NSUN 5th Sept 2016


NSUN news

Members Blogs

Unkindest cuts: reflections on destruction and resilience in LGBTQ community-based mental health support - By Stephanie Taylor-King (National Survivor User Network), Sarah Carr (Middlesex University, London) and Taz Edwards-White (Metro Centre, London).
This year, on January 29th, the community-led mental health charity Project for Advocacy, Counselling and Education (PACE)  closed its doors after thirty-one years serving London’s LGBTQ (lesbian, gay, bisexual, trans and queer) communities.
Stephanie and Sarah reflect on the closure from the perspective of people who used PACE’s mental health services, and Taz from the perspective of someone who provides mental health support to LGBTQ people at a specialist community-based charity.

Share your views on the mental health and smoking action report

NSUN  has been invited to give a user perspective at the first meeting of the Mental Health and Smoking Partnership, which will take place on 12 September. We'd like to contribute your views to this meeting. To take part, please click here.

NSUN members action needed to save Number Ten

The Number Ten project is a service user led initiative based in Hounslow.

It is last of its kind, the Hounslow area having seen three similar projects forced into closure due to funding cuts and location redevelopment. Please show your solidarity with other user led projects by taking three steps online.

Support and sign up to 4Pi, the National Involvement Standards

Developed and produced by people with experience of mental ill health, 4Pi (which stands for principles, purpose, presence, process and impact) is a framework for the involvement of service users and carers:  in our own care, in our communities, in service delivery and evaluation and in organisational governance and strategy.  Over 60 orgsanisations have already adopted the standards. To find out who they are, read case studies about 4Pi in practice, and get the resource pack please visit here.

4Pi is cited in Chapter One of the Taskforce report (Getting the Foundations Right) as a framework to use to ‘help ensure services or interventions are accessible and appropriate for people of all backgrounds, ages and experience’ (p 25). 4Pi is also recommended as good practice to draw on for CQC to inspect ‘the quality of co-production in individual care planning, carer involvement and in working in partnership with communities to develop and improve mental health services’. It remains the only initiative developed by people using services and carers in the plan’ (p75).


Previously shared information available online

Please visit our website to find members projects, involvement opportunities, jobs and events we shared in previous e-bulletins. This includes our guides to support involvement in reducing the use of restraint in mental health settings.


Anonymous online study of self-harm, suicide and emotion

Researchers at the University of Nottingham and the University of Glasgow are seeking adults to participate in a study aimed at understanding people’s emotional experiences and responses to difficult situations. This includes understanding thoughts and feelings people may have that are related to self-harm. There is some cross-over between the two studies we are running, but you are welcome to take part in both or just one.

The study involves completing an online questionnaire and anyone aged over 16 years is able to take part, regardless of country of residency. Participation will take around 20-25 minutes.

To take part, please click here


Leeds Survivor Led Crisis Service

Leeds Survivor Led Crisis Service was set up in 1999 to provide services which are an alternative to hospital admission and statutory provision for people in acute mental health crisis. The organisation runs the following services:

For more information about Leeds Survivor Led Crisis Centre, please visit their website


CQC Yorkshire ambulance service NHS Trust inspection

The Care Quality Commission (CQC) the independent regulator of all health and adult social care services in England will be inspecting Yorkshire Ambulance Service NHS Trust on 13 September 2016.

The CQC wants lots of feedback from patients who have used the service, particularly over the last 12 months.

The three main services which they are looking for feedback about are…

  1. The emergency ambulance service
  2. Patient transport
  3. NHS 111 Service


  • Visiting the CQC website link for the web form:  www.cqc.org.uk/yourexperience 
  • Email:  enquiries@cqc.org.uk
  • Letter: CQC, Citygate, Gallowgate, Newcastle upon Tyne, NE1 4PA
  • Phone: 03000 61 61 61 

More information about this inspection


Employment opportunities with a user-led evaluation project

St George's University of London are currently recruiting for a team of co-researchers and members of a lived experience advisory panel (LEAP) to work on a service user-led evaluation of Sutton Uplift, a primary care mental health service. 

For complete information concerning each role (including person spec and who to contact if you have any queries) please download the corresponding document: role description for the co-researcher role and the role description for the LEAP member role.
The closing date for expressions of interest is Thursday 15 September and the interview days at St George's, University of London (Tooting) are either Monday 19 September or Thursday 22 September.


London based Dragon Cafe re-opens after annual break

The team at the Dragon Cafe are back from their annual break and look forward to seeing you for 'Reconnect' at the Café this Monday.  This month the Dragon Cafe have a very special exhibition of art and photography collected by Founder Sarah Wheeler.  Pieces will be for sale with proceeds going to The Dragon Café.  There are many creative groups to join on the day including Mindful Creativity at 2 pm with Liz Finegold - integrating mindfulness skills and creativity in textile collages.  At 6 pm Experts by Experience who will be asking What Is Your View On Social Care Support In Southwark?  A chance to be heard and contribute to Southwark Council's Social Care Review.

The Dragon Cafe re-opens on Monday 5 September, frpm 12.30pm to 8pm at The Crypt of St George the Martyr Church,  Borough High Street, SE1 1JA

Full Reconnect programme available here


Screening and audience discussion: 'Healing voices'

This event offers a unique window into peer-led activism in the United States. Oryx Cohen who co-produced the film and is a board member for Hearing Voices Network USA. After the screening, Oryx will be talking with Dolly Sen and answering questions from the floor. Oryx's experience of extreme states and psychiatric hospitalisation is one of the stories featured in the film. You can watch the trailer and clip.

  • 6.30pm Tuesday 18th October, UCL Institute of Child Health, 30 Guilford St, London WC1N 1EH
  • £12 waged, £9.50 unwaged
  • booking: online or contact John Wetherell by email or phone 020 7241 8978

Easy News covers major changes in British politics

Easy News was launched by United Response in 2013, in a bid to make the news easier to understand for the 1.5 million people with learning disabilities in the UK.

The magazine is produced by a team of people with learning disabilities or autism known as UR Consultants. It is written in easy read format, which uses simple words and explanatory images to illustrate the stories.

Commenting on the latest issue, Diane Lightfoot, United Response’s Director of Policy and Communications, said: “There has been a lot of change in British politics over the last two months, with the result of the EU Referendum, a new Prime Minister and divisions within the Labour Party. Easy News aims to keep its readers up-to-date with the news in this ever-changing political climate.”

You can download Easy News latest issue here


Have you had, or care for someone with, cancer and experience of mental ill health? Share your story!

Macmillan Cancer Support is working to gather personal stories from people living with, or caring for someone with both mental health problems and cancer.

Cancer affects nearly 1 in 2 people during their lifetime, and mental health/emotional wellbeing problems affect 1 in 4 adults during any one year, so there will be lots of people out there with this dual lived experience.

Macmillan’s Mental Health and Cancer Taskforce aims to better understand the needs and ideas for change of people affected by both cancer and mental health problems. The overall aims are to

  • Improve and innovate services, through input of and creative collaboration between experts by experience, Macmillan staff and health professionals
  • Build evidence of the need for better integration of mental and physical health care
  • Raise awareness and influence nationally on these issues

Interested? MacMillan are looking for people who

  • have lived experience of mental health problems and cancer, either living with both themselves, or caring for/having cared for someone who has both themselves
  • are happy to share their story via telephone or email, with a view to improving things for others with mental health problems and cancer in the future
  • would be willing to share their story via interview or e-mail

For more information and a contact email please take a look here


Junior doctor contract negociations: latest updates

On 31 August the BMA announced further industrial action of a full withdrawal of labour, including emergency cover, for 5 days, between 8am to 5pm from Monday 12 to Friday 16 September, with further dates to be confirmed. Read more here.

Scientists move in to London's new world leading research lab

Backed by £350 million of government investment, the first scientists are moving in and beginning to work in the new Francis Crick Institute – one of the most developed facilities for medical research in the world.


#NSUNthrive campaign

It is 10 years since the 'Doing it for ourselves’ service user conference in Birmingham.  It was at this conference in 2006 that the vision of the National Survivor User Network (NSUN) was taken forward, leading to funding in 2007 and becoming a fully independent organisation in May 2010.

We have survived!  To enable us to continue to connect, communicate and influence, we need your help. Please spread the word to help raise funds to continue our work through our #NSUNthrive10 campaign. You can also raise money by shopping online with the  Giving Machine