NSUN Bulletin 9th July 2018

NSUN Bulletin Monday 2 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 09 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 09 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Mental Health ActAlternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

As part of her work for the Independent Review of the Mental Health Act, Dorothy Gould is trying to collect as many examples as possible of alternatives to detention/sectioning.
 
Because the Review is drawing primarily on a medical model, she would particularly like to hear of non-medical alternatives, including ones which are user-led and/or stem from black and minority ethnic groups and other particularly disadvantaged groups.
 
If you are able to help, please can you send information to her at gould.dorothy@gmail.com, using the questions below:
 
1(a) What alternative services have helped you to avoid detention/sectioning and (b) How did they help you to avoid it?
 
or 2(a) What alternatives would have helped you to avoid detention/sectioning (if available) and (b) How would they have helped you to avoid it?
 
3(a) Are there useful alternatives to detention/sectioning which you have heard about from others and (b) If, so, is there information which you can forward about these and their benefits?
 
Reigniting the SpaceReigniting the Space steering group taking shape
 
We are thrilled to announce the steering group who will advise and support The Reigniting the Space project to rebuild a national platform for the collective voice of mental health service users and survivors from black and minority ethnic communities.
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
 
Our challenge as citizens is not to wait patiently until we are given permission to coproduce the future of our healthcare with the NHS, but to dream of possibilities right now, says Jane McGrath.
 
 
Akiko Hart
Akiko Hart makes a plea for mental health to go outside mental health
 
A guide to empathy published by Mad in America
 
Is it time yet for another Mental Health Act?  
 
Royal College of PsychiatristsThis is a paper from a speech givenby Laydy Hale, President of the Supreme Court, at the Royal College of Psychiatrists international congress, which took place in Birmingham, 24 - 27 June 2018.
 
To read the paper, please click here
 
Places of safety lived experience research 
 
NWL
Please help to improve the service and environment at Places of Safety in North West London

The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).

The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care.
 
At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.

Researchers need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.

What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org

You can take the survey online here
 
Supported housing for people with mental illness under threat 
 
The Government wants cash-strapped councils to fund ‘short-term’ supported housing, which would make it much easier to cut funding and put supported housing services at risk of closing.

Around 30,000 people living with mental illness rely on these services. They offer a place to call home and prevent people from being sent far away from their loved ones and spending unnecessary time in hospital.

Rethink surveyed supported housing staff and 84% told us their service could close if the Government’s plans go ahead.
 
This is unacceptable.
 
Please take a few moments to email your MP to urge the Government to reconsider their plans by giving people the security they need to help them on the road to recovery and living well. 
 
Open Dialogue workshop with Rai Waddingham 
 
Rai WaddinghamA one day workshop to introduce the principles and practice of Open Dialogue at a special price (buy one place get one free).
 
Date: 13th July 2018
Time: 9.45am – 4.30pm
Venue: Big Shed Conferencing, 93 Commercial Square, Freemens Common, Leicester, LE2 7SR
 
For more information and to book a plce, please visit this page
 
Support Asylum's campaign to end physical restraint in Spain 
 
Asylum
#0Contenciones (zero restraints)  is a campaign to end the practice of physical restraint in Spanish psychiatric facilities.
 
Physical restraint consists in tying a person to a bed with straps across the waist, on the wrists and ankles, to impede moving freely.
 
 
The person may be tied up for hours or even days, depending on the decisions of hospital staff. 
 
 
It causes suffering, trauma and even death. 
 
Physical restraint in Spain is unregulated and often covered up.
 
It is not possible to access files explaining who is restrained, by whom, why and for how long, and least of all – how.
 
This means instances of serious injuries and fatalities go unpunished.
 
To read more about the campaign and support it, please visit this page
 
Call for participants for BBC Radio 4 documentary series on delusions 
 
Article Image
Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
 
This will be for a documentary series for BBC Radio 4. 
 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 4-6 weeks.
 
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
 
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
 
 
Mental Health in the news 
 
The Guardian
 
'It made me depressed': how poor housing costs the NHS £1.4bn a year
With a fifth of English homes officially not decent to live in, health and housing professionals are joining forces to improve residents’ wellbeing
 
The IndependentSeni's Law
 
MPs have voted in favour of a new law to restrict the use of force against patients in mental health units, despite fears the bill might be blocked by Tory backbenchers.
 
BBC News
 
On the second anniversary of her daughter's death, Annette McKenzie begs for better mental health services. This is a live reporting story.
 
The Huffingdon Post
 
People Share Why They Feel Isolated
'Loneliness is one of the major causes of misery in our society.'
Banner
GOV.UK news 
 
Consultation: Safety and security arrangements in high security psychiatric hospitals

Seeks views on proposed changes to directions and guidance setting out minimum required standards of safety and security in high security psychiatric hospitals in England.

The consultation closes on 23 August at 11:59pm

For more information please visit this page
 
New NHS app will make it quicker and easier to access health services

The free app will be available to everyone in England in December 2018.
Read more here
 
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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