NSUN 13th August 2018

NSUN Bulletin Monday 13 August 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 13 August 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 13 August edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
NSUN Members Event and Annual General Meeting - Save the date!
 
This year we will be holding our annual members' event in Derby with the theme 'The Future of Peer Support'.
 
Date: Thursday 25 October 2018
Time: 10am-10.15am arrival 4.30pm finish
Venue: The Roundhouse,  Roundhouse Road, Pride Park, Derby DE24 8JE
 
This year we will be focusing on the future of Peer (mutual) Support. What do we want to see happen in five years’ time and what are our national priorities for getting there?
 
More information will be sent out in the coming weeks but if you would like to secure your place please email info@nsun.org.uk with the subject title Members Event 25.10.18 booking.
 
Watch the videos of the member Soap Boxes from our 2017 event on our YouTube channel.
 
 
UPDATED 'Get to know NSUN in 3 minutes'
 
You can view the video here, updated with our new logo and website. Please do share!
 
Influence the production of guidance for therapists
 
APPG PDD
 
The All Party Parliamentary Group for Prescribed Drugs Dependence (APPG PDD), which NSUN is part of, seeks expressions of interest from:
  • psychological therapists
  • ex-clients
  • clients and carers/supporters
To join a panel of reviewers or to be involved in a specific working group for a project creating guidance for psychological therapists who work with clients/patients taking and/or withdrawing from, prescribed psychiatric drugs.
 
For more information about the project and how to get involved, please click here
 
 
mental health act review
Help us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups.
 
Can you help with suggestions? To get involved, please click here 
 
 
NSUN London Leaders Digital Lab: summer 2018 
 
Article Image
 
NSUN invites representatives from user-led member groups across London to a FREE networking, sharing and design programme.
 
 
NSUN invites representatives from user-led member groups across London to a free networking, sharing and design programme on:
  • Tuesday 4th Sept 10-3
  • Wednesday 5th Sept 10-3
  • Thursday 6th Sept 10-3
Each day will run from 10:30am – 3pm.
 
The programme responds to feedback from the membership who have expressed the need for more opportunities to strengthen the user voice pan-London and will involve experience-based co-design. N.B. No previous experience of design or digital technology is needed. The programme will include six participatory workshops with the following themes:
  • Finding and amplifying your voice: the personal is political, collective power, leadership styles.
  • Creative influencing and campaigning: exploring local vs London-wide challenges, barriers and opportunities for change.
  • Creative mapping and storytelling with digital tools
  • Co-production and design for collective action: 4PI National Involvement Standards
A networking and workshop taster day will be held on Thursday 30th August 2-4 where you will be invited to shape the programme according to your interest’s and preferences.
 
To register your interest please complete the form here.
 
Selected blog 
 
 
'Mad culture is the music of Daniel Mackler, the cartoons of Auntie Psychiatry, the graphics of Mad Mad Memez, and the artwork of Phoebe Sparrow Wagner. It is Oryx Cohen's Healing Voices and Allie Light's Dialogues With Madwomen.'
 
The Radical Abolitionist celebrates mad culture, with links to papers and blogs.
 
Health and social care and LGBT communities inquiry 
 
LGBT communities health inquiry
Existing evidence shows that health outcomes are generally worse for LGBT people than for the rest of the population.
 
The Government’s recent survey of 108,000 LGBT people found that many had difficulties accessing healthcare services, some had experienced inappropriate questioning and curiosity from healthcare staff, and that many feel their specific needs are not taken into account in their care.  
 
This inquiry will consider whether provision is adequate, whether discrimination is still occurring, and what more needs to be done to improve access to health and social care.
 
More information can be found here
 
Inappropriate medication and human rights: Simone Aspis discusses the use of the European Convention on Human Rights  
 
North East together
Simone Aspis is a disabled activist with learning disabilities who is currently acting as an advocate for a person with a learning disability and autism. who is a patient on a psychiatric hospital.
 
Simone had her article about using the ECHR and other legal provisions in challenging the inappropriate use of psychotic medication for patients with a learning disability, autism or both published in the STOMP magazine.
 
STOMP stands for stopping over medication of people with a learning disability, autism or both with psychotropic medicines.
 
It is a national project involving many different organisations which are helping to stop the over use of these medicines. 
 
STOMP is about helping people to stay.
 
There is an easy read leaflet about the project and supporting people who take psychotropic medicine. NHS England wrote it with MiXit, a theatre company for people with and without a learning disability, and with help from other people and families.
 
NHS England commissioned MiXit to do a new play about STOMP which is a great success everywhere it goes.
 
They also made a short video about it. Read more about STOMP project here.
 
Coming up, this October: World Mental Health Day 2018 (WMHDAY) 
 
North Tyneside
The World Federation for Mental Health will be focusing the 2018 WMHDAY campaign on Young People and Mental Health in a Changing World.
 
The Federation wants to bring attention to the issues our youth and young adults are facing in our world today and begin the conversation around what they need in order to grow up healthy, happy and resilient.
 
World Mental Health Day was observed for the first time on 10 October 1992.
 
It was started as an annual activity of the World Federation for Mental Health by the then Deputy Secretary General Richard Hunter.
 
The day is now officially commemorated every year on 10 October.
 
Mental health services - have your say 
 
RethinkDo you want to see mental health services improved?
 
If so, Rethink would like to hear from you.
 
If you, or someone you have cared for has used NHS mental health services, please take a few moments to complete this survey.
 
The survey will take up to 15 minutes to complete.
 
Please be as frank as possible - you will have the option to remain anonymous. 
 
Sharing your experience means that Rethink can feed your responses into future NHS England plans. 
 
It will help them to identify key concerns and prioritise services that best ensure people with mental illness receive the highest quality care and treatment possible.
 
Share your (good or bad) experiences of CBT in an online group chat 
 
Change in CBT pojectAmanda Mount is a trainee clinical psychologist studying at the University of East London.
 
Interested in how clients understand change in therapy, Amanda would like you to advise as to what quetions would be good to ask in research interviews.
 
This is an opportunity to share your thoughts and contribute to professionals's understanding of the factors that are important in making change.
 
What is required?
  • 1 hour (maximum 1:30 hour) of your time.
  • Access to Skype - to take part in an online small group discussion (Amanda can help you set up Skype if needed)
  • No personal details about your therapy...unless you want to say.
When?
  • Tuesday 21 August 8pm
Criteria
  • Age 18+
  • English speaking
  • Had a course of CBT...whether you found it useful or not
Interested? Please contact Amanda by email: u1622889@uel.ac.uk
 
Join Lambeth Black Thrive 
 
Black Thrive
Programme Delivery Director,
Lambeth Black Thrive
Location: Brixton, Lambeth with some local travel
Salary: £55,000 
Hours: 37.5 per week
Deadline for applications: Monday 03 September 12 noon
 
For more information and how to apply , please visit this page
 
Opportunity: Brexit Civil Society Alliance Co-ordinator 
 
Unlock Democracy
Employer: Unlock Democracy
Salary: £32,349-£35,132 (£19,409 to £21,079 pro rata)
Hours: 21 hrs per week
Contract: 2 years fixed term
Closing date 16 September, 23:59 .
Interviews will be held on 27 September
 
The postholder will offer support, information and intelligence to those who feel most removed from the Westminster bubble. It will also make sure that policy makers hear the concerns and experiences of civil society organisations from around the country. This means you will need to be comfortable with regular travel to meetings around the country.
 
For more information and how to apply, please visit this page
 
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Care Quality Commission (CQC) news 
 
Experts by Experience - invitation to tender now live
 
New contract to deliver Expert by Experience services, starting in 2019. 
 
Experts by Experience are people who have personal experience of using or caring for someone who uses services we regulate.
 
During inspections, they speak to people using services and their family or organisations that support them.
 
They may also observe how the service is delivered and speak to staff. Their findings are used to support the inspectors’ judgments on services and may be included in inspection reports.
 
CQC are seeking a contractor to continue the delivery of the Experts by Experience programme, so as to have members of the public from diverse backgrounds to take part in inspections and other aspects of CQC's work.
 
The invitation to tender is now live and more details can be found on the website
If your organisation is interested in applying read more here.
 
Get plugged in to resources direct from the Care Quality Commission
 
Did you know that the CQC sends out a monthly bulletin to all  regional stakeholders? 
 
Information includes latest publications, resources and consultations. 
 
If you’d like to be added to the distribution list for the monthly bulletin you can fill in your details here.
 
Mental Health book launch in Oxford 
 
Emilys Voices
Blackwell's Bookshop in Oxford is hosting a Book Launch for the book 'Emily's Voices' (which Roz V Austin wrote under the pen name Emily Knoll) that will take place from 7 pm to 8.30 pm on Wednesday 19 September 2018.
 
Roz will be reading passages from the book alongside a talk by Dr Jonathan Gadsby (Research Fellow, School of Nursing, Birmingham City University) on the subject 'Emily's Voices: Conversations'.
 
Writer Dennis Hamley will be introducing the event.
 
'Emily's Voices' tells Emily's story of her struggle with hearing voices and her journey through the mental health system.
 
Emily must find a way of accepting that she hears voices, or she can't be in the world - but it's a confrontation that takes all of her strength and resolve as well as the support of friends and therapists.
 
Refreshments will be provided, and Roz will be signing copies of her book.
 
Free places can be booked here
 
In the news 
 
NHS in Tory Britain
BBC
£100m has been promised "to help people turn their lives around", including support for mental health and addictions, and funding for housing. About £30 million will be spent on mental health help and treatment for substance misuse.
 
BBC's Holby City to have a mental health special
The BBC has announced plans for a special episode of ‘Holby City’, that will focus on male mental health. several media outlets have commented:
The Guardian
 
The Independent
 
Nye Bevan News
 
News-Medical.Net
Personnel Today
 
Doncaster Free Press
 
Games Radar
 
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GOV.UK news 
 
New Mental Capacity Act (Amendment) Bill introduced
 
The Government has introduced the new Mental Capacity Act (Amendment) Bill, intended to replace DoLS following the Law Commission’s recent report. The text of the 2nd reading debate can be read and the Bill’s progress tracked here.
 
The British Institute of Human Rights wrote about the Bill on a blog here.
 
The Committee stage will begin on 5 September
 
 
Mental Health Act Review - August workshops
 
The review will be running three workshops during August to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The workshops will run from 9.30am-1pm
Reasonable expenses and adjustments can be provided for those attending in a service user or carer capacity.
Places are limited to 100 per event.
 
For more information and to register, please visit:
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

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Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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15 Steps Challenge

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We are looking for volunteers to support us with the 15 step challenge across our community bed bases. The 15 step challenge was sparked by a quote from a parent who said” I know what kind of care my daughter is going to get within 15 steps of walking onto a ward”  The  challenge focuses on seeing care through the eyes of patients and exploring first impressions. As a result staff can understand what is working and where services can be improved. It is nationally recognised as good practice to use the 15 Step regularly to review services.

The 15 step challenge team will be visiting Potters Bar Hospital on Wednesday 30th August from 10 to 2. The day starts with a half hour training session to introduce the 15 step challenge  and answer any questions. The challenge involves a walk around the ward with a chance to talk to patients about their experience on the ward. There will be regular refreshment breaks and lunch provided. The visit concluded with feedback to the ward manager about the teams observations.

One of our 15 step challenge volunteer gave the following advice, “ Be prepared to listen to what staff and patients have to say and be observant with all your senses.”

To take part volunteers need to join Hertfordshire Community NHS Trust as a volunteer. A member of staff from the 15 Step Challenge team will meet with you as part of the application process.

The role description for the 15 Step Challenge can be viewed by clicking here as well as information about it from NHS England.

Further dates to take part will be available in September.

If you are interested please contact hct.engagement@nhs.net by 14th August to allow time to process your application.

Should you have any questions or would like more information please contact:

Ruth.bradford1@nhs.net

Service Update-Joint Herts Aid/THT

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Terrence Higgins Trust (THT) has been awarded the Hertfordshire County Council (HCC) HIV support services contract in Hertfordshire following a successful bid supported by current provider Herts Aid.

As a result it has been decided that Herts Aid will merge with THT, with a transfer of assets and liabilities.  An HIV support service will be delivered by THT on behalf of HCC from 1 August 2018. HCC will no longer be commissioning HIV community testing services.

For over 25 years, Herts Aid has supported thousands of people living with or impacted by HIV in the county, and this legacy of excellence will be continued through this new service.

Herts Aid and Terrence Higgins Trust (THT) will work closely together to ensure a smooth transfer of service so that people living with or impacted by HIV can access support without any interruption.

As it currently stands there will be no provision for testing services in the new contact and therefore would like to inform you that we will not be able to carry out any testing at the YMCA going forward.

www.hertsaid.co.uk

NSUN Bulletin 6th August 2018

NSUN Bulletin Monday 06 August 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 06 August 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 06 August edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
 
mental health act reviewHelp us lobby the Mental Health Act Review
 
Due to the disappointing responses to NSUN's strong letter of concern to the Review Chair and Vice Chairs about the approach being taken to the Mental Health Act Review,  NSUN is now planning a further letter to the Chair and Vice Chairs and a letter to the leaders of the main political parties and relevant All Party Parliamentary Groups.
 
Can you help with suggestions?
To get involved, please click here 
 
 
Alternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act. Please click here for more information
 
 
Reigniting the SpaceReigniting the Space project steering group: on-going recruitment 
 
The steering group has nine positions, six of which have been filled. 
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East. 
 
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Please see Role Description for further details. To apply, please fill in the Application Form.
 
Closing date for applications: 12 noon, Friday 10 August 2018
Interviews: mid-August
 
Contact NSUN (info@nsun.org.uk) or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
Joy Hibbins writes about taking calls from distressed people who cannot reach inundated NHS crisis teams.
 
Why Mandating Mental Health Education in Schools is a Band-Aid on a Gaping Wound
Leah Harris reflects on how mental health education is being (mis) handled, as a person with a history of suicidality, a concerned parent and a suicide prevention advocate.
 
 
Regional network's involvement project is a success 
 
North East together
North East together (NEt), a regional network for people with lived experience of mental health conditions, has been running ‘A Weight off Your Mind’, a project to support people in secondary services manage their weight.
 
NEt Secreatry, Mish Lorraine reports on how focus groups led to drafting a plan which results from true service user involvement.
 
Read more here.
 
Mental Health Support in North Tyneside 
 
North Tyneside
 
This leaflet offers a list of groups and services that you contact to self refer for support with your mental health needs.

Most of the services provide free support.
 
However, some may incur charges. Please contact the service directly.
 
To download the leaflet please visit here
Plans for a free volunteer advocacy training course 
 
Mental health Advocacy training plannedNSUN member Wendy Micklewright is thinking of setting up a free volunteer advocacy training course, similar to one she attended years ago, which really helped her.
 
Wendy is considering the Richmond Library Space as location.
 
Before she embarks on working on the course, Wendy would like to know if you'd be interested in attending.
 
To let her know, please email Wendy
 
 
Universal Credit - how is it for you? evidence needed 
 
Inclusion London
Inclusion London is sending written evidence to the Social Security Advisory Committee’s consultation on proposals to move all people claiming working age income-related benefits to Universal Credit (UC).
 
Please send your experience to inform our evidence.  For instance:
  • How you found applying for Universal Credit, including whether you found the process accessible or not.
  • How long you had to wait for the first payment of UC and whether you could manage financially while you waited.
  • Are you receiving the same amount of money or not?
  • Any problems that occurred and also if UC has any advantages for you over the old system.
Please send your information to  Henrietta.Doyle@inclusionlondon.org.uk by 15 August at the latest.
 
You may wish to respond to the consultation directly to the inquiry. The deadline is 10am on Monday 20 August.
 
More information about the inquiry is available here
 
Involvement Lead (part-time) needed in Worthing 
 
Worthing Churches
 
 
 
 
Worthing Churches Homeless Projects (WHCP) is a multifunctional, complex needs homelessness organisation that works in Worthing, Adur, Littlehampton, Horsham and Mid Sussex. It has over 100 staff and 300 volunteers.
Its mission is to end the need to sleep rough.
 
WHCP are looking for a motivated individual with lived experience of using support services, and a passion for the value that this can bring to an organisation. The role will work in partnership with people who use WCHP services and our staff to integrate a co-produced way of working.
 
Salary £23,230 (pro rota £13,938.00 per annum)
Hours 22.5 hours per week
Closing date for vacancies: Midday on Wednesday 08 August
Interview date: Wednesday 22 August
 
For more information and how to apply, please click here
 
Join Black Thrive in Lambeth 
 
Black Thrive
Programme Delivery Director, Lambeth Black Thrive
Lambeth’s Black Thrive is seeking a Programme Director with strategic leadership, facilitation and programme management skills, who is committed to promoting race equality in mental health and wellbeing at both population and service level.
 
The successful candidate will be responsible for delivery of Lambeth’s Black Thrive vision and its core strategic objectives including ensuring that its activities are co-designed and directed at achieving the agreed programme goals.

Location: Brixton, Lambeth with some local travel
Salary: £55,000
Hours: 37.5 per week
Benefits: 26 days annual leave plus bank holidays, pension contribution
Deadline for applications: Monday 03 September 12 noon
 
For more information and how to apply , please visit this page
 
Thrive LDN campaign 
 
Thrive LDN
Thrive LDN is the summer campaign which gets Londoners talking about mental health and wellbeing.
 
Since the start of July, Thrive LDN has been:
  • asking Are We OK London? with how inequality and discrimination can negatively affect mental health and wellbeing.
  • sharing details of Right to Thrive, a ground-breaking research project (more info below)
  • using social media to share stories from Londoners who have experienced adversity and are standing up to say #WeAreLDN
  • taking to the streets to ask Londoners whether they're thriving and what the challenges are (you'll find the short videos on thriveldn Instagram)
You can learn more and take action at Thrive LDN's website and, if you haven't already, follow them on TwitterInstagram and Facebook for all the latest updates.

Why not put your own spin on the campaign graphics and messages?


Or share your own #WeAreLDN
 story?
 
National Voices are looking for trustees 
 
National VoicesAs two members of the Board are stepping down, National Voices are looking for trustees.
 
All full members of National Voices are eligible and are encouraged to nominate a representative to become a trustee. 
 
National Voices are particularly encouraging candidates who can evidence experience of one or more of the following:
  • CEO or senior manager at a small charity
  • Expertise in inequalities
  • Specialist skills such as IT, digital, communications and organisational development
For more information, please click here
 
SOLIDARITEA at the Field  
 
Article Image
Mental Health Resistance Network 
Date: Thurdday 3rd August
Time: 7pm
Join the film screening: "Hands2Mouth: Caring for claimants on Universal Credits", followed by a discussion.
 
DPAC news 
 
DPACDPAC report that international development secretary, Penny Mordaunt, has been forced to retreat from her government’s repeated claims that the UK is a “global leader in disability rights”.
 
DPAC have been protesting the Global Disability Summit 'to show the true nature of what the UK government are doing to disabled people with their austerity agenda.'
 
Article Image
Care Quality Commission (CQC) news 
 
Experts by Experience - invitation to tender now live. New contract to deliver Expert by Experience services, starting in 2019. 
 
Experts by Experience are people who have personal experience of using or caring for someone who uses services we regulate. During inspections, they speak to people using services and their family or organisations that support them. They may also observe how the service is delivered and speak to staff. Their findings are used to support the inspectors’ judgments on services and may be included in inspection reports.
 
CQC are seeking a contractor to continue the delivery of the Experts by Experience programme  enabling us to have members of the public from diverse backgrounds to take part in inspections and other aspects of our work.
 
The invitation to tender is now live and more details can be found on the website
If your organisation is interested in applying read more here.
 
Inpatient Survey results for 2017 published
 
CQC's 2017 inpatient survey reveals what over 70,000 adults are saying about their stay in hospital. They surveyed people who stayed in hospital for at least one night during July last year. Amongst other things, people were asked to give their opinions on:
  • the care they received
  • how well staff communicated with them
  • whether their privacy was respected
  • if they were supported enough to eat and drink
  • and how well their discharge from hospital was handled
CQC will use what people have told them to keep an eye on the quality of hospital services, and find out what is important to people using these services. The results will also help to spot changes in quality so future inspections can be targeted as well as help providers know where they need to improve.
 
Find out what people had to say by clicking here.
You can also view the A-Z list of inpatient survey results by NHS trust.
Keep up to date on Twitter too  #InpatientExperience
 
Get plugged in to resources direct from the Care Quality Commission
 
Did you know that the CQC sends out a monthly bulletin to all  regional stakeholders? Information includes latest publications, resources and consultations. If you’d like to be added to the distribution list for the monthly bulletin you can fill in your details here.
 
Reminder - previously shared and still relevant 
 
previously sharedYou can still help shape a new national programme on ethnic inequalities and severe mental illness in the UK (the survey closes Oct 2018) and help to improve the service and environment at Places of Safety in North West London
 
For previously shared opportunities, please visit this page
 
You can also still sign / share the petition calling for people who feel sucidal to have somewhere to go 
To sign this petition please click here
The deadline is 24 November - please share this as it has to garner 10,000 signatures to get any response at all from the government.
Banner
GOV.UK news 
 
New Mental Capacity Act (Amendment) Bill introduced
 
The Government has introduced the new Mental Capacity Act (Amendment) Bill, intended to replace DoLS following the Law Commission’s recent report. The text of the 2nd reading debate can be read and the Bill’s progress tracked here.
 
The British Institute of Human Rights wrote about the Bill on a blog here.
 
The Committee stage will begin on 5 September
 
 
Mental Health Act Review - August workshops
 
The review will be running three workshops during August to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The workshops will run from 9.30am-1pm
Reasonable expenses and adjustments can be provided for those attending in a service user or carer capacity.
Places are limited to 100 per event.
 
For more information and to register, please visit:
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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Hope and Opportunity Opening Doors

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We would like to welcome people using local services, Carers, members of the public and colleagues, to join us at an opportunity to learn, share and network. 

Hope and Opportunity
Opening Doors….

The Stanborough Centre, Watford Monday 8 October (10.00am – 4.00pm) 

The Colonnades, Hatfield Tuesday 9 October (6.00pm – 8.30pm) 

Stevenage Arts & Leisure Centre, Stevenage Wednesday 10 October (10.00am – 4.00pm) 

Wodson Sports and Leisure Centre, Ware Thursday 11 October (10.00am – 4pm)

Register your place online or call Divya on 01438 730802

https://recoveryconferencewatford.eventbrite.co.uk

https://recoveryeventhatfield.eventbrite.co.uk

https://recoveryconferencestevenage.eventbrite.co.uk

https://recoveryconferenceware.eventbrite.co.uk

View the poster here

'The lives we want to lead' - our green paper for adult social care and wellbeing

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'The lives we want to lead'

The LGA green paper for adult social care and wellbeing

Adult social care and support matters to everyone in the country but decades of failures to find a sustainable solution to how to pay for services, and the Government’s recent decision to delay its long-awaited green paper on the issue until the autumn, has prompted council leaders to take action.

The knock on effect of increased pressure on adult social care services – of which the spend for some councils accounts for over half of their core spending power– impacts on many of the services that keep our communities running in councils across the country.

Today we am writing to let you know that we have launched a nationwide consultation to kick-start a desperately-needed debate on how to pay for adult social care and rescue the services caring for older and disabled people from collapse.

Why are we undertaking a consultation?

Adult social care provides personal and practical support to people of all ages help them live the lives they want to lead. It supports people who have disabilities, mental health conditions or are generally frail, as well as their carers.

It helps bind our communities, it sustains our NHS and it provides essential economic value to our country.

But social care is facing a crisis. It has been underfunded for many years and is facing a funding gap of £3.56 billion by 2024/25. Plugging this gap would just keep services standing still and does not include any funding needed to improve services. The longer-term remains just as insecure. It is time to come together and make case that investment in social care and support for people who need it helps them to reach their, and in turn our country’s, full potential.

Why your views are important?

We are all likely to be touched by social care at some point in our lives, whether that be ourselves or our friends and families. It’s therefore essential that everyone has a say in what the future of social care should look like and how we should pay for it.

We want to start a  nationwide debate about how best to fund the care we want in all our communities for adults of all ages - and how social care, the NHS and other public services can work together to support and improving people’s wellbeing.

This is our chance to put social care right at the very heart of the Government’s thinking.

Read the green paper

We will reflect on what we’re told through our consultation in a further publication later in the autumn.

Support us

Many of you have played a crucial role in helping us pull together this important piece of work, so thank you for all your contributions. We’d be very grateful if as many councils and stakeholders as possible could promote the green paper by sharing it on Twitter and elsewhere with the hashtag #FutureofASC. If you’d rather create your own content you can find resources, including suggested tweets and images, in our toolkit. 

Contact us  
18 Smith Square
Westminster
London, SW1P 3HZ

Email: news@local.gov.uk
Telephone: 020 7664 3000
Fax: 020 7664 3030

Could you help us write a course about pain?

New Leaf Logo.jpg

New Leaf Wellbeing College is planning to write a course about living with pain. If you live, or have lived, with pain and have developed strategies to manage we would like to hear from you! We are looking for 2 students to join us at a co-production meeting on Wednesday 8th August at 2pm-5pm at Hertfordshire Partnership NHS Trust offices in St Albans. You can be reimbursed for your time if you wish.

If you are able to commit to the co-production meeting please let us know. If more than 2 students nominate themselves we will draw names from a hat and notify the students drawn.

New Leaf Wellbeing College
Office: 01442 864966
www.newleafcollege.co.uk

Autumn term is open for booking at www.newleafcollege.co.uk/Courses New for this term are Wellbeing & creativity, Self-compassion for everyday life, Five steps to wellbeing and Introduction to addiction & recovery

NSUN Bulletin 30th July 2018

NSUN Bulletin Monday 30 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 30 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 30 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
#NSUNthrive10 campaign a success!
 
We would like to take the opportunity to thank all of the people who have donated to the #NSUNthrive campaign that we launched two years ago. There has been an overwhelming response to our letter to members in February that warned of possible closure if funds were not secured. 
 
Our target was to raise £10,000 to celebrate 10 years since the 'Doing It For Ourselves' conference that launched the idea of NSUN. We exceeded our target and have raised over £16,000 via our Total Giving site
 
The donations will contribute to the continuation of the weekly ebulletin,  facilitation of and support for user and survivor led initiatives and the Survivor Researcher Network.
 
Other fundraising efforts have secured core fundig for this year and we are currently working on funding applications for 2019 and beyond.
 
Thank you again for all of your support! 
 
 
recovery space
The Money and Mental Health Policy Institute Recovery Space Campaign.
'campaigning for people experiencing a mental health crisis to be able to benefit from the proposed new ‘breathing space’ debt respite scheme’
 
NSUN was one of 23 national charities that supported the campaign.
 
You can find out about their recent research and call for action on the need for essential services like, banks, energy companies or internet providers to cater for those who have mental health problems here.
 
NSUN contributes to submission into CCG development
NSUN, along with other organisations and groups, has contributed to Submission into the development of North West London (NWL) Clinical Commissioning Groups (CCGs) 2018 Equality Objectives (EO).
You can download the submission in PDF here
 
Alternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act.
 
Please click here for more information
 
Reigniting the SpaceReigniting the Space project steering group- recruitment 
 
The steering group has nine positions, six of which have been filled. 
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East. 
 
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Please see Role Description for further details. To apply, please fill in the Application Form.
 
Closing date for applications: 12 noon, Friday 10 August 2018
Interviews: mid-August
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
jasna russoHow should we redirect research on psychiatric drugs? #PsychDrugDebate
Alison Faulkner analyses a paper by Jasna Russo, an independent survivor researcher based in Germany.

“Where I End And You Begin” #PsychDrugDebate
A personal commentary by Sarah Carr on Russo’s ‘Through the eyes of the observed’
 
Some of you may already know some of Jasna Russo's work. She co-edited 'Searching for a Rose Garden'
 
Jasna's Through the eyes of the observed: re-directing research on psychiatric drugs was launched last week and can be downloaded here, alongside other McPin Talking Point Papers.
 
Mental Health Policy Commission launches report 
 
Birmingham Uni
NSUN's Emma Ormerod submitted evidence to the Mental Health Policy Commission’s Call for Evidence, her input helped to shape the report.

The Commission launched “Investing in a Resilient Generation: Keys to a Mentally Prosperous Nation” in Westminster earlier this month.

You will find a copy of the report here 
For more information on the Commission and to watch a short animation about our recommendations, please visit this page
 
Plans for a free volunteer advocacy training course 
 
Mental health Advocacy training plannedNSUN member Wendy Micklewright is thinking of setting up a free volunteer advocacy training course, similar to one she attended years ago, which really helped her.
 
Wendy is considering the Richmond Library Space as location.
 
Before she embarks on working on the course, Wendy would like to know if you'd be interested in attending.
 
To let her know, please email Wendy
 
User Led Organisations (ULO) project in Hampshire 
 
ULO project HampshireDo you want to set up new groups? 
Are you...
  • A User Led Organisation
  • A Community group
  • An individual
This project works across Hampshire and provides:
  • Advice and guidance
  • Supporting and mentoring
  • Support and training
  • Helping groups to network and exchange ideas, experience and expertise
  • Signposting
  • Help with organising events
For more information please click here
 
The Dragon Cafe: Last Monday before summer break 
 
Article Image
Monday 30th July will be the last session before the Annual Break.
 
The programme Movement and Singing Together will include movement of body and voice, a local stroll with Jane in Walking-Works at 2 pm and then later try some Pilates at 5 pm.  Vivien will be leading Singing-Works at 1 pm and then in the evening will be Open Mic into the back room and leading into a Karaoke Party to end the month, and Dragon Season before our Annual Break in August. 
 
Find out more about the programme here.

The Dragon Café Annual Break: the Café will be closed until Monday 3rd September 2018. 
 
Closing date tomorrow for Service User Support/Carer Project Worker Post 
 
Article Image
North London Social Work Teaching Partnership (NLSWTP) is funding a Service User Support/Carer Project Worker Post.
£31,210 a year
 
This role will be responsible for assisting Middlesex University’s long-standing service user representation group, involve@mdx, in increasing their membership of service users/carers and in coordinating service user involvement across the North London Social Work Teaching Partnership (NLSWTP) and the Department of Mental Health and Social Work at Middlesex University. 
 
Find out more here.
The closing date for applications: Tuesday 31 July 2018.
 
Job opportunity at Rethink (Vauxhall London) 
 
RethinkSenior Children & Young People's Officer
 
Closing date: 01/08/2018
Salary (pro rata): £28,088 to £30,265 (Plus Inner London Weighting £3,285)
Hours: 37.5
Location: Vauxhall, London (you will be employed by Rethink Mental Illness)
Contract : Fixed term until March 2020
 
If you have experience of
  • project management
  • training young people
  • online commnunications design / delivery
  • understanding of the child and adolescent mental health system 
Then take a look here for a role description and how to apply.
 
PAID Peer Mentor and Peer Support roles 
 
Advocacy project
The Advocacy Project in Hackney is looking for Mental Health Peer Mentors:
  • Are you over 18 and live in either Hackney or City of London?
  • Have you experienced mental illness?
  • Would you like to provide practical and emotional support for someone who has also experienced mental distress?
  • Do you want to empower people and support them to have a voice?
The Advocacy Project is also looking for people who would like emotional and practical support from a mentor.

For more details please contact Sophie Hudson by email sophie@advocacyproject.org.uk or telephone 07934298719
 
Second Step is a mental health charity in the South West offering housing, support and hope to thousands of people with mental health and other problems..
Peer Support Worker
Hours: 37 hours per week
Salary: £20,572 to £22,488
Location: The Greenway Centre, Southmead, Bristol
The candidate will work collaboratively with the service user and mental health professionals to navigate and coordinate services, both social and clinical interventions, into community resources building resilience and improving wellbeing.
Closing date: Open ended
Email admin@second-step.co.uk or telephone 0117 909 6630
 
Berkshire Healthcare Foundation Trust has successfully been awarded the contract to deliver Liaison & Diversion Services across the Thames Valley. As part of this contract we are required to create a co-produced peer support service made up in part of those who have the lived experience of criminaljustice
Salary: £33,222 to £43,041 per annum
Closing Date: 02/08/2018
For further information contact Joseph Franks, telephone 01189551243, email Joseph.Franks@berkshire.nhs.uk
 
Peer Support Workers Salary: £17,787 - £20,448 per annum pro rata for part time Fixed Term Contract to December 2019
Part time: There is flexibility in relation to number of hours per week.
Salary: £17,787 - £20,448 per annum pro rata for part time
Closing date: 09/08/2018
For further information about the role or if you are unable to apply online / require support to apply for these posts, please contact Neville Drysdale on 07866 791004 or Raza Ahmed on 07794 193654
 
Early Intervention in Psychosis Network (EIPN): Peer Review team recruitment 
 
Article Image
 
 
 
 
The Early Intervention in Psychosis Network (EIPN) is currently looking for service users and carer representatives for their peer-review teams.
 
Payment: £100 per full day and £50 per half day. The project will cover reasonable travel/accomodation expenses within the RCPsych policy.
 
EIPN is a quality improvement and accreditation project that works with early intervention in psychosis (EIP) services all around the UK. The views, ideas, skills and experience of people who have used EIP services are vital for our quality improvement work.
 
EIPN takes EIP teams through a supportive process of self- and peer-review to assess how the service is performing against an agreed set of quality standards. The self-review involves completion of a team checklist and gathering of feedback from service users, family, friends and carers, partner agencies and EIP staff. The peer-review visit takes place over a whole day and involves verifying the self-review data, considering the service in its unique context and exchanging information about best practice. EIP teams taking part in the EIPN are encouraged to use the results of their self- and peer-reviews to improve the care and support they provide to patients and carers. 
 
Visit the website information about the Early Intervention in Psychosis Network. 
 
For informal enquiries and to obtain an application pack, please contact the EIPN project team on EIPN@rcpsych.ac.uk.
 
Help shape a new national research programme on ethnic inequalities and severe mental illness in the UK 
 
synergi
The first national online survey of its kind to give members of the public the opportunity to set the research priorities in the field of ethnic inequalities and severe mental illness has just been launched. 
 
Led by the Synergi Collaborative Centre, the national public survey will shape the centre’s future work programme, facilitate the creation of research strategies to tackle mental health inequalities and help launch a national campaign to transform health systems.
 
Reflective of Synergi’s co-production of knowledge approach, the 15-minute survey aims to secure the opinions of a wide cross section of the publicincluding patients, carers, health and social care practitioners, commissioners, NGOs, volunteers and students.
 
The survey is being launched against a backdrop of longstanding ethnic inequalities, including the fact that compared to the majority population, a diagnosis of schizophrenia is five to six times more likely in Black African people and Black Caribbean people, and nearly three times more likely in South Asian people. As for detention rates among the civil population, Black Caribbean people and Black African people are three times more likely to be detained.
 
Open to the public until 10 October 2018, the survey covers a wide range of topics that accommodate intersectionality, the criminal justice system, housing, education, homelessness, health services, racism and commissioning.
 
The main findings will be shared with policymakers, research institutions and commissioners, and will be made available to the public from November 2018. 
 
Click here for the official link to the National Public Survey on Ethnic Inequalities and Severe Mental Illness.
 
Places of Safety Lived Experience Research 
 
Article Image
 
Please help to improve the service and environment at Places of Safety in North West London
 
 
The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).
 
The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care. At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.
 
We need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.
 
What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org
Here is the link to take the survey online:
 
Petition: fund facilities for people who feel suicidal 
 
portcullisFund facilities for people who feel suicidal so they always have somewhere to go

Often people who feel suicidal are discharged from mental health services, against their will. This can gravely increase the risk to their lives and causes needless deaths. No one who feels suicidal and asks for help should be turned away.
 
To sign this petition please click here
 
The deadline is 24 November - please share this as it has to garner 10,000 signatures to get any response at all from the government.
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
Banner
GOV.UK news
 
Mental Health Act Review - August workshops
 
The review will be running three workshops during August to engage with mixed audiences on the review’s thinking so far, on potential options for change and on what those options might result in for service users and professionals.
 
The feedback gathered from attendees will help inform the review’s final recommendations that will be published later in the year. The review’s aim is to bring together interested parties of all types, but we are particularly committed to capturing the views and expertise of service users, carers and professionals with direct experience of the Mental Health Act.

The workshops will run from 9.30am-1pm
Reasonable expenses and adjustments can be provided for those attending in a service user or carer capacity.
Places are limited to 100 per event.
 
For more information and to register, please visit:
People with hidden disabilities to benefit from Blue Badges 
People with hidden disabilities, including autism and mental health conditions will soon have access to Blue Badges, removing the barriers many face to travel. The changes follow an 8-week consultation and are part of the government’s drive for greater parity between physical and mental health conditions. Read more here.
 
 
Health Secretary news
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

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Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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Autumn term is now live for booking - New Leaf College

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Our autumn timetable is now live and open for booking your FREE places at www.newleafcollege.co.uk/Courses

New this term are Introduction to addictions & recovery, Self-compassion for everyday life, Five steps to wellbeing and Wellbeing & creativity.

We look forward to seeing you next term!

New Leaf Wellbeing College
Office: 01442 864966
www.newleafcollege.co.uk

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Spectrum Quarterly Briefing July 2018

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Updates on news, events and all the goings-on at Spectrum cgl. 

Charlie's Story: Stevenage Service User Rep

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Charlie first came to us 5 years ago looking for help with his drinking. Through persistence and a dogged commitment to working through the Foundations of Recovery programme he is now 1 year into recovery as of June this year! 

He is now using that drive and experience to represent the views of Stevenage service users in local and county wide forums and lend peer support to anyone walking through those doors for the first time. 

Read the full story here

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Watford welcomes visitors to their annual open day

We're very grateful to have had so much interest in our service's open house event this year.

30 people attended from various public and professional services across the Three Rivers and Dacorum areas and had the opportunity to learn more about what our dedicated team do to help tackle substance misuse on the West side of the county.

For anyone who missed the chance they can download a short presentation and find details of the 2 events we're holding this year in Stevenage and Hatfield here

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If you read our previous issue of this newsletter, you will know we're immensely proud of our volunteers and peer mentors and always want them to progress further with us. 

We want to say a massive THANK YOU to all of our Volunteers and Peer Mentors this year, who have supported our teams to do their jobs that much more effectively, spending their precious time working with service users, doing front-of-house and much more besides.

View our latest volunteer role here.
 

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Professors Schifano and Gurguis present on NPS use and Gabapentin risks - June 5th 2018

This year's CPD training for GPs offering shared care services featured two very special guests: our very own Professor Fabrizio Schifano (Consultant Psychiatrist at Spectrum) and the University of Hertfordshire's Dr Amira Guirguis (Pharmacist, Researcher & Lecturer). 

They gave talks on the associated risk of Gabapentin/ Pregabalin use and on multi-use of Novel Psychoactive Substances (formerly 'Legal Highs') with a particular focus on the distribution of NPS, the infiltration of fentanyl in heroin supply and the 150% increase in prescribing of Gabapentin in the last 5 years. 

Click to learn more about NPS and about Gabapentenoid issues

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Worker Spotlight: Recovery Worker & LGBTQ Liaison Clara Bartoletti
Clara is a drug worker with our Watford service on Station Road and also acts as the Substance Misuse Liaison for the LGBT Clinic held at Watford town hall.  

At CGL she works primarily with opiate users, holding one-to-one psychosocial sessions and giving out harm reduction advice.

When working at the LGBT clinic, she helps to identify problematic use in patients and refer them into community treatment with us as well as giving out safer injecting information and resources and advice around Chemsex.  

She can be found at the clinic on the 4th Thursday of every month from 5.00 – 8.00pm and if you have a question about substance misuse, chemsex or getting hold of resources such as PIP PACs you can email her via  C-L.Bartoletti@cgl.org.uk

Upcoming events

We hold multiple open days, training sessions and information events throughout the year. 

Take a look at what's coming up!

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Remembrance Day July 21st

International Remembrance Day is an official day held on July 21st to remember those that have lost their lives through drugs and alcohol.

In 2015-16 there were 12,432 deaths related to drugs and alcohol. On this day we remember those we have
lost with dignity, honesty, love and celebration.

This year we are encouraging everyone in the local community to ‘Take a minute to remember’ on Friday 20th July at 11.00 a.m. Our staff and service users will be encouraged to stop what they are doing and remember people they have known through the work we do and who are no longer with us.

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Northwood HQ Families Day July 25th 2018

We're pleased to be able to once again visit Northwood HQ, this time to give out advice at their upcoming Families Day.

We want to ensure that our armed forces and their families have the same opportunity to access substance  treatment and support that the general public have.

We'll be there from 12.00 - 7.00pm. If you're there, don't be shy - come say hello!

July 28th - World Hepatitis Day Read CGL's Hepatitis C strategy here

August 31st - Overdose Awareness Day 2018

Herts Pride Saturday September 8th

This year we will return to the Health and Well being marquee for Hertfordshire Pride where our LGBTQ liaison and Key worker Clara Bartoletti will be on hand to give out specialised advice on chemsex and harm reduction. 

All September  -  Recovery Month

September 10th  -  World Suicide Prevention 2018

September 27th 2.00 - 4.00pm -  Stevenage CGL open day Book your place now!

The next issue of our Quarterly Briefing will come out on the 24th September

NSUN Bulletin 23rd July 2018

NSUN Bulletin Monday 23 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 23 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 23 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Mental Health ActAlternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act.
 
Please click here for more information
 
Reigniting the SpaceReigniting the Space project steering group- recruitement 
 
The steering group has nine positions, six of which have been filled. 
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East. 
 
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Please see Role Description for further details. To apply, please fill in the Application Form.
 
Closing date for applications: 12 noon, Friday 10th August 2018
Interviews: mid-August
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
 
Australian psychiatrist Niall McLaren lays into his profession.
 
 
Lynn Tang reflects on a friend's (un)recovery journey - 'a series of disempowerment: She was disempowered by the interaction with medical service, the side effects of the medications, the labour market and the detrimental working conditions in Hong Kong'
 
Podcast: Against your will - compulsary powers in the mental health system 
 
podcastJohn McGowan, Anne Cooke, Angela Gilchrist,  Rachel Terry and Emma Rye discuss the compulsory powers available in the mental health system in the UK These include the Mental Capacity Act and the Mental Health Act (MHA).
 
As the Prime Minister said she would like to ‘rip up’ the Mental Act, the panel also offers Theresa May advice on what to replace it with.
 
For the full podcast, please click here
 
Take part in DPAC's festival of resistance 
 
festival of resitanceDisabled People Against Cuts (DPAC) are holding a festival of resitance 'highlighting the hypocricy of the UK and Kenyan governments hosting a Global Disability Summit'.
 
For more information, please click here
 
Mental health peer mentors needed in Hackney 
 
Advocacy project
The Advocacy Project is looking for Mental Health Peer Mentors:

Are you over 18 and live in either Hackney or City of London?
Have you experienced mental illness?

Would you like to provide practical and emotional support for someone who has also experienced mental illness?

Do you want to empower people and support them to have a voice?

The Advocacy Project is also looking for people who would like emotional and practical support from a mentor.

Please contact Sophie Hudson for more details:
sophie@advocacyproject.org.uk
07934298719
 
Mental health in schools conference 
 
Westminster insights
The Government Green Paper on children and young people’s mental health provision proposed changes to the way children and young people’s mental health is managed in schools.
 
Led by Dean Johnstone, CEO at Minds Ahead, the conference will examine how schools can collaborate with the NHS, voluntary sector and local authorities to improve the provision, commission and delivery of services.
 
Date: 16 October
Time: 09:20am - 03:30pm
Venue: Central London
Booking: please click here
Agenda: please click here
 
You will receive practical advice about implementing different models of mental health provision in schools including mental health and school link services, peer-to-peer support, in-school counselling and ‘whole-school’ approaches. Learn how to overcome stigma by teaching pupils, staff and parents about mental health awarenes.
 
The organisers can offer 20% off the standard delegate rate, however if you book two places or more on any event, they can increase that discount to 30%. In the “promotional code” section of the booking form, use the code MHSCZO-2863055 to receive 20%, and the code MHSCEO-2863055 for 30%.
 
Service User Support/Carer Project Worker  
 
Middlesex university
 
 
 
 
 
 
 
This role will be responsible for assisting Middlesex University’s long-standing service user representation group, involve@mdx. The role will help increase the membership of service users/carers and coordinate service user involvement across the North London Social Work Teaching Partnership (NLSWTP) and the Department of Mental Health and Social Work at Middlesex University.
 
Location: Hendon
Starting Salary: £31,210 per annum pro rata
Grade: Grade 6
Contract Type: Fixed Term - 12 months
Hours per Week: 21.3
Closing Date: Tuesday 31 July 2018
 
The role will be based at Middlesex University and the post holder will be employed by Middlesex University.
 
The post will require travel across the NLSWTP organisations for meetings.
For more information and how to apply please click here
 
Dissemination event for Exploring the Service User Experience of Mental Health Act Assessments study 
 
Event in Hampshire
Mental Health Act assessments are a little spoken about experience within mental health.
 
This is the first study to ask service users about their experiences and they told us so many different insights and improvements to this process.
 
This event aims to share their good and bad experience and then to explore how these experience could be improved

Date: Monday 10th September
Time: 1-5pm
Venue:Wells Place Centre, Wells Place Eastleigh, SO50 5J
Cost: free

For more information and booking please click here
 
Selby District mental health forum launches 
 
Selby forumFollowing the successful programme of conferences hosted by Selby District Council in 2016/17, Brighter Futures are really pleased to announce the launch of the Selby District Mental Health Forum.

During the conferences, the idea of a mental health forum emerged as a key aim for the future. Therefore, Brighter Futures are excited to be able to invite you to the official launch of the forum in July. This service user led forum, jointly funded by Selby District Council and Selby Big Local and delivered by Brighter Futures will provide the following:

  • a service user led forum for supporting and developing the delivery of mental health services across Selby District
  • a consultation service for statutory providers such as the NHS for developing the strategic direction of mental health services in the district
  • a core hub for promotion, discussion and sharing of information regarding mental health service provision within Selby District

Date: 24 July
Time: 4:30 - 6pm
Venue: The Studio, Selby Town Hall, York Street, Selby.

For more information you can email sdmhf@brighterfutures.org.uk
 
Places of safety lived experience research 
 
NWL
Please help to improve the service and environment at Places of Safety in North West London

The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).

The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care.
 
At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.

Researchers need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.

What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org

You can take the survey online here
 
Petition: fund facilities for people who feel suicidal 
 
portcullisFund facilities for people who feel suicidal so they always have somewhere to go

Often people who feel suicidal are discharged from mental health services, against their will. This can gravely increase the risk to their lives and causes needless deaths. No one who feels suicidal and asks for help should be turned away.
 
To sign this petition please click here
 
The deadline is 24 November - please share this as it has to garner 10 000 signatures to get any response at all from the government.
 
Call for participants for BBC Radio 4 documentary series on delusions 
 
Article Image
Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
 
This will be for a documentary series for BBC Radio 4. 
 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 2-4 weeks.
 
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
 
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
 
 
Banner
GOV.UK news 
 
Mental health education to be made compulsory in UK schools
 
Under government proposals, health education (including mental health), will be a mandatory part of the curriculum for all primary and secondary schools. Read more here
 
 
LGBT survey results and action plan
 
In July 2017, the Government launched a survey to gather more information about the experiences of LGBT people in the UK. Over 108,000 people participated, making it the largest national survey of LGBT people in the world to date.
 
This report looks at the headline findings, which focus on the experiences of LGBT people in the areas of safety, health, education and the workplace.
 
The Government has published an Action Plan that sets out what steps it will take in response to the findings of the survey.
 
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
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Number of NHS beds for mental health patients slumps by 30%

Bed shortages in parts of England are so severe that patients are sometimes sent hundreds of miles from home.

The number of hospital beds for people with acute mental health conditions, where a consultant psychiatrist is on hand to oversee treatment, has fallen by almost 30% since 2009 despite repeated claims by ministers that improving care for the mentally ill is now a top priority.

New official figures show that the number of beds for those with some of the most serious conditions – including psychosis, serious depression leading to suicidal feelings and eating disorders – has fallen from 26,448 in 2009 to 18,082 in the first quarter of this year.

Read the full article here:

https://www.theguardian.com/society/2018/jul/21/nhs-beds-number-mental-health-patients-falls

Free activities and prizes to be won – LAST CHANCE to register!

Hertfordshire Health Wellbeing.png
Active T Shirt.jpg

Time is running out!
Visit www.hertfordshire.gov.uk/nevertoolate or call HertsHelp on 0300 123 4044 before 15 July 2018 to sign up.

FREE activity pass
FREE activity pass (and free hot drink in some districts) for you and a friend to help you try new local activities.

FREE guided walks
FREE guided walks across Hertfordshire every week for all levels and abilities.

FREE activity planner!
FREE activity planner to help you develop a regular routine and build up activity gradually.

FREE personalised support
Friendly advisers on the other end of a phone to help you find the right activity. Just call 0300 123 4044 or email info@hertshelp.net

Ipad.jpg

Win an iPad or FitBit
Complete a simple follow up survey to enter into a prize draw for an iPad, FitBit or clothing vouchers.

 

Laurie’s story
Read 83 year old Laurie Kerr’s story to find out why his motto is: “Instead of waiting for the NHS to light the lamp at the end of the tunnel, go down there and light it yourself!” http://bit.ly/2KYG6Sf

Malcolm and Sandra’s story
Find out how Malcolm and Sandra White took up bowls in later life and have improved their fitness and social life as a result! http://bit.ly/2ucLScT

Over 3000 sign ups so far!
Watch a short film of the fantastic Daily Mile events held at primary schools across the county to launch the campaign

Prizes for schools too
Read how one lucky local primary school won £1000 through the campaign.

What’s your reason to sign up?

“I want to take part in healthy activities but don't have the willpower and need a bit of a helping hand."

"I get lonely on my own but I think that getting out to take part in a social activity would improve my physical and mental health.”

"I'd like to improve my fitness before I get into bad habits.”

“I'd like to begin making regular exercise a way of life. I’m kept busy looking after grandchildren so it’s more important than ever to be more healthy.”

Active Posters.jpg

You can also sign up to email updates on a variety of other topics on our website.

NSUN Bulletin 16th July 2018

NSUN Bulletin Tuesday 17 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Tuesday 17 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 17 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Mental Health ActAlternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

Dorothy Gould is still taking suggestions as part of her work for the Independent Review of the Mental Health Act.
 
Please click here for more information
 
Reigniting the SpaceReigniting the Space steering group- recruitement is going on for Yorkshire & Humber, East Midlands and the North East.
 
We are thrilled to announce the steering group who will advise and support The Reigniting the Space project to rebuild a national platform for the collective voice of mental health service users and survivors from black and minority ethnic communities.
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
Mad In AsiaMad in Asia: Towards Multiple Narratives for Inclusion
Jayasree Kalathil and Jhilmil Breckenridge introduce Mad In Asia, a platform which launched online this week.
 
The not so secret life of the manic depressive, ten years on - and how it might have been
Nicky Hayward is a regular contributor, mental health activist and independent commentator.
This is Nicky's take on Stephen Fry's programme 'The not so secret life of the manic depressive, ten years on', which aired on BBC One in February 2016.
blog re-published as part of our journey re-discovering older contributions.
 
Disability News Service needs your help 
 
Disability News Service needs help
Run by disabled journalist John Prings, DNS was the first to report, in 2014, that the UK had become the first country to face a high-level inquiry by the UN’s committee on the rights of persons with disabilities into allegations of “grave or systemic violations” of the rights of disabled people.
 
DNS needs financial support to continue its excellent work.
 
John Prings says: 'Please note that this is not aimed at those who are struggling financially. Please do not contribute if you cannot easily afford to do so. But if you can, your support might allow DNS to continue well into its second decade'

To read more about DNS's 9 years of reporting and to donate, please click here
 
Race equality groups seek big changes to the Mental Health Act 
 
Race equalityA submission from Race on the Agenda and the Race Equality Foundation to the review by Sir Simon Wesseley, set up by Theresa May to look into why so many black Afro Caribbean people were being detained in mental hospitals and the need for changes to the Act.
 
It also comes against a disturbing background of deaths of black people in police custody.
 
To read the submission to the enquiry and main proposals, please click here
 
Documentary on post SSRI sexual dysfunction 
 
PSSDPSSD - Secrets of Mental Health is a student documentary which was made to raise awareness about post SSRI sexual dysfunction.
 
You can watch the documentary on YouTube here
 
Digest of research into the mental health of prisoners 
 
prisoners mental healthAround the world, more people than ever are locked up in prisons – estimated to be in excess of 11 million people, up by almost 20 per cent since the turn of the millennium.
 
According to a recent House of Commons Briefing Paper the rate of increase is even higher than this in the UK where prison populations are at a record high.
 
Many of these incarcerated individuals have intensifying mental health needs.
 
Ahead of next week’s meeting of the All Party Parliamentary Group for Psychology on the topic of Mental Health in the Criminal Justice System, here the British Psychological Society provides a digest of research into the mental health of prisoners.
 
Read more here
 
Devon charities get men involved in sport and mental health 
 
Real Men Talk
"Real Men Talk" is an initiative by a number of charities getting men more involved in sports as a way of working on their mental health too.
 
Some take part in football on Tuesdays, with help from the Exeter City Community Trust.
 
You can find more information here
 
Online survey projects needs Mad Pride, neurodiversity, or psychiatric survivor activists 
 
USF
Do you have lived experience of emotional distress, neurodivergence, and/or behavioral health treatment? Are you a Mad Pride, neurodiversity, or psychiatric survivor activist?
 
WHO: the project is seeking participants who have lived experience of “mental difference,” i.e. characteristics, traits, states, and phenomena that have been categorized as symptoms of mental disorders or developmental disorders, and/or lived experience of behavioral health treatment, and who have engaged in any form of advocacy.
 
WHY: To help researchers better understand how experiences of mental difference and behavioral health treatment impact activist involvement.
 
WHAT: A voluntary research study. This is an online survey lasting approximately 20-25 minutes.
Participants will be asked questions about their mental health related experiences, involvement with activism, and viewpoints on sociopolitical issues within the mental health arena.
Every 30th participant will receive a $50 gift card up to five cards.
 
HOW: Contact Emily Cutler at ecutler@mail.usf.edu, or click on this link:. The study’s protocol number is #00035052.
 
Places of safety lived experience research 
 
NWL
Please help to improve the service and environment at Places of Safety in North West London

The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).

The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care.
 
At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.

Researchers need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.

What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org

You can take the survey online here
 
Call for participants for BBC Radio 4 documentary series on delusions 
 
Article Image
Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
 
This will be for a documentary series for BBC Radio 4. 
 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 4-6 weeks.
 
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
 
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
 
Event: Exploring the Service User Experience of Mental Health Act Assessments study  
 
Article Image
Date: Monday 10th September
Time: 1-5pm
Place: Wells Place Centre, Wells Place Eastleigh, SO50 5JL
 
As part of a collaborative study, Southern Health have been interviewing people who have experienced a mental health act assessment and are in the process of writing up the study and disseminating the findings.  
 
We would like to invite anyone that is interested in this area of mental health.   
 
The event will look at what further research is needed and how to implement changes to improve people’s experience.   
 
Find out more and book here.
 
For further information contact Louise Blakley on louise.blakley@nhs.net or contact Research & Development team Tom Rudd Unit, Moorgreen Hospital, West End Southampton, SO30 3JB TEL 023 8047 5373
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
 
 
Banner
GOV.UK news 
 
Consultation: Safety and security arrangements in high security psychiatric hospitals

Seeks views on proposed changes to directions and guidance setting out minimum required standards of safety and security in high security psychiatric hospitals in England.

The consultation closes on 23 August at 11:59pm

For more information please visit this page
 
New NHS app will make it quicker and easier to access health services

The free app will be available to everyone in England in December 2018.
Read more here
 
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
Powered By
eTapestry     Delivra

NSUN Bulletin 9th July 2018

NSUN Bulletin Monday 2 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 09 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 09 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Mental Health ActAlternatives to detention/sectioning under the Mental Health Act 1983 - can you help with suggestions?

As part of her work for the Independent Review of the Mental Health Act, Dorothy Gould is trying to collect as many examples as possible of alternatives to detention/sectioning.
 
Because the Review is drawing primarily on a medical model, she would particularly like to hear of non-medical alternatives, including ones which are user-led and/or stem from black and minority ethnic groups and other particularly disadvantaged groups.
 
If you are able to help, please can you send information to her at gould.dorothy@gmail.com, using the questions below:
 
1(a) What alternative services have helped you to avoid detention/sectioning and (b) How did they help you to avoid it?
 
or 2(a) What alternatives would have helped you to avoid detention/sectioning (if available) and (b) How would they have helped you to avoid it?
 
3(a) Are there useful alternatives to detention/sectioning which you have heard about from others and (b) If, so, is there information which you can forward about these and their benefits?
 
Reigniting the SpaceReigniting the Space steering group taking shape
 
We are thrilled to announce the steering group who will advise and support The Reigniting the Space project to rebuild a national platform for the collective voice of mental health service users and survivors from black and minority ethnic communities.
 
In the first round of recruitment, we have representatives from East of England, London, North West, South East, South West and West Midlands.
 
We are in the process of recruiting more members from Yorkshire & Humber, East Midlands and the North East.
 
The steering group members have extensive connections within their regions and interest and experience of addressing intersectional issues. They will act as regional links to the project and support and advice the project manager and the researchers on the project.
 
Contact NSUN (info@nsun.org.uk)or Jayasree Kalathil (jayasree@survivor-research.com) for further information about the project and how to get involved.
 
Selected blogs 
 
 
Our challenge as citizens is not to wait patiently until we are given permission to coproduce the future of our healthcare with the NHS, but to dream of possibilities right now, says Jane McGrath.
 
 
Akiko Hart
Akiko Hart makes a plea for mental health to go outside mental health
 
A guide to empathy published by Mad in America
 
Is it time yet for another Mental Health Act?  
 
Royal College of PsychiatristsThis is a paper from a speech givenby Laydy Hale, President of the Supreme Court, at the Royal College of Psychiatrists international congress, which took place in Birmingham, 24 - 27 June 2018.
 
To read the paper, please click here
 
Places of safety lived experience research 
 
NWL
Please help to improve the service and environment at Places of Safety in North West London

The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).

The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care.
 
At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.

Researchers need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.

What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact: samantha.holmes@rethink.org

You can take the survey online here
 
Supported housing for people with mental illness under threat 
 
The Government wants cash-strapped councils to fund ‘short-term’ supported housing, which would make it much easier to cut funding and put supported housing services at risk of closing.

Around 30,000 people living with mental illness rely on these services. They offer a place to call home and prevent people from being sent far away from their loved ones and spending unnecessary time in hospital.

Rethink surveyed supported housing staff and 84% told us their service could close if the Government’s plans go ahead.
 
This is unacceptable.
 
Please take a few moments to email your MP to urge the Government to reconsider their plans by giving people the security they need to help them on the road to recovery and living well. 
 
Open Dialogue workshop with Rai Waddingham 
 
Rai WaddinghamA one day workshop to introduce the principles and practice of Open Dialogue at a special price (buy one place get one free).
 
Date: 13th July 2018
Time: 9.45am – 4.30pm
Venue: Big Shed Conferencing, 93 Commercial Square, Freemens Common, Leicester, LE2 7SR
 
For more information and to book a plce, please visit this page
 
Support Asylum's campaign to end physical restraint in Spain 
 
Asylum
#0Contenciones (zero restraints)  is a campaign to end the practice of physical restraint in Spanish psychiatric facilities.
 
Physical restraint consists in tying a person to a bed with straps across the waist, on the wrists and ankles, to impede moving freely.
 
 
The person may be tied up for hours or even days, depending on the decisions of hospital staff. 
 
 
It causes suffering, trauma and even death. 
 
Physical restraint in Spain is unregulated and often covered up.
 
It is not possible to access files explaining who is restrained, by whom, why and for how long, and least of all – how.
 
This means instances of serious injuries and fatalities go unpunished.
 
To read more about the campaign and support it, please visit this page
 
Call for participants for BBC Radio 4 documentary series on delusions 
 
Article Image
Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
 
This will be for a documentary series for BBC Radio 4. 
 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 4-6 weeks.
 
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
 
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
 
Reminder: previously shared news and events 
 
don't forget
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
 
 
Mental Health in the news 
 
The Guardian
 
'It made me depressed': how poor housing costs the NHS £1.4bn a year
With a fifth of English homes officially not decent to live in, health and housing professionals are joining forces to improve residents’ wellbeing
 
The IndependentSeni's Law
 
MPs have voted in favour of a new law to restrict the use of force against patients in mental health units, despite fears the bill might be blocked by Tory backbenchers.
 
BBC News
 
On the second anniversary of her daughter's death, Annette McKenzie begs for better mental health services. This is a live reporting story.
 
The Huffingdon Post
 
People Share Why They Feel Isolated
'Loneliness is one of the major causes of misery in our society.'
Banner
GOV.UK news 
 
Consultation: Safety and security arrangements in high security psychiatric hospitals

Seeks views on proposed changes to directions and guidance setting out minimum required standards of safety and security in high security psychiatric hospitals in England.

The consultation closes on 23 August at 11:59pm

For more information please visit this page
 
New NHS app will make it quicker and easier to access health services

The free app will be available to everyone in England in December 2018.
Read more here
 
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
Sharing is not endorsing

Would you like to forward this email to a friend? Click here.

Share This Email: Facebook Twitter Digg Myspace Linked In Delicious
 
Address postal inquiries to:
National Survivor User Network
PO BOX 74752
London
E11 9GD
Powered By
eTapestry     Delivra

Celebrating Good Care in Hertfordshire

HCC News.jpg

Good Care

In July we will be celebrating the people working in Hertfordshire's care industry, while promoting opportunities to people interested in joining them.

Activity Award

We challenged schools to get adults involved in their Daily Mile activities as part of our 'Never Too Late' campaign. Three schools chosen at random won some great prizes for their efforts.

Armed Forces Week

This week is Armed Forces Week, and a chance to show your support for the armed forces community. See what we're doing to celebrate and how you can get involved.

A Royal Visit

The Earl of Wessex made a visit to Hertfordshire this week. He was introduced to our Chairman and Director of Children's Services before meeting a range of exceptional young people.


A full list of this week's articles can be found on our news blog.

NSUN Bulletin 2nd July 2018

NSUN Bulletin Monday 2 July 2018
National Survivor User Network NSUN, network for mental health
 
NSUN Bulletin Monday 2 July 2018
Table of Contents
Dear Viewpoint
 
Welcome to the 2 July edition of our weekly ebulletin that contains lots of updates, news and views.
 
This week is National Democracy Week and kicks off today with the the 90th anniversary of the 1928 Equal Franchise Act which gave women the same voting rights as men. You view and add to some of the events happening here.
 
 
Do email us if you have any news or information that you would like included in a future bulletin. Previous bulletins can be viewed here.
 
Donations to NSUN are gratefully received for this free service.
You can donate directly here.
 
We have a variety of ways you can support NSUN, including a few that will not cost you an extra penny, such as:
 
NSUN News 
 
Fitness in Mind  '...the story so far'
 
Jackie Dawes-Price, Parliamentary Under Secretary of State at the Department of Health, joined the Fitness In Mind team in Brentwood Essex to celebrate '...the story so far'. She praised the programme for what it had achieved and emphasised the importance of partnerships to improve mental health support.
 
NSUN's Sarah Yiannoullou was also invited to the event Article Imagewhich launched the interim evaluation report 'Fitness In Mind: Change for the better'. Sarah thanked the programme for providing a 'real' alternative, with no waiting lists or drawn out assessment processes, and spoke of the power of peer support.
 
The national Fitness In Mind  was launched in May 2014, 'with the theory that peer support improves mental and social wellbeing, and encourages regular physical activity'. The Brentwood Fitness In Mind three year programme (supported by Sport England) was launched in January 2016, targeting 1900 inactive local people. The interim report clearly sets out how may people they've worked with so far (1379) through 568 sessions, 24 different sports and 10571 peer support hours.
 
You can download the report here.
Listen to the views of people involved in the programme here.
 
 
Stakeholder position statement on the NICE guideline for depression in adults
 
NSUN is one of 13 organisations who have signed up to a position statement on the NICE guideleine for depression in adults.
 
The statement calls for a proper review and a halt on publication of the guideline following the various methodological concerns raised in a first response to the draft not being addressed in the revised version. Read more here.
 
Selected blogs 
 
Peter Beresford and Mark Harrison
Mad In America:  Joanna Moncrieff responds to claims that “psychotropic medications are like all other drugs in medicine,” arguing that the ethical implications are different as we are not able to conclusively demonstrate that any psychoactive drugs have a disease-targeting action. 
 
Asylum: Dina Poursanidou 'From terror to dancing again'.
 
 
Seni's Law: Contact your MP 
 
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Friday 6 July, the Mental Health Units (Use of Force) Bill, known as Seni’s Law, faces a crucial vote.
See progress of the bill here.
 
100 MPs need to be there to vote. Make sure your MP is there. You can tweet your MP here or contact them via this form prepared by Young Minds 
 
In 2017 Olaseni Lewis (Seni) died as a result of being forcibly pinned down by 11 police officers after his family sought help when he showed signs of 'mental ill health'. Following Seni's death Steve Reed MP introduced a new law to end the use of excessive force against mental health patients, an issue that has led to a number of deaths. He has continued to campaign and gain support for Seni's Law. You can sign the petition here.
 
The Bill, if it passes, will require hospitals to publish data on how and when physical force is used, and improve oversight and training so staff are aware of the risks of unconscious bias against minority groups such as young black men with mental ill health.
 
Behind the Label: Open Dialogue Workshop – Leicester 
 
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Date: 14 July
Time: 9.45am – 4.30pm
Venue: Big Shed Conferencing, 93 Commercial Square, Freemens Common, Leicester, LE2 7SR
 
Rai Waddington is offering a one day workshop to introduce the principles and practice of Open Dialogue at a special price (buy one place get one free) to help more people access it, bringing more voices to the table.
 
Because it takes time to develop a new approach in a new area, and lots of planning and networking, the workshop will also take aspects of the approach and consider how they can be used within your existing context/role.
 
You can book your ticket at the bottom of this page, or download the OD Workshop Flyer.
 
Fees:
  • Full price: £75* (includes NHS, statutory and/or commercial agencies)
  • Reduced price: £50* (includes those who are self-funding and voluntary sector/charity organisations)
  • Concessions: £20* (this is a special rate for those unable to afford the reduced fee, intended for those who are self-funding and are unwaged, students and/or on a low wage. We ask that people only choose this if they cannot afford the €70 rate).
Special Offer*: 
To support the implementation of the approaches covered in this course, we are offering a free place for another member of your team and/or family. To be eligible for this offer you must specify the name of the person and their email address at the booking stage. To help ensure that these places are used effectively, unused spaces will be subject to a £25 administration fee.
 
 
Call for participants for BBC Radio 4 documentary series on delusions 
 
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Are you someone who would be happy to volunteer to talk about their experiences of delusional beliefs?
 
This will be for a documentary series for BBC Radio 4. 
 
A key aim of the programmes is to help listeners understand people’s experience of delusional ideas and why they happen. Your real name would not be used, unless you would like it to be. Interviews will take place over the next 4-6 weeks.
 
Participants will be interviewed by Prof Daniel Freeman, a clinical psychologist from the University of Oxford. There is flexibility in where the interview takes place. For instance, it could be at your home, a place important to you related to the delusional ideas or in a place you feel most comfortable. 
 
The topic of the interview will be the experience of having delusional thoughts, how they arose, and what kept them going or helped reduce them. Delusional thoughts are strongly held ideas that you realise later are incorrect. 
 
For instance, it might include incorrectly thinking that:
  • You were someone very important or had exceptional abilities;
  • You were responsible for something terrible happening;
  • Your body was diseased or rotting;
  • You were dead;
  • Loved ones were replaced by imposters;
  • A conspiracy of people were against you;
  • The newspapers, television, or adverts were sending messages to you;
  • Your partner was having an affair behind your back;
  • Someone was in love with you;
  • People were reading your mind;
  • You had an unusual relationship with god, the devil, or religion;
  • Or that your body was controlled by other people.
If you are potentially interested in taking part then please send an email to:
Daniel Freeman (Daniel.freeman@psych.ox.ac.uk) or 
Victoria Shepherd (victoriaruthshepherd@gmail.com)
 
You could also call Daniel Freeman on 01865 613109 to discuss the potential for you to take part in the series.They cannot interview everyone who contacts them but are able to have a conversation with you about participating.
 
Sustainable and effective voluntary, community and social enterprise organisations in health and care: an action plan 
 
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The Joint VCSE Review (2016) consultation described a constant battle between for community organisations, charities and social enterprises between the missions set by their communities, and their need to chase funding priorities set elsewhere.
 
This gap between the agreed national vision and the local reality remains the biggest challenge facing VCSE organisations, and a key challenge to implementing the Care Act, the Public Health Framework and the Five Year Forward View. It is the challenge the Joint VCSE Review recommendations were designed to bridge.
 
The 28 of the recommendations from the 2016 review, described how to make two system shifts.
  1. The shift towards co-designing health and care systems with citizens and communities, through working with community-rooted organisations which can reach and engage citizens from all parts of local communities.
  1. A bigger, strategically-resourced role for those VCSE services which demonstrate they can provide support which thinks and acts whole-person, whole-family and whole-community.
Two years after the original report, there is a relaunch with a focus on those actions which feel most relevant and most impactfu. The Joint VCSE Review’s oversight group has proposed three sets of three recommendations for local and national health and care systems and their VCSE partners. These nine recommendations, which re-frame the Joint VCSE Review’s original 28, and draw on the extensive consultation undertaken by the review, are intended to prompt local and national action.  They will form an action plan for the Health and Wellbeing Alliance (HW Alliance) to champion with the wider sector and with government.  
 
The HW Alliance was established to give NHS England, Public Health England and the Department of Health and Social Care access to VCSE co-design partners which collectively reach thousands of local groups. NSUN is currently a member of the HW Alliance through the Win-Win Alliance and the Mental Heaqlth Consortium.
 
The nine recommendations have been launched and contributions are being sought from the VCSE sector, local government, the NHS and citizens, through three questions.
 
You can submit responses through this survey by 6th July.
 
Places of Safety Lived Experience Research 
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Please help to improve the service and environment at Places of Safety in North West London
 
The NHS is planning improvements to the service and environment at Places of Safety across the eight North West London boroughs (Brent, Ealing, Hammersmith & Fulham, Harrow, Hillingdon, Hounslow, Kensington & Chelsea and Westminster).
 
The police can use the law (sections 136/135 of the Mental Health Act) to take people from a public/private place to a Place of Safety if they seem to be unwell and in need of care. At the Place of Safety mental health staff can assess a person’s needs and work out the best next steps for them.
 
We need to know from people with direct experience of Places of Safety (s136/5) in North West London what they think is most important to meet people’s needs in future.
 
What can you do?
  • If you have direct experience please consider giving your time to take the survey (below).
  • If you know someone with this experience, please let them know about the survey.
  • If you would like to arrange to take the survey in a person-to-person meeting or over the phone, please contact Samantha Holmes.
Here is the link to take the survey online.
 
MSc Mental Health Recovery and Social Inclusion course 
 
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MSc Mental Health Recovery and Social Inclusion (Online) and scholarship opportunities now available for September.
 
The University of Hertfordshire's  two year part-time online course will provide you with the knowledge and skills to make a difference to the recovery and social inclusion of people experiencing mental distress.
 
With this 100% online Master's degree you will benefit from:
  • An innovative course developed by experienced practitioners, academics and service providers with an international perspective on recovery and social inclusion issues.
  • Obtaining the knowledge and skills to make a difference in the social inclusion and recovery of people experiencing mental distress.
  • Being able to study part-time to fit your studies around work and life commitments.
  • Our flexible payment plan.
They have two scholarships available to cover all the MSc fees for applicants with lived experience of mental illness, for the September 2018 intake.
 
Visit the website to find out more and how to apply for a scholarship.
If you’d like to know more about studying with us, please do get in touch.
 
Surrey and Borders area forums 
 
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Do you use any of the Trust's services?
Do you care for someone who uses our service?
 
A Forum of Carers and people who Surrey and Borders Partnership NHS Foundation Trust services. One way of having your say about the way they do things and helping them improve services.
 
Some of the things FoCUS has achieved are:
  • Improvements to the STEPPS therapy programme and development of parallel training for carers to improve their understanding
  • Working with staff to develop a new CMHRS discharge leaflet
  • Issues raised regarding discharge from CMHRS prompted the Trust to undertake an audit checking compliance with standards for discharge
  • Involvement in developing Single Point of Access for people in a crisis
  • Fed back on accessible information policy, welcome packs, appointment letters and the smoking policy
  • Raised accessibility issues at Farnham Road Hospital
You can add as many paragraphs and as much content to each as you want, but try to keep your stories to a manageable size to keep your readers engaged. When appropriate, create links to your website or any other related websites to increase traffic and awareness.
 
Find out how to join and where the local area groups meet here.
 
Epsom Mental Health and Wellbeing Festival  
 
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This years Epsom Mental Health and Wellbeing Festival will be held on 6-14th October. Here's the event poster for your information.

Following on from the success of last years competition here is the flyer for this year competition and the subject is 'New Beginnings'. 
Entries will need to be submitted by Friday September 30th.
More information can be found on the Love Me Love My Mind website.

Clare Knight, is walking 140 miles along the Cornwall Coast in aid of the charity. If you would to read about this challenge and to sponsor Clare please click the link.

The next planning meeting for this year's Festival is on Monday 9th July at 12 noon at St Barnabas and all are welcome.
 
Reminder: previously shared news and events 
 
don't forget
Jobs and involvement opportunities
Pease bookmark this page for jobs and involvement opportunities that have been shared in previous bulletins and ae still 
 
Nominations still open for the Marsh Awards
The awards recognise excellence in mental health peer support. You can nominate until 31 July.
 
User-led mental health app needs your input
Mental Snapp, a user led mental health app, is doing some research on user preferences to co-design their marketing. It would be great if you could take part in this 60 second survey and leave your email address for a chance to take part in a research phone call - there will be a £10 Amazon voucher to thank you for your time if you get selected for the phone call. Here is the survey - don’t think about it hard, just give the team a gut reaction to these four photos. 
 
 
Mental Health in the news 
 
 
 
 
Banner
GOV.UK news 
 
NHS70: one week to go!
 
One week to go to the NHS’s 70th birthday. There’s still time to be involved. Don’t forget the Big 7Tea. For further information https://nhsbig7tea.co.uk/
A couple of suggestions for next week to promote and join in with:
  • Sainsbury’s are producing a short film on the NHS on 5th
  • Aardman Animations are producing a film to share
  • BFI (British Film Institute) are streaming ‘old films’ of the NHS
  • NHS Voices: the NHS (Lewisham and Greenwich) Choir are working with ITV and a number of celebrities to launch a single – With a little help from my friends – with profits going to NHS Charities Together. The single will be realised on 6th July with a Big NHS Singalong Live taking place on 4 July. The hope is to break the world record for a mass sing along.
On the morning of 5th July there will be a ‘thunderclap’. More details on this and above events when and as I receive them.
 
NHS England children's services consultation
 
NHS England has launched a 60 day formal public consultation to seek feedback on a new specification for CAMHS Tier 4 children’s services. Webinars to discuss the proposals will take place on the 4th & 17th of July. They are seeking views on these proposals from patients, carers, members of the public, clinicians and anyone else who may have an interest in CAMHS tier 4 services.
 
A fresh look at Friends and Family Test
 
NHS England is carrying out a project to improve some areas of the way the Friends and Family Test (FFT) works across the country. The work will result in publications of refreshed FFT Guidance by April 2019.
 
The ambition is to ensure the FFT can be a more effective tool in gathering patient feedback that helps to drive local improvements in healthcare services.
It is more than three years since the two-year rollout of the FFT across NHS-funded services was completed. Since then patients have consistently been contributing about 1.2 million pieces of feedback every month, demonstrating the appetite of members of the public to tell staff what they are doing well and where improvements can be made, particularly where they give comments on their experience in addition to their rating.  
 
During the project, there are opportunities for healthcare professionals, commissioners and FFT suppliers to be involved in working groups and we also welcome views from patients, voluntary organisations and representative bodies. If you want to put forward any views on the work, you can contact the project team at england.insight-queries@nhs.net. Please clearly mark you email title “FFT project”. There's a new web page about the project and monthly email updates.  To sign up for these, please register at the email address above, using the email title “FFT Update”.
Disclaimer: Not all material included in this newsletter are generated by NSUN. Where possible we try to share materials which reflect the diversity (geographical and other) of an entire national network. We welcome suggestions from you, so please email the editor info@nsun.org.uk
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Suicide Prevention: Boys & Men T&F Group Surveys

Just Talk.jpg

The boys and men suicide prevention action group have composed two short anonymous questionnaires to help us gain some further insight to drive our work forward:

  1. Crisis behaviour survey – https://www.surveymonkey.co.uk/r/FFVRSX2
    The aim of this survey is to help us to gain further insight into the behaviour of Hertfordshire boys (aged 11 and over) and men when they are struggling or in crisis.  We’d be grateful if partners could share this survey widely. 
  1. Website feedback survey – https://www.surveymonkey.co.uk/r/3LYBL5C
    This survey (available to be completed online or via the attached paper version) is open to any Hertfordshire based boys (aged 11 +) or men.  It asks them to look at one of our 3 key local websites to provide us with anonymous feedback.  Anyone could complete this survey, so feel free to ask family members, work colleagues, etc.

NB. Links to further support are provided at the end of both surveys.

View the paper survey here

Completed paper surveys can be sent to:

Jennifer Beer, Farnham House (postal point SFAR232) Six Hills Way, Stevenage,  SG1 2FQ