LAST CHANCE to participate in shaping NSUN - take our members' survey
We are seeking the views of members in order to evaluate our work and plan the coming year's priorities. Comments will remain anonymous. Your input is really valuable as it will help us to find out what we are doing well and identify the areas that we can improve on as an organisation. Your data will be stored until we have completed our annual evaluation work. We anticipate that this will be in August 2017.
We would like to thank you in advance for taking the time time to complete this survey. It will take approximately 10 minutes.
The pressure to recover in mental health services
- a blogger made to feel they had 'failed to recover'.
Mental health is different for people of colour
says Dom Chatterjee , who writes on the 'white-centricism of mental health', as well as on the commercialisation / appropriation of cultural practices such as yoga and on the socially created connection between wellbeing and productivity.
The extent to which service users are listened to remains patchy
As the Guardian hails 'designed by patients, the mental health centre saving the NHS £300,000 a year', Sarah Yiannoullou, NSUN Managing Director, reminds all of the
uneven context this success belongs to.
Rachel Waddingham in the Independent
'Yes, I hear voices and have been diagnosed with psychosis – but no, I don't want you to call me mentally ill'.
Read the full article here.
Support NSUN as you shop online
We are a registered cause on the Giving Machine site. This means people can choose to raise money for us when they shop online. Simply click on the
NSUN page then click the Join and Support this cause button. Donating this way does not increase the cost of your shopping.
Call for blogging contributors
Share experiences, suggestions and opinions with e-bulletin readers, website visitors and social media friends. To get an idea of the variety of topics and points of view, please visit our
blogs section. To send a blog, please email the editor.
Get introduced to NSUN in 3 Minutes
The three minutes video is here.
Members' Manifesto 2017 launched
Our Members' Manifesto 2017 'Our voice, our vision, our values' draws on feedback from our AGM and members' event (June 2016), priority issues identified by members in our annual survey and responses from members to a direct request asking what should be in NSUN’s manifesto.
Important: non NSUN materials in the e-bulletin
Below NSUN news, features concern events, job opportunities, research, groups, etc, which are not ran by us, unless clearly stated. Details are sent to us by contacts who wish to spread word about their activities. Whenever possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions and features by you, please email the editor
and the general info mailbox. Please remember that sharing is not endorsing.
Peer-led groups accuse Conservatives of hypocrisy over mental health promises
User-led groups Recovery in the Bin and the Mental Health Resistance Network have accused
the Conservative party of “hypocrisy” after it promised to end the “burning injustices” facing mental health service-users.
Both groups pointed out that Conservative social security policies, including the coercion and bullying of benefit claimants, had created and worsened mental distress.
They added that the party had been responsible for years of drastic cuts to mental health services.
NSUN expressed similar views when we commented on the Prime Minister 'burning injustices' speech.
Inquest for Olaseni Lewis concluded
Olaseni Lewis passed out while being restrained and was transferred to hospital, where he died on 3 September 2010. Olaseni, 23, had voluntarily admitted himself into Bethlem Royal Hospital, Beckenham, for mental health treatment on 31 August 2010.
On 9 May 2017 the Jury ruled:
"The excessive force, pain compliance techniques and multiple mechanical restraints were disproportionate and unreasonable. On the balance of probability, this contributed to the cause of death."
Read more on the Justice for Seni
Also, the BBC and Evening Standard news report, the Metropolitan Police statement and IPCC response.
Disability commissioner role scrapped
“It is almost unbelievable that the government has been able to get away with it.” ~ Sir Bert Massie, chair of the Disability Rights Commission throughout its existence.
The decision to scrap the role of disability commissioner at the Equality and Human Rights Commission (EHRC) will make it harder for the watchdog to stand up to attacks on disabled people’s rights, according to two former commissioners.
Disability News Service (DNS)
reported last week
that the minister for women and equalities, Justine Greening, had appointed another disabled Tory peer, Lord Shinkwin, as a new EHRC commissioner, but not as the disability commissioner.
This was despite the minister telling candidates last year that the disabled person appointed to the role would “act as the Commission’s Disability Commissioner”
EHRC’s first disability commissioner , Baroness Campbell, said: “I think it is still important to have a disability commissioner because,
as the House of Lords reported on last year, the EHRC needs to be more proactive in protecting and promoting equality for disabled people.... “I think this a rash decision and it surprised me. I wonder what their rationale is, especially at a time when
we are witnessing the rights of disabled people retrogressing in so many areas.”
Last week, the EHRC refused to answer questions about what had happened to the disability commissioner role because it was “a government appointment”
More on this from Shaping Our Lives.
Father's plea to save the Human Rights Act which helped him bring his son home
'My name is Mark Neary and without the Human Rights Act and European Convention on Human Rights (ECHR), I don’t know where my autistic son Steven would be today. After the council wrongly took him away, the Act helped me bring Steven home. '
To read Mark's statement an sign th petition, please visit here
Poetry workshops by Survivor Poets
Would you like to express yourself through poetry? Survivors Poetry has been funded to provide a series of free workshops with three award winning poets in June and July. Refreshments and materials provided. Travel expenses paid.
Date: June - July 2017. exact dates TBA
Location: Where: Chalkhill community centre, 113 Chalkhill Rd, Wembley HA9 9FX
To Register: please email or call 07913 532 934
The flyer is on Facebook, please visit here.
RBUF groups meetings - this week
Rochdale based RBUF run regular group meetings. This is this week's agenda
Tuesday 16th May - Craft Group, 2pm-4pm again at The Samaritans, 5 Caton St, Rochdale, OL16 1QJ
Wednesday 17th May
- IDAHOBiT – International Day Against Homophobia, Biphobia, Transphobia. There will be a small multi-agency info day event at Number One Riverside, 10am – 2pm.
Thursday 18th May – LGBT Coffee morning 10:30am – 12:30pm at The Loft Café in Middleton (1st
floor of the shopping centre)
If you'd like RBUF to consider other activities, please contact: Adrian Palmer – Volunteer Coordinator
'Do You Mind' campaign needs you
The "Do You Mind?"
campaign is being undertaken to draw attention to the serious shortfall in provision of mental health services in Cheshire East.
It's about lobbying together for an improvement in funding and service provision, not more cuts. You can help by
signing the petition, sharing your story, making a video.
You do not have to be based in Cheshire to support this campaign, which reflects difficulties encountered all over the country. If this campaign gets backing and progresses well, it will inspire other initiatives.
For background information and more about the campaign, please visit the website here
New peer to peer health community platform online
Health Unlocked is a peer to peer social network for health which aims at helping you find others with similar health backgrounds . The website has 500 communities set up by leading health organisations as well as a blog platform.
National Co-production Week 2017
3 to 7 July 2017, organised by SCIE
will celebrate the benefits of co-production, share good practice and highlight the contribution of people who use services and carers to developing better public services.
If you are planning to hold an event, have an example to share or have any questions about National Co-production Week, please email SCIE
or tweet them on #coproweek.
SCIE's Co-production Week activities:
- Second annual Co-production Festival on 5 July in London
featuring the well-known comedian Francesca Martinez. The festival is for members of SCIE's Co-production Network but there are a very limited number of places for guests (contact us if you are interested).
- Co-production training, a webinar, a Twitter event and many other activities.
for more information, including videos and highlights from last year's co-production week, please visit this page
Updating and expanding the Mapping Exclusion Report
As part of the revision of the Mapping Exclusion Report
pubished 2012, a section entitled ‘Understanding Exclusion’ will give the perspective of persons with lived experience of institutionalisation, forced placement and treatment and seclusion and restraint.
In order to gather experiences for this section, Mental Health Europe
(MHE) along with research partners at the Tizard Centre (including former MHE Staff Member Gabor Petri), have prepared a call for participants and an online form where they can share their story.
The survey and information sheet can be found here. The online submission form is very simple, totally anonymous and is designed in a way which allows people to share their stories as they wish.
The information sheet
for the call for participants provides all the background information and informs interested participants about the scope of the projects, as well as their rights.
People interested in sharing their story can:
- Get in contact with MHE to ask to be interviewed by one of the researchers or MHE staff, most likely via telephone or Skype or in person depending where they live;
- Submit a written anonymous testimony on-line either in English or in the language they prefer (replies in other languages will then by translated by the University of Kent
in a way that respects the privacy of applicants).
Anonymous testimonies can be sent on-line until 15 June 2017.
Time to Change
is releasing new research showing that people are more likely than ever before to say they are happy to work, live and continue a relationship with someone with a mental health problem.
Overall, people’s willingness to have contact with someone with a mental health problem has improved by 11% since 2009. Attitudes towards those of us with mental health problems have also improved by 9.6% in the same period.
This means that, since Time to Change began, around 4.1 million people have improved attitudes.
We know that for many people, being judged and isolated can be harder than the mental health problem itself, so this is really encouraging.
There’s still a long way to go until everyone with a mental health problem gets the support they need. But we’re moving in the right direction. Thank you for being part of the movement.
Read the full press release.
Radical change or warm sentiments?
Read Alison Faulkner's Radical change or warm sentiments? A commentary on Gronholm et al. (2017) Interventions to reduce discrimination and stigma: the state of the art here.
Celebrity announcers take over C4 continuity for mental health awareness
Channel 4’s Continuity Creative Managers partnered with Mind, one of the leading mental health charities in England and Wales, to promote the week which aims to raise public awareness about mental health issues and encourage viewers to talk and seek help for their own mental health problems.
Read more here.
Theatre of Debate film: 'People are Messy' film screening and research fair.
The National Institute for Health Research in collaboration with the Clinical Research Network North West Coast are pleased to invite you to ‘People are messy’. This is an opportunity to showcase the diversity of health and social care research, how you can get involved in research, and the benefits it brings to patients and the public.
The event will begin with the film screening of ‘People are Messy’, a Theatre of Debate production which shows the dramatisation of patient and public involvement within
health research. This will be followed by an interactive session involving a structured Q&A where the audience will be asked to participate and contribute to a national survey. There will be an opportunity to find out about local initiatives and how you can get involved in health research. Please note, the film is hard-hitting and contains mild language.
Manchester - BOOK HERE
Date: Wednesday 14th June 2017
Venue: The Nowgen Centre Events, 29 Grafton Street, Manchester M13 9WU
Time: 10.30 – 14.00
Liverpool - BOOK HERE
Date: Friday 16th June 2017
Venue: Education Centre & Lecture Theatre at the Royal Liverpool & Broadgreen University Hospitals NHS Trust, Prescot St, Liverpool, L7 8XP
Time: 12.30 – 16.30
Tickets are free but limited.
This is a fantastic opportunity for the public to see a highly rated film about how patients and the public can make our health research better and have an opportunity to contribute to a debate on the subject
For questions and more information, please email Maria Boswell, CRN NWC Patient, Public Involvement & Engagement Lead, or call 0151 331 5125 / 07818014804.
Stepping Stones to Volunteering (Harrow London)
Gain the skills, knowledge and self-belief to step into volunteering
A three session course in June 2017 covering the foundation skills, knowledge and self-care principles to become a volunteer.
At the end of the course participants will be offered on-going support to access volunteering opportunities with Mind in Harrow and other local organisations.
Enrolment Friday June 9th, 11am at Mind in Harrow
Course dates Friday June 16th, 23rd, 30th at Mind in Harrow
To express an interest and receive a course information pack contact Emily Danby by email or call 020 8515 7879.
Digital technology and mental health: asking the right questions
Online support groups, smartphone apps, computer games, virtual reality, virtual therapists, robots….so many big ideas emerging about how digital technology can be used for mental health. But what’s the best way to use the technology?
The ‘Asking the right questions’ project aims to decide the 10 most pressing questions about digital technology for mental health and share these with researchers so that future research targets these priorities. To make sure they are
grounded in the everyday experience of mental health, these questions will come from people with personal experience of mental health problems and health and social professionals.
Working with the James Lind Alliance and using their established methodology, the project needs your input. Take part in our online survey
during Spring 2017 - it will only take a few minutes!
What will happen after the survey closes
There will be a cross-checking exercise, then final top ten questions will be published in December 2017.
This short film
explains why the research world needs your help to understand the most pressing questions about using digital technology to look after our mental health:
Keep up to date with the project by emailing Lucy Simons, the project coordinator.
Extremely challenging times for disabled minorities
Mental Health cuts are driving people to the edge
Mark Winstanley, head of the Rethink Mental Illness charity, urges
the Conservative government to act on its funding promises and prioritise mental health
Inquest hears of tragic suicide triggered by benefit cut
A 67 year old disabled man set himself on fire outside a job centre after his benefits were cut, an inquest heard
last week. Peter Sherwood told a mental health team about his intention to kill himself just hours before doing it. Unfortunately, Peter’s case is far from unique.
Lower benefit cap sees income slashed for more than 10,000 disabled people
More than 10,000 disabled people have had their benefits
slashed in just one month, after the government introduced a new, lower cap on the total benefits that any non-working household can receive.
Health cuts most likely cause of major rise in mortality, study claims
Government rebuts verdict that NHS and social care cuts may have caused 30,000 excess deaths
in England and Wales 2015
UN report on maltreatment of the disabled community
Published at the end of last year and already shared with you, this report comments on a context ever present.
NHS cyber attack
On Friday, a massive ransomware attack hit several institutions around the globe. The NHS was one of them. As the chaos spread, reports sprung that up to 16 NHS trusts had been affected
across the UK including London, North Cumbria, Hertfordshire and Preston. Two days into the crisis, the British Medical Association said that 'a total of 45 NHS organisations, including hospitals, GP surgeries and dental practices, had reportedly been affected by the attack, which saw NHS data being targeted by ransomware.' Declaring the cyber attack 'isolated'
in Scotland, Health Secretary Shona Robison said there was 'no evidence that patient data had been compromised '.
Health Secretary Jeremy Hunt has been accused of ignoring “extensive warning signs” that could have prevented an unprecedented global cyber-attack which has plunged the NHS into chaos.
It is 10 years since the 'Doing it for ourselves’ service user conference in Birmingham. It was at this conference in 2006 that the vision of the National Survivor User Network (NSUN) was taken forward, leading to funding in 2007 and becoming a fully independent organisation in May 2010.
We have survived! To enable us to continue to connect, communicate and influence, we need your help. Please spread the word to help raise funds to continue our work through our #NSUNthrive10 campaign. You can also raise money by shopping online with the Giving Machine