NSUN Bulletin 18th Sept 2017

NSUN Bulletin Monday 11th September 2017
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Monday 18 September 2017
Meet the London co-ordinator
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Hi! I’m Raza Griffiths, and I'll be supporting the London networking here at NSUN. Some of you may remember me from previous work on the 4PI involvement standards at NSUN.
My role involves connecting service user/survivor groups better and strengthen our collective capacity and voice in influencing policy and practice. My work will particularly focus on issues of multiple marginalisation on grounds of ethnicity, gender, sexual orientation and refugee or asylum seeker status as well as mental health status.
I will also be promoting the Kindred Minds BME mental health service user led Manifesto, which identifies the changes needed to policies and practices to improve BME mental health. I wrote the Manifesto in a previous role after extensive consultations with BME service users in Southwark, London. The Manifesto is the first of its kind as far as I am aware, that has been written by and for BME mental health service users. Here is a link to the Kindred Minds facebook page
In my work so far, I have met with Southwark Council and Clinical Commissioning Group members to reflect on how the Kindred Minds Manifesto could contribute to the Draft Southwark Joint Mental Health Strategy – an early example of how the Kindred Minds Manifesto can be put to practical use (N.B this consultation is officially now over but there may be further opportunities to get your voice heard if you are a Southwark resident).
I have also met Black Thrive London – a programme that aims to improve BME mental health in Lambeth, London - to discuss the possibility of NSUN potentially training/supporting BME service users to get involved in this initiative. Black Thrive builds on the Lambeth Black Mental Health Commission work.
I also met with the Greater London Authority to discuss how BME groups could contribute to London Thrive. I was clear in giving honest feedback to London Thrive that the format of their proposed consultations needed to be made more relevant to the concerns of BME service users – I am still waiting for a response from London Thrive.
In the course of my networking, from Dalston in the north and Forest Hill in the south to Bow in the East End, I recruited 20 new members. One of them was Mona Topaz, also a member of Disabled People Against the Cuts . She spoke about how DPAC could potentially work with NSUN in the future around the ongoing benefits cuts.
Do contact me if you’d like to speak with me.
Creating a service user network wide response to benefits reforms
Roy Bard, a long-term campaigner on issues relating to welfare reforms and Mental Health is keen to hear about active campaigns against the welfare reforms within the NSUN network, any ideas that people might have for building campaigns to resist these draconian measures, and any personal experiences which our members have of claiming Universal Credit with a Mental Health issue. Please contact Roy with your benefits concerns, ideas and experiences by emailing info@nsun.org.uk (please put 'benefits' in the subject headline) or by ringing Roy on 0207 820 8982 in the office on Thursday afternoons between 1pm and 3pm.
Selected blogs
'Mental health is a myth' - by Bonnie Burstow, who launched the first anti-psychiatry scholarship
Learning disability and Human Rights - Helen Wildbore, Senior Human Rights Officer at the British Institute of Human Rights, shares learning from two major projects on how human rights can help improve mental health and mental capacity services, one working with practitioners and one working with advocacy and support groups
non NSUN material in the e-bulletin
Below NSUN news, features which are not ran by us.

Whenever possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions you, please email the editor and the general info mailbox. Sharing is not endorsing
African and caribbean family history day
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Get help researching your African and Caribbean ancestors and find out more about African and Caribbean heritage in London’s East End at this free family history event, run in partnership with the Tony Cheeseman Foundation. A variety of talks will take place throughout the day and visitors will have the chance to browse a number of stalls and displays. A full programme will be announced shortly – check the organiser's website for further details. No booking required, just drop in.
Time       10.30am-4.00pm
Venue     Tower Hamlets Local History Library & Archives 277 Bancroft Road, London, E1 4DQ
Tel           020 7364 1290
Web        www.ideastore.co.uk
NHS commits to better care for expectant and new mothers’ serious mental ill-health
Last week, NHS England Chief Executive Simon Stevens announced that NHS Trusts set to deliver more personalised care will include four new Mother and Baby Units, which will allow women to stay with their babies while receiving the specialist care they need.
As many as one in five women experience mental ill health during pregnancy or in the year after birth, covering a wide range of conditions including severe depression, anxiety and in some cases postpartum psychosis, affecting around two in every 1000 new mothers and strongly associated with maternal suicide. These new units will provide in-patient support for women and their babies with the most complex and severe needs who require hospital care, who are experiencing severe mental health crisis including very serious conditions like post-partum psychosis.
There are currently fifteen dedicated mother and baby units, the four new eight-bedded units will allow more women to receive treatment with their babies. Areas will also receive a share of £15 million capital funding to support this ambitious development. NHS England is also increasing bed numbers in the existing units, which will expand capacity by 49 per cent by the end of 2018/19.
Making sense of social prescribing
Reelease by the Social Prescribing Network
Article Image This extensive document will act as a guide to new commissioners and existing professionals who are active in the social prescribing field. It has been co-produced by a group of people already involved in social prescribing and covers a range of subjects, including different models, risk management and governance, commissioning and evaluation checklists and making good quality referrals.
You can download this interactive version which allows you to click on web addresses to take you through to the resources you need, or you can download a print version..
International institude for psychiatric drug withdrawal
Article Image The International Institute for Psychiatric Drug Withdrawal (IIPDW) was created to respond to a glaring need in mental health: to develop ways for helping people withdraw from psychiatric drugs.
The mission of the institute is to bring together practice-based knowledge and research data to fill in this gap. The goal is to gather such knowledge and disseminate it to patients, family members, professional helpers, professional organizations, and throughout society.
Mental Illness: What is it? And why is it so prevalent today?
with Jonny Benjamin MBE, Neil Laybourn and Charlotte Reed.
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Hear the inspiring story featured on Channel 4 ‘Man on the Bridge’. Jonny Benjamin was ready to throw himself off London Bridge, the mental pain had become too much. A stranger, Neil Laybourn, passing by talked him out of it. Then the 7 year journey to find each other has led to a remarkable bond between these 2 inspiring young men.

Charlotte Reed was hit by depression at a young age. She found healing in drawing and illustrations. She self-published a book to help others struggling with their mental health and began selling it at Portobello Market. A passer-by, high up in the publishing world, was so impressed she was offered a book deal. Her story is now being made into a Hollywood movie and she still sells her book in the market.
Date: 1 Oct 2017
Time: 11am - 12:15pm
Venue: The Tabernacle 35 Powis Square, off Portobello Road London W11 2AY
Booking: please visit here
the event is free
North Tyneside World Mental Health Day (WMHD) Celebration Event
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This free event is organised by a collaborative partnership involving a variety of mental health organisations, including mental health providers and service users across North Tyneside.
This year’s local theme for WMHD is ‘Survive, Thrive, Be Alive’, inspired by the Maya Angelou quote “My mission in life is not merely to survive, but to thrive; and to do so with some passion, some compassion, some humour, and some style.”
There will be creative and interactive activities, including art, music, laughter yoga and poetry. There will be presentations by the Samaritans, Rape Crisis Tyneside and Northumberland, a Community Treatment Team, Northumberland and Tyneside Mind, North Tyneside Recovery College, Age UK and Key Enterprises, among others.
The event will be a fun and informative day for anyone with an interest in Mental Health. Whether you can make all or part of the day, we hope you can join us at Cullercoats Crescent Club – there is no need to book and a buffet lunch is provided.
Date: 6 October
Time: 10.45 am (for an 11.00 am start) to 5.00 pm
Venue: Cullercoats Crescent Club, Victoria Crescent, Cullercoats, NE30 4PN
For more information contact Beth Williams from Launchpad North Tyneside
Is my diagnosis R/WHITE conference
Article Image A conference of the Whiteness Network
Date: 25 October
Time: 10am - 4pm
Venue: Collaborating Centre for Values based Practice in Health and Social Care
St Catherine’s College, Oxford Manor Road. 0X1 3UJ.

To  examine  the  power  and  relevance  of  whiteness  as  a  lived  experience  in  terms  of
values, actions   and   behaviours for mental   health   survivors,   practitioners   and researchers across  the  colour  line working  to  improve  coproduction  in diagnosis, research and race. 
For more information and a contact name, please take a look at th flyer here. the event is free
GOV.UK news
New bill to improve patient safety
Proposals will give the Health Service Safety Investigations Body power to investigate serious patient safety incidents. Read more here
Health Secretary challenges NHS to deliver digital services nationwide
Every patient in England should be able access their medical records and book an appointment with a GP via an app by the end of 2018, Health Secretary Jeremy Hunt has said. Read more here
Open consultation: expanding performance assessments of providers regulated by CQC
This consultation is targeted at providers of health and social care services registered with CQC. It seeks your views as to whether it is appropriate for CQC to extend performance assessment and ratings to include independent community health services and independent doctors.
The consultation closes on 11:59pm on 6 November.
For more information, please visit this page

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