Participate in shaping NSUN - take our members' survey
We are seeking the views of members in order to evaluate our work and plan the coming year's priorities. Comments will remain anonymous. Your input is really valuable as it will help us to find out what we are doing well and identify the areas that we can improve on as an organisation. Your data will be stored until we have completed our annual evaluation work. We anticipate that this will be in August 2017.
We would like to thank you in advance for taking the time time to complete this survey. It will take approximately 10 minutes.
I wish I had been told this
- NSUN member Julian Wood shares his experience of using spiritual practices and insights
Two simple questions that have changed the way people hear inner voices
- in the past 30 years, a new understanding has been created by voice-hearers themselves
Support NSUN as you shop online
We are a registered cause on the Giving Machine site. This means people can choose to raise money for us when they shop online. Simply click on the
NSUN page then click the Join and Support this cause button. Donating this way does not increase the cost of your shopping.
Call for blogging contributors
Share experiences, suggestions and opinions with e-bulletin readers, website visitors and social media friends. To get an idea of the variety of topics and points of view, please visit our
blogs section. To send a blog, please email the editor.
Get introduced to NSUN in 3 Minutes
The three minutes video is here.
Important: non NSUN materials in the e-bulletin
Below NSUN news, features concern events, job opportunities, research, groups, etc, which are not ran by us, unless clearly stated. Details are sent to us by contacts who wish to spread word about their activities. Whenever possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions and features by you, please email the editor
and the general info mailbox. Please remember that sharing is not endorsing.
Follow up to BBC2 - Horizon 'Why did I go mad?'
Were you unable to watch David Strange, Jaqui Dillon and Rai Waddingham last week on the BBC? YouTube has the programme in both standard definition
and HD copy
You can also read some reviews and listen to related interviews on soundcloud:
Recovery in the Bin (RITB), the independent Facebook group, have added a review of the programme to their blog. RITB's blog is hosted outside of Facebook so you do not need to be an FB member to
read the review.
Jaqui Dillon and Rai Waddingham were interviewed by BBC 5 Live. You can listen on soundcloud
Also on soundcloud: Dr Eleanor Longdon ~
Voices can be recruited as part of the healing journey.
What's it like to battle with a dozen people talking inside your head? - Rai Waddingham interviewed by Radio Times
Rai Waddingham has jkust set up a new podcast, 'looking behind the label': ' Whilst I'll usually be out and about, talking with people about what it means to be human in a world
that can be crazy-making, in this first episode I'm simply sharing a bit of my story - and singing some songs'
Visit Jaqui Dillon's website - participating in the programme prompted Jacqui to add some artwork - take a look here
The Guardian reviews
What causes psychosis? Horizon: Why Did I Go Mad? tries to help us understand - the New Stateman reflects
Related discussion (with link to the video) on Social Anxiety Support Forum
Establishing a user led model of best practice for disabled women at risk of violence
Shaping Our Lives project, ‘A Refuge for All’, aims to establish a user-led model of best practice for Disabled women experiencing or at risk of violence or abuse to ensure their needs are met through current service provision. Although Disabled women are twice as likely than non-disabled people to experience domestic violence and abuse, services are not always inclusive of Disabled women. (the funding for this project does not include Disabled men in similar situations unfortunately.)
Shaping our Lives are looking for Disabled women with lived experience of violence or abuse to take part in this user-led project:
· Focus group in London on Wednesday 14th June from 1-4.15pm
· Focus group in Birmingham on Thursday 22nd June from 1-4.15pm
(There will be a light lunch and refreshments offered for the focus groups.)
Advisory Group of Disabled women with lived experience of domestic violence or abuse that will meet quarterly, for no more than 2 hours, over 2 years, starting in July (date to be agreed in week commencing 17th July for the first meeting).
Travel and reasonable support costs will be met for these meetings and an involvement payment of £50 per meeting is offered to those people who are able to accept it.
Shaping Our Lives is a non-profit making user-led organisation that hosts a national network of user-led groups, service users and Disabled people. We are committed to inclusivity and diversity, specialising in user controlled research and involvement practice ensuring that diverse and excluded communities are represented in the policy making, planning and delivery of services.
For more information about this project and to register your interest in confidence, please contact Becki Meakin, General Manager of Shaping Our Lives at email@example.com or call 07956 424511.
Royal Nursing Council Congress to 'ask RCN to insist that the Government urgently reviews its appalling management of benefits'
The Congress is an opportunity for members to meet, learn, develop professionally and share excellent nursing practice.
Saturday 13 - Wednesday 17 May 2017, Liverpool Arena and Convention Centre
A debate revolving around concerns about the benefit process will take part as part of RCN Congress. The debate's goal is to get RCN to interfere and put pressure on the government to review
'its appalling management of benefits' as ' There is widespread evidence that the Governments’ review of the Disability Living Allowance (DLA) and replacement with Personal Independence Payment (PIP) demonstrates a fundamental disregard for the emotional and physical needs of some of the most vulnerable individuals in society '
The date of the debate is still TBC. Access will be free.
Please take a look at the debate's brief
The Nursing Council needs to hear from those who have no confidence in things like WCA and PIP assessments. Write to them, or
sign the petition set up by Dolly Sen if you have not already done so
Using art in mental health activism
Join Dolly Sen for two hours of reflection on the relationship between art and mental health activism.
If you are brutalised or abused by the mental health system and want to challenge and resist that, what can you do without it being pathologised as part of your condition?
Date: Monday 12 June
Venue: Dragon Cafe, The Crypt at St George The Martyr church, Borough High St, London SE1 1JA
No booking required. More information about this event is accessible online here.
National Co-production Week 2017
3 to 7 July 2017, organised by SCIE
will celebrate the benefits of co-production, share good practice and highlight the contribution of people who use services and carers to developing better public services.
If you are planning to hold an event, have an example to share or have any questions about National Co-production Week, please email SCIE
or tweet them on #coproweek.
SCIE's Co-production Week activities:
- Second annual Co-production Festival on 5 July in London
featuring the well-known comedian Francesca Martinez. The festival is for members of SCIE's Co-production Network but there are a very limited number of places for guests (contact us if you are interested).
- Co-production training, a webinar, a Twitter event and many other activities.
for more information, including videos and highlights from last year's co-production week, please visit this page
Call for contributions to celebrate pioneer survivor's 100th birthday
A peer-controlled project is calling for contributions to a book for Dorothea Buck on the occasion of her 100th birthday.
Who is Dorothea Buck? Dorothea Buck is Germany’s pioneering survivor activist, author, influential advocate. She was co-creator of the trialogue and co-founder of the German national organisation of users/ survivors of psychiatry. You can watch
Dorothea in a short interview
by documentary film maker Andrea Pohlmeier in 2016 – with English subtitles
Dorothea Buck was awarded several highly regarded prizes, has been an invited speaker at numerous conferences and has gained high respect and recognition including from the psychiatric elite.
However, the reception of her work by the media and psychiatrists in Germany show a certain reductionism: they tend to receive her mainly as a survivor of “Nazi psychiatry” and ignore her criticism of post-war psychiatry as well. Thus, in her memories, Dorothea stated that she thought of herself as lucky not to have been a patient in the era of neuroleptics since these would have made her successful path to “self-discovery” impossible.
The book is called '100 voices on psychosis as self discovery'
Who can contribute and what can they write about?
Everyone who has experienced “psychosis as self-discovery” is invited to contribute. This experience may be affirmative or skeptical, optimistic or sad, an expression of fulfillment or of unfulfilled hope —however, it should be a personal account or standpoint and avoid generalizations about the experiences of others. Each statement or account should cover no more than 1 page, i.e. about 3.500 characters. Shorter contributions are welcome too.
Would you like to add to the book being compiled to celebrate Dorothea? The survivor-editors are inspired by and grateful to the survivors/ users of psychiatry and allies from European as well as other countries who already submitted texts and poems. They would be delighted to receive more international contributions.
Elena Demke, who speaks excellent English, is glad to assist all interested authors. Please contact Elena at
Please provide Elena with some contact details with your emailed contribution, so she can keep you posted concerning the progress of the work and the publishing date. for those who wish to publish under a pseudonym, please discuss this with Elena.
Depending on the number of contributions received, the editors may decide to print English contributions in the original, or provide German translations. Each contributor will receive a free copy of the complete book
Please note that the editors would like to complete the project by end of July 2017 so please reply ASAP. Thank you very much in advance.
Free places offered at HC-UK conference
Improving Service User Experience in Mental Health Conference conference is to be held in London on Friday 12 May 2017
and the organisers are now in a position to offer free places on a first come, first served basis by quoting the reference hcuk00sumh.
Chaired by Paul Scates, Senior Peer Specialist, Campaigner and Ambassador through national updates, lived experience and practical case studies the day will provide you with a step by step guide to measuring, monitoring and improving service user experience in mental health services.
The conference will provide you with expert sessions focusing on monitoring adherence to the NICE Quality Standard on service user experience in mental health, measuring and monitoring experience in mental health crisis, changing the culture of an organisation, listening and learning from individuals and demonstrating responsiveness to feedback, real time service user feedback, and using always events as a positive approach to always events.
Download brochure / Book online
For further information and to book your free place contact HCUK at firstname.lastname@example.org
Quote hcuk00sumh when booking
if you are unable to attend you may like to hear news from the day on Twitter by following @HCUK_Clare #serviceuserMH
Pulse reports on the consequences of GP practice closures
Raids on NHS budget to continue until 2020
The Department of Health has confirmed that NHS investment funds will continue to be raided
for the next three years to prop up day to day revenue budgets
GP conference to debate future of NHS and industrial action
GP leaders at this month's LMCs conference (to take place in Edinburgh on 18-19 May) will discuss whether the NHS can survive chronic underfunding, whether GP contractor status has 'reached the end of the road, and whether industrial action should be back on the table to defend the profession
It is 10 years since the 'Doing it for ourselves’ service user conference in Birmingham. It was at this conference in 2006 that the vision of the National Survivor User Network (NSUN) was taken forward, leading to funding in 2007 and becoming a fully independent organisation in May 2010.
We have survived! To enable us to continue to connect, communicate and influence, we need your help. Please spread the word to help raise funds to continue our work through our #NSUNthrive10 campaign. You can also raise money by shopping online with the Giving Machine