NSUN Bulletin Monday 08 July 2019

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Welcome to the Monday 8th July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for bulletin and 4Pi feedback 

We have been sending the NSUN weekly bulletin to our members since March 2009. We would appreciate you telling us what (if any) difference the information we've shared has made to you, personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. We want to know if they have influenced practice and policy and what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

Call for ideas about a better welfare benefits system

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As many of us know to our cost, there are huge problems with the current welfare benefits system and with trauma and destitution which have resulted from changes made under austerity. Because of this, a user-led Commission on Social Security has been set up to put forward improvements that are needed.

This Commission is separate both from the Government and from the Department of Work and Pensions. Do you have experience of the welfare benefits system and can you help with ideas about the changes needed? If so, please send in your suggestions. You can:

Complete the survey for the Call for Solutions here.

Email Michael Orton at Orton@warwick.ac.uk for a different, accessible way of replying.

Please make contact if you can. Your help is vitally needed.

Westminster Forum event: London

Next steps for mental health services in England - prevention, specialised services and service user engagement

Alison Faulkner will be presenting at this event on behalf of NSUN.

Date: Tuesday, 23rd July 2019

Time: 9.30am - 1pm
Venue: Central London

Speakers include:

  • Claire Murdoch, National Mental Health Director, NHS England and Chief Executive, Central and North West London NHS Foundation Trust

  • Amy Wattingham, Lead Lived Experience Practitioner, Oxleas NHS Foundation Trust

  • Lily Makurah, National Lead, Public Mental Health, Public Health England

  • Maria Bavetta, Champion Network Manager, Maternal Mental Health Alliance and Co-Founder, Maternal OCD

  • Alison Faulkner: National Survivor User Network (NSUN)

Book here. Consessions and complimantary places are available.

@WHFEvents | This event is CPD certified B

Recommendation from the Parliamentary Assembly of the Council of Europe (PACE) to end coercive practices in mental health

The Parliamentary Assembly consists of representatives from the organisation’s 47 member states in Europe.mParliamentarians meet four times yearly to discuss issues of their choice.

Governments of European countries are then obliged to respond to issues raised. On 26th June, the Assembly passed Resolution 2291 (2019) which calls on European governments  to bring coercion in mental health provision to an end and to replace it with effective support for people in crisis, in line with the United Nations Convention on the Rights of Persons with Disabilities. This Resolution stems from a report by Reina de Bruijin-Wezeman (Netherlands ALDE). Key reasons for the Resolution were the fact that:

  • Coercion is used to ‘control’ and ‘treat’ patients who are considered potentially dangerous to themselves, or others, even though sociological research points to overwhelmingly negative experiences of coercion and there is a lack of empirical evidence that mental trauma and violence are associated and that coercion prevents self-harm or harm to others

  • Reliance on coercive measures leads to arbitrary deprivations of liberty and is discriminatory

  • There are highly successful alternatives to coercion.

For more information, email Dorothy Gould.

NSUN Bulletin Monday 01 July 2019

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Welcome to the Monday 1st July 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin & 4Pi 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk.

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. If they are being used we want to know what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

Live streaming of presentations about poverty in the UK

The UN Special Rapporteur on Extreme Poverty and Human Rights

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As many of you will know, the UN Special Rapporteur on extreme poverty and human rights, Professor Philip Alston, visited the UK last year. A number of you also contributed to the submission which Dorothy Gould collated on NSUN’s behalf to help with Professor Alston’s enquiry. 

At 9:30am last Thursday, the Special Rapporteur joined civil society representatives for an event in Geneva entitled Poverty in the UK: Human Rights under Threat. You can also watch a live streaming of the event at: https://www.facebook.com/AlstonUNSR.

If the planned schedule has been maintained, Professor Alston will too have presented his report to the UN Human Rights Council on Friday of last week. At the meeting, there will have been opportunities for the UK government to respond to his report and for other states and civil societies also to make comments. A live streaming of the meeting should now be available at http://webtv.un.org/meetings-events/human-rights-council/

Mental Health Act Review

Mental Health Act Review Advisory Group held its first meeting following the publication of the review recommendations, 7th May. The second meeting is being held 8th July. As a member of the group we will continue to share our reflections about the recommendations. You can read the main points we'll be raising here.

Click here to continue reading the bulletin

Law for Life - Avoiding and Challenging Benefit Sanctions

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Avoiding and Challenging Benefit Sanctions

Due to recent changes to the welfare system, an increasing number of people are seeing their benefits reduced or stopped due to sanctions. The effects of sanctions are wide-reaching, leaving many confronting destitution, poverty, and homelessness as likely outcomes. Sanctions affect particularly individuals and families in vulnerable situations, such as people with mental health needs, for whom it is challenging to navigate the complex system around benefits.

With this context in mind Law for Life has developed an online information guide focused on helping people understand and build the skills needed to avoid unnecessary benefit sanctions. The guide aims to help people address issues at an early stage and prevent unnecessary hardship. Where this isn’t possible, the guide explains how to deal with a benefits sanction, including how to appeal. After a drafting process that drew on generous input from claimants, intermediaries, advisers and others, we were pleased to publish the new online guide: A survival guide to benefit sanctions.

In April we also held two workshops for the staff of the Bridge Mental Health Support, a charity offering mental health and wellbeing support in Greenwich. The workshops were delivered in partnership with the Public Law Project. The training addressed the basics of Universal Credit, the different groups of claimants on UC, their commitments, how they might get sanctioned and for how long, and how they can avoid and challenge sanctions. Many had a grasp of the problems claimants face while on UC and were shocked at the length of time sanctions can be imposed for. The guide and the workshops were funded by the National Lottery Community Fund (previously Big Lottery Fund).

Click here to read the survival guide to benefit sanctions

Community Inclusion Partnership Group: Compassionate Neighbours

Compassionate Neighbours is a community led social movement, tackling loneliness and social isolation, seeking to pair up local people based on shared interests and experiences. We are currently recruiting Compassionate Neighbours over the age of 18 to join this movement in their local area. Please see below our upcoming training dates:

Our next Compassionate Neighbour training days are:

Tuesday 30th July and Friday 2nd August

Thursday 29th and Friday 30th August OR

Saturday 21st and Saturday 28th September

You will be required to attend both days at any of the training events. The course runs from 9.30am – 5pm at Living Well with Isabel at Hall Grove WGC. This is a free training event and lunch will be provided. To confirm your attendance please email Kharlie.Staves@isabelhospice.org.uk or call 07703 808 640.

NSUN Bulletin Monday 24 June 2019

Welcome to the Monday 24 June 2019 edition of our weekly ebulletin - full of news, views, events and involvement opportunities. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin & 4Pi 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email at info@nsun.org.uk.

Request for feedback on the use of 4Pi

We are currently reviewing how the 4Pi National Involvement Standards are being used across the country. If they are being used we want to know what difference they have made to involvement and co-production practice.

If you work with or for an organisation using the 4Pi framework, please email Angela Newton at anjynewton@hotmail.com.

NSUN News 

URGENT request from the Equality and Human Rights Commission (EHRC) - TWO NSUN MEMBERS WITH LIVED EXPERIENCE REQUIRED

The EHRC has just launched an inquiry into the experiences of disabled people within the criminal justice system. The inquiry will particularly focus on the pre-trial stage. That is because evidence for disabled people’s experiences at this point is particularly lacking. The inquiry will address whether disabled defendants’ needs are identified; what reasonable adjustments, if any, are made; whether there are particular barriers or helpful factors; and what recommendations should be put forward. The EHRC is interested in perspectives of NSUN members and so in interviewing two NSUN members with lived experience. 

If you are interested in being interviewed, please contact Dorothy Gould URGENTLY at gould.dorothy@gmail.com or on 07565 399 422.  Dorothy can then give you further information and put you in touch with EHRC if that seems helpful.

 Find out more here.

Click here to continue reading the bulletin

Heat Alert: Level 2- Alert and Readiness

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There is a 70% probability of heat health criteria being met between today and 20:00 on Thursday in parts of England.

An update will be issued when the alert level changes in any region. Alerts are issued once a day by 09:00, if required. and are not subject to amendment in between standard issue times.

Note that the details of the forecast weather are valid at the time of issue but may change over the period that an alert remains in force.

These details will not be updated here unless the alert level also changes. The latest
forecast details can be obtained by clicking here

Click here to view the full Heat Alert

Regional Risk Assessments for occurrence of Heat Health criteria between 08:00 Local Time on Tuesday and 20:00 Local Time on Thursday.


The areas that are likely to be affected are:

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HwH Mental Health Carers Discharge Project

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Carers’ needs and involvement in mental health inpatient service discharge

Healthwatch Hertfordshire is looking to gather the carer’s and service user’s views and experiences of inpatient mental health services that are delivered by Herts Partnership Foundation Trust (HPFT). We would like to find out what you think about how carers are involved and supported when the person they care for is being discharged from a mental health inpatient service.

As well as seeking the views of carers, we also want to hear from you if you have used a mental health inpatient service yourself. So, if you or someone you care for has used a mental health inpatient service in the last two years, and would like be involved in this work, please get in touch.

The first part of this project is to hold a reference group. This means you will be involved in a group discussion with other carers and service users who have used HPFT mental health inpatient services. The anonymous feedback the group provides will help us to design a research project about carers views and experiences which we can feedback to HPFT, making recommendations to make sure that carers are involved and supported in a way that is meaningful to them.

We are planning on holding the reference group session on the 11th July, 11:0014:30 in Welwyn Garden City. Travel expenses, lunch and refreshments will be provided.

If you would like to discuss any of the above in more detail, and/or would like to take part in the reference group, please get in touch by the 28th June via the contact details below.

We look forward to hearing from you!

Priya Vaithilingam, Head of Research & Engagement 01707 275978 info@healthwatchhertfordshire.co.uk

For more information on Healthwatch Hertfordshire, please visit www.healthwatchhertfordshire.co.uk or click here for the flyer

Hertfordshire Equality Council (HEC) Volunteer Trustees Wanted

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Hertfordshire Equality Council (HEC) wants to recruit four trustees who would like to make a difference to our Hertfordshire communities.

Do you have a passion for fairness, equality and encouraging and celebrating good community relations?

HEC is looking for trustees with experience of fundraising, communications (including websites/social media) and community engagement. A commitment to promoting equality and diversity is essential, as is communication and interpersonal skills needed to be part of our HEC Trustee team.

Previous experience of Board membership is not essential though as a HEC Trustee you will be expected to attend five or more two hour Board meetings a year and to be actively involved in HEC projects where possible.

Would you like to help us improve equality in Hertfordshire? Do you have some time, experience and knowledge to support HEC towards creating an Equal Herts? Then please apply to join the HEC Trustee Board

To apply

Please send a one page summary telling us why you are interested in being a HEC trustee and what skills, experience and knowledge you can bring to the role.

We will hold informal meeting with all applicants.

We are keen to receive applications from members of all Hertfordshire communities as we want to ensure HEC Trustees represent the diversity of the people we serve.

Please call Kate Belinis (Chair) 07940 111047 or Hemant Mistry (Project manager) 078303 75073 for an informal chat.

Click here to download the application details

HCT Community Matters

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The spring edition of Hertfordshire Community NHS Trust’s HCT Matters is now available.

Topics include:

• Tackling diabetes

• Beehive junior parkrun

• Brain CARE team

• Family Centre Service

• Healthy Memory Cafe

• Heart failure awareness

• Special Care Dental Service

• Back on track with Step2

• Maple frailty clinics

• Rita walking again at 81

• And lots more

Click here to read the newsletter

Updates from Time to Change

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Dear Supporter,

As a social movement, your views are vital to our work. That’s why we want to hear your thoughts on mental health stigma and discrimination to help plan our future. 

Please take the time to share your views in our short survey – we want to hear what you’ve got to say.

In this month's newsletter you'll also meet Charlie Chatbot, our chatty new team member, and hear all about a tasty partnership to get the nation talking.

Help shape the future of Time to Change

Your views on mental health stigma and discrimination are vital in shaping our future. There’s still time to have your say in our short survey before it closes on 24 June. You'll also have the chance to win a £25 Amazon voucher.

Click here to share your views

Introducing Charlie

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Meet Charlie, the newest member of our team. Charlie’s aim is to help people support their mates when they think they might be struggling with a mental health problem. You can find and chat to Charlie on Facebook Messenger.

Click here to chat to Charlie






Let's Talk

Talking can help break down barriers and change lives. That’s why McVitie’s and Mind have partnered up to get the nation talking. McVitie’s will be helping to support 8 Time to Change Hubs and the training of 400 Champions.

Click here to find out more

“Men don't get post-natal depression”

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‘Wrong. They do. I should know.’

This International Fathers' Mental Health Day, read about Andy’s experience of post-natal depression as a new father.

Click here to read the blog


Free Mental Health Resources for Schools: Last Chance to Sign Up

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1 in 8 young people will experience a mental health problem and too many still fear the reaction of others.

It's time to end the silence. 

By devoting a lesson, assembly or short session plan to changing how your school community thinks and acts about mental health, you can make a huge difference.

We've developed five easy ways to start a conversation in your school and ensure no young person feels isolated or ashamed anymore. 

Choose from our range of free activities and we’ll guide you through with easy resources and activities that you can use throughout the school year. Talking about mental health is easier than you think.

Now, let’s get started…

Click here to sign up now

NSUN Bulletin Monday 10 June 2019

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Welcome to the Monday 10 June 2019 edition of our weekly ebulletin. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here

Request for feedback on the bulletin 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued and we would really like to know what opportunities and activities you've taken up as a result of information we've shared.

Feedback request: We would appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally.

  • Have you got involved in research, workshops or projects?

  • Have you joined a group or applied for funding for your group?

  • Have you got involved in any national initiatives?

  • Have you had good responses to items you've advertised?

Please send any feedback to us directly by email.

NSUN News 

Urgent request from the Equality and Human Rights Commission (EHRC)

The EHRC has just launched an inquiry into the experiences of disabled people within the criminal justice system. The inquiry will particularly focus on the pre-trial stage. That is because evidence for disabled people’s experiences at this point is particularly lacking. The inquiry will address whether disabled defendants’ needs are identified; what reasonable adjustments, if any, are made; whether there are particular barriers or helpful factors; and what recommendations should be put forward. The EHRC is interested in perspectives of NSUN members and so in interviewing two NSUN members with lived experience. 

Find out more here

Joint working and co-operation between organisations led by disabled people (DPOs) at an international level

Dorothy Gould provides a summary account of the event 1st June, co-hosted by the Department for International Development (DFID) and the Reclaiming Our Futures Alliance (ROFA). DFID is a government department responsible for providing international aid. Reclaiming Our Futures Alliance (ROFA) is an alliance of Disabled People and their organisations (DPOs) in England who have joined together to defend disabled people’s rights and campaign for an inclusive society. Read more here.

Health and Wellbeing Alliance Webinar – Peer Support, User-Led Organisations, and Mental Health and Prevention

Date: Tuesday 18th June 2019

Time: 10.30am - 11.30am

This webinar, with Alison Faulkner and Emma Ormerod from NSUN, will provide a short overview of the role of local user-led organisations and peer support initiatives in the prevention of mental distress and social exclusion.

There is a significant role for prevention amongst people already in touch with mental health services who are at risk of further marginalisation and social exclusion. It is widely recognised that working alongside communities to understand their needs and build on existing strengths, assets and resilience is key. Book your place here.

Disabled People's Organisations meet with Minister for Disabled People

Read our account of a meeting between Sarah Newton MP and six Disabled People's Organisations (DPOs): Inclusion London/the Reclaiming Our Futures Alliance, NSUN, the Equalities National Council, Disability Wales, Independent Living in Scotland and Disability Action Northern Ireland. Read the report here.

Click here to read the full bulletin

NSUN Bulletin Monday 03 June 2019

Welcome to the Monday 03 June 2019 edition of our weekly ebulletin. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

Request for feedback on the bulletin 

We have been sending the NSUN weekly bulletin to our members since March 2009. Feedback has told us that the bulletin is highly valued with members telling us:

“The NSUN bulletins point to up-to-date projects, work and research happening in the UK – and we, can learn from each other and benefit from learning from each others’ experience”

“I feel as if I am not alone! I love the signposting, shared information and the feeling that we are fighting together!”

“Up to date information about MH events etc... most IMPORTANTLY it has a ‘user’ feel to it. I get so fed up with a lot of the professional ‘spin’ stuff that goes on. NSUN talks my language!”

Of course it's not all so positive and we've taken valuable criticism and tried to make sure that information shared is current, relevant and accessible.

Feedback: We would really appreciate you telling us what (if any) difference the information we've shared has made to you personally or professionally. Have you got involved in research, workshops or projects? Have you joined a group or applied for funding for your group? Have you got involved in any national initiatives? Have you had good responses to items you've advertised?

We'd love to hear what you've got involved in or done as a result of the information we've shared, so just send us any feedback directly by email

NSUN News 

Shocking abuse at Whorlton Hall, County Durham

Undercover filming by a reporter for the BBC Panorama Programme revealed highly offensive attitudes and language about patients amongst Whorlton Hall staff, intimidation and mockery of patients and an unacceptable use of restraint.  Read our report and a statement issued by People First Advocacy here.

You can also read CQC's full response here.

Final report from Philip Alston, the UN’s Special Rapporteur for Extreme Poverty and Human Rights

Many thanks again to all those of you who contributed to NSUN’s submission to the Special Rapporteur. Philip Alston’s final report about his 2018 visit to the UK has now been published and can be found here

Hertfordshire Adult Family Learning Service (HAFLS) Short Courses

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For those Viewpoint members that don’t already know HAFLS run a lot of short courses in small groups (max 15) in venues such as Children’s and community centres so a very good intro to learning for those fearful of colleges etc. There are also courses that the whole family can attend.

Courses in Maths, English, Keeping up with your child, Intro to IT, First Aid, Wellbeing and Mindfulness, English for speakers of other languages etc.

New Courses coming up in Sept/Nov:

Sewing

Ipads made easy

Becoming a mid-day supervisor in a school

Christmas crafts

Becoming a classroom helper

Assertiveness and communication skills –possibly a particularly good one for those referred for advocacy – 7th November 1pm to 3pm one day a week for 5 weeks

Course guide is in link below. People can go on a list for new courses if dates in the prospectus have passed.

They will also put on courses in a particular if there is a demand

https://hafls.hertfordshire.gov.uk/pluginfile.php/15526/mod_resource/content/1/HAFLS_Course_Guide_2018_19_WEB.pdf

If you have anyone interested forward the prospectus or give them the telephone number 01992 556194.

NSUN Bulletin Tuesday 28 May 2019

Welcome to the Tuesday 28 May 2019 edition of our weekly ebulletin. If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here.

The Value of User-Led Groups

Last week user-led groups and funding organisations met in London to talk about the current crisis facing user-led organisations and their future role in ensuring an independent voice and local support. A briefing paper, produced in partnership with Shaping Our Lives, 'The Future of User Led Organisations'. Those who attended shared what they thought about why we're seeing a decline of user-led groups and the social impact. This included:

  • Funders not recognising the difference and value of use-led groups

  • The diminishing sources of support and accessible funding

  • A loss of opportunity to be part of an accepting and supportive community

  • Larger organisations working competitively not collaboratively

  • Less support and resources to connect and network

Funders present recognised the power relations and conflicts and also spoke about the challenges of making descisions with declining funds.They also acknowledged that some funders needed to better understand and value user-led groups. The meeting finished with everyone thinking about how to collectively address the problems. A full report will be made available. You can also read the summary of findings from the initial survey we conducted with members here. Visit our website for further updates on NSUN's campaign.

Click here to continue reading the latest bulletin

Shared Decision Making in HPFT

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Shared Decision Making (SDM) IS COMING TO HPFT and we are inviting interest from service users to become trainers

We are inviting interest from people using adult community mental health services (or those who have recently used services) anywhere in the Trust for an upcoming project at:

Waverley Rd
Marlowes
Saffron Ground
Centenary House

If successful we will begin Training the Trainers (ToT) in Shared Decision Making as soon as possible!

What is Shared Decision Making?

Shared Decision Making is a process in which service providers and services users work together to select interventions, based on clinical evidence and the person’s informed preferences.

The MAGIC (Making Good Decisions in Collaboration) programme in NHS sites in Newcastle and Cardiff confirmed that strategies to enhance the delivery of shared decision making can improve (JosephWilliams, N. et al, 2017):

  • People’s knowledge about their condition and treatment options

  • People’s involvement in their care

  • People’s satisfaction with care

  • People’s self-confidence in their own knowledge and self-care skills

  • Professionals’ communication

Shared Decision Making (SDM):

  • Is evidence based

  • Is practised successfully near to us (in Cambridge and Peterborough)

  • Includes trainers that are experienced in practising SDM

  • Trainers include EbEs (Experts by Experience),Nurses, Psychiatrists

  • Training will apply interactive methods

  • Introduce you to decision making aids

Requirements:

Attendance in 5 meetings, each of three hours, fortnightly
A short assignment submitted after the training
Commitment to co-run at least one group in a service

This will lead to a certificate of attendance upon completion and people will be paid according to the Trust’s Inclusion and Involvement criteria.

To apply, please email Andrew Nicholls (Head of Recovery and Psychological Services) at andrew.nicholls3@nhs.net or telephone 07767 890113.

Click here to view the flyer

NSUN Bulletin Monday 20 May 2019

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Welcome to the Monday 20 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Previous bulletins can be viewed here

Mental Health Awareness Week 

The theme for this year was 'Body Image'. You can follow some of the stories shared over the last week on Twitter via #BeBodyKind and #MentalHealthAwarenessWeek and read what was debated in Parliament.

During the week Prince William announced that Heads Together is launching a new campaign 'Heads Up' in partnership with the Football Association next season. The Royals also launched the mental health text support service Shout, a legacy of the Royal Foundation's Heads Together.

Awareness days and weeks and high profile supporters and campaigns have done much to promote the importance of our mental health as well as our physical health. We also need to make sure that the 'hidden world' of mental health is given the exposure necessary to stop inhumane treatment and protect people from harm. Such as the case of Steven Boyd, a Mental Health Nurse 'who showed callous disregard for the safety of patients in his care.' Read a summary of the case on the BBC Website.

An open letter to the Nursing and Midwifery Council (NMC) has been written detailing concerns about the NMC ruling. You can read the letter and find out how to add your support on the Fostering Change website and @WeCareAboutMH

Click here to view the entire bulletin

NSUN Bulletin Monday 13 May 2019

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Welcome to the Tuesday 13 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk

Mental Health Awareness Week 

Hosted by the Mental Health Foundation, Mental Health Awareness Week takes place from 13-19 May 2019. The theme this year is Body Image – how we think and feel about our bodies.  Included in this week's bulletin are articles and art projects exploring this theme.

"The healthiest form of projection is art"  

~ Fritz Perls 

As expected, there's a lot of focus on the role media has to play on idealising body representation. 

Today's Guardian article reports on the Mental Health Foundation's survey, which found one in eight people aged 18 and above have been so distressed about their body image they have thought about killing themselves.

Read more about Mental Health Awareness week on the Mental Health Foundation's website and follow the hashtag #BeBodyKind

NSUN News 

Some of our recent work

#HardlyHardToReach peer learning programme

Dominic Maukuvachuma and Sarah Yiannoullou presented at the HEAR Equality and Human Rights Network and Race on the Agenda (ROTA) three-day peer learning programme on campaigning and lobbying for mental health equality 2 May. Dominic and Sarah presented on 'Effective leadership and building a political platform'. This included the Reigniting the Space project and the 4Pi National Involvement Framework.

Find out more about HEAR events.

King's Fund report on Mental Health Outcomes

NSUN attended the Kings Fund round table event that presented their report ‘Outcomes for mental health services: what really matters?’. The report includes a case study provided by NAViGO on page 24 which is the one of the only mental health care providers that does not use control and restraint.

NSUN Members' Manifesto

NSUN's Members' Manifesto is one of the documents referenced as one of the guiding principles for the National Independent Living Strategy, Independent Living for the Future – Our vision for a national independent living support system published by the Reclaiming Our Futures Alliance (ROFA). The Members' Manifesto is currently being reviewed and will be published later in the summer.

NICE Guidelines: Management of Depression in Adults

In November 2017 NSUN joined a number of other organisations concerned with the methodology for the revision of the Recognition and Management of Depression in Adults guidleine. There is an upcoming meeting with NICE 24 May to discuss the campaign. You can read more about the campaign here.

The Value of User Led Groups

NSUN’s main campaign in 2019 is the value of user-led groups - that is demonstrating the huge value of user-led groups in our society and fighting the cause for their survival. Later this month we are meeting together with other groups and stakeholders to share and raise the issues and look at what we can do collectively to address them. You can read the summary findings of the survey we conducted with members here. 

FSI has published it's latest perceptions on the small charity sector here. The Small Charity Index is the FSI’s quarterly ‘Pulse of the Sector’ report

Jobs and involvement opportunities - already shared

If there is still time to apply or get involved, you can find previously shared opportunities on this page.

Visit our Youtube channel. 

Featured blogs and articles 

Body Dismorphic Disorder (BDD) stories

Here you can read a selection of personal stories about the struggles and affects of BDD from people and their families.

Body Dismorphic Disorder Foundation

The Need to 'Do Something'

Akiko Hart writes about social media and self-harm. 'If we ban pictures of self-harm on social media, what we risk is silencing and isolating those in most pain and those in most need of connection.'

The Sociological Review

A Day with Body Dismorphia

Michelle Threadgould's personal essay published as part of the Orange Dot  mental health series.

Click here to view the full NSUN bulletin

Carewaves Newsletter - Issue 1 of 2019

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Read all about it! The latest edition of Carewaves has arrived and is available for download now on our website via this link – Carewaves issue 1 of 2019.

Carewaves is full of articles about what we and other organisations have been doing to support unpaid carers. You can also find out about funding we have secured from the National Lottery Community Fund to continue and develop our Carer Support Hubs and volunteer run Mentoring Service.

As always there are details about our free courses, workshops and forums. There is also information about our plans for Carers Week 2019 (10th – 16th June).

You can also read about:

Our Home Care and Advocacy Services – what they involve and how we support unpaid carers;

  • Changes to dementia services in Hertfordshire; and

  • Our work with young carers including a review of our 2019 Young Carers’ Conference. You can also find out about a contract Hertfordshire County Council has awarded us that will enable us to build on the support we provide to young carers and their families.


Given the ongoing pressure on public money, our Trustees have decided to refresh our Fundraising Strategy with the aim of raising £150,000 per annum. This extra money will make the charity more resilient and allow us to continue developing innovative services. We already have some very committed volunteers who help us with fundraising and we recognise the hard work they put in. However, we know that we need to do more and plan for the future. The Trustees want to make sure that the refreshed Strategy and accompanying Action Plan are co-produced by carers, staff and volunteers. They also want to develop guidance to make sure that all our fundraising activities support and complement our values. We would really like to hear from any carers who are willing to be involved – if you are interested then please email contact@carersinherts.org.uk with the subject title Fundraising.

 If you need advice or support about your caring role, please contact our Carer Support Advisors on 01992 58 69 69 or email contact@carersinherts.org.uk and someone will help you.


Regards

Steve Delaney, Interim Chief Executive

NSUN Bulletin Tuesday 7 May 2019

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Welcome to the Tuesday 7 May 2019 edition of our weekly ebulletin.

If there's anything you would like to share with the wider network please send to info@nsun.org.uk.

Supporting NSUN 

Despite yet another uncertain period NSUN tentatively celebrates its 12th year (and 10,000 Twitter followers!). Not quite a teenager and no longer a child, we find ourselves at the awkward age of finding our place in the world. 

Our members have had a lead role in defining the network by telling the stories of the past, sharing current issues, and prioritising for the future. Because of your generosity NSUN is finding its position and more confidently challenging unacceptable practice and poor policy decisions.

Together we are fighting to be heard and to be treated with dignity and respect, but in the last few years the collective voice of people through groups and networks has been severely depleted and neglected.

Do encourage others to join us and contribute to our growing network and campaign to protect the independent voice and autonomous action.

Please click here to see the entire bulletin