NSUN 16th May 2016


NSUN news

Member Blogs

e-CPR, a health promotion approachDan Fisher 's passion has been to support people on their journey to becoming experts by experience.  Recently, he has been promoting peer-run crisis respite alternatives to hospitalization. He has also helped develop emotional CPR, a program teaching community members how to help each other through an emotional crisis.  In this article originally published by Mad In America, Dan Fisher provides full information about eCPR, which was designed to teach people to assist others through emotional crisis through three steps: C = connecting, P = emPowering, and R = revitalizing. eCPR recognizes that the experiences of trauma, emotional crisis, and emotional distress are universal; they can happen to anyone, at anytime, anywhere.

Annual Gathering 2016 - Birmingham 8 June

We are inviting all members to join the team for our annual gathering to take place in Birmingham on 8 June 2016. The theme this year is 'Thrive, Building for a better  future'. The event will also see the launch of the Shaping Our Lives report ‘From mental illness to a social model of madness and distress’. Booking essential. Please visit this page

Co-produced Innovation in Mental Health: call for social innovation examples and event 15 June

Social Care Strategic Network (SCSN) and the National Survivor User Network (NSUN) are looking for practical examples of where people using services have been involved in the co-production of innovative social approaches to mental health from across the country.

SCSN and NSUN Co-Produced Conference 'Co-produced Innovation in Mental Health' will be taking place 
Date: Wednesday 15 June 
Time: 9.30 to 4.30
Venue: Indian YMCA,  41 Fitzroy Square, Fitzrovia, London, W1T 6AQ

To book and find out more click here. Download the flyer here.

#NSUNthrive10 campaign

It is 10 years since the 'Doing it for ourselves’ service user conference in Birmingham.  It was at this conference in 2006 that the vision of the National Survivor User Network (NSUN) was taken forward, leading to funding in 2007 and becoming a fully independent organisation in May 2010.

We have survived!  To enable us to continue to connect, communicate and influence, we need your help. We want to continue to communicate weekly with over 5000 people. Please spread the word to help raise funds to continue our work through our #NSUNthrive10 campaign. You can also raise money by shopping online with the  Giving Machine


Previously shared information available online

Please visit our website to find involvement opportunities, jobs and events we shared in previous e-bulletins. This includes our guides to support involvement in reducing the use of restraint in mental health settings.


Keeping control: Participants needed for research project

Keeping Control: Exploring mental health service user perspectives on targeted violence and hostility in the context of adult safeguarding

Middlesex University is looking for 30 participants aged 18 years and up for a user-led study exploring service user experiences of being victimized because of their mental health problems and what adult safeguarding should do.

The research is exploring what people with mental health problems think and feel about abuse and staying safe from harm. The organisers want to learn from you so that the process of 'adult safeguarding' will work better for people with mental health problems and support them to stay safe. 

The researchers would particularly like to hear from marginalised voices: people from black and minority ethnic communities, lesbian, gay and bisexual people, transgender people and disabled people.

Each interview participant will receive a £10 voucher as a token of thanks.

if you are interested in being interviewed please download and complete the recruitment monitoring form at the project webpage.

The information you give on this form will remain strictly confidential but it will help to monitor and plan research interviews so as to include people from a wide range of backgrounds.

The recruitment deadline is 13 June 2016.

If you have any questions about the research please email the researchers


"Mental Snapp is a service user led innovation in mental health using video diaries as a means of managing and monitoring mental health. They have been given funding by the Paul Hamlyn Foundation and UnLtd to develop a prototype, which will be ready in the autumn. To take it to the next level, they would like to pitch the business and have entered a competition, VOOM, run by Virgin, to get cash, kudos and credentials.

They need to be in the top 80 businesses in terms of the public vote to get selected for the second round. At the moment, they have nearly 200 votes, but need to get to 500 to be selected. It's a tough push to get to the next stage and they're calling on the wider mental health community.

Please click  here and vote - there are sharing buttons so you can share it on Facebook and Twitter too. Please vote, let’s get mental health up the innovation agenda! 

Greenwich Book Festival

Dates:  26th-28th May

Location: Old Royal Naval College Greenwich

The Greenwich Book Festival has a great programme for everyone, grown ups and children.

Mental health in literature is high on the agenda, featuring Alex Pheby's Wellcome-nominated book, as well as other lauded books...

Take a look at what events are on here.

Events include 'Reality Skewed: Inside characters who see things differently'

Come down!"


Conference: Mental Health and Cultural Diversity

  • Leicester, 22 - 24 June, Devonshire Place Leicester, 78 London Road, Leicester, LE2 ORA
  • Day 1 8:30am - 7pm, day 2 8am - 7pm, day 3 8am - 3pm
  • Day 1 followed by civic reception and arts performance, day 2 followed by conference dinner, day 3 followed by closing ceremony

NSUN is among the sponsors of this conference, which aims at discussing and debating a range of appropriate and acceptable services for people from diverse cultural communities around the world.

For more information, including a full programe, themes, speakers and registration links, please click here

Please note that registration closes on 10 June.


Basildon based DIAL needs your help

DIAL (Disability Information and Advice) Need your help, they recently lost vital funding to provide vital and much needed welfare rights services within the Basildon Borough.
You Can help now!!
They have set up a Croudfunder site and you can now pledge vital funds to help them and the Disabled Community in Basildon.
Its so easy all you do is follow this link  and Pledge some cash.
This is so important with cuts in Disability benefits people need advice and guidance and in some cases there is nowhere to turn too, but in Basildon DIAL helps these people unlock vital advice and helps them move forward.


CALL – participate in focus groups on your workplace and mental health

Do you experience mental health problems at work? Or, do you manage someone who experiences mental health problems at work? Or, are you an HR lead working with people with mental health problems at work?

The Mental Health Foundation is working with employee benefits specialist UNUM to carry out research on workplace mental health. We are looking to understand how we can better recognise, address and prevent mental health problems in work and through work. We are interested to learn more about what support both people with mental health problems and employers need to keep people well in work.

We would like to invite you to take part in a focus group with peers to share your experiences in this area. We will be organising separate focus groups for:

  • People who experience mental health problems in work
  • Line managers

Aside from the focus groups, we also offer the option to take part in a brief telephone interview.

We are also looking to speak with HR leads and heads of HR departments to discuss wellbeing policies and effective strategies to improve mental health.

Focus groups will take place in central London (London Bridge) in the last two weeks of May, and will last up to one hour. You will be reimbursed for your time with £5 and your travel expenses will be covered.

Taking part in a focus group is  confidential and any personal details will be anonymised and will not be passed on to any third parties.

Your participation will help gain insight into mental health at work, address stigma, increase help seeking and promote recovery.

If this sounds like you and you are interested in being involved, please call or email Lauren Chakkalackal, Senior Research Officer at the Mental Health Foundation, lchakkalackal@mentalhealth.org.uk  (phone: 020 7803 1187) with your contact details including your name, telephone number and an ideal time for us to call you back.

We look forward to hearing from you!


The Oxford Academic Health Science Network is running a leadership development programme  which focuses on developing collaborative leadership with patients, carers and the public. It is being run by The Performance Coach.

What is the Leading Together Programme?
Applications are invited from clinicians, researchers and managers, patients, carers and members of the public to be part of an innovative new programme that brings together members of the public and healthcare professionals to develop local leadership - the Programme is free of charge

What do I need to participate?
To take part, you will need some previous leadership experience and permission from your organisation/line manager to release your time and cover your travel expenses. We will pay for travel expenses for lay partners. The Programme will run as three, all day workshops held over three months; you will need to commit to all three sessions.

Are there any spaces available?
Yes! See below for the list of cohorts and spaces we have remaining:

  • Surrey Borders (Crawley). Workshops on 07 June, 05 July and 15 September. Lay Partner spaces available. Please apply by Friday 13 May.
  • Buckinghamshire and Milton Keynes (Aylesbury). Workshops on 16 June, 12 July and 14 September. Professional and lay partner spaces available. Please apply by Friday 13 May.
  • Berkshire (Reading). Workshops on 19 July, 13 September and 04 October. Professional and lay partner spaces available. Please apply by Thursday 26 May.

Find out more about the Leading Together Programme here.

Email for an application form and further information.

The Programme is funded by NHS England, Oxford Academic Health Science Network and Health Education Thames Valley, and run by The Performance Coach.


Introduction to co-production training

As part of the build up to National Co-production week 4 8th July, the Social Care Institute of Excellence (SCIE) is running an Introduction to co-production training:

Thursday 30 June 10am – 4pm in London

This one day interactive training session will enable participants to:

  • understand what co-production is
  • understand the difference between co-production and engagement, participation and involvement
  • identify the principles of co-production
  • identify some of the barriers to meaningful co-production
  • improve knowledge and confidence about how to put co-production into practice

Full details are here.


West London Collaborative are incredibly excited to bring you another co-produced event designed to disrupt thinking and catalyse change...

Date:  8th June
Time: 9.30am - 5pm
Venue: St Paul's Church, Hammersmith

Join Cormac Russell, West London Collaborative and West London Mental Health NHS Trust to ask where does love come in to a mental health crisis? What role does the provider play and what’s the role of the community?

After working with us on our launch event "My Mad Idea" at Chelsea Football Club last year, Cormac Russell is back to join us for another great event. Cormac Russell is Managing Director of Nurture Development and a faculty member of the Asset Based Community Development (ABCD) Institute at Northwestern University, Chicago. He has trained communities, agencies, NGOs and governments in ABCD and other strengths based approaches in Kenya, Southern Sudan, South Africa, the UK, Ireland, Canada and Australia.

Please book here to avoid disappointment! 


NCVO: upcoming event and training sessions

The National Council for Voluntary Organisations (NCVO) is planning Volunteers Weeks as well as a series of training sessiond

Volunteers Week

With more time to celebrate during this year’s Volunteers’ Week, 1-12 June, NCVO is getting ready for the big celebration – and would love you to get involved:

Training and events

View all training and events for 2016.


Stories of being: arts and mental health festival

18 to 22 May in London.

A series of informative, insightful and inspiring theatre, poetry and music performances, workshops, talks, installations and short films. Stories of Being aims to open up new creative discourses around subjects related to mental health and wellbeing - and encourage audiences to continue these conversations after the event.

For more information and what's on, please visit the festival's website


Mental health: forward thinking, delivering the strategy

15 September, 8:30 am - 4:45pm, America Square Conference Centre, London

Mental health funding is still lagging behind: As reported by the Guardian, New research undertaken by NHS Providers and the Healthcare Financial Management Association 'found that only half of the 32 mental health trusts they spoke to – 55% of the total – had received a real-terms increase in their budgets in 2015-16'.

Mental Health: Forward Thinking – Delivering the Strategy is about learning how recent recommendations will be hardwired into how care is commissioned, funded, delivered and inspected across the whole of the NHS and wider public sector.

To find out who the speakers are, read the full conference agenda and register, please take a look at the conference website


Research: the effects of the Prevent Agenda in the Health and Education Sectors

Amrit Singh, a human rights lawyer at the Open Society Justice Initiative is researching (from a human rights perspective) the effects of Prevent in the health and education sectors with a view to producing a report/briefing papers on the subject that could be used to advocate for reform.

Specifically, she would like to examine how the statutory duty under Prevent is being applied in the health and education sectors, what kinds of training medical and education professionals are receiving, and how Prevent is being applied in practice, who is being referred and on what basis, and with what effect on the community.

She would like to interview health and education professionals as well as others with expertise on the subject or families directly affected by Prevent about their experiences of Prevent. She is happy to anonymize the interviews so the identities of the interviewees are not revealed in the report/briefing papers.

Please email Amrit to arrange to meet in person a a convenient time and place for an informal conversation about your experiences of Prevent.

The full Prevent Agenda (government publication) is available online here


MacMillan's 3rd engagement event for mental health and cancer taskforce

Have you had cancer and found that the experience impacted on your emotional and mental health? Or perhaps you had pre-existing mental health problems and then developed cancer as well? Have you cared for or supported someone who experienced both cancer and mental health problems?

MacMillan are holding a co-design and partnership event for people affected by both cancer and mental health problems to come together with Macmillan staff and healthcare professionals to better define the problems faced by people with this dual lived experience and to co-design solutions to these problems.

The event will be structured and interactive, but led by the views and input of those attending. Lunch and refreshments will be provided free. The venue is fully accessible.

Where: 3mins walk from Euston Station, London, NW1

When: Wednesday 20th July, 10.00am – 4.00pm

Maximum number of places: 30 people

For more details and how to get in touch to take part, please visit here


Vacancy: Washington Mind

Admin/Systems Manager
Salary:  £22,937 - £24,472
Hours: 37 Hours (full time)

Washington Mind Executive Committee of Washington Mind are wishing to appoint an experienced and highly dedicated Life House Admin Manager.
The successful applicant will work in partnership with the Business Support Manager and the rest of the Washington Mind team to ensure the Life House is well-resourced, working at full capacity and meeting the needs of the local community. The role will involve managing office functions to ensure an effective service delivery and being responsible for the management and analysis of statistical data.  

Learn more about Washington Mind here!

N.B. All applications should be sent to info@washingtonmind.org.uk by Noon Tuesday 24th May 2016.  Interviews will take place on  Wednesday 1st June.

No handwritten or postal applications will be considered. 


National Voices news

National Voices Trustee Nominations
A reminder that nominations for two Trustee positions on our Board are now open. For more information, see the website or contact Michael. The deadline is 19 May - after that, voting is electronic and will be open from 22 May until 12 June.

Realising the Value workshop: 'Unlocking Change from the Outside'
Wellbeing Our Way and Positively UK are running a series of workshops as an opportunity for attendees to shape upcoming guides from Realising the Value. The next workshop is about a guide aimed at voluntary and community groups and campaigners seeking to influence policy and commissioning.

The workshop is on Tuesday 14 June, 1-3pm. Venue TBC but it will be in central London. Go to our website to find out more, or contact Natalie



DH non executive appointments

Information about non executive appointments to the Department of Health's public bodies and committees.

Public Health England is being reviewed

This tailored review looks at PHE’s performance and effectiveness, efficiency, and governance. The Department of Health wants to know what you think about:

  • whether PHE performs necessary functions
  • whether these functions are delivered effectively
  • how issues are prioritised and how well PHE performs
  • whether PHE is efficient and provides good value for money
  • whether the governance processes are appropriate and effective

You can respond online or by mail until 24 June 11:45pm

EU membership referendum

UK nationals can vote in this referendum due to take place on 23 June. To find out more and how to register, please visit this page.

What 'Brexit' would mean for people with disabilities

Commonly known as 'Brexit', leaving the EU would have dire consequences for people who live with one or several disabilities in the UK, whether they are UK nationals or not. Please read more here and here