Members' Manifesto 2017 launched
Our revised Members' Manifesto 2017 draws on feedback from our AGM and members' event (June 2016), priority issues identified by members in our annual survey (2015) and responses from members to a direct request asking what should be in NSUN’s manifesto. You can read and download the full document
User led group closures: Disability News Service reports on our findings
Following a recent review of the NSUN group membership it was found that over 220 groups had closed. This is a shocking indication of the current climate for small to medium sized organisations and user led groups.
You can read Disability News Service's article
We are bringing user led groups together to organise a collective approach to raise awareness of the impact of the current environment and business practices of larger voluntary sector organisations. We want to encourage collaboration not competition! If you would like to share your experiences and find out more please
Peer Supported Open Dialogue: an event review
Open Dialogue UK held its Peer Supported Open dialogue event on 22 March in London.
NSUN attended and offers a
NSUN member Anne shares what she calls her 'crazy cartoons' in a regularly updated online blog.
Negative emotions are key to wellbeing
- This blog is a few years old but the point is makes remains worthy of interest.
Participate in shaping NSUN - take our members' survey
We are seeking the views of members in order to evaluate our work and plan the coming year's priorities. Comments will remain anonymous. Your input is really valuable as it will help us to find out what we are doing well and identify the areas that we can improve on as an organisation. Your data will be stored until we have completed our annual evaluation work. We anticipate that this will be in August 2017.
We would like to thank you in advance for taking the time time to complete this survey. It will take approximately 10 minutes.
Support NSUN as you shop online
We are a registered cause on the Giving Machine site. This means people can choose to raise money for us when they shop online. Simply click on the
NSUN page then click the Join and Support this cause button. Donating this way does not increase the cost of your shopping.
Call for blogging contributors
Share experiences, suggestions and opinions with e-bulletin readers, website visitors and social media friends. To get an idea of the variety of topics and points of view, please visit our
blogs section. To send a blog, please email the editor.
Get introduced to NSUN in 3 Minutes
The three minutes video is here.
Important: non NSUN materials in the e-bulletin
Below NSUN news, features concern events, job opportunities, research, groups, etc, which are not ran by us, unless clearly stated. Details are sent to us by contacts who wish to spread word about their activities. Whenever possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions and features by you, please email the editor
and the general info mailbox. Please remember that sharing is not endorsing.
Mental Health Providers Forum's update on changes to PIP regulations
There has been an emergency debate in the House of Commons Chamber on changes to Personal Independence Payment
regulations. The debate has been brought following an application by Debbie Abrahams MP, Shadow Secretary of State for Work and Pensions. You can read more about that debate here.
For further background information, Mind has produced a Parliamentary briefing.
Mental Health Providers Forum (MHPF) has been contacted by several members regarding the changes to PIP and increasing concerns at PIP outcomes for people with a range of mental health conditions, autism and Asperger's.
MHPF would be interested to hear about what action you are involved in. Are you active in the Disability Benefits Consortium? Have you written to MPs, Ministers or DWP? Do you have individual stories you can share of how this has impacted on people with mental health problems? What else have you done, and what do you have planned?
Please send any responses that you may have to Carey Bamber.
MHPF online - Web:
www.mhpf.org.uk | Twitter: @MHPF_
Preventing suicide, saving lives
is a registered charity which runs a Suicide Crisis Centre in Gloucestershire. It’s run by a person with lived experience of suicidal crisis, who has mental health challenges. The Crisis Centre was set up in 2013 and they’ve never had a suicide of a client under their care.
On Tuesday 25 April at 2pm in central Oxford they will be explaining how they work and what can help a person at the point of suicide. One of the local colleges is supporting and hosting the event.
If you live in Oxfordshire and would like to book a place please contact Joy.Hibbins@suicidecrisis.co.uk
or visit the website .
Coming up in Middlesborough
Time to Change training days
Three free half day training events around mental health campaigning on April 27, May 4 and May in central Middlesbrough.
Discussion around 'Are you getting the mental health services you need?'
A manager from the local NHS will share their plans for mental health services. There will then be time for questions and feedback.
This free event will be held on Wednesday 26 April between 2.30-4.30 at the St. Mary's Centre in 82-90, Corporation Road in Middlesbrough, TS1 2RW.
There is no need to book.
If you need more information about these events, please get in touch with Mark Burns, Engagement Officer at Voices for Choices, Middlesbrough and Stockton Mind, The Mind Centre, 90-92, Lothian Road, Middlesbrough, TS4 2QX. Tel: 01642 257020. email:
firstname.lastname@example.org. Please note that Mark works from Wednesday to Friday.
Second national co-production festival to take place in July
The Social Care Institute for Excellence (SCIE) have announces the 2nd Co-production Week 2017 which will be from 3 – 7 July.
It will celebrate the benefits of co-production, share good practice and highlight the contribution of people who use services and carers to developing better public services.
You can read more about the week here.
If you wish to get in touch with SCIE concerning co-production and how to take part in the week please contact email@example.com
Emerging mental health platform calls for Londoners to share their experiences
A new mental health platform is forming which aims to explore mental health in society. The platform is making a call out to anyone over 18, who is based in London and is open to discussing their experiences of mental health difficulties and/ or their experience of the mental health system. Submissions are also welcome from therapists, counsellors and other roles within the mental health system.
The Online platform is opening to allow an opportunity for people to tell their stories and to start exploring these issues
together creatively. The platform will represent a turning away from current narratives around mental ' illness' and will promote alternative ways of understanding distress and promoting healing. The online site will link to resources and support groups as well as events and workshops that will be available to schools, Universities and the public.
Content will include filmed interviews, artwork, poetry, articles and other ways of documenting people's experiences. Any artwork submitted will be showcased through an online gallery, alongside personal stories that may be submitted anonymously or otherwise.
Filmed interviews will take place in Homerton, East London. However if there are issues with travel costs and practicalities, other
venues can be discussed.
If you are interested in taking part and providing content or discussing the work further, please contact Bea Herbert: firstname.lastname@example.org
'Boot out austerity' march needs speakers
On 19th April, a group of social workers and supporters will set off from Birmingham on a seven-day walk to Liverpool, to arrive the day before the British Association of Social Workers hold their 2017 Annual General Meeting and Conference there -
you too can get involved. Drawing inspiration from the Jarrow marchers of 1936, and more recently the People’s March for the NHS in 2014 and a group of psychologists who Walked the Talk in 2015, the aim of the walkers will be to highlight the devastating impact of nine years of austerity.
Speakers wanted: The organisers want to have a good send-off each morning, which will help to add to the publicity the walk generates - which is the whole point of doing the walk. People will be gathering at 9am each morning - in Birmingham, Wolverhampton, Stafford, Stoke, Sandbach, Northwich (10am, Sunday lie-in!) and Runcorn
- Days 1 (19th April) to 7 (25th April) respectively. Precise meeting points will be on the website (address below) very soon.
It would be great if each morning there was a local service user, carer, survivor or other concerned citizen, who was able to join in to say a few words as part of that morning's send-off. If you're interested in doing this on one of the days, could you phone Guy Shennan, one of the walk organisers, on 07841 529798 or email him at
email@example.com. To register your interest, encourage those walking, offer to host an event en route, highlight a service, offer accommodation or simply state your support, please complete this short questionnaire. Visit the website for more information.
HC-UK offer ongoing discount
HC-UK also offer NSUN members 20% discount on their mental health themed conferences and master classes by quoting ref: HCUK20NSUN when booking.(*Cannot be used in conjunction with any other offer. Full T&Cs available upon request.)
Next steps on the NHS Five Year Forward View
The Next Steps On The Five Year Forward View
have been announced. As the NHS approaches its 70th anniversary the health service has published the plan setting out how it will deliver practical improvements in areas prized by patients and the public – cancer, mental health and GP access. You can read the full announcement
NHS England launches new veterans mental health service
On 1 April 2017, NHS England launched the transition, intervention and liaison (TIL) mental health service for armed forces personnel approaching discharge and veterans.
The following providers have been appointed to deliver this service under a three year contract:
- Avon and Wiltshire Mental Health Partnership NHS Trust (covering Buckinghamshire, Oxfordshire, Berkshire, Hampshire, Isle of Wight and the South West of England)
- Camden and Islington NHS Foundation Trust (covering South East of England and London)
- Coventry and Warwickshire Partnership NHS Trust (covering the Midlands and East of England)
- Northumberland, Tyne and Wear NHS Foundation Trust (covering the North of England)
The service will support delivery of The Five Year Forward View for Mental Health.
The full brief is available
If you have any queries, please email firstname.lastname@example.org
You can also find information on the following sites: NHS choices
and NHS England please note that access criteria are explained on the NHS England page.
Theresa May told to 'get a grip' after 18-week NHS target scrapped
Shadow Health Secretary Jon Ashworth said Tories could be breaking the law with violation of NHS constitution. You can read the full article
Alcohol industry to update information on its labels
The Department of Health worked closely with industry on the guidance for this labelling, to better reflect the latest advice on alcohol published by the UK Chief Medical Officer. You can read the full news article
Consultation: gluten free foods on NHS prescription
Gluten-free (GF) foods are available on prescription to patients diagnosed with gluten sensitivity. A
consultation, open until 22 June, seeks views on proposals on whether to make changes to the availability of gluten-free foods that are prescribed on the NHS.
The Pharmaceutical Journal comments on this consultation here
It is 10 years since the 'Doing it for ourselves’ service user conference in Birmingham. It was at this conference in 2006 that the vision of the National Survivor User Network (NSUN) was taken forward, leading to funding in 2007 and becoming a fully independent organisation in May 2010.
We have survived! To enable us to continue to connect, communicate and influence, we need your help. Please spread the word to help raise funds to continue our work through our #NSUNthrive10 campaign. You can also raise money by shopping online with the Giving Machine