Save the date - NSUN AGM to take place this September
This year, the AGM will take place in
Sheffield on 27 September. Put this date in your calendars! We're looking forwards to seeing you there.
NSUN website to undergo transformation
is about to be re-designed. We'd like to have your thoughts on which contents you'd like us to preserve.
Can you contact us
with your favourite website 'must have's' , quoting 'new website' as your email subject? Thank you very much in advance, your help is appreciated.
Art is telling the truth unapologetically
- Artist Dolly Sen introduces her latest endevour, 'DSM 69', a subversive look at psychiatry through art and mischief.
Co-production week...will it catch on? When (SCIE) ran the first ever National Co-production Week last year they had no idea if the concept would gather momentum, recalls Tina Coldham, SCIE’s Co-production Network chair…
A blog about the history of the term, about its meaning, and about non pedantic reasons to spell it without an hyphen.
Support NSUN as you shop online
We are a registered cause on the Giving Machine site. This means people can choose to raise money for us when they shop online. Simply click on the
NSUN page then click the Join and Support this cause button. Donating this way does not increase the cost of your shopping.
Call for blogging contributors
Share experiences, suggestions and opinions with e-bulletin readers, website visitors and social media friends. To get an idea of the variety of topics and points of view, please visit our
blogs section. To send a blog, please email the editor.
Get introduced to NSUN in 3 Minutes
The three minutes video is here.
NSUN Members' Manifesto 2017
Find out what is most important to the NSUN membership. A summary page that is easy to display is now available for download. Take a look at the link at the bottom of this page.
NSUN Member's Campaign
Manchester Users Network (MUN) have been collecting evidence on the affect the 'Shifting Care' (or better know as 'Stepping Down') policy is having on people across Manchester. This is when people are 'stepped down' from secondary care back to primary care without clear criteria or consultation. MUN are asking local MPS to raise the issues in parliament and commissioners to review this policy based on the evidence they have
gathered so far. People are being left without essential support and are at increased risk of re-admission to in-patient settings. MUN is campaigning for an appeals process to be instated to allow people to challenge potentially harmful decisions.
NSUN has written a letter of support that you can read here.
Please let us know if it is helpful or if you would like a similar letter to use in your area.
If you have similar experiences to share please get in touch with us.
Important: non NSUN materials in the e-bulletin
Below NSUN news, features concern events, job opportunities, research, groups, etc, which are not ran by us, unless clearly stated. Details are sent to us by contacts who wish to spread word about their activities. Whenever possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions and features by you, please email the editor
and the general info mailbox. Please remember that sharing is not endorsing.
'Asylum' game promoter apologises on local TV but keeps entertainment open
The Great Escape, a game company based in Leeds, are promoting a room called 'the asylum',featuring a patient in a strait jacket and a doctor in a white coat. This is selling stigma (as their very promotion video
will demonstrate) and NSUN and Time to Change raised concerns, leading to a local BBC TV crew asking the promoters whether they'd shut the game down.
The reaction is disappointing to say the least. The promoters do no intent to shut down a room 'which has bookings'.
Click here for the local BBC video
Stand up for Human Rights - get your voice heard
Writing to the Human Rights Alliance which NSUN is part of, Theresa May confirmed her intention to repeal the Human Rights Act.
It is extremely important that people tell the government how important this legislation is, as it protects fundamental rights, and those rights concern us all. Despite the recent negative public debate around the Human Rights Act, the legislation's main reason to exist is not to support dangerous individuals but to ensure people like us have legal recourse when it comes to such things as coercion or deprivation of privacy (e.g. in
Amnesty International, also members of the Human Rights Alliance, have set up a campaign called 'You Are Not Powerless'. this campaigns gives you the opportunity to get your voice heard. Please take a look at this page
Mental health app needs testers
Mental Snapp is a video diary app developed by and for people actively managing their mental health. You can record two minute clips, rate your mood and tag your feelings - to make the videos searchable. You can see overviews of your mood and dive into the detail. Mental Snapp is free to use.
Mental Snapp is being independently evaluated by London Southbank University and the develpers need YOU to test the app and tell them what you think.
Download the app from the App Store and Google Play and click this link to leave your email address: https://goo.gl/forms/wIF5TOVIi0dUYuoe2. The Mental Snapp team will be in touch. Thank you, they can’t do it without you.
Coming up: National co-production week
The Social Care Institute for Excellence (SCIE) are running the National Co-Production Week between 3 and 7 July.
will celebrate the benefits of co-production, share good practice and highlight the contribution of people who use services and carers to developing better public services.
NSUN will be at the Second Annual Co-production Festival on 5 July in London featuring the well-known comedian Francesca Martinez. The festival is for members of SCIE's Co-production Network but there are a very limited number of places for guests (contact SCIE if you are interested)
For more about co-production week, please visit the dedicated page
Co-production research workshop
This is free
and takes place in Cambridge on 28 June.
Patients, carers and members of the public who are interested in sharing their real-world knowledge and unique experiences with health researchers. Participants will be helping to build the kind of public/professional collaboration that will lead to relevant research projects aimed at improving real health care settings.
Please read this page where you will find how to book your place
Asylum is raising money to take the 30th anniversary conference of Asylum magazine for democratic psychiatry out into the community and promote the ideas which are represented in it into people's lives. Find out more here.
Fathers perspectives of perinatal OCD
Are you a father whose partner has experience of perinatal OCD? Is your child under 3 years old?
A project seeks to recruit around 6-8 fathers over the next few months to attend an informal 45-mins interview with lead researcher Joe Poole, where he'll ask some questions about their experiences of being a father when their partner has OCD.
The research team is hoping that they might be able to understand these experiences more and then hopefully inform NHS services which is where Joe works
It's a unique study as it's not been explored before. There has been some research previously on fathers' experiences of post-natal depression and postpartum psychosis, however, nothing on OCD and the unique aspects of this experience.
Interviews will be anonymised and will take place either face to face in London or Coventry, or over Skype (England and Wales only).
To receive a participant information sheet and a consent form, please get in touch with Joe by email ( firstname.lastname@example.org
) or phone through the Clinical Psychology Office number: 024 7765 8328 and leave a message with a member of the admin team.
The end date for the project is May 2018 at which point the project is submitted to be assessed. It will be around this time when a summary of the project will be sent out to any participants who would like this.
Fitness In Mind Brentwood - new FREE 12 week course
It's not easy getting active when you're not feeling great. Fitness In Mind has developed a 12 week course that is completely FREE (with a value worth over £360!) for anyone aged 16 and upwards, and you don’t need any level of fitness to take part.
Fitness In Mind Brentwood
provides a unique environment where physical activity and peer support work together for better mental, physical and social welbeing.
HOW TO REGISTER
Step 1. Visit the website
Step 2. Select your 12 week course
Step 3. Click Register
Once completed a member of the team will be in touch to confirm your registration and help answer any questions.
Thinking about patients stories
This half-day workshop will follow the unconference format. Possible themes include: sources of patient experiences; methodological concerns; quality improvement, assurance and monitoring; techniques, tools; machine learning, big data; the dangers of summarising stories and losing their meaning; stories as activism vs fig leaves.
James Munro, Patient Opinion
André Tomlin and Douglas Badenoch, Minervation
Peer Work Leadership Statement of Intent
A National Professional Association for Mental Health Peer Workers
Peer work leaders from Queensland, Victoria and NSW and colleagues from the USA participated in an International Initiative for Mental Health Leadership match in Brisbane on 27 and 28 February 2017.
The Australian peer work leaders resolved to issue a ‘Statement of Intent’ that would communicate our intention to form a national professional association for the Australian mental health
consumer peer workforce. We feel that such statement is necessary to provide the focus for national consultations to occur that will lead to the development of a peer-run organisation that can support and sustain the development of the peer workforce across all sectors.
The ‘Statement of Intent’ is supported by the international peer work leaders who attended the match – Gary J Parker, Executive Director, Kansas Consumer Advisory Council for Adult Mental Health and Sherry Tucker, Executive Director, Georgia Mental Health Consumer Network. Both Kansas and Georgia offer certified peer specialist training, certification and support.
View the Statement of Intent in full
IIMHL encourages current or emerging national Peer Support organizations from other IIMHL and non IIMHL countries to email Tim Heffernan direct as this might be a great opportunity to build an international partnership.
HEAR Equality and Human Rights Network FREE events and campaigns
1. HEAR at Refugee Week - 20th June, 9.30am-3.30pm
Next week is Refugee Week. HEAR will have a stall at Islington Refugee Forum's refugee week event, 20th June, 9.30-3.30, Assembly Town Hall, Islington Assembly Hall, Upper Street, London, N1 2UD. We will be promoting our briefings on the rights and entitlements of disabled asylum seekers and refugees; protections for disabled people 'trump' immigration law
2. HEAR FREE LGBTQI Diversity event - Still unheard Out There - 30th June, 1pm-5pm
During Pride in London fortnight HEAR is holding an event: Still unheard Out There - Making Rainbows through the Prism of LGBTQI+ Diversity at LVSC, 200a Pentonville Road, N1 9JP.
Speakers include Intersex UK, Micro Rainbow International, Rainbow Head Youth, UK Lesbian and Gay Immigration Group and Bisexual campaigners. To book your place email HEARcampaigns@reap.org.uk
3. HEAR at REAP event - What is Refuge? - 6th July, 9.30am-4pm
HEAR Policy and Campaigns hosts, Refugees in Effective and Active Partnership (REAP), are running another of their hughly successful refugee and migrant networking conferences.
Thurs 6th July 2017, (9.30) 10.00 – 4.00,
HEAR will be hosting a number of sessions as part of the day including on Hate Crime, Refugee mental health support rights and The Way Ahead for London's Voluntary sector.
TO BOOK email email@example.com with your name/s, role, organisation, any access needs.
4. HEAR Pan-equality Hate Crime Network, Charities Challenging Hate Crime - 2nd August
The next meeting of HEARs Pan-equality Hate Crime Network will be open to VCS and statutory stakeholders
2nd August 2017, at Real DPO, Jack Dash House, 2 Lawn House Cl, Isle of Dogs, London E14 9YQ
We ask members to invite their local statutory and VCS contacts. For more information or to book your place email HEARCampaigns@reap.org.uk
5. HEAR intersectional resources webpage
HEAR are updating our website and have started to add resources. Visit the resources page on www.HEARequality.org.uk or via www.tinyurl.com/HEARresources More coming soon. If you’ve got a resource you want to share with HEAR members please get in touch HEARcampaigns@reap.org.uk
6. HEAR Disabled Asylum Seekers Refugees future priorities?
HEAR's Expert User Group for Disabled Asylum Seekers and Refugees met this week. We discussed priorities for future work. To join the discussion please join the googlegroup Disabled Refugees or email HEARCampaigns@gmail.com
7. MOPAC survey - 22nd June DEADLINE
The Mayor’s Office for Police and Crime (MOPAC) is undertaking consultation with key stakeholders to help inform the development of a Victims’ website for London. They would therefore like to get the active input from the LVSC Safer Future Communities Victims’ Services Alliance group, and other organisations that would want to contribute. An online survey
for stakeholders has been created - closing date is Thu 22nd June. Contact Ade at LVSC if you have any questions.
8. The ‘Chandra’s London’ Exhibition - 22nd June, 6.30pm-9pm
The ‘Chandra’s London’ Exhibition - 22nd June, 6.30pm-9pm, City Hall The Queen’s Walk. SE1 2AA
‘Chandra's London’ is a photodocumentary of the life of the city. Much is unplanned street photography, some work is based on special access. The photostory is being used by children and young people in schools in London and across the UK as part of a project to explore, and challenge hate crime and build cohesion/integration. Some of the young people involved will be at the event to introduce you to the story. T For more information on the event see document attached or about Heartstone, visit the website.
NHS England publishes new involvement guidance
There are two new sets of guidance, and a wealth of web based resources and best practice, together supersede the original ‘Transforming Participation in Health and Care’ guidance, which was published in 2013.
In response to user feedback, elements of the original guidance have been retained and new features introduced, including a greater focus on people with the greatest health needs, and information on the practicalities of involvement.
To access the resources, please