NSUN Bulletin 2nd July 2018

NSUN Bulletin Monday 2 July 2018
National Survivor User Network NSUN, network for mental health
NSUN Bulletin Monday 2 July 2018
Table of Contents
Dear Viewpoint
Welcome to the 2 July edition of our weekly ebulletin that contains lots of updates, news and views.
This week is National Democracy Week and kicks off today with the the 90th anniversary of the 1928 Equal Franchise Act which gave women the same voting rights as men. You view and add to some of the events happening here.
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
NSUN News 
Fitness in Mind  '...the story so far'
Jackie Dawes-Price, Parliamentary Under Secretary of State at the Department of Health, joined the Fitness In Mind team in Brentwood Essex to celebrate '...the story so far'. She praised the programme for what it had achieved and emphasised the importance of partnerships to improve mental health support.
NSUN's Sarah Yiannoullou was also invited to the event Article Imagewhich launched the interim evaluation report 'Fitness In Mind: Change for the better'. Sarah thanked the programme for providing a 'real' alternative, with no waiting lists or drawn out assessment processes, and spoke of the power of peer support.
The national Fitness In Mind  was launched in May 2014, 'with the theory that peer support improves mental and social wellbeing, and encourages regular physical activity'. The Brentwood Fitness In Mind three year programme (supported by Sport England) was launched in January 2016, targeting 1900 inactive local people. The interim report clearly sets out how may people they've worked with so far (1379) through 568 sessions, 24 different sports and 10571 peer support hours.
You can download the report here.
Listen to the views of people involved in the programme here.
Stakeholder position statement on the NICE guideline for depression in adults
NSUN is one of 13 organisations who have signed up to a position statement on the NICE guideleine for depression in adults.
The statement calls for a proper review and a halt on publication of the guideline following the various methodological concerns raised in a first response to the draft not being addressed in the revised version. Read more here.
Selected blogs 
Peter Beresford and Mark Harrison
Mad In America:  Joanna Moncrieff responds to claims that “psychotropic medications are like all other drugs in medicine,” arguing that the ethical implications are different as we are not able to conclusively demonstrate that any psychoactive drugs have a disease-targeting action. 
Asylum: Dina Poursanidou 'From terror to dancing again'.
Seni's Law: Contact your MP 
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Friday 6 July, the Mental Health Units (Use of Force) Bill, known as Seni’s Law, faces a crucial vote.
See progress of the bill here.
100 MPs need to be there to vote. Make sure your MP is there. You can tweet your MP here or contact them via this form prepared by Young Minds 
In 2017 Olaseni Lewis (Seni) died as a result of being forcibly pinned down by 11 police officers after his family sought help when he showed signs of 'mental ill health'. Following Seni's death Steve Reed MP introduced a new law to end the use of excessive force against mental health patients, an issue that has led to a number of deaths. He has continued to campaign and gain support for Seni's Law. You can sign the petition here.
The Bill, if it passes, will require hospitals to publish data on how and when physical force is used, and improve oversight and training so staff are aware of the risks of unconscious bias against minority groups such as young black men with mental ill health.
Behind the Label: Open Dialogue Workshop – Leicester 
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Date: 14 July
Time: 9.45am – 4.30pm
Venue: Big Shed Conferencing, 93 Commercial Square, Freemens Common, Leicester, LE2 7SR
Rai Waddington is offering a one day workshop to introduce the principles and practice of Open Dialogue at a special price (buy one place get one free) to help more people access it, bringing more voices to the table.
Because it takes time to develop a new approach in a new area, and lots of planning and networking, the workshop will also take aspects of the approach and consider how they can be used within your existing context/role.
You can book your ticket at the bottom of this page, or download the OD Workshop Flyer.
  • Full price: £75* (includes NHS, statutory and/or commercial agencies)
  • Reduced price: £50* (includes those who are self-funding and voluntary sector/charity organisations)
  • Concessions: £20* (this is a special rate for those unable to afford the reduced fee, intended for those who are self-funding and are unwaged, students and/or on a low wage. We ask that people only choose this if they cannot afford the €70 rate).
Special Offer*: 
To support the implementation of the approaches covered in this course, we are offering a free place for another member of your team and/or family. To be eligible for this offer you must specify the name of the person and their email address at the booking stage. To help ensure that these places are used effectively, unused spaces will be subject to a £25 administration fee.
Call for participants for BBC Radio 4 documentary series on delusions 
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Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
This will be for a documentary series for BBC Radio 4. 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 4-6 weeks.
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
Sustainable and effective voluntary, community and social enterprise organisations in health and care: an action plan 
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The Joint VCSE Review (2016) consultation described a constant battle between for community organisations, charities and social enterprises between the missions set by their communities, and their need to chase funding priorities set elsewhere.
This gap between the agreed national vision and the local reality remains the biggest challenge facing VCSE organisations, and a key challenge to implementing the Care Act, the Public Health Framework and the Five Year Forward View. It is the challenge the Joint VCSE Review recommendations were designed to bridge.
The 28 of the recommendations from the 2016 review, described how to make two system shifts.
  1. The shift towards co-designing health and care systems with citizens and communities, through working with community-rooted organisations which can reach and engage citizens from all parts of local communities.
  1. A bigger, strategically-resourced role for those VCSE services which demonstrate they can provide support which thinks and acts whole-person, whole-family and whole-community.
Two years after the original report, there is a relaunch with a focus on those actions which feel most relevant and most impactfu. The Joint VCSE Review’s oversight group has proposed three sets of three recommendations for local and national health and care systems and their VCSE partners. These nine recommendations, which re-frame the Joint VCSE Review’s original 28, and draw on the extensive consultation undertaken by the review, are intended to prompt local and national action.  They will form an action plan for the Health and Wellbeing Alliance (HW Alliance) to champion with the wider sector and with government.  
The HW Alliance was established to give NHS England, Public Health England and the Department of Health and Social Care access to VCSE co-design partners which collectively reach thousands of local groups. NSUN is currently a member of the HW Alliance through the Win-Win Alliance and the Mental Heaqlth Consortium.
The nine recommendations have been launched and contributions are being sought from the VCSE sector, local government, the NHS and citizens, through three questions.
You can submit responses through this survey by 6th July.
Places of Safety Lived Experience Research 
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Please help to improve the service and environment at Places of Safety in North West London
The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).
The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care. At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.
We need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.
What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact Samantha Holmes.
Here is the link to take the survey online.
MSc Mental Health Recovery and Social Inclusion course 
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MSc Mental Health Recovery and Social Inclusion (Online) and scholarship opportunities now available for September.
The University of Hertfordshire's  two year part-time online course will provide you with the knowledge and skills to make a difference to the recovery and social inclusion of people experiencing mental distress.
With this 100% online Master's degree you will benefit from:
  • An innovative course developed by experienced practitioners, academics and service providers with an international perspective on recovery and social inclusion issues.
  • Obtaining the knowledge and skills to make a difference in the social inclusion and recovery of people experiencing mental distress.
  • Being able to study part-time to fit your studies around work and life commitments.
  • Our flexible payment plan.
They have two scholarships available to cover all the MSc fees for applicants with lived experience of mental illness, for the September 2018 intake.
Visit the website to find out more and how to apply for a scholarship.
If you’d like to know more about studying with us, please do get in touch.
Surrey and Borders area forums 
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Do you use any of the Trust's services?
Do you care for someone who uses our service?
A Forum of Carers and people who Surrey and Borders Partnership NHS Foundation Trust services. One way of having your say about the way they do things and helping them improve services.
Some of the things FoCUS has achieved are:
  • Improvements to the STEPPS therapy programme and development of parallel training for carers to improve their understanding
  • Working with staff to develop a new CMHRS discharge leaflet
  • Issues raised regarding discharge from CMHRS prompted the Trust to undertake an audit checking compliance with standards for discharge
  • Involvement in developing Single Point of Access for people in a crisis
  • Fed back on accessible information policy, welcome packs, appointment letters and the smoking policy
  • Raised accessibility issues at Farnham Road Hospital
You can add as many paragraphs and as much content to each as you want, but try to keep your stories to a manageable size to keep your readers engaged. When appropriate, create links to your website or any other related websites to increase traffic and awareness.
Find out how to join and where the local area groups meet here.
Epsom Mental Health and Wellbeing Festival  
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This years Epsom Mental Health and Wellbeing Festival will be held on 6-14th October. Here's the event poster for your information.

Following on from the success of last years competition here is the flyer for this year competition and the subject is 'New Beginnings'. 
Entries will need to be submitted by Friday September 30th.
More information can be found on the Love Me Love My Mind website.

Clare Knight, is walking 140 miles along the Cornwall Coast in aid of the charity. If you would to read about this challenge and to sponsor Clare please click the link.

The next planning meeting for this year's Festival is on Monday 9th July at 12 noon at St Barnabas and all are welcome.
Reminder: previously shared news and events 
don't forget
Jobs and involvement opportunities
Pease bookmark this page for jobs and involvement opportunities that have been shared in previous bulletins and ae still 
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
Mental Health in the news 
GOV.UK news 
NHS70: one week to go!
One week to go to the NHS’s 70th birthday. There’s still time to be involved. Don’t forget the Big 7Tea. For further information https://nhsbig7tea.co.uk/
A couple of suggestions for next week to promote and join in with:
  • Sainsbury’s are producing a short film on the NHS on 5th
  • Aardman Animations are producing a film to share
  • BFI (British Film Institute) are streaming ‘old films’ of the NHS
  • NHS Voices: the NHS (Lewisham and Greenwich) Choir are working with ITV and a number of celebrities to launch a single – With a little help from my friends – with profits going to NHS Charities Together. The single will be realised on 6th July with a Big NHS Singalong Live taking place on 4 July. The hope is to break the world record for a mass sing along.
On the morning of 5th July there will be a ‘thunderclap’. More details on this and above events when and as I receive them.
NHS England children's services consultation
NHS England has launched a 60 day formal public consultation to seek feedback on a new specification for CAMHS Tier 4 children’s services. Webinars to discuss the proposals will take place on the 4th & 17th of July. They are seeking views on these proposals from patients, carers, members of the public, clinicians and anyone else who may have an interest in CAMHS tier 4 services.
A fresh look at Friends and Family Test
NHS England is carrying out a project to improve some areas of the way the Friends and Family Test (FFT) works across the country. The work will result in publications of refreshed FFT Guidance by April 2019.
The ambition is to ensure the FFT can be a more effective tool in gathering patient feedback that helps to drive local improvements in healthcare services.
It is more than three years since the two-year rollout of the FFT across NHS-funded services was completed. Since then patients have consistently been contributing about 1.2 million pieces of feedback every month, demonstrating the appetite of members of the public to tell staff what they are doing well and where improvements can be made, particularly where they give comments on their experience in addition to their rating.  
During the project, there are opportunities for healthcare professionals, commissioners and FFT suppliers to be involved in working groups and we also welcome views from patients, voluntary organisations and representative bodies. If you want to put forward any views on the work, you can contact the project team at england.insight-queries@nhs.net. Please clearly mark you email title “FFT project”. There's a new web page about the project and monthly email updates.  To sign up for these, please register at the email address above, using the email title “FFT Update”.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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