Save the date - NSUN Members' event and AGM
Wednesday 27 September 2017
10.30am – 4.30pm
An event where you can:
Connect with others from around the country – and stay connected
Share what’s happening with local user led groups
Agree what issues and messages need amplifying at a national level
This year we’re in Sheffield at the SHOWROOM WORKSTATION
15 Paternoster Row, Sheffield, S1 2BX
For more information call 020 7820 8982 or email email@example.com
We're looking forwards to seeing you there.
Watch some of our previous member 'Soap Boxes'
Service user perspectives on coercion and restraint in mental health -
Following NSUN's small pilot study (2016) about experiences of restraint, Emma Ormerod and Naomi Good of NSUN wrote an article in collaboration with Diana Rose and Sarah Rae. The aricle concludes that
'From the perspective of service users, coercion and restraint are mostly harmful and must stop being legitimised. There is an urgent need to challenge and address these practices as they represent gross human rights violations according to the stipulations of the CRPD. 'Read the full article
What does it mean to be anti psychiatry? Read UK based Auntie Psychiatry's latest blog post
Support NSUN as you shop online
We are a registered cause on the Giving Machine site. This means people can choose to raise money for us when they shop online. Simply click on the
NSUN page then click the Join and Support this cause button. Donating this way does not increase the cost of your shopping.
Call for blogging contributors
Share experiences, suggestions and opinions with e-bulletin readers, website visitors and social media friends. To get an idea of the variety of topics and points of view, please visit our
blogs section. To send a blog, please email the editor.
Get introduced to NSUN in 3 Minutes
The three minutes video is here.
NSUN Members' Manifesto 2017
Find out what is most important to the NSUN membership. A summary page that is easy to display is now available for download. Take a look at the link at the bottom of this page.
NSUN is bringing the voice of experience to an all party parliamentary group (APPG) which aims at producing guidance for therapists whose clients are struggling with prescribed drug dependence.
The group will create and deploy guidance materials for counsellors, psychotherapists and psychologists to support them working with issues of prescribed drug dependence.
If you have experience of prescribed drug dependence and would like to share your story with the APPG to influence its work, please email us.
Important: non NSUN materials in the e-bulletin
Below NSUN news, features concern events, job opportunities, research, groups, etc, which are not ran by us, unless clearly stated. Details are sent to us by contacts who wish to spread word about their activities.
Whenever possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions and features by you, please email the editor
and the general info mailbox.
Please remember that sharing is not endorsing.
Manchester user group challenges lack of consultation
The Manchester Users Network
(MUN) MUN and others are requesting an Extraordinary Liaison meeting with the Greater Manchester Mental Health NHS Foundation Trust (GMMH) to challenge the lack of consultation with people who use the Harpurhey Wellbeing Centre about proposed restructuring.
To date there has been no engagement with MUN, Charter Alliance, current services users or local people that use the centre.
This is a legal requirement! The plan will lose a range of valuable sessions and support including, Peer Support, Keep fit, Art and Crafts, and Social Therapy activities. It has been rumoured that GMMH want to have small rooms for counselling by IAPT ( Improving Access to Psychological Therapy).
MUN are particulary concerned that teh IAPT service would benefit far fewer people in comparison based on IAPT completion statistics and levels of satisfaction. In addition to this the Harpurhey neighbourhood is one of the most deprived districts in England and people need all the valuable support they can get.
Campaign to save mental health services in Norfolk and Suffolk
This is the largest grassroots local mental health campaign in the country with over 2,300 supporters.
Started by front line staff and people who reply on NHS mental health services in Norfolk and Suffolk, campaign participants are fighting the cuts and ‘radical redesign’ at Norfolk & Suffolk NHS Foundation Trust. They're are also helping other local and national mental health campaigns. The picture was taken from an
article in the East Anglian Daily Times, reporting on the campaigners protests.
For more information and to support the campaign, please visit their website
National Voices is looking for Trustees
National Voices stands for people being in control of their health and care.
National Voices is looking to elect at least two more member trustees to join the Board. The organisation is
particularly seeking nominees with experience of one or more of the following:
- A focus on diversity and equality issues
- A background in social care
- Expertise in service transformation, such as working with STPs
National voices especially welcome applications from members of black or minority ethnic communities.
Trustees serve for an initial, three-year term of office and may then stand for re-election for a second term. If you want to talk about being a Trustee please calls on 020 3176 0738 or email firstname.lastname@example.org.
For more information about the role and to nominate either yourself of someone you know, please read this page
(which contains a nomination form)
You can also read the blog post 'shape the future of social care' by Chair Hilary Newiss
Nominations close at the end of Thursday 10 August. Voting will be open between 15 August and 19 September.
Sexual orientation and suicidal behaviour
what are the specific risk factors for suicidality in young LGB people?
A new review and meta-analysis published in the British Journal of Psychiatry (Miranda-Mendizabal et al 2017) has updated previous work by describing the risk of suicide attempt and suicide in LGB youth, while also seeking to identify specific risk factors for suicidality in this defined
You can read the conclusions here
Survey: An Exploration of the Experience of Women with Mental and Physical Health Issues
is part of co-produced research looking at women’s experience of physical health and mental issues in order to identify good practice and understand what works.
is for women with mental and physical health concerns to say how they think health services respond to their needs. If you feel this describes you, you are invited to complete a short online survey. It is assumed that you consent to take part in this study if you participate.
The survey should not take more than 10-15 minutes to do.
Ethnicity and long-term course and outcome of psychotic disorders in a UK sample: the ÆSOP-10 study
This paper investigates patterns and determinants of long-term course and outcome of psychoses by ethnic group following a first episode.
Results: ' There was evidence that, compared with White British, Black Caribbean patients experienced worse clinical, social and service use outcomes and Black African patients experienced worse social and service use outcomes. There was evidence that baseline social disadvantage contributed to these disparities. '
To read the full paper and related discussions and notes, please visit this page
Breaking the silence on women and drug abuse
This article references two editorials from 2016 in The Lancet and Addiction that highlighted how little is known about women and drugs.
Hamilton argues that women are underrepresented 'at every level of scientific enquiry'.
Read the full article here.
Loonies Fest calling for visual art 'SURVIVORS STORIES'
Not a long way to go - artists have until 15 August to submit work.
To mark the 10th anniversary of our collective F.E.E.L. (Friends of East End Loonies), are hosting the LOONIES FEST, a major diverse event to celebrate the joint work and achievements of the past decade. The show will run between 5th to 19th September 2017.
DEADLINE FOR SUBMISSIONS: 15th August 2017 by 5pm
All details available here.
Coming up: SCIE event and training sessions
1 - LGBT+ Disabled people, self-directed social care support, PAs and support workers - New Research Findings and Launch of New Films and Resources
This fully accessible event will share information about brand new research funded by the NIHR School for Social Care Research in England with Disabled LGBT+ people who use self-directed social care support. Find out about the research and come and view the short films we have made which focus on what people who
took part in the research had to say.
The project has been carried out by the University of Bristol, Stonewall, Regard and the Social Care Institute for Excellence.
25 October 2017 at the Coin Street Conference Centre, 108 Stamford Street, South Bank, London SE1 9NH, 11.00 – 1.00, followed by lunch and networking.
Open to all subject to booking/availability - book with eventBrite
, or email
2 - Co-production training
The Social Care Institute for Excellence is running two co-production training session in October:
· Paying people who receive benefits
– 5 October at SCIE covering issues related to paying people who receive benefits who take part in co-production. Full details here
· Co-production an introduction
– 12 October at SCIE covering the practical processes and tools needed for successful co-production. Full details here
The cost for each training session is £125.00. They are both held at SCIE, Kinnaird House, 1 Pall Mall East, London, SW1Y 5BP.
Focus groups on ‘self-binding’ advance directives in bipolar
A team at King’s College London is working on a project exploring the use of a particular type of advance directive for people with Bipolar, a ‘self-binding’ advance directive. This would allow individuals with bipolar to request treatment in a future episode of illness when they know, from past experience, that they may well be reluctant to accept treatment, even though they need it at the time.
The researchers are planning to hold focus groups with people who have personal experience of bipolar, as well as family and
friends of those with bipolar (we will also be holding focus groups for healthcare professionals).
The team have developed a preliminary model of how this type of advance directive might be used clinically and within the current legal frameworks. However, researchers would really value lived experience to help refine this model and make it workable.
Are you might be interested in participating in one of these focus groups?
The researchers plan to hold the focus groups in the Autumn, in the early afternoon at a central London location with refreshments provided. Reasonable travel expenses can be covered and, as thanks for your participation, you will be paid £15 in cash or a high street voucher.
If you are interested in taking part and would like further information, please contact Dr Lucy Stephenson at email@example.com.
The Lithium versus Quetiapine in Depression study (LQD)
Have you tried different antidepressants but have found that they’ve not fully helped you?
Researchers are investigating whether lithium or quetiapine is more effective at treating depression and are looking for volunteers to take part in this research study from November 2016 to 2019.
- Are you currently depressed?
- Are you aged 18 or over?
- Have you tried different antidepressants but have found that they’ve not fully helped you?
- If so, are you interested in helping with research by taking part in this study which involves taking one of two widely used medications as an addition to your current antidepressant?
If you’re interested in taking part, or just want more information, please contact the study team on: LQDstudy@kcl.ac.uk or call on 07902774464. All information remains confidential.
Have you experienced disability discrimination at work?
Approved by the Cardiff University School of Social Sciences Research Ethics Committee and relying, as much as possible on language consitent with the social model of disability, this quizz takes about 15 minutes to complete.
Participation is entirely anonymous. You can choose between:
- The screen-reader version: please
- The version not compatible with screen readers: please click here
Sharpen up your bid writing skills
NFP workshops organise training courses for charities, schools, associations and social enterprises. Their series 'bid writing - the basics' and 'bid writing - advanced' run in several locations (Aberdeen, Brighton, London, Southampton and more)
Each attendee receives a full set of notes and copies of eight real successful funding bids by e-mail after the workshop.
For a list of workshop and booking links please
take a look here.
In the news
Channel 4 put Jeremy Hunt's mental health claims to the 'fact check' test and concluded
that we're being 'misled' (for the claims in question, please see the Gov.uk feature).
UK judges rule DWP wrong to deny appeals over refused benefits. Read more here.
On the same topic - Mental health sector gives mixed response
to £1.3bn plan for better services.
Judge 'ashamed and embarrassed' that no hospital place has been found for suicidal 17 year old who could be forced out of secure care.
Mental health patients across the UK are spending years stranded in acute units awaiting discharge, figures show.
Measures to transform mental health services
Health Secretary Jeremy Hunt launched a plan (31 July 2017) to expand the mental health workforce. The plan sets out measures to tackle the ‘historic imbalance’ in workforce capacity and fulfil ambitions to improve mental health services.The government committed £1.3 billion to transform mental health services, with a pledge to:
- treat an extra 1 million patients by 2020 to 2021
- provide services 7 days a week, 24 hours a day
- integrate mental and physical health services for the first time
This is the plan
which received mixed responses (see 'in the news')
More people will be able to give blood
The government has announced
changes to blood donation rules following a review by the Advisory Committee on the Safety of Blood, Tissues and Organs
Government responds to consultation outcome
The 'New health data security standards and consent/opt-out model' consultation ran in 2016. This July, the government added its response ‘Your Data: Better Security, Better Choice, Better Care’, which you can download from this page