NSUN Bulletin 17th Sept

NSUN Bulletin Monday 17 September 2018
National Survivor User Network NSUN, network for mental health
NSUN Bulletin Monday 17 September 2018
Table of Contents
Dear Viewpoint
Welcome to the 17 September edition of our weekly ebulletin that contains lots of updates, news and views.
If you don't receive this bulletin directly from us but would like to, you can sign up for it here.
On 6 September, Mad In the UK launched. The website welcomes contributions. See our feature below.
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
NSUN News  
Help us lobby the Mental Health Act Review
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups. Can you help with suggestions? To get involved, please click here. 
To read the related article by John Pring, Disability News Service, please click here
NSUN Members Event and Annual General Meeting - The Future of Peer Support
Please bookmark the AGM event page on our website - you can refer to it whenever you feel ready to book your place.
UPDATED 'Get to know NSUN in 3 minutes'
You can view the video here, updated with our new logo and website. Please do share!
Selected blogs 
Suicide Is One The World's Great Public Health Challenges
Paula Sherriff, Labour MP for Dewsbury and shadow minister for mental health, on why we need a different approach
What Does it Mean to be Anti-Psychiatry?

Thoughts of a Cartoon Anteater by Auntie Psychiatry
The uncomfortable truth is that many psychiatric wards have a culture of sexual assault

Jay Watts finds that the idea that people, predominantly girls and women, are too mad, too bad and too sad to be believed has been used to silence people since time immemorial
Support the making of a collection of survivors' works  
riding the storms artworkRiding the Storms is a book of stories, poems, photography and artwork created by people who are reflecting on, and even embracing, the pain of their mental suffering.
The contributions in Riding the Storms have arisen out of a project backed by Recovery Devon, working with people experiencing mental distress, of all backgrounds and ages.
Recovery Devon has funded project work to date but is not able to pay for the publication of the book. The money raised will pay for the editing, design, printing, promotion and distribution. 
For more information about this project and how to support it, please visit this page
Dolly Sen has been guest editing Disability Arts Online 
Dolly SenCreative survivor Dolly Sen has been guest editing Disability Arts Online (DAO) since early August and is due to continue her tenure until at least mid-September.
Her own recent posts have ranged from a short film inviting you to play Mad Bingo, poems to stand against the world with, a blog that doesn’t exist, and a series of Unreasonable Adjustments cartoons.
To read more about Dolly's guest editing work at DAO, please visit this page
Dolly is also crowdfunding for the second part of her mental health film trilogy. 
Sexual safety is major issue in menal health wards, says CQC 
report by the CQC has found that people who use mental health services do not always feel that they are kept safe from unwanted sexual behaviour.
The report calls for co-produced guidance that enables everyone delivering mental health services to do the right thing about sexual safety.
New funding to help patients have their say on health services 
NHS EnglandThe Building Health Partnerships programme has been awarded £450k from NHS England and the National Lottery to support co-production in 10 areas, so patients and carers can be more easily involved in designing services.
To read more about this, please click here
Grants for womens peer support - apply until 15 October 
women peer support grants (Mind & Agenda)Mind and Agenda are working together in partnership to deliver £1.3m women’s mental health peer support grants.
This new programme will fund and enable community-based peer support that reaches around 4,500 women.  
Who can apply?
Organisations / partnerships, based in England and Wales, that can demonstrate a track record of delivering services and programmes developed specifically for women facing complex social issues.
  • Mind and Agenda expect to make 80 to 90 awards.
  • Projects will be funded for a maximum of one year.
  • Applications must be made before 15 October.
For more information and how to apply, please visit this page
NSUN member recommends mental health phone apps 
mood meterOne of our members contacted us with recommendations concerning mental health phone apps.
'I've recently started using this app [Mindcare] to measure how I feel throughout the day.', says NSUN member.
'It's good because you can be mindful of how you are feeling and make any adjustments. I find it useful as I have Borderline Personality. It will analyse your results too. It's not the answer to mental health problems, but it may be a help.' 
'The Mindcare is for android phones and 'Mood Meter' is for iphones.'
Links to download the apps:
MindCare recommended for Android, even though there is an iPhone version.
Mood Meter recommended for iPhone, even though there is a version for Android.
Service user involvement role with the Advocacy Project (London) 
The Advocacy Project
The Advocacy Project is currently looking for people who have experienced mental health issues either as an individual or carer.
This is to feed into a London-wide mental health programme called Adult Mental Health Transformation Programme that is delivered by NHS England in collaboration with the Healthy London Partnership.
The programme is made up of six workstreams:
  • increasing access to psychological therapies (IAPT)
  • digital IAPT
  • early intervention in psychosis
  • MH in Integrated Care Systems
  • London Mental Health Transformation Board
  • perinatal mental health
This is an exciting opportunity for London-based service users and carers to shape the work of the mental health programme.
The Advocacy Project is recruiting two people per workstream and a wider network of people to comment on workstream papers and plans.
This is a voluntary post however the Advocacy Project expects that the role could lead to employment or further opportunities for individuals.
Volunteers will receive training and support to complete their role.
To find out how to apply, please contact Bonnie Studd bonnie@advocacyproject.org.uk/ 020 3960 7910 by Monday 17 September.
Please note that this is the initial deadline and people will have an opportunity to take part beyond this date
Hertfordshire Partnership - Recovery Week 
Hertfodshire Partnership Foundation Trust (HPFT) would like to welcome people using local services, carers, professionals and members of the public to join us for 
a day of learning and networking
HPFT will be holding a local recovery conference, from 10am to 4pm, at the following venues :
In addition HPFT will be holding an evening event, from 6.00 to 8.30pm, at:
HPFT would like to encourage you to attend the event at your closest location. Please book via the Eventbrite links above or by calling Divya Nair on 
01438 730802.
HPFT are planning to offer free transport for people using local services, and carers, depending on the level of demand. 
World Mental Health Day event in Bolton 
WMD event in bolton
Young people & mental health in a changing world
There’ll be information, stalls and activities including:
yoga, videos, dance, a choir, photo booth, presentations and more

Date: Wednesday 10 October
Time: 1pm to 6pm
Venue: University of Bolton, Chancellor’s Mall,University Way, Bolton, BL3 5AB
For more information please contact Nireexa Solanki
TEL 01204 380643 - Mobile 07549 923 201
band.org.uk / facebook.com/bandbolton / twitter.com/bandbolton
World Mental Health Day in London 
speakers corner
18:00 PM - NO tickets exist - ticket NOT required
Put on your thermals (or body warmer) and come and enjoy the FREE soapbox about MENTAL HEALTH experiences on WORLD MENTAL HEALTH DAY at a (TEMPORARY) SPEAKERS CORNER in London.
Everyone is welcome to enjoy listening or speaking, as an individual, whether mentally ill or not - look forward to seeing you!
Date: 10 October
Time: 06pm - 08pm
Venue: Speakers' Corner, Cumberland Gate (corner of Park Lane), W1H 7EL Hyde Park (by Marble Arch), United Kingdom
For more information, please visit this page
One-day event celebrating the power of thought-provoking storytelling 
being the story
Being the Story is a an immersive storytelling day which gives a platform to extraordinary individuals with lived experiences who are creating change through their work.
Date: 19 October
Time: 10am-4pm
Venue: Conway Hall in London

Who is it for?
The Being the Story experience is for people working in or for the charity sector or socially-minded individuals who are interested in the power of storytelling and the impact it can have to challenge prejudice, reframe narratives, raise awareness, engage supporters and generate funds.
People attending will include: CEOs and senior management; communications, digital, campaign and marketing staff; funders, fundraisers, service users and expert citizens; frontline/outreach staff; staff working in CSR for corporate organisations, change-makers who want to develop the confidence to share their own personal story; and journalists.
How will it help you?
The organisers say you will leave the event with:
» an understanding of the power of storytelling
» ideas for how to tell your organisation's story differently, with more authenticity, to build trust and to encourage supporters to take action
» inspiration about how to gather stories and find new creative ways to share them
» confidence to share your own experiences, or support others to do so
» connections and potential future partnerships
» inspiration – you may be challenged by what you hear, perhaps feeling angry or moved, but you will be engaged and motivated.
For more information and to book a place, please visit the website
The care programme approach - time to move on? 
Article Image
The Care Programme Approach (CPA) model is nearly 30 years old. Ideas about rehabilitation, service user involvement and recovery have undergone seismic changes during this time.
This event will explore whether the life of the CPA come to a natural end.
With evidence showing strongly that service users thrive using the Recovery model, is it time to discard the old ways and embrace a new recovery framework for care planning in mental health?
Date: 01 November
Time: 09:30am - 04:00pm
VenueCity, University of London, Northampton Square, London EC1V 0HB
For more information and to book a place, please click here
Coming soon - Peerfest 
PeerfestThis year, the annual celebration of peer support will be hosted by Thurrock Mind who came through as the chosen user-led peer support project to host Peerfest18
Date: 20 October
Bookings open: 05 September
Programme: worshops, activities, the Marsh Awards and muvh more.
To attend, get involved, or run your own activity, please take a look here.
In the news 
Disability News Service (DNS)
This week, DNS has found that new government research shows that hundreds of thousands more claimants of personal independence payment (PIP) would have taken further steps to challenge the results of their claims if the system had been less stressful and more accessible.
DNS also reports that the government has been accused of publishing a “deeply unsatisfying” response to a devastating report by a UN committee that concluded last year that the UK had been “going backwards” on independent living.
The Guardian
Reports that, desput a funding pledge, the NHS mental health crisis worsens as 2,000 staff quit per month.
The Guardian also finds that mental health issues in young people are up sixfold in England since 1995.
Gay Star News
Years and Years frontman Olly Alexander has appeared in a powerful new video speaking about mental health awareness among LGBTQ people.
The video has been released to coincide with World Suicide Prevention Day [10 September].
Huffington Post
Reports that suicide in young women and girls is rising sharply.
The Independent
Duke of Cambridge has launched an initiative to support mental health at work.
New Kindred Minds Manifesto appeal 
Kindred Minds ManifestoNew Kindred Minds have launched crowdfunding appeals for Manifesto design, publication and launch event costs
Please help if you can
don't forgetEvents - already advertised
If you haven't booked your place on already advertised events, we have collected some here
Jobs and involvement opportunities - already shared
If there is still time to apply or get involved, you can find previously shared opportunities on this page
GOV.UK news 
Help GOV.UK improve Department of Health and Social Care online content
Web contents producers at GOV.UK are seeking users who actively use the platform for health related content.
A six month project on the content transformation of the Department of Health and Social Care on GOV.UK  will ensure that visitors using GOV.UK can search for information easily, understand content better and access the information they need more efficiently.
As part of the content transformation process a team of contents designers be conducting user research at various stages and are seeking participation from the general public, medical practitioners, experts who work in the healthcare field and those who work in health related organisations. 
The following activities have been planned:
Individual research session
The contents designers would like to invite individuals to attend a telephone session or come to their DHSC offices.
The session will involve general questions about the participant, perhaps their work, how they use GOV.UK and they may get to use a computer to describe how they search for information.
The whole session will take about 30 to 45 minutes.  
Available slot dates will be from 10 September to 21 September.
Group research session
Content designers would also like to hold a user research group session at our premises in London on 20 September.
This will be a great opportunity to meet some of the team and other participants.
The aim will be a series of activities in a 2 hour session to help contents designers improve their taxonomy.
How to get involved
If you regularly use or search for health related contents on GOV.UK and are interested in taking part in this project, please contact:
Samantha Watson, Content Designer
Content Transformation, Department of Health and Social Care, 39 Victoria Street, SW1H 0EU
E: samantha.watson@dh.gsi.gov.uk 
T: 020 7972 5988
World’s first global ministerial mental health summit to be held in London
Health and Social Care Secretary Jeremy Hunt has announced that the UK will host the first ever Global Ministerial Mental Health Summit in London this October.
The summit will aim to help countries work together to increase the evidence for different treatments, and to ensure healthcare systems around the world value mental health as much as physical health. Find out more here.
Mental Health Act Review UPDATE 
Following the publication of the Interim Report in May, 18 topic groups were set up in July based on each of the main themes. Proposals from the Topic Groups are being finalised by 14 September. Two events were held during August which set out to engage with mixed audiences on the review’s thinking so far and another two are planned for early October. The final report is due mid-December.

The Exeter workshop, Tuesday 21 August has been cancelled but a new date will be confirmed soon.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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