Latest News from Shaping Our Lives

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Welcome to the latest Shaping Our Lives Newsletter.

If you have items you would like shared in a future newsletter or stories for our Insight bulletin, please contact us using the email below.

Supporting people with learning disabilities to have positive sexual relationships

Adults with learning disabilities often describe feeling lonely and aspire to have intimate relationships with others. This pre-recorded webinar by Anna Marriot focuses on the ways in which practitioners can work with people with learning disabilities to enable them to fulfil their wishes to have relationships.

This webinar has open access until 30 June.

Webinar - Supporting people with learning disabilities to have positive sexual relationships

Blog - Supporting people with learning disabilities to have positive sexual relationships

NHS Big Tea – 5th July

(From the VCSE Health and Wellbeing Alliance)

The NHS’ birthday is on 5th July and what better way to celebrate one of the nation’s most loved institutions than with a cup of tea?

On and around 5th July, people up and down the country are getting together to raise a cuppa to our beloved NHS and raise funds for NHS charities.

Find out how you can get involved by finding an NHS Charity to support, plan a tea party, make a donation or 'do more'!

NHS big Tea – further information

Peer Leadership Academy – closing date 19th July 2019

(From the VCSE Health and Wellbeing Alliance)

The Personalised Care Group is inviting applications from people with lived experience of personalised approaches to health and social care to participate in a personal development programme.

It aims to build people’s knowledge, skills and confidence so they can play an active role in the personalised care programmes at a national and regional level.

It is being delivered by Peoplehub CIC in collaboration with the NHS England Personalised Care Group

Further information about the Autumn Peer Leadership Academy

The RNIB and Peoples Views survey

RNIB and Peoples Views are looking for blind and partially sighted people aged 45 years to 75 years who have only been registered blind or partially sighted in the last 3 years; and, additionally, people aged 75 years and over who might have been registered for longer (they can take someone 75 years + who has an age related condition).

The RNIB wish to explore how the organisation can better engage with blind and partially sighted people.

The workshop will include a £100 thank you for taking part.

They are also offering support with travel costs and those of a chaperone if required on an individual needs basis.

If you are interested in taking part then please email back with the following required information:



Are you registered as severely sight impaired/partially sighted or with mild sight loss?:

How long have you been registered with sight loss?:

Which best describes your condition - stable / variable;  deteriorating / unsure?:

How familiar are you with the RNIB?:

What is your ethnic background?:

Do you require a chaperone or any additional help attending and participating?:

We would like to send you some additional information prior to event such as agenda and info - are you happy to be contacted by the RNIB?:

In what format would you like to receive this information:

Your phone number:

Email address to respond to the survey

Online Survey for Solutions for the Future of Social Security Benefits System

If you or anyone you know is on welfare benefits in the UK, the below link is an opportunity to give your views and solutions of how you would want the system to look and feel like in the future. This is a rare opportunity so please share this link and be involved in this process.

Online Survey for Solutions for the Future of Social Security Benefits System

Call to Action from Shaping Our Lives:

We would be grateful if you could complete a short survey of seven questions for us.

The University of Worcester and Shaping Our Lives are doing a research project called 'Missing Voices'. It aims to find out if the needs of Disabled people from the Gypsy, Roma and Traveller (GRT) communities are represented by the work of Deaf and Disabled People's Organisations or if the issues they experience are different and need highlighting in other ways.

If you are part of a Deaf and Disabled People's Organisation we would be very grateful if you could complete the following survey:

Including Missing Voices Survey -

The link takes you to the project information page and then requests your consent to continue before taking you to the question page. No personal information is requested and questions ask only if your organisation is involved in any way with the Disabled Gypsy, Roma and Traveller communities. The survey closes on 31st July 2019.

If you require the survey in another format please contact us.

Thank you for taking the time to read this email and we hope you will participate to inform our research.

Including Missing Voices Survey

Disability News Service

Shaping Our Lives has joined up with Disability News Service to bring you the latest news and our archive.

The latest news and our archive


Shaping Our Lives is a leading national user-led organisation that has expertise in the inclusive involvement of people from diverse, seldom heard and marginalised communities, enabling disabled people service users to meaningfully influence policy creating relevant and effective services. Our work has three core elements:
1. Developing, implementing and facilitating inclusive involvement activities.
2. Conducting user-led, experiential and participatory action research.
3. Representing user-led groups nationally

Check out our Resource Library for an index of titles where you can download a number of free documents of particular interest to the service user movement.
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