NSUN calls for radical rethink of the concept and terminology of “Medically Unexplained Symptoms.”
Calling for change to misleading and unhelpful medical concepts and terms, Naomi Good from NSUN / Studio Upstairs opened the National Summit, a conference organised by the Tavistock and Portman NHS Foundation and Health Care Conferences on the 21st November in London. You can read more and access the conference presentations
NSUN gets organisers to take down stigmatising Halloween ads
Lucky Voice, a company which offers Karaoke bar entertainment, have apologised to the NSUN membership for using imagery stigmatising mental health in advertising material. It took down after we complained.
Read the full story
Call for blogging contributors
Share experiences, suggestions and opinions with e-bulletin readers, website visitors and social media friends. To get an idea of the variety of topics and points of view, please visit our blogs section. To send a blog, please
email the editor.
NSUN 10 years anniversary short film available online
You can watch the film on NSUN's YouTube channel here.
'no' audit needs your help: how often do staff say no to patients? What is the impact on patient wellbeing?
Have you ever spent time on an acute ward? If yes, could you help with the PROMISE
PROMISE (PROactive Management of Integrated Services and Environments) began at the Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) with aim of reducing the use of restraint. The project, which is co-led by a psychiatrist and an Expert by Experience, has expanded considerably since its inception in 2013 but the vision to eliminate the use of force in mental health services remains the same. To help with this work researchers would be very grateful if anyone who has been an inpatient could spend 5 minutes
completing this survey.
The aim of the survey is to understand the most common reasons that staff say ‘No’ to patients, as this can cause unnecessary distress and lead to a situation escalating. This is turn may result in the use of force which is why we are keen to understand the reasons that staff say most frequently say ‘No’.
Intentional Peer Support - a one-day overview with Steven Morgan from the US
Open Dialogue UK is delighted to welcome Steven Morgan to the UK to run a one day introduction to Intentional Peer Support on
Date: Wednesday16th November 2016
Time: 9:00 am - 4:30 pm
Venue: St Barnabas Dalston, Lower Hall, Shacklewell Row, London, E8 2EA
Intentional Peer Support
is a powerful framework for thinking about and creating transformative relationships. Practitioners learn to use relationships to see things from new angles, develop greater awareness of personal and relational patterns, and support and challenge each other in trying new things. IPS is used across the world in community, peer support, and human services settings.
The one-day IPS Overview is a highly interactive exploration of the three principles and four tasks of IPS. Here participants learn the basic framework for reflecting upon and developing mutuality in their work environments and relationships. There will be discussion on how IPS is currently being used in peer-run projects, hospitals, approaches to first-break psychosis, and other innovative areas.
event is run on a donation basis, to cover the costs of running the day. Booking early is recommended - 13 places remaining.
For more information and to book please visit the website.
Shaping Our Lives (SOL) Annual General Meeting
Date: 8th December
Time: 11am - 4pm
Venue: Birmingham Voluntary Service Council (BVSC)
The theme: What would your user-led group most want for Christmas?
PLUS there’s a chance of winning up to £100 for your group in our winter raffle.
Great food and a travel bursary of up to £40 towards attending.
Email to registration and for more information
Early adoption of the Advocacy Outcomes Framework
NDTi's Rights and Advocacy Lead, Gail Petty launched the Advocacy Outcomes Framework
to a packed audience of advocacy professionals and commissioners at the Annual Advocacy Conference in Birmingham this month.
The publication is already in use is some regions and initial feedback highlights that new framework is already strengthening the sector's confidence in evidencing and measuring outcomes.
Download the Advocacy Outcomes framework here.
Report examines 20 years of evidence in safe mental health care
Manchester University has published an annual report assessing progress on safety in mental health care across the UK. Examining suicide and homicide by people with mental illness, the 2016 report also looks back over data from the last 20 years, summarising how the challenge of risk management has changed over two decades and what lessons have been learned in making mental health services safer.
Click here to download the National Confidential Inquiry into Suicide and Homicide by People with Mental Illness. Making Mental Health Care Safer: Annual Report and 20-year Review. October 2016.
Gloucestershire services launch website for young people's mental health
The NHS in Gloucestershire is introducing additional services to support young people. The new website www.onyourmindglos.nhs.uk was launched in September.
The engagement team in conjunction with Young Ambassadors have developed a
short film about the plan for young people covering three key themes:
- what is happening in Gloucestershire to further develop support young people’s mental health,
- tackling stigma – it’s ok to ask for help and to support your friends,
- and how to access information, advice and support via the ‘On Your Mind’ website.
Help British Gas improve the way they work - survey and focus groups
In 2015, British Gas teamed up with Mind to understand how customers who struggle with their mental health could be better supported. This piece of work brought to life the views and experiences of British Gas customers and really highlighted that more can be done to support customers. Here are some of the outcomes from that insight:
You said - British Gas did…
- British Gas advisers need to understand more about mental health - New training is being planned including videos of customers talking about their mental health and why and how they need extra support
- British Gas need to have the facility for a third party or nominee to talk on a customer’s behalf if they are unwell - British Gas have reviewed our internal Power of Attorney process so our people better know how to make sure you can have a third party talk to us on your behalf.
Most importantly, British Gas were made
aware that our interactions and processes could be even stronger if they talked to mental health peers to help change the way we work - British Gas has teamed up with Mind once again to delve further into some key issues and themes that previous work has highlighted. You can help with this work by answering an
online survey. Included is an opportunity to participate in focus groups which will lead to creating videos.
If you are selected to take part in a focus group you will be paid £50 and reasonable travel expenses will be reimbursed.
NB - The team at Mind who help with this have said that all can take part, even if their provider is not British Gas.
Training: Co-production – an introduction
One day, open access course:
- London: 30 November 2016
- Birmingham: 17 January 2017
Building partnerships with users and carers to improve services is what co-production is all about. But how can we work together to make this a reality? This participatory session focusses on the practical processes and tools required for successful
This course will help you to:
- Understand what co-production is
- Identify the principles of co-production
- Identify some of the barriers to meaningful co-production
- Improve your knowledge and confidence about how to put co-production into practice
Email for further information
For further information on all SCIE training support visit the website.
Britain at crossroads: finding the progressive path
Date: 5 November
Time: 10am - 5pm
Venue: TUC 23-28 Great Russell Street London WC1B 3LS
Among the topics of discussion:
- A Brexit that works for everyday people: globalisation, trade and the negotiations
- All hands on deck: building a hopeful and progressive future for Britain
- Changing the debate on migration: debunking myths & home truths
- Young people in the age of uncertain employment, debt and a housing crisis
- Fighting for equality:
austerity & the labour market
- Climate change, green jobs and sustainability
Many speakers are already listed on the registration page, some will be announced over the coming weeks.
Men don't cry: black men and mental health
According to a report on mental health by the Care Quality Commission (a regulator of health care in England), black men are 18 times more likely to be diagnosed with a psychotic illness when compared to their white counterparts, 44 % more likely to be detained under the Mental Health Act, and 29% more likely to be subjected to control and restraint measures to coerce them into mental health services. Black men are also twice more likely to be referred to mental health services through Police or Court services than their white counterparts.
Join in for a panel discussion which will seek to address these issues, exploring obstacles black men face in accessing mental health services, as well as stigmas around mental health. The panel includes Richie Booker, involved in Dazed documentary "Men Don't Cry", Laura Hackshaw, writer of the article 'Mentally Ill Black Men and The Women Who Kiss It Better' and Carlos Dore, who conducted a research project 'We Tell You' on young black men's perspectives of mental health.
Date: 4 November
Time: 6pm - 8pm
Venue: Alumni Lecture Theatre, Senate House, SOAS Students' Union 10 Thornhaugh St, WC1H 0XG London
You can visit the event's Facebook page here.
Mental health services not considering women's needs
The needs of women struggling with their mental health must be better considered and provided for in mental health policy, strategy and delivery. That’s the message from Agenda, the charity promoting women’s and girls’ well-being and equality, following its research into mental health gender awareness at NHS trusts. The findings were released with the launch of Agenda’s Women in Mind Campaign, calling on government to take steps to ensure a gender-focused approach to care, including asking all female patients about their experience of abuse and violence.
In April 2016, Agenda sent Freedom of Information (FOI) requests to all 57 mental health foundation trusts in England, asking how they consider women’s needs in their service planning and delivery, and how they encourage and support disclosures of past or current abuse by inpatients. They received responses from 35 trusts; 22 failed to reply.
for more information, please click here
Crisis Care Concordat summit 2016: presentations
The third national Summit was held on 25th October at the Kia Oval and attended by 225 delegates from across the relevant professions including police, health, social care, commissioners, emergency medicine, voluntary sector, as well as people with lived experience and carers. A review of the day will be published by the end of November.
Click here for the presentations
Have you had, or care for someone with, cancer and experience of mental ill health? Share your story!
Macmillan Cancer Support
is working to gather personal stories from people living with, or caring for someone with both mental health problems and cancer.
Cancer affects nearly 1 in 2 people during their lifetime, and mental health/emotional wellbeing problems affect 1 in 4 adults during any one year, so there will be lots of people out there with this dual lived experience.
Macmillan’s Mental Health and Cancer Taskforce
aims to better understand the needs and ideas for change of people affected by both cancer and mental health problems.
For more information and a contact email please take a look here
CQC State of Care report published 13 October
The State of Care report provides an overview of the CQC's inspection findings from the new regulatory approach that it rolled out two years ago. The report highlighted the following:
- Safety is the “biggest concern” for mental health services in England
- Adult social care is at 'tipping point' as care homes deteriorate - 41% of the total 3,649 being rated inadequate or
- 61% of NHS acute trusts were rated as requires improvement overall
At the launch CQC chief executive David Behan said 'The combination of a growing, ageing population, more people with long-term conditions and a challenging financial climate means increased need but reduced access.'
Government to announce plans to overhaul WCA
Work and Pensions Secretary Damian Green will on Monday announce
the launch of a consultation on reform of the Work Capability Assessment (WCA) tests.
The DWP has been forced to reveal how it manipulated the media to silence criticism of welfare cuts
The Department for Work and Pensions (DWP) has been forced
to release internal reports detailing the way it manipulated media reporting of benefits cuts, following a Freedom of Information (FOI) request.
Primary care report: government response
The government response
to the House of Commons Health Select Committee report on primary care
Care Act statutory guidance updated
Statutory guidance to support implementation of part 1 of the Care Act 2014 by local authorities
It is 10 years since the 'Doing it for ourselves’ service user conference in Birmingham. It was at this conference in 2006 that the vision of the National Survivor User Network (NSUN) was taken forward, leading to funding in 2007 and becoming a fully independent organisation in May 2010.
We have survived! To enable us to continue to connect, communicate and influence, we need your help. Please spread the word to help raise funds to continue our work through our #NSUNthrive10 campaign. You can also raise money by shopping online with the Giving Machine