Tuesday 10th September -Lifegeta Emotional Support Group Monthly Meeting

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DATE FOR YOUR DIARY: TUESDAY 10th September -Lifegeta Emotional Support Group Monthly Meeting (Hitchin Based)

Why not come to Lifegeta Emotional Support Group Monthly Meeting

In September’s meeting we will be asking ‘if you are tired of others making assumptions about what you can do!’

Guest Speaker Maria Meehan from POhWER (People Of hertfordshire Want Equal Rights)

Curious, come and find out what it’s all about!

‘Share your ideas or see what other people do!

Helping people deal with the emotional issues of acquired life-changing conditions or diagnosis

Held at Westmill Community Centre, John Barker Pl, Hitchin SG5 2PG

Times: 7pm till 9pm

Cost: £3 (to cover outgoings non-profit)

Monthly Meeting Dates 2019

  • Tuesday 10th September

  • Tuesday 8th October

  • Tuesday 12th November

  • Tuesday 10th December

 For more details Contact: Sue Ross - sueross@lifegeta.co.uk  Tel 07715 707488

AN EVENING OF JAZZ AND PROSECCO

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Following the success of last year's Jazz & Prosecco evening, we are repeating this popular event on Thursday 3rd October. We will kick off at 8pm here at Trinity Church.

The Beau Sand Ver Jazz Band will be entertaining us again and prosecco, soft drinks and "lite bites" will be served.

Please put the date in your diary and contact us for your tickets. 

Tickets cost just £10 in advance, or £12 on the night.

There will also be a raffle with fabulous prizes including a spa experience and afternoon tea.

All proceeds will support the Day Centre and other courses and activities run by Trinity Community Project.

trinityprojectmanager@gmail.com Tel 01727 838671

1 Beaconsfield Road, St Albans, AL1 3RD

Please click here for the event poster

NSUN Bulletin Monday 19 August

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Welcome to the Monday 19th August 2019 edition of our weekly ebulletin - full of news, views, events, jobs and involvement opportunities. 

Previous bulletins can be viewed here.

Bulletin items

If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at info@nsun.org.uk.

You should write out a short ad (see examples below) with all the info needed, contact details, deadlines, and relevant web links etc. and attach an image we can use (e.g. your logo or other relevant image). We do not have the resource to edit your information so please submit ready in this way.

Please note we cannot attach flyers, job descriptions or any other item to the bulletin.

Thank you!

Reminder: NSUN is England-wide! 

If you have an event you want us to publicise then please let us know by emailing us at info@nsun.org.uk. Don't forget this is YOUR network so please get involved!

Our funding and articles only cover us to work in England although we still welcome members from all over the UK and indeed the world!

You can view our previous NSUN weekly bulletins and subscribe to get them in your mailbox if you don't receive them directly here.

As well as browsing the news from the wider membership you can also find out more about some of our work:

NSUN News 

NSUN is recruiting! NSUN Chief Executive Officer

The National Survivor User Network (NSUN) is a membership network led by people with lived experience of mental distress. We bring together over 600 local groups and 3,900 individual members to communicate, support each other, share experiences, give voice to their views and experiences in spaces of power and change things.

We are at an exciting stage of change and development, having finished a period of deep reflection and review. After 10 years in post Sarah Yiannoullou is standing down as Managing Director. During her tenure, NSUN has grown and is now recognised as an independent, authentic collective for the voices of lived experience. Founded on the principles of solidarity, equality, integrity and diversity, we aim to reflect the ‘convention challenging ambitions’ of our members.

We are looking for someone with exceptional leadership qualities, ambition, inspiration and visionary drive to take the organisation forward. This needs to be someone who can translate our strategic vision into both high-quality practical and fundable programmes and effective advocacy work. They will need to demonstrate an ability to inspire and motivate a team of staff and associates and a 4500-strong membership.

For the right candidate, this post will be both challenging and enormously rewarding, with the potential to develop and shape an already well-respected organisation into an even stronger force.

A supported handover period will be negotiated to suit the incoming CEO.

Job Description

Application Form

Please return the completed application form accompanied with your up-to-date CV by Friday 20th September – 6pm

By email: info@nsun.org.uk

NSUN is recruiting new trustees

Are you someone who has had experience of mental distress and/or a personal or professional interest in mental health and are interested in becoming an NSUN trustee?

We are looking for new trustees to join the NSUN Board. This is a high-profile appointment to which you will bring your expertise and experience and an absolute commitment to promoting the rights of people with experience of distress, disadvantage and discrimination.

Please click on this link for full details of the role and how to apply.

The closing date for applications is Monday 16th September 2019 – 9am
Interviews will take place on Thursday 19th September and/or Friday 20th September 2019.

Both opportunities are posted on the NSUN website.

Save the date!

NSUN AGM 2019 is in York, Thursday 24th October 2019

This year our AGM will be in the glorious city of York - a historic northern city conjuring images of the stunning York Minster and the old cobbled Shambles.

As well as being a beautiful backdrop for this year's AGM, York has great travel connections to the rest of the country - always one of our prerequisites!

So, save the date - Thursday 24th October. We will send out more information and a link to eventbritewhere you can register to attend the FREE event.

We look forward to seeing you there!

Featured blogs and articles 

Music groups on acute mental health inpatient wards

An article on the Mental Elf talks about the real need to alleviate boredom on inpatient mental health wards.

What about the patient?: David Gilbert

In the new HSJ serices, Jeremy Taylor, former CEO of patient group National Voices, talks to people doing leading work with patients, families and carers. This week: David Gilbert, patient director, Sussex MSK Partnership (Central)

Published 12 August (HSJ)


Refocus on Recovery 2019 - debate International conference 3 - 5 September 2019

At each Refocus on Recovery international conference, there is a debate held on a globally topical issue. In 2019 the debate motion is: “This house believes that there is no place for compulsion in a rights-oriented mental health system”

The debate will be chaired by Samson Tse. Alison Faulkner and Peter Bartlett will speak for the motion, and John Copping and Vicky Stergiopoulos will speak against the motion.

To find out more please go to the debate info page here.

New opportunity to join in with the debate

For the very first time, the debate session will be live streamed via YouTube with The Mental Elf. Conference attenders and anyone around the world will be able to submit and vote for questions. You can watch the debate live here.

Booking for the event here.


Crisis Care Consultation in the North East 

North East Together (NEt), service user and carer network, want to hear from local service users and carers about their experiences of crisis services.

They're running a number of workshops to hear views about what matters most to people regarding crisis care. Discussions will help influence future crisis services.

Lunch and refreshments are provided as are reasonable travel expenses. 

Wednesday 28th August 1pm at Waddington Street, Durham

Thursday 5th September 1pm at St Mary's Centre, Middlesbrough.

Please contact Mish - mish.loraine@netogether.co.uk to book your place and find out more.


Helplines Partnership Annual Conference 

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The 2019 Helplines Partnership AGM, Annual Conference and Awards will take place on Wednesday 6 November at Crowne Plaza, Central Square, Holliday Street, Birmingham B1 1HH.

The theme this year is Strength in Numbers. Keynote Speaker Ryan Hart

Book your place here.

The Helpline Awards, now in their sixth year, are an opportunity to acknowledge and reflect on excellence at an individual and organisational level.
Nominations for this year's awards are now open and close at 17:00 on Friday 13 September 2019.

Find out more about the 2019 Helpline Awards and submit your nominations here.


New online advocacy tool from British Institute of Human Rights 

The British Institute of Human Rights has a new online advocacy tool which supports people with mental health and/or mental capacity issues, and those who advocate for them, to know when their human rights may be at risk and how to use the law to resolve these issues.

Check out the Tool here.


Launch of new group: Bristol Reclaiming Independent Living (BRIL) 

We want to hear from other Disabled people, social workers, families and other organisations about the barriers Disabled people face in living independently in Bristol.

Bristol Reclaiming Independent Living (BRIL) works with local and national organisations to fight for the right of all people to decide how and where they live, with the support they need. Independent Living does not mean being on your own or doing everything without support!

If you are interested, please come to our launch meeting:

On: Monday 16th September 2019
From: 11am-1pm
At:  8 Priory Road, Clifton BS8 1UQ

Facebook: Bristol Reclaiming Independent Living (BRIL)
Twitter: @BrilLiving
Email: bristol.ilag@gmail.com


The Mental Elf is hiring! Project Coordinators

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The National Elf Service needs 3 part-time Project Coordinators to join their team and support the writing, editing and disseminating of Mental Elf blogs.

This opportunity will suit a PhD student working in a mental health setting.

Salary: £240 per day, 1 day per week (flexible)

Start date: ASAP

Location: Remote-working

Application deadline: 5pm on 13th September 2019

Find out more here.

Click here to continue reading the bulletin

New Co-production Advisory Group Adult Care Services

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A new co-production advisory group is being set up to help shape/ plan how people contact Adult Care Service in the future for information, advice and support.

They are looking for people that have experience of adult care services either as a service user or as a carer / family member to get involved in this group.

See here for more information.   

Contact caroline.hedley@hertfordshire.gov.uk or call  on 01438 843513 by 31st August 2019 to express your interest.

View the easy read flyer here.

NSUN Bulletin Tuesday 6 August 2019

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Welcome to the Tuesday 6th August 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. 

Previous bulletins can be viewed here.

*Please note we endeavour to send out the bulletin every Monday but occasionally it has to be sent later.

Bulletin items

If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at info@nsun.org.uk.

You should write out a short ad (see examples below) with all the info needed, contact details, deadlines, and relevant web links etc. and attach an image we can use (e.g. your logo or other relevant image). We do not have the resource to edit your information so please submit ready in this way. Please note we cannot attach flyers, job descriptions or any other item to the bulletin. Thank you!

Reminder: NSUN is England-wide! 

We sometimes get criticism that we post too many London-centric events. The fact is that as London is so highly populated it is somewhat inevitable that we will post many events that are in London. HOWEVER, if we receive news of events in the wider England network* - we welcome them and we include them!

So, if you have an event you want us to publicise then please let us know by emailing us at info@nsun.org.uk. Don't forget this is YOUR network so please get involved!

* (Our funding and articles only cover us to work in England although we still welcome members from all over the UK and indeed the world!)

You can view our previous NSUN weekly bulletins and subscribe to get them in your mailbox if you don't receive them directly here.

NSUN News 

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Save the date! NSUN AGM 2019 is in York Thursday 24th October

This year our AGM will be in the glorious city of York - a historic northern city conjuring images of the stunning York Minster and the old cobbled Shambles.

As well as being a beautiful backdrop for this year's AGM, York has great travel connections to the rest of the country - always one of our prerequisites!

So, save the date - Thursday 24th October. We will send out more information and a link to eventbrite in due course where you can register to attend the FREE event.

We look forward to seeing you there!

Click here to read the rest of the bulletin

Shaping Our Lives - Insight - Including Missing Voices

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This bulletin gives an insight into the work and people of Shaping Our Lives.

We hope you will enjoy finding out a bit more about us.

If you have a story you would like to share about your organisation in our next Insight Bulletin, please email us, using the address below.

INCLUDING MISSING VOICES

Hearing the voices of Disabled people in Gypsy, Roma and Traveller communities


Shaping Our Lives are working in partnership with the University of Worcester to research access to services for disabled people from Gypsy, Roma and Traveller communities from Disabled People's Organisations.
 
This research is designed to listen to the missing voices of disabled people who live in Gypsy Roma Traveller (GRT) communities, and to explore whether that voice could be heard in key policy forums, including having a presence in Disabled People’s Organisations (DPOs).

The results of this research may lead to the development of further research into the ways that people from GRT communities could be actively involved in shaping the future in regard to getting the voices of Disabled GRT people heard.
 
This research is exploratory, the aim being to discover quite what the culture and approaches are from the Disabled Persons’ Groups and the respective Gypsy, Roma, Traveller Communities towards disability and the extent to which there might be mutual benefit in working more closely together in the interests of inclusion. We are keen that this piece of research does just not become another report gathering dust, but rather we are hoping to see changes taking place as a result of this research. There will be an action plan as part of the final outputs drawing from our findings and another study detailing successful policy changing activities by Deaf and Disabled People's Organisations.
 
This DRILL (Disability Research into Independent Living and Learning) funded project was won by open competition in February 2019 and commenced in March 2019.
 
The research is predominantly disabled people-led and the steering group involves members from the GRT communities. We are hoping to be able to meet with GRT community members across Wales, Scotland, Northern Ireland and England to discuss their experiences of disability with a view to encouraging best practice. Any people interested in taking part in this research, please contact Dr. Peter Unwin at the University of Worcester by email p.unwin@worc.ac.uk or telephone: 01905 855126.

Click here for the A5 Missing Voices Leaflet

Putting Power into Participation

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Dear All

Shaping Our Lives and the University of Essex are looking for people with lived experience of using services to take part in a focus group in London on Friday 20th September.

The Putting Power into Participation focus group is to look at findings from research completed by the University of Essex. They want to find out about how involvement and participation can lead to direct policy change.

Involvement activity with people with lived experience of using services is often done within current policy frameworks. This can reduce the authority and usefulness of service user views, undermining their contribution.

Researchers at the University of Essex want to:
1) encourage more democratic and less tokenistic involvement;
2) widen the diversity of participation;
3) enable service user-led organisations to challenge policy directly.

This workshop will explore ways in which service users might be enabled to directly challenge policy decisions that affect them. The emphasis will be on identifying processes in and around participative democracy.

The workshop is scheduled to coincide with a range of publications: a journal article entitled ‘Stigma and mental health: exploring potential models to enhance opportunities for a parity of participation’; a
‘Questioning the Patient Participation Imperative’; and ‘Silencing Patients’.

Details of the focus group:
Date: Friday 20th September 2019
Time: 11am to 3pm
Venue: Voluntary Action Islington, 200a Pentonville Road, London N1 9JP


Refreshments and a light lunch is provided.
Travel and support: Reasonable travel and support costs will be funded. Involvement payment: There is an involvement payment of £25 for those people who wish to accept it.

If you want to attend, please contact Becki Meakin at Shaping Our Lives on 07956 424511 or at becki@shapingourlives.org.uk

Places are limited for this event and will be given on a first come basis.

We thank you for your interest.


Workshop on PPI across NHSX and NHSD digital strategy and services

(Via VCSE Health and Wellbeing Alliance)

NHSX and NHS Digital are committed to working with patients to ensure they meet the shared goal of driving better health and care outcomes through the use of digital, data and technology.

Their teams are responsible for setting digital and data strategy, policy and standards, and for developing and maintaining digital products and services including the NHS App, NHS login, the NHS website, 111 online, and e-Referrals into secondary care.
 
They want to work with citizens and patients to understand how to work more collaboratively at every stage - from creating strategy, to the service design and delivery process, through to implementation and uptake - to ensure patients and people are at the centre of all they do.
 
As such, they are organising a workshop to bring patients and delivery teams together to co-produce practical guidance for their teams. This is likely to include how to identify patients to work with, how to ensure teams and patients get the most out of working together, and any 'rules of engagement'.
 
The workshop will run from 11am to 3pm on Wednesday on 11 September at Co Space North in central Leeds. No pre-preparation will be required from participants. Attendees will be a mix of patients, citizens, representative organisations and teams from NHS Digital and NHSX.
 
They will arrange and pay for travel for attendees. Your time would be paid for in line with their usual policy and a sandwich lunch will be provided. If you have any specific requirements or considerations relating to attending or if you would like further information about the session, please contact Tracy.Storrie@nhs.net or helen.rowntree@nhs.net
 
Please confirm your interest and attendance with office.productdevelopment@nhs.net by 1 August. Full details will then be provided.  


Shaping Our Lives is a leading national user-led organisation that has expertise in the inclusive involvement of people from diverse, seldom heard and marginalised communities, enabling disabled people and service users to meaningfully influence policy creating relevant and effective services. Our work has three core elements:


1. Developing, implementing and facilitating inclusive involvement activities.
2. Conducting user-led, experiential and participatory action research.
3. Representing user-led groups nationally


Check out our Resource Library for an index of titles where you can download a number of free documents of particular interest to the service user movement.
Remember, if you are a member of Shaping Our Lives  you can post onto the notice board and update your information on your personal page as many times as you want.
Sign up to get our latest e bulletins and newsletters.

If you have a resource you would like to share with other user-led organisations and service users please contact us information@shapingourlives.org.uk

Follow us on Twitter@solnetwork1
Like us on Facebook - Shaping Our Lives

The views expressed in external links do not necessarily reflect the views of Shaping Our Lives.

Do you have experience of Adult Care Services?

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Could you help us improve what we do?

We are looking for people who have received adult care services, or their carers/family members, to help us shape how you contact social care in the future.

This is about you being involved every step of the way, planning things together as equal partners to shape how you receive:

  • information

  • support

  • advice

We are passionate about working with people who use our services, their carers and the organisations who represent them.

For more information and to register your interest please email caroline.hedley@hertfordshire.gov.uk or call 01438 843513 before 31st August 2019

Click here to view the flyer or click here for the easy read version

Inspiring Communities Together

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Inspiring Communities Together

Making new connections for the Hertfordshire 2020 Year of Culture

Hertfordshire County Council’s Community Wellbeing team is delighted to invite you to our annual Voluntary and Community sector conference which will give us a perfect opportunity to showcase some of the great work that is happening across Hertfordshire, with opportunities to network and catch up with friends and colleagues over a buffet lunch.

The event will offer a marketplace, a series of inspiring workshops and presentations from leading figures in the voluntary and community sector. There will be opportunities to discuss challenges and share experiences. Through dialogue and openness, we hope that the exchange of information, ideas, observations and knowledge will help to create a platform for mutual support, which will help our organisations to develop, connect and obtain the guidance they need to inspire their own communities.

Eventbrite link: https://www.eventbrite.com/e/inspiring-communities-together-conference-tickets-64964116421

When - Tuesday 24th September from 9.00 am to 4:00 pm

Where - Fielder Centre, Hatfield Business Park, Hatfield Ave, Hatfield, AL10 9TP


What do Recovery focused services actually look like?

Join Viewpoint in the debate

Guest speaker Andrew Nicholls, Head of Recovery and Psychological Services, Hertfordshire Partnership University NHS Foundation Trust

Monday 9th September 2019 11am-12:30pm at St Paul’s Slippers Hill, Hemel Hempstead, HP2 5XY

RSVP Christiana Ashare, christiana@hertsviewpoint.co.uk , tel 01707 386136


HCC July 2019 Pre-Procurement Market Engagement

HCC Jul 19 Pre-Procurement Market Engagement (PPME) for IAPT Compliant Counselling Services

An advertisement has recently been issued by the Integrated Health and Care Commissioning Team (IHCCT) alerting providers to pre-procurement market engagement for the requirement detailed above.

To view the advertisement it is located at:- Supply Hertfordshire website - www.supplyhertfordshire.uk

As a Prior Information Notice in the supplement to the Official Journal of the European Union (OJEU) reference 2019-136-335177

We are making many providers aware of this advertisement so we receive as many responses as possible from the market.

We would therefore encourage providers to complete and submit the Provider Questionnaire, as responses will be used to help shape the Council’s requirements and outcomes and also the scope and strategy for any potential procurement. The Council is potentially looking to re-design the service and provider input will be invaluable to ensure that the Council’s proposals are viable and offer a good opportunity to the market.

Although your attention has been drawn to this advertisement, it does not in any way mean that you have been pre-selected, that your suitability for the forthcoming opportunity has been assessed, or that you will otherwise be treated differently to any other provider who responds to the advertisement.

To express your interest in this advertisement, you must ensure your organisation is registered with Supply Hertfordshire and follow the full instructions provided within the advertisement.

The return deadline is 12.00 Noon Monday 12 August 2019. Provider Questionnaires cannot be uploaded after the closing date/time. All enquiries should go via Supply Hertfordshire.

Click here to continue reading the bulletin

Stay Safe in Hot Weather

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Stay safe in hot weather

We're advising residents to take a few precautions to keep themselves healthy and safe in the hot weather.

A few top tops:

• Stay out of direct sun between 11am and 3pm.

• Wear loose-fitting clothes and a hat; apply sunscreen and walk in the shade.

• Have plenty of cold drinks and keep cool with cold showers or baths if necessary, cold foods and by avoiding extreme activity.

• Keep homes cool as best you can, perhaps by keeping the curtains drawn on very hot days, and well ventilated.

• Remember some medicines need to be kept cool - check the instructions on the packet.

• Babies, children and older people (and pets) should not be left in stationary cars.

Tim Hutchings, Cabinet Member for Public Health and Prevention, said: "While many people enjoy hot weather, high temperatures can be dangerous, especially for people who may be particularly vulnerable such as older people, young children and those with serious illnesses.

“Everyone can enjoy the sun safely by keeping out of the heat at the hottest time of the day, avoiding sunburn and staying hydrated with plenty of cool drinks.

"Older people and those with long-term illnesses are particularly vulnerable to the effects of very hot weather, so it’s important to look out for them and keep indoor areas as cool as possible.”

If you feel unusually unwell consult your doctor if symptoms (such as headache, intense thirst, dizziness or muscular spasms) persist.

Further information and advice can be obtained from a free telephone call to NHS 111 or online from NHS at www.nhs.uk/summerhealth

NSUN Bulletin Tuesday 16 July 2019

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We apologise for the late delivery of this, last week's edition of the bulletin but we have had technical difficulties which are hopefully now resolved.

Welcome to the Tuesday 16th July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Reminder: NSUN is England-wide! 

We sometimes get criticism that we post too many London-centric events. The fact is that as London is so highly populated it is somewhat inevitable that we will post many events that are in London. HOWEVER, if we receive news of events in the wider England network* - we welcome them and we include them!

So, if you have an event you want us to publicise then please let us know by emailing us at info@nsun.org.uk. Don't forget this is YOUR network so please get involved!

* (Our funding and articles only cover us to work in England)

Request for bulletin feedback

We have been sending the NSUN weekly bulletin to our members since March 2009. We would appreciate you telling us what (if any) difference the information we've shared has made to you, personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk

NSUN News 

Launch of 'Know Your Human Rights' online tool.

NSUN trustee, Rachel Rowan Olive, attended the launch of the British Institute of Human Rights online tool earlier this month. The 'Know Your Human Rights' tool is aimed at helping mental health service users raise issues around human rights in their care. BIHR are looking at how they can make sure the tool is widely used and get feedback on how to develop it further.

Read more here.

The Value of User-led Groups

NSUN's main campaign for 2019 is the 'Value of User-led Groups'. With the continued increase in the number of groups’ closures, many collectives of oppressed and marginalised people are under threat of disappearing, which can have devastating effects on group members.

In partnership with Shaping Our Lives we produced a briefing about our joint understanding of the current situation. We then asked ALL NSUN member groups and organisations (not just user-led groups) to help us in completing our survey. You can read the summary of our initial findings here.

On 21 May over 40 individuals and organisations are gathered to discuss the current crisis facing User-led Organisations. challenges and solutions to some of the problems we're facing.The event was supported by Lankelly Chase. A summary of the meeting and next steps will be available soon.

Click here to continue reading the bulletin

Bookings are Now Open - Recovery 2019

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2019 marks the 13th year that we will be holding Recovery-based events across Hertfordshire - once again adopting a local approach in a venue nearer to you. We will be in Ware, Stevenage, Watford and Hatfield. This year our events update where mental health and Recovery have got to, introducing a new concept called Discovery. In addition we will look at the idea of Community and how to connect to it, support it, and find help there when necessary.

As usual the programme has been entirely co-produced and there is, as always, an emphasis on the voice of lived experience from presenters and speakers. We will have some drama too in the form of May Contain Nuts, a drama troupe who last year won The Guardian Innovation in Mental Health award. Expect to hear stories from people who have lived them and some thoughts on working together to make our communities places we care about.

Transport is available for those who have no means of otherwise attending.

Contact details for this, and any other issues related to the event to hpft.recovery@nhs.net / 01727 804016 (telephone bookings - please leave voicemail message)

Online bookings at

https://hpftrecoveryware.eventbrite.co.uk

https://hpftrecoverywatford.eventbrite.co.uk

https://hpftrecoverystevenage.eventbrite.co.uk

https://hpftrecoveryhatfield.eventbrite.co.uk

Click here to download the flyer

NHS England & NHS Improvement: Consultation

NHS England & NHS Improvement: Consultation - how MHRA engages with patients and the public

Medicines and Healthcare products Regulatory Agency (MHRA) -  Open consultation: How should we engage and involve patients and the public in our work.

For more information please see the consultation page on the Agency’s website for further details, including a link to the online questionnaire and a downloadable version for those who would prefer to respond offline.

We are also promoting the consultation among all our relevant stakeholder networks, as well as through a news release and social media:

Facebook

https://www.facebook.com/mhragovuk/photos/a.634308793273600/2303025899735206/?type=3&theater

 

LinkedIn

https://www.linkedin.com/feed/update/urn:li:activity:6556500074313191424

 

Twitter

https://twitter.com/MHRAgovuk?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor

 

The consultation is open for 12 weeks and will close at 11.45pm on Monday 7th October 2019.

NSUN Bulletin Monday 08 July 2019

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Welcome to the Monday 8th July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for bulletin and 4Pi feedback 

We have been sending the NSUN weekly bulletin to our members since March 2009. We would appreciate you telling us what (if any) difference the information we've shared has made to you, personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. We want to know if they have influenced practice and policy and what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

Call for ideas about a better welfare benefits system

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As many of us know to our cost, there are huge problems with the current welfare benefits system and with trauma and destitution which have resulted from changes made under austerity. Because of this, a user-led Commission on Social Security has been set up to put forward improvements that are needed.

This Commission is separate both from the Government and from the Department of Work and Pensions. Do you have experience of the welfare benefits system and can you help with ideas about the changes needed? If so, please send in your suggestions. You can:

Complete the survey for the Call for Solutions here.

Email Michael Orton at Orton@warwick.ac.uk for a different, accessible way of replying.

Please make contact if you can. Your help is vitally needed.

Westminster Forum event: London

Next steps for mental health services in England - prevention, specialised services and service user engagement

Alison Faulkner will be presenting at this event on behalf of NSUN.

Date: Tuesday, 23rd July 2019

Time: 9.30am - 1pm
Venue: Central London

Speakers include:

  • Claire Murdoch, National Mental Health Director, NHS England and Chief Executive, Central and North West London NHS Foundation Trust

  • Amy Wattingham, Lead Lived Experience Practitioner, Oxleas NHS Foundation Trust

  • Lily Makurah, National Lead, Public Mental Health, Public Health England

  • Maria Bavetta, Champion Network Manager, Maternal Mental Health Alliance and Co-Founder, Maternal OCD

  • Alison Faulkner: National Survivor User Network (NSUN)

Book here. Consessions and complimantary places are available.

@WHFEvents | This event is CPD certified B

Recommendation from the Parliamentary Assembly of the Council of Europe (PACE) to end coercive practices in mental health

The Parliamentary Assembly consists of representatives from the organisation’s 47 member states in Europe.mParliamentarians meet four times yearly to discuss issues of their choice.

Governments of European countries are then obliged to respond to issues raised. On 26th June, the Assembly passed Resolution 2291 (2019) which calls on European governments  to bring coercion in mental health provision to an end and to replace it with effective support for people in crisis, in line with the United Nations Convention on the Rights of Persons with Disabilities. This Resolution stems from a report by Reina de Bruijin-Wezeman (Netherlands ALDE). Key reasons for the Resolution were the fact that:

  • Coercion is used to ‘control’ and ‘treat’ patients who are considered potentially dangerous to themselves, or others, even though sociological research points to overwhelmingly negative experiences of coercion and there is a lack of empirical evidence that mental trauma and violence are associated and that coercion prevents self-harm or harm to others

  • Reliance on coercive measures leads to arbitrary deprivations of liberty and is discriminatory

  • There are highly successful alternatives to coercion.

For more information, email Dorothy Gould.

NSUN Bulletin Monday 01 July 2019

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Welcome to the Monday 1st July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin & 4Pi 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk.

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. If they are being used we want to know what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

Live streaming of presentations about poverty in the UK

The UN Special Rapporteur on Extreme Poverty and Human Rights

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As many of you will know, the UN Special Rapporteur on extreme poverty and human rights, Professor Philip Alston, visited the UK last year. A number of you also contributed to the submission which Dorothy Gould collated on NSUN’s behalf to help with Professor Alston’s enquiry. 

At 9:30am last Thursday, the Special Rapporteur joined civil society representatives for an event in Geneva entitled Poverty in the UK: Human Rights under Threat. You can also watch a live streaming of the event at: https://www.facebook.com/AlstonUNSR.

If the planned schedule has been maintained, Professor Alston will too have presented his report to the UN Human Rights Council on Friday of last week. At the meeting, there will have been opportunities for the UK government to respond to his report and for other states and civil societies also to make comments. A live streaming of the meeting should now be available at http://webtv.un.org/meetings-events/human-rights-council/

Mental Health Act Review

Mental Health Act Review Advisory Group held its first meeting following the publication of the review recommendations, 7th May. The second meeting is being held 8th July. As a member of the group we will continue to share our reflections about the recommendations. You can read the main points we'll be raising here.

Click here to continue reading the bulletin

Law for Life - Avoiding and Challenging Benefit Sanctions

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Avoiding and Challenging Benefit Sanctions

Due to recent changes to the welfare system, an increasing number of people are seeing their benefits reduced or stopped due to sanctions. The effects of sanctions are wide-reaching, leaving many confronting destitution, poverty, and homelessness as likely outcomes. Sanctions affect particularly individuals and families in vulnerable situations, such as people with mental health needs, for whom it is challenging to navigate the complex system around benefits.

With this context in mind Law for Life has developed an online information guide focused on helping people understand and build the skills needed to avoid unnecessary benefit sanctions. The guide aims to help people address issues at an early stage and prevent unnecessary hardship. Where this isn’t possible, the guide explains how to deal with a benefits sanction, including how to appeal. After a drafting process that drew on generous input from claimants, intermediaries, advisers and others, we were pleased to publish the new online guide: A survival guide to benefit sanctions.

In April we also held two workshops for the staff of the Bridge Mental Health Support, a charity offering mental health and wellbeing support in Greenwich. The workshops were delivered in partnership with the Public Law Project. The training addressed the basics of Universal Credit, the different groups of claimants on UC, their commitments, how they might get sanctioned and for how long, and how they can avoid and challenge sanctions. Many had a grasp of the problems claimants face while on UC and were shocked at the length of time sanctions can be imposed for. The guide and the workshops were funded by the National Lottery Community Fund (previously Big Lottery Fund).

Click here to read the survival guide to benefit sanctions

Community Inclusion Partnership Group: Compassionate Neighbours

Compassionate Neighbours is a community led social movement, tackling loneliness and social isolation, seeking to pair up local people based on shared interests and experiences. We are currently recruiting Compassionate Neighbours over the age of 18 to join this movement in their local area. Please see below our upcoming training dates:

Our next Compassionate Neighbour training days are:

Tuesday 30th July and Friday 2nd August

Thursday 29th and Friday 30th August OR

Saturday 21st and Saturday 28th September

You will be required to attend both days at any of the training events. The course runs from 9.30am – 5pm at Living Well with Isabel at Hall Grove WGC. This is a free training event and lunch will be provided. To confirm your attendance please email Kharlie.Staves@isabelhospice.org.uk or call 07703 808 640.

NSUN Bulletin Monday 24 June 2019

Welcome to the Monday 24 June 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin & 4Pi 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk.

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. If they are being used we want to know what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

URGENT request from the Equality and Human Rights Commission (EHRC) - TWO NSUN MEMBERS WITH LIVED EXPERIENCE REQUIRED

The EHRC has just launched an inquiry into the experiences of disabled people within the criminal justice system. The inquiry will particularly focus on the pre-trial stage. That is because evidence for disabled people’s experiences at this point is particularly lacking. The inquiry will address whether disabled defendants’ needs are identified; what reasonable adjustments, if any, are made; whether there are particular barriers or helpful factors; and what recommendations should be put forward. The EHRC is interested in perspectives of NSUN members and so in interviewing two NSUN members with lived experience. 

If you are interested in being interviewed, please contact Dorothy Gould URGENTLY at gould.dorothy@gmail.com or on 07565 399 422.  Dorothy can then give you further information and put you in touch with EHRC if that seems helpful.

 Find out more here.

Click here to continue reading the bulletin

Heat Alert: Level 2- Alert and Readiness

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There is a 70% probability of heat health criteria being met between today and 20:00 on Thursday in parts of England.

An update will be issued when the alert level changes in any region. Alerts are issued once a day by 09:00, if required. and are not subject to amendment in between standard issue times.

Note that the details of the forecast weather are valid at the time of issue but may change over the period that an alert remains in force.

These details will not be updated here unless the alert level also changes. The latest
forecast details can be obtained by clicking here

Click here to view the full Heat Alert

Regional Risk Assessments for occurrence of Heat Health criteria between 08:00 Local Time on Tuesday and 20:00 Local Time on Thursday.


The areas that are likely to be affected are:

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HwH Mental Health Carers Discharge Project

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Carers’ needs and involvement in mental health inpatient service discharge

Healthwatch Hertfordshire is looking to gather the carer’s and service user’s views and experiences of inpatient mental health services that are delivered by Herts Partnership Foundation Trust (HPFT). We would like to find out what you think about how carers are involved and supported when the person they care for is being discharged from a mental health inpatient service.

As well as seeking the views of carers, we also want to hear from you if you have used a mental health inpatient service yourself. So, if you or someone you care for has used a mental health inpatient service in the last two years, and would like be involved in this work, please get in touch.

The first part of this project is to hold a reference group. This means you will be involved in a group discussion with other carers and service users who have used HPFT mental health inpatient services. The anonymous feedback the group provides will help us to design a research project about carers views and experiences which we can feedback to HPFT, making recommendations to make sure that carers are involved and supported in a way that is meaningful to them.

We are planning on holding the reference group session on the 11th July, 11:0014:30 in Welwyn Garden City. Travel expenses, lunch and refreshments will be provided.

If you would like to discuss any of the above in more detail, and/or would like to take part in the reference group, please get in touch by the 28th June via the contact details below.

We look forward to hearing from you!

Priya Vaithilingam, Head of Research & Engagement 01707 275978 info@healthwatchhertfordshire.co.uk

For more information on Healthwatch Hertfordshire, please visit www.healthwatchhertfordshire.co.uk or click here for the flyer