NSUN 13th August 2018

NSUN Bulletin Monday 13 August 2018
National Survivor User Network NSUN, network for mental health
NSUN Bulletin Monday 13 August 2018
Table of Contents
Dear Viewpoint
Welcome to the 13 August edition of our weekly ebulletin that contains lots of updates, news and views.
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
NSUN News 
NSUN Members Event and Annual General Meeting - Save the date!
This year we will be holding our annual members' event in Derby with the theme 'The Future of Peer Support'.
Date: Thursday 25 October 2018
Time: 10am-10.15am arrival 4.30pm finish
Venue: The Roundhouse,  Roundhouse Road, Pride Park, Derby DE24 8JE
This year we will be focusing on the future of Peer (mutual) Support. What do we want to see happen in five years’ time and what are our national priorities for getting there?
More information will be sent out in the coming weeks but if you would like to secure your place please email info@nsun.org.uk with the subject title Members Event 25.10.18 booking.
Watch the videos of the member Soap Boxes from our 2017 event on our YouTube channel.
UPDATED 'Get to know NSUN in 3 minutes'
You can view the video here, updated with our new logo and website. Please do share!
Influence the production of guidance for therapists
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
For more information about the project and how to get involved, please click here
mental health act review
Help us lobby the Mental Health Act Review
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups.
Can you help with suggestions? To get involved, please click here 
NSUN London Leaders Digital Lab: summer 2018 
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NSUN invites representatives from user-led member groups across London to a FREE networking, sharing and design programme.
NSUN invites representatives from user-led member groups across London to a free networking, sharing and design programme on:
  • Tuesday 4th Sept 10-3
  • Wednesday 5th Sept 10-3
  • Thursday 6th Sept 10-3
Each day will run from 10:30am – 3pm.
The programme responds to feedback from the membership who have expressed the need for more opportunities to strengthen the user voice pan-London and will involve experience-based co-design. N.B. No previous experience of design or digital technology is needed. The programme will include six participatory workshops with the following themes:
  • Finding and amplifying your voice: the personal is political, collective power, leadership styles.
  • Creative influencing and campaigning: exploring local vs London-wide challenges, barriers and opportunities for change.
  • Creative mapping and storytelling with digital tools
  • Co-production and design for collective action: 4PI National Involvement Standards
A networking and workshop taster day will be held on Thursday 30th August 2-4 where you will be invited to shape the programme according to your interest’s and preferences.
To register your interest please complete the form here.
Selected blog 
'Mad culture is the music of Daniel Mackler, the cartoons of Auntie Psychiatry, the graphics of Mad Mad Memez, and the artwork of Phoebe Sparrow Wagner. It is Oryx Cohen's Healing Voices and Allie Light's Dialogues With Madwomen.'
The Radical Abolitionist celebrates mad culture, with links to papers and blogs.
Health and social care and LGBT communities inquiry 
LGBT communities health inquiry
Existing evidence shows that health outcomes are generally worse for LGBT people than for the rest of the population.
The Government’s recent survey of 108,000 LGBT people found that many had difficulties accessing healthcare services, some had experienced inappropriate questioning and curiosity from healthcare staff, and that many feel their specific needs are not taken into account in their care.  
This inquiry will consider whether provision is adequate, whether discrimination is still occurring, and what more needs to be done to improve access to health and social care.
More information can be found here
Inappropriate medication and human rights: Simone Aspis discusses the use of the European Convention on Human Rights  
North East together
Simone Aspis is a disabled activist with learning disabilities who is currently acting as an advocate for a person with a learning disability and autism. who is a patient on a psychiatric hospital.
Simone had her article about using the ECHR and other legal provisions in challenging the inappropriate use of psychotic medication for patients with a learning disability, autism or both published in the STOMP magazine.
STOMP stands for stopping over medication of people with a learning disability, autism or both with psychotropic medicines.
It is a national project involving many different organisations which are helping to stop the over use of these medicines. 
STOMP is about helping people to stay.
There is an easy read leaflet about the project and supporting people who take psychotropic medicine. NHS England wrote it with MiXit, a theatre company for people with and without a learning disability, and with help from other people and families.
NHS England commissioned MiXit to do a new play about STOMP which is a great success everywhere it goes.
They also made a short video about it. Read more about STOMP project here.
Coming up, this October: World Mental Health Day 2018 (WMHDAY) 
North Tyneside
The World Federation for Mental Health will be focusing the 2018 WMHDAY campaign on Young People and Mental Health in a Changing World.
The Federation wants to bring attention to the issues our youth and young adults are facing in our world today and begin the conversation around what they need in order to grow up healthy, happy and resilient.
World Mental Health Day was observed for the first time on 10 October 1992.
It was started as an annual activity of the World Federation for Mental Health by the then Deputy Secretary General Richard Hunter.
The day is now officially commemorated every year on 10 October.
Mental health services - have your say 
RethinkDo you want to see mental health services improved?
If so, Rethink would like to hear from you.
If you, or someone you have cared for has used NHS mental health services, please take a few moments to complete this survey.
The survey will take up to 15 minutes to complete.
Please be as frank as possible - you will have the option to remain anonymous. 
Sharing your experience means that Rethink can feed your responses into future NHS England plans. 
It will help them to identify key concerns and prioritise services that best ensure people with mental illness receive the highest quality care and treatment possible.
Share your (good or bad) experiences of CBT in an online group chat 
Change in CBT pojectAmanda Mount is a trainee clinical psychologist studying at the University of East London.
Interested in how clients understand change in therapy, Amanda would like you to advise as to what quetions would be good to ask in research interviews.
This is an opportunity to share your thoughts and contribute to professionals's understanding of the factors that are important in making change.
What is required?
  • 1 hour (maximum 1:30 hour) of your time.
  • Access to Skype - to take part in an online small group discussion (Amanda can help you set up Skype if needed)
  • No personal details about your therapy...unless you want to say.
  • Tuesday 21 August 8pm
  • Age 18+
  • English speaking
  • Had a course of CBT...whether you found it useful or not
Interested? Please contact Amanda by email: u1622889@uel.ac.uk
Join Lambeth Black Thrive 
Black Thrive
Programme Delivery Director,
Lambeth Black Thrive
Location: Brixton, Lambeth with some local travel
Salary: £55,000 
Hours: 37.5 per week
Deadline for applications: Monday 03 September 12 noon
For more information and how to apply , please visit this page
Opportunity: Brexit Civil Society Alliance Co-ordinator 
Unlock Democracy
Employer: Unlock Democracy
Salary: £32,349-£35,132 (£19,409 to £21,079 pro rata)
Hours: 21 hrs per week
Contract: 2 years fixed term
Closing date 16 September, 23:59 .
Interviews will be held on 27 September
The postholder will offer support, information and intelligence to those who feel most removed from the Westminster bubble. It will also make sure that policy makers hear the concerns and experiences of civil society organisations from around the country. This means you will need to be comfortable with regular travel to meetings around the country.
For more information and how to apply, please visit this page
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Care Quality Commission (CQC) news 
Experts by Experience - invitation to tender now live
New contract to deliver Expert by Experience services, starting in 2019. 
Experts by Experience are people who have personal experience of using or caring for someone who uses services we regulate.
During inspections, they speak to people using services and their family or organisations that support them.
They may also observe how the service is delivered and speak to staff. Their findings are used to support the inspectors’ judgments on services and may be included in inspection reports.
CQC are seeking a contractor to continue the delivery of the Experts by Experience programme, so as to have members of the public from diverse backgrounds to take part in inspections and other aspects of CQC's work.
The invitation to tender is now live and more details can be found on the website
If your organisation is interested in applying read more here.
Get plugged in to resources direct from the Care Quality Commission
Did you know that the CQC sends out a monthly bulletin to all  regional stakeholders? 
Information includes latest publications, resources and consultations. 
If you’d like to be added to the distribution list for the monthly bulletin you can fill in your details here.
Mental Health book launch in Oxford 
Emilys Voices
Blackwell's Bookshop in Oxford is hosting a Book Launch for the book 'Emily's Voices' (which Roz V Austin wrote under the pen name Emily Knoll) that will take place from 7 pm to 8.30 pm on Wednesday 19 September 2018.
Roz will be reading passages from the book alongside a talk by Dr Jonathan Gadsby (Research Fellow, School of Nursing, Birmingham City University) on the subject 'Emily's Voices: Conversations'.
Writer Dennis Hamley will be introducing the event.
'Emily's Voices' tells Emily's story of her struggle with hearing voices and her journey through the mental health system.
Emily must find a way of accepting that she hears voices, or she can't be in the world - but it's a confrontation that takes all of her strength and resolve as well as the support of friends and therapists.
Refreshments will be provided, and Roz will be signing copies of her book.
Free places can be booked here
In the news 
NHS in Tory Britain
£100m has been promised "to help people turn their lives around", including support for mental health and addictions, and funding for housing. About £30 million will be spent on mental health help and treatment for substance misuse.
BBC's Holby City to have a mental health special
The BBC has announced plans for a special episode of ‘Holby City’, that will focus on male mental health. several media outlets have commented:
The Guardian
The Independent
Nye Bevan News
Personnel Today
Doncaster Free Press
Games Radar
GOV.UK news 
New Mental Capacity Act (Amendment) Bill introduced
The Government has introduced the new Mental Capacity Act (Amendment) Bill, intended to replace DoLS following the Law Commission’s recent report. The text of the 2nd reading debate can be read and the Bill’s progress tracked here.
The British Institute of Human Rights wrote about the Bill on a blog here.
The Committee stage will begin on 5 September
Mental Health Act Review - August workshops
The review will be running three workshops during August to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The workshops will run from 9.30am-1pm
Reasonable expenses and adjustments can be provided for those attending in a service user or carer capacity.
Places are limited to 100 per event.
For more information and to register, please visit:
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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