carer opportunity (London) 

An opportunity has arisen for one service user or carer to be part of an interview panel for recruitment of a Deputy Head of Therapies for the Acute & Urgent Care Service Line at South West London and St Georges mental health NHS trust

 The interviews will take place at Springfield on Friday, 18 January between 9.00am – 3.30pm on both days and the timetable will run as follows: 

9.00am:                       Pre-meet with panel

10.00am:                     Interviews start

3pm:                            Interviews finish

3pm – 3.30pm             Post meet

 

PLEASE NOTE: If you have applied for the post which is being interviewed, please do not put your name forward for this panel. 

 This is a paid opportunity at the usual trust rate of £10/hour. 

 Please register your interest by emailing involvement@swlstg.nhs.uk by Wednesday 16 January 12pm.

 Successful applicants will be informed by email on Thursday 17 January with the venue.


#HardlyHardToReach at REAP conference - London 

 Date: Wednesday 30 January 

Following REAP's annual refugee rights networking event HEAR, ROTA, TCC, CAIA, CSO and others will feedback and build on recent campaigning in West London to improve commissioning and services for BAMER people with mental health support needs.

 Join us to learn about the #HardlyHardToReach campaign, and help plan future goals, activities and actions.

 For more information please email mhairi@reap.org.uk


Online panel experts wanted 

Researchers from Nottingham University Business School in collaboration with the Greater Manchester Patient Safety Translational Research Centre are looking to form an online panel of experts to gather opinions and vote on items concerning discharge from an acute mental health unit. 

 They are interested in finding out which items people think are important to ensure discharge is safe.

 The group will include service-users, carers, researchers, end-users of research (NHS managers, commissioners, charities, etc.) and mental health professionals (of all cadres).

 If you consider yourself to be from any of these groups and would be willing to complete a series of short, online questionnaires (3-4) over the next two to three months, read more below for details of how to participate.

Panel members that complete all of the questionnaires will receive a £20 amazon voucher for their time and an option to be named in academic publications. 

The questionnaires can be completed on a mobile device and will each take 5 to 20 minutes. The total duration should be no more than one hour.

 If you would like to complete the first questionnaire please click here

 For more information please contact Dr Natasha Tyler: natasha.tyler@nottingham.ac.uk



'Crystal's Vardo' - the origins & history of Romani Gypsies 

 'Crystal's Vardo' is showing in a special performance at the Ovalhouse in Kennington on 24th January! This is a great way to find out more about the origins and history of Romani Gypsies.

The play is a lively and entertaining story of a young girl's journey through Romani history in a quest to piece together the shards of her ancestry. Interwoven with humour, music and storytelling, this is a story that will both shock and delight.

Crystal's Vardo aims to raise awareness of Gypsy and Traveller issues and in turn help tackle the problems of racist bullying in schools and elsewhere. 

There will be a glass of wine and snacks included in the ticket cost.

Book tickets here.


Petition: Increase funding to Children's Mental Health services 

 NHS children and adolescent mental health services (CAMHs) are so poorly funded that young people are often left to suicide before they get the help they need. CAMHs are having to turn away children with complex psychological conditions. No child should be told they are not ill enough to get help.

To support this petition, please click here


Discount offer on UC-UK mental health conferences 

HC-UK's mental health conferences and masterclasses focus on a number of topics helping those working in mental health or with mental health service users have an increased understanding of the service user experience and look at issues such as capacity and consent, co-morbidity and psychological therapies.

HC-UK offer NSUN members 20% discount by quoting ref: HCUK20NSUN when booking.(*Cannot be used in conjunction with any other offer.  Full T&Cs available upon request.)

 For a list of upcoming conferences please click here


Transformation, Illness and Identity - Derby 

Woodland Scene.png

This event will present a selection of academic papers in the day session, following by an evening of poetry/prose recitals in the evening (the evening event will be co-curated with Derby based poet and writer Pippa Nayer). Academic paper submissions for talks of around 30 minutes, should be in a 300-500 word abstract, with accompanying bio.

Those wishing to submit poetry or prose should send a brief synopsis of their work, with one piece and an accompanying bio. Please send all submissions to Hannah via compassion_well@hotmail.co.uk before the 4 February 2019.

 Date: 6 July 2019

Venue: Holiday Inn Riverlights, Derby

Time: Day Session (9-5) TBC, Derby - Evening Session (7.30-10.00)

 CALL FOR PAPERS (Day Session) POETRY/PROSE (Evening Session)

 Topics might include:
Soul journeying, shamanism and the self
Archetypal explorations of self
Connection with the natural world
Recovery and transformation
Spiritual emergency; unexpected spiritual experiences
Religious conversion or loss of faith following an illness
Suffering and transformation
Transformation of the self through treatment for mental illness
Spirituality in psychotherapeutic engagement and approach
Pastoral healthcare
Voice hearing
Ritual and illness 

 Please send all submissions to Hannah via compassion_well@hotmail.co.uk before the 4th February 2019 compassionatewellbeingconferences.weebly.com


Service users and clinicians co-produce resources in East Suffolk 

 Service users and clinicians in east Suffolk have joined forces to create a suite of new resources to further improve the care available to people reaching crisis point.

 The ‘Listen’ project has seen people with first-hand experience of services work alongside clinical staff to develop posters and badges which act as a reminder for anyone working with someone in a high state of distress. They carry the acronym:

  • Listen and look

  • Involve and inform

  • Share understanding

  • Time and availability

  • Empathise, encourage and evaluate

  • Next steps in treatment

Read more here


Bid writing workshops 

NFP offer bid writing worshops, basics and advanced, held at several locations across the country, between January and March.

 Who can attend?

Staff members, volunteers, trustees or board members of charities, schools, not for profit or public sector organisations who intend to submit grant funding applications to charitable grant making trusts and foundations. People who provide advice to these organisations are also welcome.

 A full list of workshops is available here.


Mental Capacity Action Day 2019 

This year’s Mental Capacity Action Day will take place on Friday 15 March 2019 at the Royal College of Nursing, 20 Cavendish Square, London, W1G 0RN.

If you'd like to attend, please get in touch with Maya Sooben, Mental Capacity Policy Department, Ministry of Justice. 

Tel - 0203 334 3127, Email - NMCF1@justice.gov.uk


Free mental health first aid training (Wandsworth / Richmond) 

 Upcoming Free Mental Health First Aid Training- Limited spaces are available.

 Lifetimes have been commissioned by Wandsworth and Richmond Borough Council to run further MHFA two-day training courses for early 2019.

 There are a few spaces available for individuals who either work, live, study or volunteer in Wandsworth or Richmond.

 The spaces are limited and book up very quickly so please book your place as soon as you are able, by clicking on the dates below. 

23rd & 30th January 10.00am- 17.00pm

24th & 31st January 10.00am- 17.00pm

6th & 7th February 10.00am- 17.00pm

 

Mental Health First Aid (MHFA) is an Internationally Accredited educational course which teaches people how to identify, understand and help a person who may be developing a mental health problem.

In the same way as we learn physical first aid, mental health first aid teaches you how to recognise those crucial warning signs of mental ill health.


Get set for Emerging Proud Day international party  

 Emerging Proud is a campaign that reframes mental distress as a tranformation progress.

 #Emerging Proud day on 12 May 2019 is set to be extra special; not only will the team be launching the Kinda Proud  book, spearheaded by the inspirational Dr Nicole Gruel, but hosting an online event and encouraging worldwide conversations around the topic of NOTEs (Non- ordinary transcendent experiences)… except we know they are actually quite ‘normal’!

 Will you join in and help to bring voices to the collective? 

Click here for more information.


GOV.UK news 

 Partners of new mums with mental illness set to get targeted support on the NHS

New and expectant fathers will be offered mental health checks and treatment under radical action to support families, NHS England chief executive Simon Stevens announced on 02 December 2018. Read more here.

 LGBT national advisor role

The Government LGBT Action Plan, sets out how it will advance the rights of LGBT people and improve the way that public services work for them.

The Plan committed Government to improving the health and social care of LGBT people, and their experience of healthcare. To deliver this, they are now recruiting a National Adviser post.

The Adviser will work across the NHS to ensure that the needs of LGBT people are considered throughout the health system; and work to improve healthcare professionals’ awareness of LGBT issues so they can provide better patient care.

The National Adviser will work as part of a dynamic team in NHS England to deliver this work. The post is now advertised here.

Deadline for applications is 3 February 2019

 Women's Mental Health Taskforce report

The Women's Mental Health Taskforce – co-chaired by Jackie Doyle-Price, Minister for Mental Health, Inequalities and Suicide Prevention, and Katharine Sacks-Jones, Chief Executive of Agenda, – has set out its key principles for gender and trauma-informed care in its final report, published December 2017. 

The work of the Taskforce was informed by the voices and experiences of women and the report encourages commissioners, providers and practitioners to promote best practice in their organisations while taking into account women’s individual, gender-specific needs. The Association of Mental Health Providers led the work on VCSE sector engagement for the Taskforce to inform the findings of the report and ensured that the essential role of the sector is included in the Principles and commitments going forward. 

 Earlier this year, The Association worked with DHSC to commission Health and Wellbeing Alliance partners, Clinks, National LGB&T Partnership, NSUN, and Race Equality Foundation, to engage with women with lived experience of mental health services through focus groups. 

 NHS Standard Contract 2019/20: Consultation

 NHS England is now consulting on the NHS Standard Contract for 2019/20.

The draft Contract and consultation documents are available on the NHS Standard Contract web page

 Respond to consultation by 1 February 2019 to england.contractsengagement@nhs.net

For any further info, contact NHS Standard Contract Team england.contractsengagement@nhs.net

NSUN Bulletin 8th October 2018

NSUN Bulletin Monday 08 October 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 08 October 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 08 October edition of our weekly ebulletin that contains lots of updates, news and views. As well as World Mental Health Day, this week we highlight Black History Month.
 
If you don't receive this bulletin directly from us but would like to, you can become a member and sign up for it here.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News  
 
NSUN trustee recruitment
 
Are you interested in helping to secure and shape the future of our national user led network? Find out more and how to apply here.
Closing date: Monday 8 October - midnight
 
 
NSUN Members Event and Annual General Meeting: 25 October 2018
'The Future of Peer Support'
 
Book your place on the AGM event page. Remember, you can also book a slot for a 'Soap Box' to share your views on the future of peer support.
 
You can view Soap Box contributions from our members at our previous events on our YouTube channel.
 
 
Mental Health Act Review Stakeholder events
 
Two more stakeholder events have been set for:
  • Tuesday 16 October, London, 1-4pm Book here.
  • Wednesday 17 October, Exeter, 2-5pm Book here.
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Events - already advertised
If you haven't booked your place on already advertised events, we have collected some here.
 
Jobs and involvement opportunities - already shared
If there is still time to apply or get involved, you can find previously shared opportunities on this page.
 
Selected blog 
 
Windrush nationality scandalBlack History Month takes us back to the Windrush scandal, which saw people being brutally deported or threatened with deportation after spending a lifetime in the UK.
 
As many of them are still dealing with the trauma caused by this violation of their human rights, this blog by Amnesty International tells us that sadly, the Windrush scandal is only the tip of the iceberg.
 
#Healthwatch 2018 event 
 
Article ImageLast week Dr Alison Faulkner spoke at the national Healthwatch sixth Annual Conference in Stratford-Upon-Avon #Healthwatch2018.
 
Alison's main points were:
  • Inpatient care at times can be abusive, contravening human rights
  • Health inequalities: structural racism
  • Powerlessness to make complaints
  • Patient safety
Mental health has been the number one health and social care issue for the Healthwatch network over the past three years. Liz Sayce, Healthwatch Committee member, provided an overview of Healthwatch mental health work and Paul Framer, Mind CEO, spoke about the Five Year Forward View for Mental Health and 'parity of esteem' for mental health.
 
You can read the Healthwatch report that shares what people have been telling themHealthwatch about mental health services here.
 
Human Rights breaches in the Mental Capacity (amendment) Bill 
 
human rightsAn urgent appeal for support from People First
 
People First, an organisation led by people with learning difficulties, is appealing for support against changes which the government is planning to make to the Mental Capacity Act via its Mental Capacity (Amendment) Bill.
 
The situation is now urgent, because the Bill is already progressing within Parliament.
 
The Mental Capacity Act itself falls short of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). If the Bill becomes law in its current form, there will be further breaches of human rights. Read more about the changes explained by Policy and Insights here.
 
For more information and how to support this campaign, please click here.
 
Black History Month events 
 
baptists who abolished slaveryOctober is Black History Month and the website Blacknet features events which cover history, literature and the arts.
 
Many events take place in London, but there are some in Manchester, Oxford, Dagenham and Birmingham too.
 
Please take a look at this website for a full listing
 
Black History Month Magazine online 
 
Nelson Mandela'What counts is not the mere fact that we have lived. It is what difference we have made to the lives of others that will determine the significance of the life we lead' ~ Nelson Mandela
 
Black History Month Magazine, is the central point of focus and lead the nationwide celebration of Black History, Arts and Culture throughout the UK in 2018. It is available to read online for free.
 
Features include:
  • The legacy of Nelson Mandela
  • Caribbean women and the NHS
  • The Windrush Generation
  • In the shadow of Enoch Powell
  • and much more
To read the magazine, please click here
 
Book: The Colour of Madness - exploring BAME mental health in the UK 
 
the colour of madnessInspired by a range of experiences, this anthology of art, poetry, short fiction, memoirs, and essays seeks to disrupt the whitewashed narrative of mental health in the United Kingdom.

Through a journey along the visible colour spectrum, Dr Samara Linton and Rianna Walcott centre the experiences of over fifty people from Black, Asian, and Minority Ethnic (BAME) backgrounds, expanding our understanding of mental health to one which encompasses the full rainbow.
 
About the authors: Samara Linton qualified from University College London and is a University of Cambridge graduate. She has published research on mental health stigma and frequently writes about gender, race and health for various online publications.
 
Rianna Walcott is a PhD candidate at Kings College London, where she is researching how women of colour form communities in digital spaces, following an English literature undergraduate and masters degree at Edinburgh University. She is passionate about decolonising curricula and promoting diversity in academia, and co-founded projectmyopia.com in pursuit of that goal
 
To get a copy of the book, in kindle format or paperback, please click here
 
The Dragon Cafe celebrates reggae music 
 
reggaeThis Monday, for Black History Month, the Dragon Cafe will have Reggae on the mind, on the dance floor, on the screen and through the speakers. 
 
At 4 pm for the Dance session, Sound Maestro Martin will be playing a selection and inviting you to the dance floor. 
 
If you have any music requests throughout the day Martin will be happy to play them when/if possible. 
 
From 6 pm enjoy a Musical Movie Night with a fantastic documentary about a legend, giving great insight to the life and politics that inspired some wonderful music and lyrics.
 
The Dragon cafe is at the Crypt of St George the Martyr Church,  Borough High Street, SE1 1JA
 
Cornwall community of practice: mental health II 
 
cornwall event
Communities of practice seek to build on local skills, knowledge and partnership working among frontline staff. This will be a great opportunity to increase partnership links between the homelessness sector and mental health, as well as to learn more about the assessment process for mental health services.
 
Date: 24 October
Time: 12noon - 03:30pm
Venue: St Erme Community Centre Truro TR4 9BD
 
This event is free to attend, and open to all people working on the frontline in homelessness and related-fields across Cornwall.
 
For more information and to book a place, please click here.
 
LGBTQI+ Diversity – Building Solidarity Symposium 
 
dice rainbow
An event to highlight the many sides of London’s diverse LGBTQI+ community. The symposium will look for shared goals, build solidarity and raise the voices of the most excluded in our rainbow family.
 
Co-produced with Intersex UK, Rainbow Pilgrims, Regard DDPO, Twilight People, Gendered Intelligence, AIDS Memorial campaign and other user-led projects.
 
Open to intersectional LGBTQI+ people and their allies, charities, campaigners, policy makers, funders and service providers.
 
Date: Friday 12 October 2018 
Time: 11.00-16.00, arrivals from 10am, tactical tea and cakes until 5pm
Venue: Lift, 45 White Lion Street, N1 9PW
 
To register your interest email mhairi@reap.org.uk or 07756 939 187 with any access or dietary needs.
 
World Mental Health Day in North Tyneside, Newcastle and Gateshead 
 
togethernessNorth Tyneside:
Date: 12 October
Time: 11;30am - 05pm
Venue: Cullercoat Crescent Club NE30 4PN
0191 223 0382 / launchpadnt@gmail.com
 
#NTWMHT18
 
Newcastle:
Date: 06 October
Time: 11am - 03pm
Venue: Central Library, Newcastle Upon Tyne
 
@NCLMHDAY
 
Gateshead:
Date: 10 October
Time: 11am - 03pm
Venue: Shipley Art Gallery
Mish Lorraine: 0191 477 7381 / MLoraine@mhm.org.uk
 
Young People and Mental Health - What's Society got to do with it? 
 
WMHD event in London
The theme of World Mental Health Day on 10 October is Young People and Mental Health in a Changing World. 
 
The number of young people reporting a mental health problem has multiplied by six in 2 decades.
 
75% of mental heath problems set in by age 24 and 50% by age 14. We’d better do something about it.
 
We hear calls for more treatment. But if, as the World Health Organisation says, mental illness is socially produced, is medicine the answer, and is it what young people want?
 
Join Talk for Health FREE for short talks and conversation with expert young speakers and those with pioneering new approaches.
Date:10 October
Time: 06pm - 08pm
Venue: Islington Town Hall, Upper Street, London N1 2UD
 
To book your place, please click here
 
World Mental Health Day at Blackfriars Settlement 
WMHD
 
Date: Wednesday 10 October 2018
Time: 1-2pm
Venue: The Foyer open space, Blackfriars Settlement: 1 Rushworth St, SE1 0RB
 
Fruits, Tea & Toast, Coffee & Cakes
Bring your own lunch & refreshments
Come together to chit-chat, share art works, stories, meet friends
 
Followed by a group visit to the Tate Gallery from 2pm
 
Seminar: Surviving student life as a voice hearer 
 
SymposiumThis free event is organised by the Collaborating Centre of Values-Based Practice, St Catherine's College, Oxford.
 
Speakers include:
  • Dr Roz Austin (Network Lead of the Educational Voice-hearing Network)
  • Dr David Crepaz-Keay (The Mental Health Foundation)
  • Dr Louise Johns (Oxford University)
  • Olivier Bazin (Oxford Mindfulness Centre)
Date: 28 November
Time: 10am - 04pm
Venue: St Catherine's College, Manor Road, Oxford OX1 3UJ
To book your place, please visit this page.
 
Mad In America: How Modern Psychiatry Came to Be 
 
Article Image
This week on Mad In America Robert Whitaker goes over the history of “How Modern Psychiatry Came to Be”.
 
 
John Read and Sue Cunliffe's podcast on the 57th Maudsley Debate in London, focuses on whether ECT has a place in modern medicine. And on the Science and Pseudoscience podcast, Sharna Olfman speaks with physician Zach Bush about current research on epigenetics and the microbiome.
 
UCL mental health researchers to benefit from multi-million pound investment 
 
Article ImageTwo UCL researchers were successful in securing funding from UK Research and Innovation (UKRI), following their recent announcement to invest £8 million in new mental health research networks. Professor Sonia Johnson and Dr Daisy Fancourt will join six other networks designed to broaden mental health research, and will each receive £1.25 million over four years from across the research councils.
 
They aim to bring together experts, key community organisations and people with lived experience to investigate loneliness and social isolation in mental health
 
Read more here.
 
In the news 
 
London School of Economics
 
The Windrush Generation have been treated appallingly. EU migrants may expect an even worse deal
 
The Independent
 
Antidepressants cause withdrawal symptoms in over half of patients who try to quit them, review shows
 
Disability News Service (DNS)
 
A charity has refused to criticise the Department for Work and Pensions (DWP) over four deaths linked to universal credit, hours after a minister announced it would receive tens of millions of pounds to support claimants on the new benefit system.
 
Both Bipolar UK and the Epilepsy Society are facing questions over their close links to the Conservative party.
 
The Guardian
 
Very few patients in high secure hospitals have convictions for anything as horrible as Ian Brady’s crimes, and some have no criminal conviction at all, writes Mat Kinton
 
PTSD rates increase in UK military personnel, research suggests
 
BBC News
 
The number of referrals to child and adolescent mental health services in England has increased by 26% over the past five years, Education Policy Institute (EPI) research suggests
 
Huffington Post
 
One in three people have experienced a decline in mental health while waiting for a doctor’s appointment, according to a survey of 8,000 people.
 
Young women's mentl health needs to become a priority.
 
Mental health in the Long-Term Plan for the NHS | SUC Feedback: survey and workshop 
 
Article ImageThe government has announced a 3.4% funding settlement for NHS England over the next 5 years and the NHS England Mental Health team will be putting forward a plan that spells out the priorities for mental health. NHS England has drafted a list of questions which are being sent to stakeholders.
Survey
Researchers at the National Collaborating centre for Mental Health would like to hear from you if:
  • You have or have had a mental health problem
  • You care or have cared for someone with a mental health problem
  • You have or have had a long-term physical health problem and have or have had mental health problems associated with this.
To map the needs of the long-term funding settlement, it is important to get the best understanding of your experience and what, in your opinion, good mental health care should look like.
 
Please let the researchers know and help us to identify those challenges by completing this survey by Friday 26 October 2018
The survey is anonymous. What you submit will be sent to NHS England for consideration.
 
Please contact Emanuela Russo emanuela.russo@rcpsych.ac.uk / 020 3701 2600 if you would like to receive a Word version of the questionnaire to complete offline, or if you would like a hard copy to be sent with a stamped addressed envelope. If you need more time to complete the survey, please let Emanuela know.
 
Workshop
A workshop will take place on Tuesday 30 October 2018, 11am-4pm, at the Royal College of Psychiatrists. The aim of the workshop is to discuss the key themes from the survey responses and consider what elements to prioritise and submit to NHS England.

Please let Emanuela know by Tuesday 16 October 2018 if you would like to attend. Travel to and from the meeting will be organised and paid for: emanuela.russo@rcpsych.ac.uk / 020 3701 2600
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GOV.UK news 
 
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London 10/11October. The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health.
Find out more here tweet #TheWorldNeeds.
 
Matt Hancock warns of dangers of social media on children’s mental health
The Chief Medical Officer is reviewing the impact that too much social media use can have on children’s mental health and will draw up guidance to help parents.

£240 million social care investment to ease NHS winter pressures
The investment in adult social care this winter will help local authorities reduce pressures on the NHS by getting patients home quicker and freeing up hospital beds across England.
 
Mental Health Act Review EVENTS
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups have been finalised. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for October.
 
Two more stakeholder events have been set for:
  • Tuesday 16th October, London, 1-4pm Book here.
  • Wednesday 17th October, Exeter, 2-5pm Book here.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

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NSUN Bulletin 17th Sept

NSUN Bulletin Monday 17 September 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 17 September 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 17 September edition of our weekly ebulletin that contains lots of updates, news and views.
 
If you don't receive this bulletin directly from us but would like to, you can sign up for it here.
 
On 6 September, Mad In the UK launched. The website welcomes contributions. See our feature below.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News  
 
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
 
To read the related article by John Pring, Disability News Service, please click here
 
 
NSUN Members Event and Annual General Meeting - The Future of Peer Support
 
Please bookmark the AGM event page on our website - you can refer to it whenever you feel ready to book your place.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Selected blogs 
 
Suicide Is One The World's Great Public Health Challenges
 
Paula Sherriff, Labour MP for Dewsbury and shadow minister for mental health, on why we need a different approach
 
 
What Does it Mean to be Anti-Psychiatry?

Thoughts of a Cartoon Anteater by Auntie Psychiatry
 
 
The uncomfortable truth is that many psychiatric wards have a culture of sexual assault

Jay Watts finds that the idea that people, predominantly girls and women, are too mad, too bad and too sad to be believed has been used to silence people since time immemorial
 
 
Support the making of a collection of survivors' works  
 
riding the storms artworkRiding the Storms is a book of stories, poems, photography and artwork created by people who are reflecting on, and even embracing, the pain of their mental suffering.
 
The contributions in Riding the Storms have arisen out of a project backed by Recovery Devon, working with people experiencing mental distress, of all backgrounds and ages.
 
Recovery Devon has funded project work to date but is not able to pay for the publication of the book. The money raised will pay for the editing, design, printing, promotion and distribution. 
 
For more information about this project and how to support it, please visit this page
 
Dolly Sen has been guest editing Disability Arts Online 
 
Dolly SenCreative survivor Dolly Sen has been guest editing Disability Arts Online (DAO) since early August and is due to continue her tenure until at least mid-September.
 
Her own recent posts have ranged from a short film inviting you to play Mad Bingo, poems to stand against the world with, a blog that doesn’t exist, and a series of Unreasonable Adjustments cartoons.
 
To read more about Dolly's guest editing work at DAO, please visit this page
 
Dolly is also crowdfunding for the second part of her mental health film trilogy. 
 
Sexual safety is major issue in menal health wards, says CQC 
 
report by the CQC has found that people who use mental health services do not always feel that they are kept safe from unwanted sexual behaviour.
 
The report calls for co-produced guidance that enables everyone delivering mental health services to do the right thing about sexual safety.
 
New funding to help patients have their say on health services 
 
NHS EnglandThe Building Health Partnerships programme has been awarded £450k from NHS England and the National Lottery to support co-production in 10 areas, so patients and carers can be more easily involved in designing services.
 
To read more about this, please click here
 
Grants for womens peer support - apply until 15 October 
 
women peer support grants (Mind & Agenda)Mind and Agenda are working together in partnership to deliver £1.3m women’s mental health peer support grants.
 
This new programme will fund and enable community-based peer support that reaches around 4,500 women.  
 
Who can apply?
Organisations / partnerships, based in England and Wales, that can demonstrate a track record of delivering services and programmes developed specifically for women facing complex social issues.
  • Mind and Agenda expect to make 80 to 90 awards.
  • Projects will be funded for a maximum of one year.
  • Applications must be made before 15 October.
For more information and how to apply, please visit this page
 
NSUN member recommends mental health phone apps 
 
mood meterOne of our members contacted us with recommendations concerning mental health phone apps.
 
'I've recently started using this app [Mindcare] to measure how I feel throughout the day.', says NSUN member.
 
'It's good because you can be mindful of how you are feeling and make any adjustments. I find it useful as I have Borderline Personality. It will analyse your results too. It's not the answer to mental health problems, but it may be a help.' 
 
'The Mindcare is for android phones and 'Mood Meter' is for iphones.'
 
Links to download the apps:
MindCare recommended for Android, even though there is an iPhone version.
Mood Meter recommended for iPhone, even though there is a version for Android.
 
Service user involvement role with the Advocacy Project (London) 
 
The Advocacy Project
The Advocacy Project is currently looking for people who have experienced mental health issues either as an individual or carer.
 
This is to feed into a London-wide mental health programme called Adult Mental Health Transformation Programme that is delivered by NHS England in collaboration with the Healthy London Partnership.
 
The programme is made up of six workstreams:
  • increasing access to psychological therapies (IAPT)
  • digital IAPT
  • early intervention in psychosis
  • MH in Integrated Care Systems
  • London Mental Health Transformation Board
  • perinatal mental health
This is an exciting opportunity for London-based service users and carers to shape the work of the mental health programme.
 
The Advocacy Project is recruiting two people per workstream and a wider network of people to comment on workstream papers and plans.
 
This is a voluntary post however the Advocacy Project expects that the role could lead to employment or further opportunities for individuals.
 
Volunteers will receive training and support to complete their role.
 
To find out how to apply, please contact Bonnie Studd bonnie@advocacyproject.org.uk/ 020 3960 7910 by Monday 17 September.
 
Please note that this is the initial deadline and people will have an opportunity to take part beyond this date
 
Hertfordshire Partnership - Recovery Week 
 
Hertfodshire Partnership Foundation Trust (HPFT) would like to welcome people using local services, carers, professionals and members of the public to join us for 
a day of learning and networking
 
HPFT will be holding a local recovery conference, from 10am to 4pm, at the following venues :
In addition HPFT will be holding an evening event, from 6.00 to 8.30pm, at:
HPFT would like to encourage you to attend the event at your closest location. Please book via the Eventbrite links above or by calling Divya Nair on 
01438 730802.
 
HPFT are planning to offer free transport for people using local services, and carers, depending on the level of demand. 
 
World Mental Health Day event in Bolton 
 
WMD event in bolton
Young people & mental health in a changing world
 
There’ll be information, stalls and activities including:
yoga, videos, dance, a choir, photo booth, presentations and more

Date: Wednesday 10 October
Time: 1pm to 6pm
Venue: University of Bolton, Chancellor’s Mall,University Way, Bolton, BL3 5AB
 
For more information please contact Nireexa Solanki
TEL 01204 380643 - Mobile 07549 923 201
Nireexa.Solanki@family-action.org.uk
band.org.uk / facebook.com/bandbolton / twitter.com/bandbolton
 
World Mental Health Day in London 
 
speakers corner
DETAIN ● RESTRAIN ● INJECTIONS 
18:00 PM - NO tickets exist - ticket NOT required
 
Put on your thermals (or body warmer) and come and enjoy the FREE soapbox about MENTAL HEALTH experiences on WORLD MENTAL HEALTH DAY at a (TEMPORARY) SPEAKERS CORNER in London.
 
Everyone is welcome to enjoy listening or speaking, as an individual, whether mentally ill or not - look forward to seeing you!
 
Date: 10 October
Time: 06pm - 08pm
Venue: Speakers' Corner, Cumberland Gate (corner of Park Lane), W1H 7EL Hyde Park (by Marble Arch), United Kingdom
 
For more information, please visit this page
 
One-day event celebrating the power of thought-provoking storytelling 
 
being the story
Being the Story is a an immersive storytelling day which gives a platform to extraordinary individuals with lived experiences who are creating change through their work.
 
Date: 19 October
Time: 10am-4pm
Venue: Conway Hall in London

Who is it for?
The Being the Story experience is for people working in or for the charity sector or socially-minded individuals who are interested in the power of storytelling and the impact it can have to challenge prejudice, reframe narratives, raise awareness, engage supporters and generate funds.
 
People attending will include: CEOs and senior management; communications, digital, campaign and marketing staff; funders, fundraisers, service users and expert citizens; frontline/outreach staff; staff working in CSR for corporate organisations, change-makers who want to develop the confidence to share their own personal story; and journalists.
 
How will it help you?
The organisers say you will leave the event with:
» an understanding of the power of storytelling
» ideas for how to tell your organisation's story differently, with more authenticity, to build trust and to encourage supporters to take action
» inspiration about how to gather stories and find new creative ways to share them
» confidence to share your own experiences, or support others to do so
» connections and potential future partnerships
» inspiration – you may be challenged by what you hear, perhaps feeling angry or moved, but you will be engaged and motivated.
 
For more information and to book a place, please visit the website
 
The care programme approach - time to move on? 
 
Article Image
The Care Programme Approach (CPA) model is nearly 30 years old. Ideas about rehabilitation, service user involvement and recovery have undergone seismic changes during this time.
 
This event will explore whether the life of the CPA come to a natural end.
 
With evidence showing strongly that service users thrive using the Recovery model, is it time to discard the old ways and embrace a new recovery framework for care planning in mental health?
 
Date: 01 November
Time: 09:30am - 04:00pm
VenueCity, University of London, Northampton Square, London EC1V 0HB
 
For more information and to book a place, please click here
 
Coming soon - Peerfest 
 
PeerfestThis year, the annual celebration of peer support will be hosted by Thurrock Mind who came through as the chosen user-led peer support project to host Peerfest18
 
Date: 20 October
Bookings open: 05 September
 
Programme: worshops, activities, the Marsh Awards and muvh more.
 
To attend, get involved, or run your own activity, please take a look here.
 
In the news 
 
DWP
Disability News Service (DNS)
 
This week, DNS has found that new government research shows that hundreds of thousands more claimants of personal independence payment (PIP) would have taken further steps to challenge the results of their claims if the system had been less stressful and more accessible.
 
DNS also reports that the government has been accused of publishing a “deeply unsatisfying” response to a devastating report by a UN committee that concluded last year that the UK had been “going backwards” on independent living.
 
 
The Guardian
 
Reports that, desput a funding pledge, the NHS mental health crisis worsens as 2,000 staff quit per month.
 
The Guardian also finds that mental health issues in young people are up sixfold in England since 1995.
 
Gay Star News
 
Years and Years frontman Olly Alexander has appeared in a powerful new video speaking about mental health awareness among LGBTQ people.
The video has been released to coincide with World Suicide Prevention Day [10 September].
 
Huffington Post
 
Reports that suicide in young women and girls is rising sharply.
 
The Independent
 
Duke of Cambridge has launched an initiative to support mental health at work.
 
New Kindred Minds Manifesto appeal 
 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
 
Please help if you can
 
Reminder 
 
don't forgetEvents - already advertised
 
If you haven't booked your place on already advertised events, we have collected some here
 
Jobs and involvement opportunities - already shared
 
If there is still time to apply or get involved, you can find previously shared opportunities on this page
Banner
GOV.UK news 
 
Help GOV.UK improve Department of Health and Social Care online content
Web contents producers at GOV.UK are seeking users who actively use the platform for health related content.
 
A six month project on the content transformation of the Department of Health and Social Care on GOV.UK  will ensure that visitors using GOV.UK can search for information easily, understand content better and access the information they need more efficiently.
 
As part of the content transformation process a team of contents designers be conducting user research at various stages and are seeking participation from the general public, medical practitioners, experts who work in the healthcare field and those who work in health related organisations. 
 
The following activities have been planned:
 
Individual research session
The contents designers would like to invite individuals to attend a telephone session or come to their DHSC offices.
 
The session will involve general questions about the participant, perhaps their work, how they use GOV.UK and they may get to use a computer to describe how they search for information.
 
The whole session will take about 30 to 45 minutes.  
 
Available slot dates will be from 10 September to 21 September.
 
Group research session
Content designers would also like to hold a user research group session at our premises in London on 20 September.
 
This will be a great opportunity to meet some of the team and other participants.
 
The aim will be a series of activities in a 2 hour session to help contents designers improve their taxonomy.
 
How to get involved
If you regularly use or search for health related contents on GOV.UK and are interested in taking part in this project, please contact:
 
Samantha Watson, Content Designer
Content Transformation, Department of Health and Social Care, 39 Victoria Street, SW1H 0EU
E: samantha.watson@dh.gsi.gov.uk 
T: 020 7972 5988
 
 
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London this October.
The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health. Find out more here.
 
Mental Health Act Review UPDATE 
 
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups are being finalised by 14 September. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for early October. The final report is due mid-December.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

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Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD

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NSUN Bulletin 10th September 2018

NSUN Bulletin Monday 10 September 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 10 September 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 10 September edition of our weekly ebulletin that contains lots of updates, news and views.
 
If you don't receive this bulletin directly from us but would like to, you can sign up for it here.
 
On 6 September, Mad In the UK launched. The website welcomes contributions. See our feature below.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
NSUN's views on 'Mental Health in the Long Term Plan for the NHS'
 
NHSThe Prime Minister has said the government will reveal a new “sustainable long term plan” for the NHS over the next year, which will be backed by ”a multiyear funding settlement”. A five year funding settlement will be mapped to this ten year plan.
 
GPs, patients and Healthcare professionals were asked to feed into the plan with a deadline of 31.8.18. Clare Murdoch is leading the mental health workstream and asked a range of stakeholders to share their priorities and contribute views on the challenges of transforming mental health services in the long term. On this page, we share NHS England's letter and our response.
 
NSUN runs work shop for HEAR Network event
 
HEAR is a pan-equality network of London equality and human rights voluntary and community sector organisations.The event 7 September, focused on celebrating and promoting the public sector (policy and frontline) working with equality and human rights Voluntary and Community Sector (VCS) in London. This was a follow up to the event October 2017
 
 
NSUN ran a workshop on the 4Pi National Involvement Standards and Kindred Minds Manifesto which HEAR and ROTA have heavily used with their partners in West London (8 Clinical Commissioning Groups). 
 
The event also support's HEAR and ROTA's Mental Health Equality campaign. In the open letter ROTA calls on all local Councillors, as well as the VCS and individual campaigners, to commit to the six action points that have been co-authored by Experts by Experience, user-led Voluntary and Community Sector (VCS) and BAMER organisations.See the open letter here.
 
 
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
 
To read the related article by John Pring, Disability News Service, please click here
 
 
NSUN Members Event and Annual General Meeting - The Future of Peer Support
 
Please bookmark the AGM event page on our website - you can refer to it whenever you feel ready to book your place.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
New mental health networks announced 
 
kings college
New Mental Health Networks funded by the UK Councils and Research Innovation (UKRI) have been announced.
 
The Networks received a combined funding of £8 million and will bring together researchers, charity workers, health practitioners and people with lived experience of mental health issues.
 
The Mental Health Networks are designed to be interdisciplinary, spanning across a wide range of disciplines including health, medicine, biology, social sciences, humanities and environmental sciences.
 
 
The Networks stretch across the nation and as they develop will cover further regions.
 
If you would like further information about the funded Mental Health Networks, you can search #MentalHealthNetworks on Twitter or visit these web links: https://tinyurl.com/y8ujbdz8 https://tinyurl.com/y77dvbbr
 
The list of Mental Health Networks are:
  • Improving Health and Reducing Health Inequalities for People with Severe Mental Illness: the 'Closing the Gap' Network+: Led by Professor Simon Gilbody, University of York
  • Social, Cultural and Community Assets for Mental Health: Led by Dr Daisy Fancourt, UCL
  • Transdisciplinary Research for the Improvement of Youth Mental Public Health (TRIUMPH) Network: Led by Professor Lisa McDaid, University of Glasgow
  • Loneliness and Social Isolation in Mental Health: Led by Professor Sonia Johnson, UCL
  • Violence Abuse and Mental Health: Opportunities for Change: Led by Professor Louise Howard, King’s College London
  • Emerging Minds: Action for Child Mental Health: Led by Professor Cathy Creswell, University of Reading
  • SMARtEN: Student Mental Health Research Network: Led by Dr Nicola Byrom, King’s College London
  • The Nurture Network: Promoting Young People's Mental Health in a Digital World: Led by Professor Gordon Harold, University of Sussex
More about this announcement here
 
Challenge Sheffield report launch 
 
 
Challenge Sheffield and SODIT
Challenge Sheffield and SODIT work with people with lived experience of mental health distress and used a recent grant from Healthwatch Sheffield to hold the Sheffield Mental Health Challenge Day.
 
They wanted to create a supportive and inclusive space to start to build a network and voice for people living with mental health distress to better influence and improve services over the longer term.
 
Find out more and a link to their report here.
 
Survivor poetry: Words Out from Cafe Church 
 
Joe KellyJoe Kelly, who is a Trustee of NSUN, has collected some of his poems on a website called' Words Out from Cafe Church'.
 
Joe's latest poem, 'Jesus wept' is doing very well at the moment:
 
He must be crying now—
for all the people experiencing coldness  hardship and corruption—
the refugees and war victims fleeing their home country—
the homeless man who sleeps out on a frozen night—
the needy people who can't get relief and find their way around the benefit system designed to confuse—
experiencing the benefit sanction pathway to visiting the food bank—
Grenfell Tower Inferno—
so many unanswered questions—
many people experiencing coldness misery and corruption—
time for feelings, time for emotion—
Jesus wept—
I think he's crying now
 
For more poetry, please visit Words Out from Cafe Church
 
Selected blogs 
 
Van GoghPriests, peasants and prolific creativity: Van Gogh's year as a mental health patient
 
The renowned artist Vincent Van Gogh’s died by suicide in 1890, two months after leaving a mental asylum. Martin Bailey researched his year in the institution.
 
Troubling mental health nurse education
 
Alec Grant has been teaching mental health nurses in England for two decades and has developed 'several inter-connected gripes about mental health nurse education'
 
Mad in the UK has launched 
 
Mad in the UK
Thursday, September 6, saw the culmination of many months of ‘behind the scenes’ effort with the launch of Mad in the UK. MITUK is one of a growing number of Mad In America (MIA) affiliated sites, including Mad in America Hispano-HablanteMad in AsiaMad in Brasil and Mad in Finland.
 
Acting in concert with MIA, Mad in the UK will carry UK-specific content and provide a voice for UK professionals, service users/survivors, peer activists, carers, researchers, teachers, trainers, lawyers, journalists, volunteers and others who are working for change in the field of what is usually referred to as ‘mental health’.
 
Mad In the UK welcomes contributions to fill its recently launched website: bloggers, commentators, and people wishing to submit events or couses are invited to get in touch. 
 
Please visit Mad in the UK's website.
 
Influence the production of guidance for therapists 
 
APPG
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
 
For more information about the project and how to get involved, please click here.
 
Survivor's Creative Works 
 
Article Image
The Echo Society are pleased to announce the launch of their next campaign project as part of the narcissistic abuse matters campaign UK #NAMUK: Survivors Creative Works.
 
They would like to feature any of your works that you created as a way to cope with narcissistic abuse. They are looking for drawings, paintings, poems, short prose, sketches, doodles, graphic design art, songs etc. and this will be featured on social media (Facebook and Twitter). By doing this they aim to highlight the impact narcissistic abuse has on lives of those impacted and encourage public debate.
 
Work will be posted anonymously or first initial and county only (i.e. E, Kent) with a brief description of under which circumstances the work was produced. No one will be identified.
 
Fid out how to Get Involved or contact Lydia at: campaigns@theechosociety.org.uk
 
Blackfriars Settlement activities 
 
blackfriars settlementBlackfriars Settlement offer a wide range of services and activities, supporting people to achieve their goals and improve their well-being.
 
Their latest flyer is available online here
 
Blackfriars Settlement is located at 1 Rushworth Street, London SE1 ORB
Telephone: 020 7928 9521 Fax: 020 7960 4628
For general enquiries please email: info@blackfriars-settlement.org.uk
 
World Mental Health Day event in Bolton 
 
WMD event in bolton
Young people & mental health in a changing world
 
There’ll be information, stalls and activities including:
yoga, videos, dance, a choir, photo booth, presentations and more

Date: Wednesday 10 October
Time: 1pm to 6pm
Venue: University of Bolton, Chancellor’s Mall,University Way, Bolton, BL3 5AB
 
For more information please contact Nireexa Solanki
TEL 01204 380643 - Mobile 07549 923 201
Nireexa.Solanki@family-action.org.uk
band.org.uk / facebook.com/bandbolton / twitter.com/bandbolton
 
Spread the Word event in London 
 
spread the word
Join Words That Carry On, a fund dedicated to commissioning vital research on personality disorders, autism and complex mental health needs, for an end of summer poetry and music night at the beautiful Skip Garden in Granary Square. 
 
Date: 14 September 2018
Time: 18:00 – 22:00 BST
Venue: Skip Garden, 1 Tapper Walk, London N1C 4AQ
 
The evening will include live performances, poetry workshops and pizza as well as the opportunity to have your say on the fund's research priorities.
 
To book your place, please click here.
.
 
Community Equalities Coordinator (North East, Yorkshire & Humber) 
time to change
  • Home-based
  • £31,818 per annum (plus £1,421 per annum)
  • Contract until 31 March 2021
Time to Change are looking for an organised ‘people person’ who has personal experience of mental ill health and associated stigma and discrimination and is now ready and able to use that to embed Time to Change as a sustainable campaign in the North East, Yorkshire & Humber.
 
You will join seven peers already working in other regions of England, and eight other team-mates, including your manager, who are based at Mind’s HQ in London.
 
The role is based at home with most management and support delivered by email, phone and Skype and occasional face-to-face meetings.
 
To structure your days, deal with setbacks and manage competing priorities, you will need to be motivated, able to work on your own initiative and adaptable to change.
 
For more information and to apply please visit this page
 
Women in crisis report published 
 
women in crisisAgenda is an organisation which ensures that women and girls at risk of abuse, poverty, poor mental health, addiction and homelessness get the support and protection they need.
 
Agenda's new report #WomeninCrisis is out - it looks at how the #MentalHealthAct can be detrimental to women, and the devastating impact that has, including alarming numbers of self-inflicted deaths.
 
You can read the report here
 
Recruitment for Chair 
 
Article ImageIndependent Chair of Think Ahead’s
Service User and Carer Reference Group

Think Ahead are seeking a new independent Chair for the SUCRG, to work with SUCRG members and Think Ahead in ensuring that the group is fully and effectively involved in our work.
 
Details:

Payment for involvement: £175 for preparing for and chairing each meeting, plus reimbursement for travel and out-of-pocket expenses. (There are three to four meetings per year.) With your agreement, we may ask you to undertake additional activities for which you would be paid separately.
 
Time commitment: Typically up to eight days per year, though this may vary. Appointment term: Three years, subject to review.
 
Start date: We anticipate the first meeting with the new Chair taking place in October 2018.
 
Location: Meetings are held in central London.
 
Appointment term: Three years, subject to review.
 
Application deadline: Applications must be received by 5pm on Monday 17 September 2018.
 
Interview date: Tuesday 25 September 2018.
 
For the role description and how to apply click here.
 
Coming soon - Peerfest 
 
PeerfestThis year, the annual celebration of peer support will be hosted by Thurrock Mind who came through as the chosen user-led peer support project to host Peerfest18
 
Date: 20 October
Bookings open: 05 September
 
Programme: worshops, activities, the Marsh Awards and muvh more.
 
To attend, get involved, or run your own activity, please take a look here.
 
In the news 
 
Atos victims protest
Disability News Service (DNS)
 
DNS has found out that the Department for Work and Pensions (DWP) is refusing to release evidence that would show how many secret reports it has compiled into the deaths of claimants of its new universal credit, in a fresh breach of freedom of information laws. This week, DNS paid tribute to Juliet Marlow, passionate activist of Not Dead Yet UK.
 
DNS also approached activists for their views on the planned mental capacity and liberty deprivation. The bill ‘will take disability rights backwards’ and it must be delayed.
 
Mental Health Today (MHT)
 
 
Last month, MHT interviewed Simon Wessely, who chairs the Mental Health Act Review, who said ECT is in his 'own advance directive'
 
MHT also found that 'mental health austerity has ended'
 
The Guardian
 
The Guardian have revealed that author Ian Rankin, London mayor Sadiq Khan, broadcaster Stephen Fry and DJ Lauren Laverne are among 130 signatories to a letter calling on the nation’s media to lead the way in transforming how suicide is covered.
 
The Guardian also report on guidance from Universities UK and charity Papyrus seeks to halt rise in student suicides.
 
Huffington Post
 
Why The Media Should Drop Head-clutching Photos As Their Go-to Representation Of Mental Health: People with mental health problems look as diverse as the society we live in - not like some hybrid of Eeyore and Edvard Munch’s The Scream.
 
The Independent
 
The Independent finds that there has been a significant drop in male suicides – but we still need to talk about men’s mental health.
 
Mental Health Cop
 
 
New Kindred Minds Manifesto appeal 
 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
 
Please help if you can
 
Reminder 
 
don't forgetEvents - already advertised
 
If you haven't booked your place on already advertised events, we have collected some here
 
Banner
GOV.UK news 
 
Lords debate on the Mental Health Units Use of Force Bill
Members of the Lords, idiscussed the key principles and purpose of the Mental Health Units (Use of Force) Bill during second reading, on Friday 7 September. The amendments are now under consideration and a date will be announced for the committee.
 
Hospitals to receive £145 million to prepare for winter demand
The funding from the Department of Health and Social Care’s existing budget will be spent on 81 new schemes.
 
Matt Hancock's vision for a tech driven NHS
The Secretary of State fo Health and Social care gave a technology focused speech at NHS Expo 2018.
This is the full trancript
 
New guidance to help NHS patients benefit from digital technology
Speaking at the NHS Health and Care Innovation Expo conference, health minister Lord O’Shaughnessy announced the initial technology partnerships Code of Conduct for Data-driven Health and Care Technology.
 
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London this October.
The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health. Find out more here.
 
Mental Health Act Review UPDATE 
 
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups are being finalised by 14 September. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for early October. The final report is due mid-December.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
 
Mental health therapists in GP practices could be the norm
Health chiefs have drawn up new guidance to encourage doctors to place mental health therapists in practice surgeries – bringing more mental and physical health services under one roof. Read more here.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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National Survivor User Network
PO BOX 74752
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