NSUN Bulletin 23th April 2018

NSUN Bulletin Monday 23 April 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 24 April 2018
 
Table of Contents
Dear Viewpoint
 
Welcome to the 23 April edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service. You can donate directly here.
 
NSUN news 
 
'Reigniting the Space' project needs steering group members
 
The Collective Voice of User/Survivors from Racialised Groups:‘Reigniting the Space’ is currently recruiting members for a Steering Group to oversee, advise and support the development of a national network of Black and Minority Ethnic (BME) mental health service users and survivors.
 
The project, funded by Lankelly Chase Foundation, aims to bring together BME user/survivors and their groups to create a forum for collective political voice and action through facilitating networking, information sharing and collaboration.
 
To know more about about Reigniting the Space, please click here
To apply to be a steering group member, please click here
 
Closing date 30 April 2018
 
 
 
NSUN's AGM and members' event 2017
 
Last year over 100 people gathered in Sheffield for our Annual General Meeting and Members' Event.
 
As ever, feedback from attendees valued the networking, the discussions, the sharing and connecting. The Soap Boxes were also a highlight, creating a space for people to share what was important to them. "Soapboxes were INSPIRATIONAL! And gave a flavour of what’s going on around the country".
 
We also had the launch of the user led 'Challenge Sheffield@Challengesheff. Susan Smith spoke about the 'proud history' Sheffield has of providing mental health support and services through groups that are controlled by people with lived experience of mental health problems, such as the development of the Hearing Voices and the UK Advocacy Network.
 
In the afternoon we focused on the Independent Review of the Mental Health Act, with Dorothy Gould presenting up to date information on the process and suggestions on how people could engage with it. This included raising awareness with local MPs and campaigning for a rights based Mental Health Act.
 
The final session of the day was reserved for table top discussions on the Members' Manifesto. Participants reflected on its relevance, accessibility and the priorities they wanted to see addressed. Feedback has influenced our programme of work since then and has helped us focus on the priorities people identified. Although all the Manifesto points were regarded as important, it was point 3 that was emerged as the most mentioned.
 
Pressure mental health services to make the principle of ‘nothing about us without us’ a reality at all levels, through meaningful involvement in decisions about our own individual care and genuine co-production to develop services 
 
The 4Pi National Involvement standards are now used across the country and across the sectors and have proven to be a valuable framework to ensure effective involvement, participation and co-production practice.
 
Finally, the graphic produced by Debbie Roberts at Engage Visually provided yet another fantastic capture of the day. This year participants were invited to contribute to its creation (in response to feedback from the last AGM).
 
Read the full event report here.
 
 
Survivors Researchers Network launch manifesto
Written by the Survivor Researcher Working Group, the SRN manifesto sets out the background and context to survivor and service user research and SRN's aims and values as a network. Read more here.
 
Selected blog 
 
The Poor Side of Life exposes unfair treatment of people at the Ashton Under Lyne Jobcentre.
'I’ll list todays conversations. I wish that people wern’t treated like this, but they are and at many Jobcentres up and down the country....'
 
Sheffield Mental Health Challenge Day 
 
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S.O.D.I.T and Challenge Sheffield are hosting this user led and organised event.
 
Date: Monday 14 May
Time: 10.30am - 3pm
Venue: Voluntary Action Sheffield, 33 Rockingham Lane, Sheffield, S1 4FW 
 
The purpose of the event is to bring together people with lived/living experience of mental health distress in Sheffield to help make the city a better place for people who are experiencing these issues. Participants are invited to:
  1. Share their experience of mental health distress in Sheffield and your views of local services
  2. Discuss how people in the city can work together with providers in a more meaningful way
  3. Explore how people in the city can create and develop more connected communities
Follwoing the event a report will be produced which can be used not only to showcase the voices of people with mental health distress but also to influence and make changes through collective action.
 
LUNCH & REFRESHMENTS PROVIDED
 
NOTE this is an event for people with lived/living experience of Mental Health Distress and use of services ONLY
 
Suffragette city summer solstice walk in London 
 
Suffragetes Artist Michelle Baharier invites you to walk though Suffragette City with her on 23 June staring at 11.45 pm meeting South side Tower Bridge, meeting  the Cook, Hannah Griggs or Wonder Woman - ending outside house’s of Parliament at Boudiccia’s sculpture .....it will be a night of fun and frolics...playing games and telling stories Celebrating the hidden legacy’s of women who have made changes though their contributions  to societal transition.
 
23 June 2018, at 11.45 pm meeting South Side Tower Bridge at 42 bus stop.

This walk is supported by NSUN, Hoarding UK and Colin and Strawberry Jazz.
 
Focus 4 1 celebrate five years! 
 
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Focus-4-1 is driven by Black, Asian and ethnic minority adult mental health services users and welcome members from all backgrounds and nationalities. They meet every week and provide a wide range of services, support and social activity.
 
 
 
Focus-4-1 is a user led group that promotes recovery and independence in daily living. They support one another to enable all members to take control of their lives and strive to network throughout the community, voluntary and health sectors to campaign for better mental health services.
 
Get in touch with them today to find out more email info@focus-4-1.co.uk, telephone 07870898811 or visit the Facebook page
Address: Vestry Hall, London Road, Mitcham CR4 3UD.
 
Creative support  
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Hannah Chamberlain is an award winning service user entrepreneur who is available for freelance consulting on business development and strategy for your mental health charity, peer group or enterprise.
 
See her website www.hannahchamberlainfilm.co.uk or email to get in touch to discuss opportunities. 
 
Positive Mental Health Group - Birmingham 
 
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The group is open to anyone with an interest in promoting a greater awareness of mental health issues across the communities of Birmingham and Solihull. This is a chance to share information, news and views among statutory agencies, voluntary sector organisations, users and carer groups.
 
Everyone is welcome to this lively meeting which includes guest speakers, information stall, light refreshments and a chance to chat and catch up with others.
 
Monthly meetings are held on a Tuesday.
 
Venue: Moments Café 38 – 40, Holloway Circus, Birmingham City Centre, B1 1EQ.

Buses 61 and 63 stop at HF1 outside the café. The journey is just two stops from the Rotunda / Bullring centre. Board buses outside the Boots store.
 
The Mental Health Act Review and Institutional Racism 
 
Suman Fernando Further to the book by Suman Fernando, 'Institutional Racism in Psychiatry and Clinical Psychology: Race Matters in Mental Health', this conference will showcase ways of counteracting institutional racism in mental health services by promoting culture-change in professional practice and safeguarding human rights of people who use mental health services or are caught up in the mental health system.
 
Date: 01 June
Time: 10am - 5pm
Venue: Room AE1.01, University of East London, Water Lane, London E15 4LZ
Cost: free
 
For more information and to book a place, please visit this page
 
 
The 'Do You Mind?' Campaign 
 
Article ImageThe "Do You Mind?" campaign is being undertaken to draw attention to the serious shortfall in provision of mental health services in Cheshire East.
 
'Cheshire East’s Mental Health Service provision has been underfunded since the closure of the Parkside Hospital complex in 1997. Twenty Years is long enough to wait for this to be sorted out.'
 
The campaign is sponsored by two organisations working together: East Cheshire Mental Health Forum and Crewe and Nantwich Open Minds.  If you would like to support the campaign just click here.
 
Benefits and Work subscription service 
 
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Benefits and Work, was launched in 2002 (and became a limited company in October 2006) by advice worker turned barrister Holiday Whitehead and benefits writer and trainer Steve Donnison, to provide just such information.
 
It is unique amongst benefits information providers in that it asks for no funding or support from the government, local authorities, grant making trusts or large companies. Every penny of Benefits and Work's revenue comes from its subscribing members. This independence means that the information shared is candid and direct.
 
There are lots of helpful guides and the latest news, as well as opportunities to share information, such as your 'top tips' for Surviving Life on Benefits.
 
Visit the website to find out more.
 
Rosamund Snow Community: FREE webinars 
 
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Going Beyond Co-design: Delivering Work Together
Find out how people with lived experience were involved in establishing and delivering the Severn & Wye recovery College and hear about the power of peer support. With Anna Burhouse, Director of Quality Development at Northumbria Healthcare NHS Foundation Trust.
 
Date: Wednesday 2 May
Time: 1pm - 2pm
 
Peer Support - An Approach to meaningful participation
Hear about peer support at Mind and their approach to meaningful participation. With Dominic Makuvachuma-Walker, Engagement Manager, Mind.
 
Date: Wednesday 13 June
Time: 1pm - 2pm
 
Regulation on Improvement
Regulation is a way to address poor quality healthcare. In the UK different regulators have different approaches to regulation, Find out more about the different approaches to regulating healthcare and they affect patients. With Joy Furnival, Quality Improvement Advisor, NHS Improvement. 
 
The Patient Perspective on Improvement
Hear about the work a patient is involved in, who's working for a regulator.
 
To join a webinar email 'YES' to  info@rosamundsnowcommunity.org.uk with the date and title of the webinar in the subject bar. An Outlook invite will be sent to you with joining instructions.
 
SCIE News 
 
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Co-production Week blog starts for 2018 (11 April 2018)
The third annual Co-production Week runs from 2 July and in the run-up to the week we are again hosting blogs about co-production, where service users and carers are central to the design, delivery and evaluation of services. The first blog is from INVOLVE, which supports active public involvement in NHS, public health and social care research. Author Gary Hickey looks at how to co-produce a research project.
SCIE Peer researchers opportunity
 
SCIE is recruiting peer researchers for an evaluation project SCIE with Oxfordshire County Council. They are looking for three people to work on the evaluation which will involve a commitment of around 23 days.
The deadline for applications is 5pm on Friday 4th May 2018.
The selection day will be held on 17th May 2018 in the SCIE office.
 
If you are interested in the role, please contact Susanne Gibson – email: susanne.gibson@scie.org.uk telephone 020 7766 7428
 
 
Discount offer on HC-UK mental health conferences and master classes 
 
HC-UK HC-UK's series of mental health conferences and masterclasses focus on a number of topics helping those working in mental health or with mental health service users have an increased understanding of the service user experience and look at issues such as capacity and consent, co-morbidity and psychological therapies.
 
20% discount by quoting ref: HCUK20NSUN when booking.(*Cannot be used in conjunction with any other offer. Full T&Cs available upon request.)
 
NICE Guideline Committee 
 
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Call for members for the rehabilitation in adults with severe and enduring mental illness guideline committee.
 
Closing date: 10am, Tuesday 15 May 2018.
Time commitment: 2 years. 
 
NICE are looking for:
A range of health and social care professionals and service providers with demonstrable relevant experience and knowledge in the field of rehabilitation for severe and enduring mental illness. Applicants should have:
  • strong interpersonal skills
  • excellent verbal and written communication skills
  • the ability to communicate complex issues to differing audiences.
Any questions? Contact Hilary Eadon at HEadon@rcog.org.uk.
 
How to apply
Read information for applicants(PDF) for: 
  • role description and person specification  
  • expenses and how to claim
  • recruitment and selection process .
Send the  following documents:
Attach those documents in an email and send to Eleanor Howat at NGAapplications@rcog.org.uk
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GOV.UK news 
 
New support to help children living with alcohol-dependent parents
The measures will give children living with alcoholic parents fast access to support and advice. Read more here.
 
Challenge a decision made by the DWP
If you think a decision is wrong, you can use this form to ask DWP to look at it again. This is called 'mandatory reconsideration'.
Two documents, in English and Welsh
 
Jeremy Hunt threatens social media with regulation
Britain’s health minister Jeremy Hunt threatened to impose new regulations on social media firms unless they do more to protect young people using their services.
Read more here
 
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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